New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 4/29/2010 11:54 PM (GMT -7)   
This came out of a conversation with a fellow CPer. Many know that I was a workaholic before recently being given thye left foot of fellowhip from the company I was with. We knew for a long time that work was a distratction for me to avoid or displace pain so I did not have to deal with it during the day. But at night when I tried to unwind, the distraction no longer masked the pain and then I would deal with sleepless nights due to the pain level. I could not take pain meds during the day because that would mean (in this wonderful company) I was a drug addict. Everything began to crumble and my PCP stated the days of masking the pain with work was over and I had to start a new med schedule which included a very large increase in pain meds. I am on the most and highest pain meds since I was injured 11 years ago.
 
Now I am trying to adjust to the increase in pain meds, no job and not knowing what someone in my condition would normally do. That does assume that people like us can respond in a normal way to the demands of CP.
 
As the meds take effect and side effects abound, I am left with the other side that I kid about. I am adjusting to being a house husband. I used to work long days and nights and it masked the pain. Now as I pace my self through the day, I can nolonger lose the pain in the smoke of workaholism. I am now trying to manage the pain properly with medication and limited activity that will not go beyond the level that my doctor and wife want me to learn to live within. Now I want to search for another distraction that will assist with masking the pain. I know many of you have activities that help you with that; FISHING, kids, crafts, gardening, reading, and many other. It probably is a very good method of therapy to indulge oneself in something that brings some level of happiness as well as a low level of stress and pain. Now I just have to find what that will be. We could put together a book of healthy distractions from pain and effects of other medical tragedies. What are your distrations?

Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 4/30/2010 1:04 AM (GMT -7)   
Hiya! I have a few distractions that I indulge in. The main one is variety puzzles - word searches, frameworks, crosswords,etc. - they really help keep my mind off of the pain. I also make beaded jewelry, keyrings, etc. - I love it! If my pain level is too high, I can't do too much of my jewelry, but I SO enjoy it!

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 4/30/2010 3:57 AM (GMT -7)   
Good morning F.J. it's so good to see you posting on the board again! Your insight into the minds of the C.P. world still amaze me! You mention a few physical activities we use as distractions to our pain. Everyone who has been here a while already knows my distractions because I blab about them all the time, but I'd like to bring up one that may not be so obvious to some here although I'm sure some see right through me!! Back in college I remember learning in Phych #101 about defence mechonisms which I believe is the right term for what I use sometimes to block the missery I feel about my life w/ c/p.
More than once my friends here on H.W. have told me that they enjoy reading my posts, that I make them laugh and take their minds off their everyday existance w/ their pain. I'm very happy when I hear that my sillyness can help others but to be honest, thats not the reason I started writing the way I do. I started making jokes at my own expence a while ago after so many good people here told me to stop belittling and bashing myself in my posts all the time which I still slip up and ocasionally still do. In so many ways I blame myself for causing all this physical pain I have today. Lets face it, unlike so many others here who experiance pain through no fault of their own, I caused most of mine through stupidity back when I was young! I have such a hard time forgiving myself for putting my family through this pain and agony with me! We all suffer because of my actions!!! So I have become the "Sad Clown" who constantly sounds as if I'm happy all the time even under advercity and just joking my way through life. I guess this is what I've evolved into as a way to hide my guilt and missery! So if my jokes and happy dimmener helps others to forget their pain for a little while, thats great but it's only a side effect for the selfish reasons I act the way I do!!!!! For this I'm sorry, I never meant to use or hurt anyone here!
So for now, I will continue to post and be silly because I don't know what else to do to hide my shame and guilt! Thank you all for always being here for me and making me feel like I belong!!!
I love you all!
Your friend>
Pete (the Sad Clown)

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/30/2010 5:53 AM (GMT -7)   
I use physical therapy on Monday as a distraction, I have an exercise bicycle, recumbent type and I do use it but some days can only manage to get a 1 and 1/2 on it without stopping...
other day more...I do take 1/2 of a pain med in the morning as I can tolerate it without it making me so tired...maybe you could volunteer somewhere...just an idea...
good luck to you...although there are a few men that do nedlework, mostly needlepoint as pulling a thread thru a canvas sometimes needs strong hands...maybe start a card game night
(((((((((((((((((((((((((((((((((((((((((FatherJohn)))))))))))))))))))))))))))))))))))))))))))))))))))
was nice seeing you in the chats last night...
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/30/2010 9:21 AM (GMT -7)   
fatherjohn


For a few years after I went on disability, I took some art classes at the junior college, one class each semester! The art classes were the only ones that didn't make you sit in a chair or at a desk for the entire class seccession. You could move around, and the Professor knew of my back problems and took that in to account! Some times I would have to walk around or go into the hallway and sit in one of tha lounge chairs! I took sculpture classes, and then Drawing classes ( they made us draw out what we going to sculpt, I found out very quickly that I did not know how to draw, so? I took all there drawing classes) then more sculpture classes as time went on I started having difficulty with my arms and hands and doing some of the sculpture, so then I took some pottery classes, (But I just could not use the powered pottery wheel so my proffessor gave ma break and let me use a small hand one!)



I guess the thing I am trying to say, try out different things, ( the nice thing about the art classes was that it got me out of the house for a few hours a couple times a week, and also got me around other people!) I miss that! Anyway I do hope that you can find something that will help distract you but also give you hope and meaning to your life!



Good Luck to You fatherjohn!



White Beard

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/30/2010 9:38 AM (GMT -7)   
 
 
   Dear Father John,
 
 
      When I reached the stage in wellness where I had to find a hobbie that wasnt physical...... well, that took a while. I didnt know where or how to start, but the first step in "hobbie sharing" is to pick one of your friends that has a hobbie you are intrested in and jump into it. The trick is to keep at it till you have a "beginners skill" in the hobbie before moving on to the next.
 
     For example, my first hobbie sharing experience was in oil painting. It took 3 months before I had a "beginners skill". And the one lesson I learned was to never, ever paint in your kitchen. The linseed oil that you have to use releases in to the air, you see. And when I went to cook supper that evening the gas oven gave out a horrable smell! Thinking that surely my brand new oven was broken somehow, I immediatly called gas company! This was an emergency!   Well..... apparently the horrible smell was the linseed oil burning off in the air. The increadibly kind repair man did not charge us, thank goodness. But asked that I please paint out side   smhair    ...month #2 in my adventure in oil painting came with a nice tan and large amout of sunscreen.
 
      After 3 exciting months and many paintings of my daughters, I moved on to gardening! ...desert gardening came with some intresting adventures aswell....... as did internet games, silk floral arrangments, T-Shirt art, Charcoal sketching, candy making, scrapbooking (that didnt go so well), board games IE chess et al, bird houses, fishing, jewelry......
 
       It was hard at first, I missed working so much. The idea that I wouldnt be able to go back to work anytime soon was increadibly hard. It just wasnt supposed to be this way.... But, finding things I truly loved doing helped alot. It was just another peice of the new and improved "me".  Also, I have great camp fire stories from my adventures in "hobbie sharing".  :-)
 
*warm huggs*
     dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 4/30/2010 10:50 AM (GMT -7)   
Splashdancer, It sounds like you have distrations that can be used on low and higher pain days. Thats great. I have a large Sudoku word book that I use mainly at night to keep my mind busy.
 
Pete, we all know that fishing is a great distracter for you but what makes it special is the stories that go with it. Your writing helps others as we laugh with you. It is always good to hear that you are out enjoying life even with the pain.
 
Chart, I had not planned on dropping by chat last night but glad I did. I once had a pastor friend who made baby blankets. He started after having surgery while recovering. Then as he would sit at the hospital with people, he would work on the blankets and then give them away to all the members of his church that had babies.
 
WB, I could not even imagine taking a drawing class. When teaching and using a white board, the students were very amused at my stick figures. Maybe I could teach a class on creative stick figures. I could see how the art and sculpting classes could be a strain with the back and neck problems.
 
Dani, I think your bumblebees are your greatest distractions. It has to be rewarding when your distractions also help with the bonding with them. When my kids were little, they always looked forward to days when mom left for shopping or errands and dad was in charge. I would set them at the dining room table and get the shaving cream out. They would draw and have fun getting it all over them. It was easy to clean up and they ngot their baths as well.
 
Right now I have been slowly landscaping my yard, 20 yards of dirt, 5 yards of sand, 6 yards of bark, 5 yards of rock and more plants and trees than my wife thought were necessary. That project is now complete. I have had several paeople ask if I would do their yards. I am also doing some counseling for a local pastor who is moving to a new church in May. There is a chance that I will be taking over part time at the church for a year or two after he leaves. I have also had conversations with several leaders from the denomination I am with and they would like me to think about starting another leadership school. I am taking it slowly as I see what my pain levels are and what I can do without getting back into the situation I was in before with the stress and long hours. 
 
Have a blessed day.
 
 
 

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 4/30/2010 5:00 PM (GMT -7)   
I enrolled in an on-line self-paced calculus class through my local community college (i know, right? i'm a total geek :). I like solving puzzles & the work was hard enough that I had no mental energy left to focus on my pain (well, for 10 minutes or so at a time). I also went on-line & taught myself how to knit thanks to YouTube. I knit scarves for patients in the Outpatient Infusion Unit at the hospital. They give them to chemo patients or any other sicklies that are feeling very cold (I was given one a while back before I got the right dx on my thyroid. It was so nice to be able to share that feeling of having a small blessing in a dark time in my life with others.)

Then, eventually I found a part-time temp job that was low stress with a boss who was not all crazy (though I never had one as insane as your ex-boss). The first few months I was basically trying to create stress for myself because I thought that work had to mean being miserable & stressed out & in horrific pain all the time. But now I realize that I can choose work with a reasonable manager & a realistic workload that doesn't involve crazy long hours, excessive drama or being on my feet for long stretches of time. Work is actually enjoyable again & I can tell when it's starting to get too much while I am still able to act on it.

wishing you luck in finding your new hobby!
frances

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/30/2010 11:39 PM (GMT -7)   
fatherjohn

I could not see myself taking drawing classes either, nor for that matter going to Nursing school! Me a man with over 22 years in the Air Force, going to School to becoume a Nurse!!!!! Unbelieveable! And working as a nurses aid in a hospital and a nursing home while going to school!! Double, Triple, even Quadruple Unbelievable!!! And then years later going back to take Sculpture, and Drawing classes! Heck I even took drawing of the human figure, and we had real models! Can you imagine and old man with a big white beard bent over with a cane, trying to stand in front of an easel in an Art studio drawing pictures, of naked people in different poses? And to think I could not even draw a decent stick figure when I first started these classes!

You are never to old to learn! As an instructor I know that you know that! For a hobby it is any thing you can physically do, and anything you can learn to do! and it is any thing that you want to do! So think about it, What do you want to do??? and then just do it!!!
I do wish you Well fatherjohn!

White Beard

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/1/2010 5:48 PM (GMT -7)   
W/B, I was one of those nude art models back in college in 1072~74 @ $6.00 an hour which was huge bucks back then when a 6 pack of beer was $.90!!! I looked a little different then, I was an All American swimmer but even so, I was a little embarrased! I don't think I would yhave done it if I knew anyone in the classes. They were night classes and most of the undergrads took day classes! I actually met some "older Girls" and dated a couple from those classes! I think today they call them "Cougers"> O to be young and have a body that works again!!!!
Sorry, this was a stupid post, you just bought back some memories!!!
Pete (exnude model)> Thank God!!! I could use the money but absolutely NO One would want to look at me now!!!!!

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/1/2010 6:15 PM (GMT -7)   
Pete... I can no longer read your posts w/ a full bladder... :) :) The "ex nude model" kills me..... :)

Still laughing.... Tina :)

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 5/2/2010 12:33 AM (GMT -7)   
Pete, I failed. When I saw the advertisement for nude models, I thoght it would be easy money. I went to apply and the rejectd me because I was to skinny. I knew my life was destined for small things when I was even rejected as a nude model. Maybe we could start a new art school and have old worn out (non-nude) models. Painting the pain. You are too much. 

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/2/2010 8:43 AM (GMT -7)   
For me, my biggest distractions are my family and my animals. I really don't have any great hobbies at the moment because I don't have time for anything much other than school work when I'm in school. I'm hoping to pick up some new hobbies once I finish school in another two weeks. Work is also a huge distraction for me. I love my job, so it's more fun for me than anything else. I especially love getting to be outside & work on the farms.

Skeye

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 5/2/2010 10:08 AM (GMT -7)   
Skeye, you are almost done. You have done very well considering the issues you deal with. You are probably do a break. You mention work being a distraction and that is well known by me. I personally know it from a healthy and a not so healthy view. You also have a big day arriving for the trial. You are in my prayers.

BethW
Regular Member


Date Joined Mar 2010
Total Posts : 132
   Posted 5/2/2010 2:53 PM (GMT -7)   
fatherjohn, my distraction borders on "addiction" at times, according to my husband. I read. Voraciously. There have been times when I have gone through a book a day for a week or more. Yeah... that's a lot of words. I read all different types of books... history and modern fiction are my main reads, though. I went out and got a library card because there are only so many books you can get (even from the clearance stacks and the half price book stores) on a "book allowance."
DDD (4 levels- L2-3 thru L5-S1)


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/3/2010 3:27 AM (GMT -7)   
Hi FatherJohn,

I went back to school online and graduation is this month. I did it too quickly and should have paced myself, but it did distract me from pain for a while. I also love to read and have an endless supply of books because my mother has a small town store where people bring in books and swap two for one. There is always something good to read and I can exchange anytime. If I don't like the book....I don't read on into it. I just take it back and get more. It's wonderful.

I would also suggest finding a real live partner (not necessarily romantic) just a friend who enjoys the same things you do and establishing a contact with them. I do this with another CP person and she helps me greatly. We love to junk shop at the thrift stores and pawn shop for really great jewelry buys and we also both love to refinish furniture. Now I just enjoy hers because I can't do mine, but it still helps to have the contact and the discussion.

I'll write again soon. My hands are too numb to continue...
Retired Mom


BobinmidMO
Regular Member


Date Joined Mar 2010
Total Posts : 39
   Posted 5/4/2010 12:25 PM (GMT -7)   
To make my life a bit more grand, that's where I love to sit the most - behind my grand piano.  Now let the music flow.  As I let my fingers go walk I just sit back and drink in the beauty these masters of music somehow made for us to enjoy as it reaches into the deepest part of our souls.
 
Another enjoyment is to go crazy - doing something for someone else.  These last couple days I've been working on a dear friends notebook that hadn't been serviced in 27 months and wow was his computer a mess.  Sure, I had about a dozen times I wanted to turn his notebook into a frizbee, but as I strained and blew mental fuses to clean, update and upgrade his machine, my enjoyment in the day increased exponentially.  Our greatest joys always come from what we give, not from what we give.  Oh no, I just noticed the time.  I'd better start getting some dinner put together for my wife!  Bob. 
After an accident in  1997 crushed the nerves in my pelvis, halfway down the calf and at the fibular head (knee), my left leg slowly started to turn color from the foot up, along with swelling and temp change.  Within 2 weeks I was diagnosed with RSD.  By 1999 I landed in a wheelchair and started a life taking narcotics all the time. In 2004 I got an Intrathecal morphine pump &5 years ago the RSD spread to my right leg and has done around 80% of the damage it did to my left leg in half the time. 1 1/2 years ago I went septic, and the infection did go body-wide.  After 2 days in the hospital I then had a clot in my lungs.  Both should have killed me, but this time I got lucky.  Meanwhile I've been battling blood clots for the last 4 years.  A year ago my left leg was ampuated above the knee after ging septic.  Guess that about say's it all.  Bob.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 2:59 PM (GMT -7)
There are a total of 2,732,234 posts in 301,003 threads.
View Active Threads


Who's Online
This forum has 151167 registered members. Please welcome our newest member, Hope2day.
330 Guest(s), 19 Registered Member(s) are currently online.  Details
imagardener2, Tagier, braddiefj, Lymepilot, Albannach, summer16, RoYal DiRty, White Bird, ASAdvocate, Awake_, Dave123, snowboat, Ggrlsav, Malone26, HeyNoodles, trumpet123, JesperTrottier, julymorning, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer