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momtofourangels
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Date Joined Apr 2010
Total Posts : 2261
   Posted 4/28/2010 11:13 AM (GMT -7)   
I called the PM dr. office yesterday to see if the drug screen was back and it wasn't.  I told the receptionist that my pain meds(Percoset) would be running out today.  She said she would talk to the dr. and she or the dr. would get back to me.  Well, she called me back and said that I had a script but I would have to pick it up.  I had a friend to take me to pick it up today.  The script is for the same Percoset but instead of three times a day, I can take them four times a day.  I was so hoping that that test would be back so I could get something stronger.  I've been in sooo much pain.  I've been in tears at times.   I wish that the lab would hurry up and get the results to my dr.  I want pain relief.  I haven't been able to do the exercises that the pt told me to do.  I'm thinking of putting that on hold until I get medications that will help my pain.  I really don't know what to do.  I've been using heat, Tiger Balm, Lidoderm cream.  The Tiger Balm helps.  It causes a cool sensation. but it's just not enough. sad I'm really upset and frustrated at this point.  I hope that everyone is having a lpd.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/28/2010 12:01 PM (GMT -7)   
Loretta,
Did you have your second PT session yet? I can't remember (can't remember much these days!). I would either call or talk with your PT about maybe putting things off a bit until you can get better pain control and see what he/she thinks. Or talk with your doc. I know if you were under a Worker's Comp or other legal case it could be viewed negatively if you put things off, but I don't think this applies to you, as far as I know. If you're like most of us, you have a limited number of PT sessions covered by insurance, and I know I hate to waste them (I don't have any insurance for PT now). So it might be worth postponing it a bit. Just a thought.

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/28/2010 12:28 PM (GMT -7)   
Loretta...

I'm sorry it's taking so long for you to get the meds you desperately need! If I were in your shoes... I'd wait on the PT exercises...until I had a bit more pain control via the meds... but that's just me. Did she give you any idea of when the test results would be back?? It's frustrating having to wait on something like this... I feel for you, definitely.

Praying that your results get there - quickly!
--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/28/2010 2:03 PM (GMT -7)   
Loretta

Have you talked to your PT therapist about your problem with doing your PT exercises because of your pain? If you could talk to your therapist and explain what meds you are on and how they are not doing enough to control your pain, and ask your PT Therapist what he/she would recommend you do, and ask if it would be of any help if they could talk to the Doctor about it? ( Sometimes Doctors will listen or act more positively if some other Doctor, or therapist or other medical person, or as in your case if Physical Therapy calls and talks to him about the difficulties your having and what they would recommend to be of help to you) I would not tell your PT Therapist that you want a more or stronger med. Just explain that what you are taking, is not helping or doing the job or whatever! But their intervention, if they chose to go that way, might be of great benefit to you! Just a thought, that you might want to consider.

Good Luck to YOU

White Beard

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/28/2010 9:26 PM (GMT -7)   
Hi!

I'm so sorry you are having to deal with such incompetence. For what we pay for medical care there is no reason you should be treated this way. This deal with drug testing taking so long is unwarranted. The actual tests, if they are urine tests, can be done in a matter of minutes and not longer than a day...from all I've read. Blood testing can take longer. And in the mean time you are in pain and it's not right.

I have a strong opinion about drug testing people who have never had a problem with medications. If you have no instanced of illicit drug use and you go to many of the PM doctors you are required to submit to testing. To me that's saying that they are assuming you are guilty with no evidence or reason to think so. I'm lucky since I've known my doctor for many years and this is a small community where he's like an old friend to everyone. Most of the people who go there and need to be on pain medications have to sign a contract but no drug testing unless they have reason to think one is necessary. It's innocent until proven guilty in that office. But since I know doc well enough, or should I say he knows me well enough, I was never asked to sign anything. That's probably not practical in large clinics but to treat you as a criminal when you've done nothing is shameful...IMHO.

Chutz
<stepping down from soapbox>
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 4/28/2010 10:10 PM (GMT -7)   
The test I had was a urine test.  I thought it would be a day or two myself.  I have never taken any illegal drugs nor have i even drank alcohol.  I've never had any problems with medications.  I've always followed the drs. directions.  I feel like a criminal although i'm not.  It makes me feel bad.    I didn't mind signing the contract at all.  I had my pcp to do drug tests on me as well to make sure i was taking the medication properly.  I don't know what the pm dr. is trying to prove.  I'm in a lot of pain still even though I took four percosets like I was prescribed.  I know I need a long acting medication.  I've been on Oxycontin and Kadian before.  I did good with those and something like Lortab for breakthrough pain.   I really don't know what to do.  I want a lot better pain control.  It's not fair for me to have to be in this much pain and going to a pm dr.  I don't see her again until June 1.  I saw her  Wednesday of last week.  She said come back in a month and they said they couldn't give me an appointment until June 1.  If you all were me, what would you do?  I need some advice.  I'm sick and tired of all this pain.  I'm not going back to physical therapy.  I'm going to call and cancel the appointment later today.  I just can't do those exercises that the physical therapist expects me to do with all this pain.
 
I'm sorry for ranting so much.  I'm so glad to have you all because you all understand what chronic pain is all about.  Not that I would wish this on my worst enemy.  I'm miserable. 
 
I hope you all are having a good sleep right now and will have a lpd after you wake up later.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/29/2010 12:34 AM (GMT -7)   
Hi Loretta...

I'm so sorry you are so miserable... but don't apologize for ranting (and you weren't ranting, anyway, by any means)... you have every reason to be frustrated... so feel free to keep venting :)

I know what you mean... I've been to many different PM clinics over the years... and never had to do this much (initially) to get a prescription. Fine, I can understand the urine test... but I would think she'd give you the needed meds ..and if something came back on your test (which we know it won't...I'm just saying) - that she would deal w/ it then. But to make you WAIT - in so much agony - until June 1st? That doesn't make ANY sense at all.

Hmmm, you asked what to do... it's a tough one. Did you already sign a PM contract? Well, regardless, I would call the office and start there. I'd probably say "I've gone "x" amount of days using this Percocet... I'm at a level 8/9 (or whatever your number is) out of 10... I can't sleep, I'm in tears, I can't function. I cannot go another 5 weeks, in this misery, until my appointment"... and see what they say. But I'd be really firm that waiting that long is NOT an option. Didn't the doc already tell you what she was going to give you? (I think it was Kadian, right?)... If they say they have no appointments... I'd ask if she would be willing to just give you enough of it to get you to your appointment (where you could just pick up a script). If you are told "there's nothing we can do"... I still wouldn't accept that...but that's just me, Loretta.. :) I'd probably just say "then WHAT do you want me to do...as I cannot go another month like this".. Period. (Of course, in a polite/respectful - but FIRM voice) :)

Anyway, I feel for you, I really do. It's so frustrating to know there's something right out there to help you - and to have all these obstacles getting in the way! Let us know what you decide to do...
--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 4/29/2010 4:08 AM (GMT -7)   
Hi Loretta,

Tina is so right!!! You have to advocate this one for yourself now! I've found a couple of times with my PM group that the messages left are not given to the dr or are given in the wrong context. The receptionist and the nurse are not the dr and, although they will be believed, you still have the right to demand to be seen when the Dr wanted to see you....not when the receptionist has decided to let you come in.

There is always the possibility of seeing another dr (NOT FOR MEDS), but someone you already see and then having them call the PM Dr to discuss your case. Please make sure they note that you are not at their office for meds, but for help in getting information to PM (if you make this choice). This would be my last choice, but one I'd make if I couldn't get help any other way.

I wish I had another suggestion, but I can't think of anything else to do right now. BTW, my UA took weeks to come back and they were using it as a base to see how well I matabolized the medicines as well as if I was taking them correctly. The readout was interesting...but wrong. They said the only med I wasn't takin correctly was my xanax (which was insane because I take it correctly every day).

Please let us know how it goes!
Retired Mom


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/29/2010 5:51 AM (GMT -7)   
Wow, when I had my drug screening it only took a few moments and they had the results, so I'm shocked to see that it's taken so long for yours
I hope you know something soon, good luck and Prayers to you..wish I knew something better to say other than that...
(((((((((((((((((((((((((((((((((((((((((((Loretta))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz, prayers and well wishes...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 4/29/2010 3:05 PM (GMT -7)   
Thank you so much everyone for the advice and support.  I haven't done anything yet because our cleaners came today and I didn't get a chance to call the dr. because they were here, and I had to let them know where I wanted certain things put.  I defenitely am going to do something tomorrow though.  I'm going to get something done one way or the other even if I have to search for another PM dr.  I am sick and tired of being treated like this.  This  pain really has me exhausted physically and emotionally.  I'm glad you all understand me.  I don't know what I would do without you guys now.  It's a good idea to call my pcp and get an appointment with her.  I just might do that if I can't get any sense out of the PM dr.
 
I got a paper today from my insurance company saying I'm approved for 16 physical therapy visits.  When I read it, I'm thinking geez this is  nice and I can't even do the exercises that the pt wanted me to do without screaming practically.  It's really crazy.  I don't know what to do about the physical therapy now.  I guess I'll go next week and see if she can help me with TENS or something.
 
I hope you're all having a lpd.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/29/2010 3:21 PM (GMT -7)   
Loretta,
I'd think about calling your PT and talking with him/her about your situation, and see if it's worth going in next week. You might have been approved for 16 visits, but I'll bet you don't have many more than 20 or so that your insurance allows each year, so you might not want to waste them. You can have the approval dates extended (or your PT can), or they may not even have dates - it might be an open authorization you can use anytime (it should say on the paper). I just know those PT sessions become valuable and can be used up quickly, especially if a PT wants you to come a couple of times a week.

I hope you can find another PM doctor if this one isn't going to do right by you. Waiting until June 1st is ridiculous, although I know some urine screens are more extensive and take longer to get back from the lab. A lot depends on the doctor's office procedures, who they send it to, how extensive it is, etc. Some doctors do more extensive testing, especially if they've had a problem with patients in the past. It's probably nothing personal to you, but I do agree it makes us feel like a criminal. I had one PM in the past who only did the high tech procedures who had me do them for the first several sessions. Never made much sense to me as he wasn't even prescribing me any meds, but I guess he wanted to make sure I was "clean" before he did the injections.

I hope you can get some help soon.

PaLady

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/29/2010 5:45 PM (GMT -7)   
Hi again Loretta!

I'm glad to see you have received so many ideas and tons of love! One thing that should help a lot is to keep a pain journal. It's a daily record of your pain level, throughout the day, and you note other things like what you were doing, time of day, if meds helped...that sort of thing. Here's a link to a free pain journal page. Just download it and print off one for each day.

www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf

THEN, when you go to any doctor take it with you and insist, politely, that they read it while you wait. I staples my pages into week long groups. You can put them in a 3 ring binder or whatever sort of system you want but do keep this going for as long as you need. This way the doctor will not only see how high, when and where your pain is, he will see that you are serious enough about this that you are willing to keep a journal. This has worked wonders for many folks and it might just work for you. If your PM's office is being jerks about getting in sooner I agree you need to get to pushing on them. Like mentioned above, ask your PCP to advocate for you. They can get you appointments the same day if they want to.

One other thought...when you were on oxy before, where was that doctor? Local or across the country? Is it possible to get records from him/her or ask them to make a call for you. I think if I were you I'd be heading to the ER the next time the pain going wild if you can't get in to see your PM. What good are they if you can't get help from constant chronic pain?

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/29/2010 10:38 PM (GMT -7)   
Loretta...

Good luck w/ dealing with all of this tomorrow... let us know what happens. Will keep praying for you!

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

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