will this ever end

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pugluv
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 5/4/2010 10:20 PM (GMT -7)   
Hey.  I really am lost on what I can do to help my condition.  I was in a car accident 5 yrs ago and have had chronic pain in my neck.  I have tried every treatment that I can find but with no luck.  The only thing that seemed to work was Kadian.  I was taken off it because of something to do with abuse of the drug in Canada and have been told that because I don't have too much structurally that I am no longer able to continue with this drug.  I have been taking Cesamet for a few weeks now and am not happy with the side effects.  While I was on Kadian I started to go back to school and now I am having problems concentrating as well as I am not able to think creativly on the spot anymore.  I really don't know what to try next.  I feel like I am ready to give up and drop out and just lose the money I spent on school.  I hope that someone might be able to help.  Also morphine withdrawl sucks.

StephanieJoy
Regular Member


Date Joined May 2010
Total Posts : 40
   Posted 5/4/2010 10:52 PM (GMT -7)   
Hi there. I am so sorry to hear how much trouble you are having. I too suffer from chronic pain. I have chronic pelvic pain and was diagnosed 4 years ago. The doctors have tried several treatments but with NO luck. My level of pain has not improved at all. I know what you mean about wanting to give up. I posted a topic on hear earlier today titled at the end of my rope... I often times feel like there are so many health issues these days that doctors are able to diagnose and treat yet there are still SO many others they can't seem to figure out.

Hang in there... You are in my thoughts and prayers.
Stephanie

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/4/2010 10:59 PM (GMT -7)   
Hey pugluv , Sorry your having so much difficulty with your neck .You say there's not too much structure damage , so I guess you've had both x- ray and mri , right ? If not maybe you should get the one you haven't had . Have you tried the chiropracter ? Your right of course morphine withdrawl sucks but , withdrawl from any narcotic is tough . I tried kadian once , I beleive thats time released morphine right ? The generic version ? It didn't work for me but if it works for you thats a bummer them cutting you off . Maybe you could try another doctor .Well I hope you feel better soon friend , just wanted to reach out and commiserate with you .Best of luck . Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


pugluv
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 5/4/2010 11:09 PM (GMT -7)   
Yep I have had an x-ray, bone scan, mri, and ct scan done.  I also do se a chiro and massage therapist 2 a week.  Yes Kadian is time released for 24 hours.  I only had to take one pill a day rather that 4 Cesamet a day.  Which also sucks.  I understand that depression goes with Chronic pain.  I am on Cymbalta for that.  I don't know how great it works because I am having mood swings like crazy.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/4/2010 11:37 PM (GMT -7)   
Hey Pugluv...

I'm sorry you are dealing w/ so much right now. I hate to hear of someone finding something that actually works for pain (like the Kadian) and then being taken off of it. Since it was working for you, is there a possibility of seeing another doctor and seeing what they think?

Yes, withdrawal from any opiate is NOT fun... I'm sorry you had to experience that!

I don't know much about Cesamet... other than there was a recent discussion here about it and it's side effects. Maybe one of the members that's on it will come along. I *think* it was originally made to help w/ nausea/vomiting... but some are finding that it helps with pain? Is that right? But, hey, if it doesn't work for you, it doesn't work. I'm sure it's really frustrating that you were on something that WAS working!

Wish I had more good advice for you... I'm not sure what to do about school... I understand your feelings on it, completely though. I guess I'm just curious if you can pursue going to another doctor and getting another opinion on which medications are best for you...

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


pugluv
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 5/5/2010 10:46 AM (GMT -7)   
I have tried a different doctor.  Unfortunatly in Canada, all doctors are following the same regulations for it.  I wish I knew what study that they are talking about.  They new doctor recomended trigger point/nerve blocks.  I agreed only because I have nothing else to try. 

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/5/2010 11:55 AM (GMT -7)   
Hi Pugluv,

I am on Cesamet as well and am in Canada. Are you in treatment at any kind of pain centre? If you're not, I would highly recommend it - it's helps to centralize all your treatments, etc.

The injections might be helpful and you can ask about Botox injections. They're quite expensive and you may have to request your insurer to cover it, but if it works, it's worth it (I paid approx. $465 for one vial, and I've had two injections done so far into the psoas muscle for severe pelvic pain). I assume you're also using heat and you might want to see if a muscle relaxant will help.

Its hard to deal with pain day in and day out...I know. Hang in there, you'll find lots of support here.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/5/2010 2:04 PM (GMT -7)   
I've had the trigger point neck injections and would have to say stay away from them, my results from them we're not normal.
I have heard of botox for pain and that they can help, maybe ask about those instead...and if you've not had a emg maybe
ask about emg testing, so that the correct nerves can be pin pointed, before doing any injections...
My back pain stems mostly from a car accident in 1997, (doctors at the time said I'd sprained the whole left side of my spine)
anyways good luck to you and keep us posted...
((((((((((((((((((((((((((((PugLuv)))))))))))))))))))))))))))))))))))))))))))
do you have pugs, as pets??? I have cats, luv my little kitties...all three...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/5/2010 4:07 PM (GMT -7)   
Hi pugluv
 
I'm so sorry that you're going thru so much pain.  I'm really sorry that they quit the Kadian cold turkey.  They should have at least titrated you down from it.  That really bothers me when someone is on something that is working and then the dr. takes them off of it.  I hope your pain gets better really soon.  ((((((((((((((((((hugs))))))))))))))
 
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

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