~ ..Just complaining

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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/7/2010 6:39 PM (GMT -7)   
 
 
 
      Dear Friends,
 
      I am not sure if I am venting or just plain complaining. Gosh, I am having a hard time with my pain levels the last 5 days. I had hoped that it would have eased up by now. I am normally at about 7 to 8 on pain scale, with about 4.5 hours sleep and only 10 or less "waking peroids" while sleeping.
 
      Right now though, its out of control. I am having a hard time with the pain levels. I have never felt it this bad before. I havnt had to wake 15+ times per "sleep cycle" since last year. Its hard to keep my mind straight and remember or get out a sentence. The pain is very overwhelming. Im sweaty, cold and nausous. It is hard to function.
 
     I have an appointment with my spine specialist reguarding my X ray findings (progression findings) and I think "introduction" to new specialist who also does deformities. It isnt until the week before I leave to travel to east coast. So 2.5 weeks away. I don't want to alarm anyone and I don't want to bother anyone when I already have an appointment.... But gosh ive never felt anything like this before. Its super hard right now to make my body work. Its hard to think and remember what to do or what the sentence was
 
     So I am not sure why I am even complaining. Ive got severe issues with my spine and one would think I would be used to this by now. Its just spread much higher than I am used too and its tiring me out very quickly.
 
      Thanks for hearing me rant. I hope I can make it till my appointment. I dont want to scare or worry my doctors. Its just spread so quickly. Also I hope that the genetic / chromosonal testing is approved this comming week. Heres hoping. Thanks for listening. cry
*hugg*
  dani
 
    

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/7/2010 9:12 PM (GMT -7)   
Oh Dani.  I'm so very sorry that your pain is so terrible right now.  I hope you feel better really soon.  Two weeks is a long time to wait when you're in excruciating pain.  If I were you, I would call your dr. and tell him/her that you're hurting really bad.  You sure don't deserve this.  (((((((((((hugs))))))))))  You're such a sweet and caring lady. 
 
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/7/2010 9:45 PM (GMT -7)   
Dani, I can sure sympathize with you regarding how exhausting it is to be in pain all the time. I just ranted about that myself. I am sorry you are feeling so much extra pain right now...it's so hard to manage it when it's like an unrelenting ocean, crashing down on you over and over.

I will keep you in my prayers, that you will be able to find relief soon and be able to get your pain levels back to something more manageable. Try to rest as much as you can. I don't know if you're on any medication or not, but I wonder if a muscle relaxant would help you at all. I am able to get Robaxacet here in Canada OTC, but you might not be able to...perhaps ask your pharmacist if there is an OTC one that you could try. Maybe they could recommend something for the itchiness as well.

Hang in there friend....you'll get thru this, just as we all will. You'll get by with a little help from your friends!!

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


StephanieJoy
Regular Member


Date Joined May 2010
Total Posts : 40
   Posted 5/7/2010 9:59 PM (GMT -7)   
Dani-

My advise is to call your doctor NOW!!! 2 weeks is too long to wait when you have chronic pain. There has to be another doctor that you can see. I've learned the hard way that you really need to communicate how you are feeling, what's going on with your pain levels, etc with all of your doctors. If something isn't right, you really need to speak up and let them know. It's your body and you know it best. I wouldn't wait 2 weeks. This is just my advise.

I wish you all the best.

Stephanie

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/8/2010 2:34 AM (GMT -7)   
Dani,
I know you've got so much going, and it's more than ok to vent or complain here. It's interesting that you're so concerned about worrying your doctors, but that's what they're supposed to be there for - to help you with everything. Yes, I know that's an ideal, but you're feeling changes, and things getting worse, and isn't it better that they know this? I think our doctors should be a little worried, or at the very least concerned about us. How strange it is that we all get gun shy for a variety of reasons about telling our doctors what's happening with us. I'm not judging you, not at all, just reflecting on how roles seem to be reversed for us in many situations.

I hope you do decide to tell your docs and not wait it out and suffer even more.

Take care,

PaLady

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/8/2010 5:23 AM (GMT -7)   
Sweet Dani Girl your not ranting , just expressing your feelings , if its a new feeling of pain perhaps you should see your doctor about it .And no you shouldn't be used to your pain , its good your sensitive to it and notice these things , but then you should act on these feelings and express them to the people who can interpet them best .I remember you said you had overdone it and perhaps its just taking its time getting back to where it was , But Dani my Sweet , don't take any risks I beg you , check it out , please . Love You Big Time Your Friend Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 5/8/2010 6:32 AM (GMT -7)   
Dani, I can feel your pain and frustration in your writing. I have to agree that it is time to call your doctor because pain levels that high can reek havoc on your body. If it is causing nausea and sweating you need to get it controlled. Please let us know if you find out anything. I'll be thinking of you until we hear something.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/8/2010 6:33 AM (GMT -7)   
Dani,
I agree w/ everyone who thinks you should call a doc and soon! These doctors work for us! We pay them to take care of us and we pay insurance premiums so that they get paid (although not much!) through their claims to them.
You shouldn't suffer because your worried about putting out a doctor!!!!!
You are telling us that these symptoms are worse than ever? The doctors that take care of you SHOULD KNOW about them! Please dear Dani, let them take care of you!!! You need to be in good shape when you come down to Fla!!!!!
Your Bumblebees are depending on you to bring them here to see El Dorado ie> Big Boy & Lily our mare!!! Lisa my wife just bought a new (used) sadle which fits both horses! She said she might have to put some new holes in the stirrup leathers so some little girls can fit their footsies in them for a ride> led around of course!
We can't wait to see/meet Y'all!!! So please get well, call a doctor Monday!!!

Big Hugs coming from Pete, Lisa, Lily, Big Boy, Rose the wonderhound, Hanna the wild Manx/tiger kitty, Poney Boy & Angie (our parots) from sunny Fla!!!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/8/2010 9:13 AM (GMT -7)   
 
 
 
     Thank you friends, I really appreciate your kindess a great deal. It has been hard. I do take many meds, and most recently even my antidepressant was doubled to help alleviate the pain that had increaded greatly in the beginning of the year. And trust me when I say the antidepressant is a tuff one to get used to the side effects!  It was hoped that all thes testing, scanns and images would be done by the time I would go in. All the imagee, tests, scanns are all done, except for the genetic testing. I got a letter informing me my insuance company was requesting documents from my doctors before approving it. ...which it would have been nice of they told me they were wanting genetic testing in the first place, maybe I could have helped somehow?
 
      The pain increase is rather hard to deal with and it is tiring me out quickly. It is much worse than anything I have felt before now. Which is why I had thought at the beginning "Well, this is an awfull flare, ill have to remember to tell someone about the extensive increase at my next appointment". ...But here I am waking up to day 6 and... Holy #2 in a hand bag! This isnt good atall. Not good. I want to be able to make it to the appointment. I mean, it isnt like I don't already know I have a progressive spinal deformity... its, well, progressing. Not much more to say. Still this is certianly much harder than anything I have encountered before. One would think with all the medicines opioids and antidepressants, hormone & Nsaid pain reliver mix, stimulation... that I most certianly shouldnt be this uncomfortable. Argh. I hate my spine. This is stupid. Sometimes I wish I would just progress the last degrees and get it over with already... I hate my curves sometimes.  Agh, I need to think of something else, last thing I need is my body revolting against me AND a case of the blues.
 
   *huggs*
      dani


 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/8/2010 9:32 AM (GMT -7)   
Oh Dani. I'm so sorry that you have so much pain. I am praying for you Dani. You are so sweet to everyone and so caring. It's so nice that you don't want your doctors to worry, but I bet they would want to know that you're going through this. Even though you take a lot of medications, maybe there is still something that they can give you to get through this.

Lots of hugs,

Flower

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/8/2010 9:44 AM (GMT -7)   
Hi Dani

I do hate so much to hear that you are in such pain! Besides all the hurt that you feel ( I know that is the major problem!!!) but I am also concerned that maybe this major increase in pain in this "flare-up" could be an indication of something else going on?, or possible a change in direction or an increase of what ever it is that you have that is causing all this in the first place. Reguardless I would think that it would be of the up-most importance that your Doctors should know about this, and the affects it is having on you!

Dani in your writings you pain and distress comes through so vividly clear! I do wish I could take some if not all of that pain away from you! Please be gentle with your self and talk with your Doctor soon!

I do wish you all the best!

White Beard

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 5/8/2010 12:50 PM (GMT -7)   
I am so sorry Dani. You are not a complainer, so it must be bad. Maybe if you call they could add or change your pain med? Just a thought. I also want to ask if you have ever been tested for Lyme disease? It doesnt exactly fit all your symptoms, but I have been thinking about this for along time and been meaning mentioning it. Please ask for a test and ask for Igm IgG westernblot. get the results and contact me. I hope you dont have it but you never know The crap is everywhere and does a lot of damage.

God bless you and I hoe You have a nice mothers day.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/8/2010 1:38 PM (GMT -7)   
oh sweet Dani.  I was hoping that you felt better today.  My heart goes out to you.  I can feel that your pain is really out of control.  Please do call your dr. on Monday and tell him/her.  You need to get relief.  I've read that chronic pain can be detrimental to your body.   I wish for you a low pain day and a good nights sleep tonight.
 
((((((((((hugs)))))))))
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/8/2010 4:03 PM (GMT -7)   
Dani,
call your doctor and get in on his cancellation lists for the week, at least do that..could be a side effect
from your increased on the anti depression med, but only your doctor can help with that...so get in...there
see wasn't that hard to do, with us rootin for you...
Keep us posted...
((((((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/8/2010 4:07 PM (GMT -7)   
Dani...

I'm really sorry to hear how much pain you are in...and how lousy you are feeling. I wish I had some magic words that would change things for you...I really do. I'm glad you reached out, though, and shared everything you are dealing with. It's really too much for one person to be going through.

I am in agreement, though, with everyone... if, by Monday, things aren't any better at all - I would probably call my doctor. Like some others said, there might be something going on above and beyond your "normal" stuff.

I think you have tremendous strength, Dani, to be going through everything you are, and still be so friendly and caring and giving of yourself. I sure hope this passes quickly for you. Keep us updated.

In friendship, Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/8/2010 5:26 PM (GMT -7)   
Dani, what are you doing to yourself. Call your doctor right now. DO NOT put up with that much pain. It sounds as if you need to be in hospital until they get your pain undercontrol.
 
It sounds intolerable. Get on that phone right now and see your doctor immediately. Or go to an ER and tell them whats going on.
 
I'm speaking from experience here. I just got out of hospital after 8 days, my flare overwhelmed me and I struggled on all weekend, I saw my GP on the Tuesday after a long weekend, she took one look at me then rang my specialist and she admitted me to hospital. I had three massive pulses of prednisone (over the week) to take down the inflammation plus oxycontin and endone up to my eyeballs. I'm still completely strung out from all the drugs but at least my pain is now under control. And I'm no longer vommitting.
 
Ring your doctor. They told me if I'd gone to hospital sooner they could have got control sooner and avoided such drastic therapy. Believe me, ring your doctor NOW!
 
Best best wishes and gentle hugs, golitho.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/8/2010 9:08 PM (GMT -7)   
 
 
     Dear Friends,
 
      When we sat down to eat supper my husband said I didnt look so good. And asked that if things didnt improve by monday that I call the spine specialist. We talked about it for a bit before he went to work and talked about how odd and different this is. 
 
      I havnt met the other fellow who will be eventually my primary spine specialist. But I have met and already had introductions with the other doctor. She told me repeatedly to not hesistate to call her if I need her. Though I hate to bother anyone.. if it doesnt gett better I will call her Monday. I just don't want to HAVE to go in early. The appointment in two weeks we will have to go over everything that was tested and done last 2 months, go over medicine, and talk about my up comming trip. So, not really in a rush to have a "big" appointment.
 
      No matter if I improve or not I do need to document the oddities and speak with them about the way this transpired and areas that seem most effected right now. One area is much higher than I am used to. One area in my lower torso is "hard ball" on the right side of my spine. The "ice" sensations on the inner parts of my thighs is annoying..... There are other "odd differences" which are troubling. So reguardelss will need to talk about this last week one way or another. argh. My body has horrible timing  smhair   Wish I could trade my spine in for a newer model with less milage on it.
 
      Thanks for listening to me complain and ramble on and on. I really apprecite it alot.
 
       *hugg*
          dani
    

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/8/2010 9:49 PM (GMT -7)   
Dani

We all worry about YOU and care about YOU! I know when I read your post,.......well your condition is worrisome to say the least! As I had said before I consider all of you here at this Forum Family to me, and you are a part of that family, I think all of us more or less feel that way. We don't want to see you in pain, and we all want you to get better from what ever it is that you have! Anyway I have rambled on enough! But just know that I am concerned and want only the best for YOU!

White Beard

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/8/2010 10:13 PM (GMT -7)   
Hi Dani:

I can't say much more than what has already been said, but I wanted to let you know that you will be in my thoughts and prayers as well!

I'm glad that you have decided to call the doctor on Monday if things don't improve.

Hang in there,

Lorie

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/9/2010 2:51 AM (GMT -7)   
Thanks for updating us Dani. I'm happy that you'll call your doctor on Monday if there's no improvement. Please do call!! Thinking of you and praying for you.

Hugs,

Flower

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/9/2010 4:15 AM (GMT -7)   
Happy Mother's Day Miss Dani! I'm so glad that you have desided to call your Doc tomorrow!! I'm really sorry for my previous post when I told you to get better so you could come down to visit in Fla. That was stupid! You are having enough stress w/o me giving you more!!! I am truely sorry, I can be so insensative sometimes>GRRR!
I sent you another "Horsie video" I took last night. This one has my two boys & My wife in it and a couple quick shots of me when I turned the "Flip" around and shot myself!! I hope you and your Bumblebees enjoy it!

I really hope your pain eases today on Mothers day> You are a special Lady & Mother Miss Dani!!!

Big Hugs!!!

Your Buddy,

Pete

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/9/2010 6:56 AM (GMT -7)   
Dani,

Your pain is almost unbearable in your post. You would not allow another to suffer this way without insisting on immediate medical care. You must give at least as much to yourself as you do to us.

PLEASE go get some help before you put yourself through more pain. A dr cannot help if you don't let them know what is going on. ER might even be a good choice at this point. Nobody will want to be in the ER on Mother's day, so your wait will likely be shorter. They can run almost any test they want because it is an emergency.

Please consider not waiting. Everyone here is very concerned for your health and safety.
Retired Mom


Vannie
Veteran Member


Date Joined Aug 2010
Total Posts : 795
   Posted 2/6/2011 3:33 PM (GMT -7)   
It is time to call the doctor, Dani. Something has changed and they need to know about it so they can help you. And, you need some relief. Please call the doc.

Praying you get some relief soon,
V
Fibromyalgia, Inflammatory Arthritis, Osteoarthritis, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/7/2011 9:11 AM (GMT -7)   
Oh Vannie!

   Thank you so much! *hugg* This topic was started in May 2010. Many of the problems I was having in back in May, have escalated. Like the "Ice" sensations now come with my leg callousing. The "hard swollen ball" in my spine now covers most of my thoracic. Those x-rays I had at that time showed that I had developed another deformity, secondary tilt and my first primary deformity had increased drastically. Shortly after that post, I also added in baclofen and increase in other medicines I already took. Those medicine changes did help with the pain increases for a short period of time... but now I am back to 4hrs of sleep and 8+ daily pain.

    Now, I am under going a series of MRI images because of all the problems that have gotten worse or escalated since that time. The MRIs are taking a bit longer because when I went into my MRI appointment a "air conditioner"  needed for the MRI was broken. We were only able to get my lumbar done before the MRI machine reached 98 degrees. At that point, we had to stop or risk damaging the machine. Today, I will be going in again. Each section of my spine takes 45 minutes. I think it was a blessing in disguise that we had to stop. I was in so much pain that the tears were rolling down and I had to try hard to not let my breath hitch and body shake. It was very hard and very long time of prayer. I hope that I am able to get through today. I just cannot put into words how hard it is to lay flat when my hip is rotated up into my ribs, and to the rear of my body. My left shoulder is pushed out and up. ..so, its hard.
 
     This Friday we will go over all the images. Hopefully, we will get a better understanding of what is happening. Well, more information than a x-ray can provide.
 
*warm hugg*
       dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/7/2011 12:15 PM (GMT -7)   
  Dearest Dani , So sorry I'm late here , but we have spoken offline and I just want to voice my support of you here . I'm sorry your having a tough time right now , please hang in there , I know you will but I say it anyway because I care so much for you and I just want you to know that  . These new issues your expierencing must be scary and puzzling , please come to we who love you for the scary stuff and your wonderful medical team for the puzzling things , but don't delay please , the sooner the better and please keep us posted as you can , I love hearing from you and reading your posts always and I'm thinking of you and David and the girls constantly . Good vibes coming your way from NYC , express !!! Love you all , Mikel
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