drs appointment

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momtofourangels
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Date Joined Apr 2010
Total Posts : 2261
   Posted 5/5/2010 3:55 PM (GMT -7)   
I called  my pm dr. yesterday and told the receptionist that I am still in a lot of pain.  She went to talk to the dr. and she came back and said that the dr. wanted to see me today at 1:30pm.  I went to the apppointment.  She put me on 25mcg Fentanyl patches and she told me to take the Percoset for any breakthrough pain that may happen.  She took me off the Neurontin.  I am so glad that I am finally on a long acting pain med after all this time.  I read on the thing that came from the pharmacy that you put it on your chest, upper arm or back.  I put it on my upper arm.  It says it takes up to 24 hours to start working.  Is that true?  To those that are using the Fentanyl Patches, how long did it take for yours to start working?  She told me to change them every 72 hours.  She said we would try the 25mcg for two weeks to see if they're high enough dose.  If they're high enough, I'll get a script for these.  If not, she'll increase them to 50mcg.  I was really surprised that she put me on the patches for the first long acting med.  I have taken Kadian and Oxycontin and maybe another one before.  She said since I had taken those and i've had the pain for so long, she wanted to give me the patches. 
 
I also found out that she talked to my pcp and she agreed to prescribe my pain meds after my PM dr. gets me on the right meds and dosages.  I was really glad to hear that because I really didn't want to have to find another pm dr.  I'm tired of looking for pm drs.  I'm glad I took the chance with this PM dr.  I'm finally getting somewhere with the meds.  I'm so glad.
 
I hope everyone has had a lpd and is having a lpn.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 5/5/2010 4:17 PM (GMT -7)   
Loretta

I am very happy for you! Fentanyl patches can work very well for some people, they have been around for quite a while now and they can be very effective! It does take some time to get the right dosage, as the medication is absorbed through the skin, and thus it is slower getting into the blood stream. So it does take longer for the medication to get to therapeutic levels, so it can take longer for the Doctor to get the dosage of the patch just right for you! But as long as you don't have sweating problems, or problems with adhesives, you might find that this patch is just the thing for controlling your pain!
I do wish you well with it! Good Luck to You!

White Beard

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 5/5/2010 4:36 PM (GMT -7)   
Loretta,
That's great that your pm is trying something else for you. And even better that your PCP will prescribe the meds for the long term without any hassle. That's how it should work - smoothly, between doctors, but we all know there are too many problems for too many of us finding decent docs. So good news on both fronts!

I've never used the fentanyl patches, but others here have and can probably offer suggestions. You could also do a search on HW for older threads with others' experiences.

Good luck!

PaLady

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 5/5/2010 6:24 PM (GMT -7)   
 
 
   Dear Loretta,
 
      Good evening * hugg* I am so relieved you finally called your PM. I must be a tremendous burdon lifted from your shoulders. I really hope this works well! It could really be a big step for you. Just remember to try to take it easy as the pain levels go down. Often when pain levels go down we do more.... But be sure to go at things slowly if you can. You ve been severre pain for a very very long time. You are in our hearts and prayers! This could be the beginning of much more manageable days for you!
 
*huggs*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/6/2010 4:02 PM (GMT -7)   
Thank you for the support White Beard, PaLady, and Dani.  I sure hope the Fentanyl will be what I've been looking for.  I have noticed less pain already.  I hope it continues to improve.  I hope you all have a lpd.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/6/2010 6:23 PM (GMT -7)   
Loretta,

I am so glad to hear you went to your PM doc... and got the situation worked out. I could tell how much you were suffering (and stressed) in your original post about this.

Out of any medication, fentanyl works the best for me. I had to stop the patches, because I have fair skin and they were causing major skin issues for me (plus I run a temp much of the time, I was absorbing the meds too much at times). I, too, would wear them on my upper arm or chest area. It does take about 24 hours to get the full dose on board. I'm so happy you are experiencing less pain already.

I hope this is the answer to reducing your pain. Take care... --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/6/2010 9:37 PM (GMT -7)   
Thank you for the support Tina.  It's been 24 hours now and I'm not hurting anything like I was before I put the patch on yesterday.  It feels so good to not be in such excruciating pain all the time.  I hope you're feeling better and are having a lpn.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/6/2010 9:38 PM (GMT -7)   
I'm so glad to hear this, Loretta... I pray it continues to do the job for you!! I know what it's like to get relief after being in pain for so long... let's pray it continues for a long time :)

I'm happy for you!
Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/7/2010 2:53 AM (GMT -7)   
Loretta,
So glad you're getting some relief! That means so much to us with CP!

PaLady

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/7/2010 3:17 AM (GMT -7)   
Hey Loretta , I'm glad you got on the patches I hope they work well for you and give you the releif you need to feel better . I did try the patch but it didn't work in my case but many people say it works well for them so stay positive , I beleive you have a great chance to find the long type releif you've been seeking , the best of luck my friend !!! Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/7/2010 4:52 AM (GMT -7)   
I'm so happy you found some relief after suffering so long.

Please try to keep your body at a regulated temp (not too hot especially). Also, change "spots" where you apply the patches each time.

I hope you continued better days!
Retired Mom


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/7/2010 7:34 AM (GMT -7)   
 
 
   Dear Loretta,
 
     Just wanted to stop by again! I hope that you got a decent nights rest last night. More so, I hope your pain continues to get down to managable levels! Just be sure to not over do it!
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/7/2010 10:05 PM (GMT -7)   
Thank you all so much for your support.  The patches are working pretty good.  I haven't had this kind of pain control in a long time.  Tomorrow at 5:45 is time for me to change the patch.  I was afraid that it was going to stop working in 48 hrs. instead of 72, but it didn't.  I guess it was the rainy, damp weather that started today.  My back has been hurting more today, but I'm sure it's the weather.  I still have a hard time believing that it has actually happened.  tongue
 
I hope that everyone had a lpd and are having a nice sleep right now.  My husband and I are night owls, so we stay up late and sleep in.  He's on SSD and I'm on SSI, so we both don't work.  It's been really nice having him home when I was in so much pain.  He has to do everything around the house because I'm not able to do it.  I'm so blessed to have such a good husband.  He's wonderful.   On June 18th we'll be married for 17 years.
 
Well, I guess I'll stop for now.  Everyone take care.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/7/2010 10:06 PM (GMT -7)   
Thank you all so much for your support.  The patches are working pretty good.  I haven't had this kind of pain control in a long time.  Tomorrow at 5:45 is time for me to change the patch.  I was afraid that it was going to stop working in 48 hrs. instead of 72, but it didn't.  I guess it was the rainy, damp weather that started today.  My back has been hurting more today, but I'm sure it's the weather.  I still have a hard time believing that it has actually happened.  tongue
 
I hope that everyone had a lpd and are having a nice sleep right now.  My husband and I are night owls, so we stay up late and sleep in.  He's on SSD and I'm on SSI, so we both don't work.  It's been really nice having him home when I was in so much pain.  He has to do everything around the house because I'm not able to do it.  I'm so blessed to have such a good husband.  He's wonderful.   On June 18th we'll be married for 17 years.
 
Well, I guess I'll stop for now.  Everyone take care.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/8/2010 4:10 PM (GMT -7)   
Hi Loretta,

I was just checking this thread to see how the patches are working for you.... I'm so happy you are getting pain relief :)

I'm also glad that you have a wonderful, supportive husband...!

Hope you are doing well today...

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

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