I can't sleep, once again!!

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 4/30/2010 11:49 PM (GMT -7)   
It's 0245 eastern time and i can't sleep, once again, because my head pains me too much.
 
When will this get better!!
 
What else can i do? i feel like I have tried it all.
 
My head is packed in ice packs, as it is the only thing that can help.
 
How is your sleep??
 
I long for a good nights rest so my body can start to heal.
 
Did you know that that is when your body can heal?? it's when you are in your deep stage of your sleep!!
 
Please Lord send me some shut eye!!!! ASAP
 
hugs to all that are sleeping and not sleeping.
 
 
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/1/2010 12:31 AM (GMT -7)   
Good Morning Suzane

I can appreciate how difficult it is to sleep....I'm awake again in the wee hours and it gets so frustrating. I was having episodes of random full body twitching and that sensation of falling while you're asleep...that often happens to me throughout the night. It's not painful, but every time I "fall" in my sleep, it wakes me up with a racing heart and it takes forever to fall back asleep again.

I wish the doctors were able to find other treatments for you to make your pain go away. Have you ever had the Botox injections for headache pain? I have no idea if it would help you or not and it can be hideously expensive, but maybe worth a try.

I hope you're able to fall asleep soon. I have a sound machine that I'll sometimes turn on to help me get back to sleep...I wonder if one of those would help you?

Here's to a good sleep Suzane....I hope you're able to wake up refreshed!!

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/1/2010 1:51 AM (GMT -7)   
I'm so sorry that you are having trouble sleeping. I have problems with sleep too and it's awful. I'm praying that you get sleep!!!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 5/1/2010 2:47 AM (GMT -7)   
No still no sleep and it is now 0540. I thru in some Tylenol and Advil, Ativan and my Oxycodone and still no sleep. Lots of warm blankets and soft music on. A soft light on too. Hubby rubbed my head and back too. NO sleep.
 
Thanks for your response Pam and Flwer . And yes i tried botox twice with no success.
 
Soon the sun will be up and my paper is probably here.
 
goodnight/goodmorning
 
lol
 
 
 
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 5/1/2010 7:03 AM (GMT -7)   
Tmj, I can sympathise with you I was up for 2 days with lack of sleep. Finally with aid of my sleep meds I have been sleeping the last 2 nights. Have you ever asked your dr about a sleep med they really help me. I hope you can get some rest soon. ((((((hugs)))))
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis , spinal blockage ,gerd,gastric ulcer (2008), pernicous anemia , folic acid anemia and gallbladder removal 3/23/10.
 
meds: lunesta, prilosec otc, ,reglan,bentyl, ibuprofren,Ultracet, folic acid , b12 injections, zyrtec and benadryl.
 
Just added : folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/1/2010 9:29 AM (GMT -7)   
 
 
   Dear Suzanne,
 
      I am sorry you had such a horrible time getting to sleep. I hope by now your body is allowing you to rest at least a little bit.
 
    ~~>How is your sleep??
 
     I "sleep" about 4 to 4.5 hours. I wake up anywhere from 15-20+ times during the "sleep" that I know of. It is painful to sleep. My husband told my doctor last month that I have been having "jerking" episodes in my sleep but I don't have any recollection of that.
 
     I wish I could help somehow, but I cannot. You are in our prayers of course. I hope your body lets you rest at some point.
 
*warm huggs*
     dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/3/2010 4:46 AM (GMT -7)   
Hey TMJ , I'm sorry your having so much trouble sleeping , I had insomnia brought on by depression and it was hard .I guess no medications work for you so I can only offer my empathy to your plight .Have you ever tried meditation ? It might help you relax and bring your mind to a peaceful state where you could at least rest .I wish I had more to offer you , I will pray for you and I hope you feel better soon . Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/3/2010 5:04 AM (GMT -7)   
Hi TMJ,

I so hope you have found some rest since your post. How awful to bein in that much pain for so long. Headaches are horrible and you can't seem to get away from the pain for even a moment.

I know you have tried it all to get away from the pain, so I don't have any real suggestions for you. My older sister had her jaw broken to "fix" a TMJ problem and strangely has had no real problems since. She had to keep her mouth wired closed for a while and things like that, so it was a real nasty time, but she rarely ever gets headaches now. Everyone else in the family has TMJ, but not to that extent.

None the less, I send you peaceful dreams and wishes for relief.
Retired Mom


BobinmidMO
Regular Member


Date Joined Mar 2010
Total Posts : 39
   Posted 5/4/2010 12:35 PM (GMT -7)   
Maybe you're trying to sleep the wrong way? When I figured out that a bed just wasn't allowing me any quality down time, I switched over to a recliner. Now my body is in a better position. In addition, I moved a recliner into a bedroom that's setup with a small fridge that I can reach from my chair, goodies, TV and even a small table for a notebook computer. While most might argue this only adds to staying awake, I've found that by having these little comforts easy to reach, my quality of sleep has improved. I've also learned to accept that I just don't sleep for much longer than a couple hours at a time. After living this way for over a decade, I've learned I'm not really suffering that badly after all, but instead just accept it as being my new normal.

As our health conditions change and progress, it's common to find ourselves sleeping a bit differently than in days of old. While it's a bit odd, so long as you're not falling asleep in your soup, maybe your body is just doing what it feels it needs to do. Stress is the number one thing that keeps me awake, so now I don't stress over how much or how long I've slept each night, but instead just accept whatever I get. Bob.
After an accident in  1997 crushed the nerves in my pelvis, halfway down the calf and at the fibular head (knee), my left leg slowly started to turn color from the foot up, along with swelling and temp change.  Within 2 weeks I was diagnosed with RSD.  By 1999 I landed in a wheelchair and started a life taking narcotics all the time. In 2004 I got an Intrathecal morphine pump &5 years ago the RSD spread to my right leg and has done around 80% of the damage it did to my left leg in half the time. 1 1/2 years ago I went septic, and the infection did go body-wide.  After 2 days in the hospital I then had a clot in my lungs.  Both should have killed me, but this time I got lucky.  Meanwhile I've been battling blood clots for the last 4 years.  A year ago my left leg was ampuated above the knee after ging septic.  Guess that about say's it all.  Bob.

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