New test results

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Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 5/7/2010 10:06 AM (GMT -6)   
Hello Everyone,
First, I'd like to say that I'm sorry if I haven't gotten around to posting support to everyone lately.  I've had quite a busy week and will be away from a computer again for the weekend (unless I can sneek up to my mother's for a quick log-on).  We also had a death in the family and I have been tied up with that for a few days as well.  Bless her heart, she is finally without pain.  This lady was the first real chronic pain person I ever met and she is now without suffering.  It is sadly almost a relief that she is at peace. 
Last week was also a blurry of Dr' apts and next week will be worse.  I had to go in to the PCP about my hands and she ordered a bunch of tests (since I can't even get an apt with the Reumy for the forseeable future).  The new NP (in training) convinced her to cross off some of the tests she had ordered because they were done a year ago, but the tech processing the test must have thought the heavy marking on the sheet was an emphasis on doing the tests.  It turns out that the new NP should allow the DR to do her job without interferrence.  My results were not good on the ones he thought were frivilous.  My sed rate was out of range, my uric acid was out of range, and my blood sugars were high.  I have to go back in next week to discuss what to do from here, but I'm strangely happy about the results.  At least now they believe about the hands.  My fingers are starting to turn in and twist and I go through flares where it feels like somebody took a hammer to my knuckles.  Also, the Carpel Tunnel appears worse, so I'm not able to do as much as I was even a few months ago with typing and I keep dropping things. I don't want to treat until all of the tests are completed because I don't want surgery unless there is NO other option. 
Keep your fingers crossed for me next week, please rolleyes I'm a little worried about what is next.
Retired Mom

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 5/7/2010 3:27 PM (GMT -6)   
I am so sorry for your loss.

I'm also sad that you're having so much pain. I agree with you though that it's always best to have surgery as a last resort.

I'm thinking of you.



Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 5/7/2010 4:02 PM (GMT -6)   
Sorry to hear about your loss too Mom , my prayers are with you on that as well as hoping for desired results on all your tests .Think positive , the best result is always possible and you will have many of us pulling and praying for you and sending good vibes your way .Best of luck my friend . Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 5/7/2010 4:16 PM (GMT -6)   
My Sympathies to you on your loss and I'll keep you in my thoughts and prayers...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 5/7/2010 5:35 PM (GMT -6)   
Sorry for your loss too mom! Thats awful about your hands! I have bad hands and Carp/Tun also but nothing like yours> So sorry! Hang in there w/ all the tests and results, hopefully they will figure out how to help you when it's all over!
Bless you and a BIG Hug too!

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 5/7/2010 11:43 PM (GMT -6)   
I'm also sorry for your loss mom.  It sounds like you have Rheumatoid Arthritis in your hands.  I hope you feel better really soon.
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/7/2010 11:48 PM (GMT -6)   
Hang in there sounds like you might get some answers, but I can understand your fear about what that might mean. It seems that every time I go to my doctor, something new is discovered!

I am sorry to hear about the loss in your family, but it sounds like a heavenly reward for a life long suffered.

take care, know that we are thinking of you.

Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 5/8/2010 4:18 AM (GMT -6)   
Hi, Retiredmom,
First, I'm sorry to learn of your loss. You're right that sometimes it's a relief to see people we care about no longer in pain, although we still miss them.

I'm sure glad that those tests ended up getting done despite that "NP", as you got some answers you were looking for - well, maybe not the ones you'd prefer, but it does help when we can know what we're dealing with.

If it turns out the surgery is only for carpal tunnel, I guess I would still encourage you not to shy away from that as quickly as we do from other surgeries. Of course, if it's more complicated, and surgery can't offer much relief, that's a different story. I can't help being influenced by my good experiences with carpal tunnel surgeries in both hands. I waited so long for the first one because it scared me to have my hand cut, but when the pain was gone the first night I regretted waiting, and then when my other hand got bad I went for the surgery right away. Guess that's what made my back surgery so disappointing because I (probably naively) expected I'd have similar success with my back surgery. No such luck.

I think I've shared my experience before, but if you ever have more questions re: carpal tunnel surgery, or trigger fingers, just ask as I've had all that stuff done. But I haven't had the complications you have so please don't think I'm telling you what you should do. You've got more going on.

I hope you do find some answers at the end of this search, and some things that give you relief!


Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 5/8/2010 8:16 AM (GMT -6)   
Mom, did they happen to run a test for RA? Of course, not everyone with RA will show positive on the blood test, which can be quite decieving. Let us know when you get the rest of your test results and get to see the real doctor. Maybe you could use a bag filled with rice and placed into the microwave for moist heat for your hands. Moist heat is the best kind, just make sure you don't get it too hot!

Sorry to hear of your family's loss.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 5/9/2010 8:42 AM (GMT -6)   
Hi guys!

I'm back from my weekend (at least for a few hours) and I wanted to express my appreciate for all of the kind comments and encouragement.

I won't try to address everyone individually because I will inevitably leave someone out and I don't want to do that. Many thanks to you all.

I do actually believe we are looking at some form of RA/OA in addition to the Carpel tunnel. I picked up the info last week for that and it looks fairly routine, but I guess I'm just chicken after my previous surgery failures. We'll see what great insights I get next week from the Dr and make some decisions from there (I guess).

None the less, the flare seems to be subsiding now and (although my hands NEVER completely stop hurting), they are some better than they were. I actually makes me wonder if we should have done the tests a few weeks ago when the pain was at its worst.

I appreciate the willingness for everyone to answer questions and will certainly have some new ones for you over the next few weeks!

Have a happy Mother's day everyone!
Retired Mom

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