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michelleAddison13
New Member


Date Joined May 2010
Total Posts : 13
   Posted 5/7/2010 7:26 PM (GMT -7)   
hi fellow sufferers. found this forum while searching for info on why my pain meds suddenly stopped working...

i've had hideous pain for too many years from too many car accidents and other injuries that would never heal... plus period pain so bad i would pass out... finally found a pain doc who actually cared and believed me when i said something was really really wrong. he did a bunch of blood work (12 vials worth...) and found out I have Addison's Disease. So I've been living with that diagnosis as well for the last couple years, daily steroids or die. sometimes i feel like a walking pharmacy...

anyway, just thought i'd say hi and thanx for this forum, and i hope to get to know some of you! and fingers crossed i can find the yellow pills again...

-Suzie

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/7/2010 9:52 PM (GMT -7)   
Hi Suzie and welcome. I'm sorry it's pain that brought you here, but it's a good place to hang out and get the support and information you need to help you manage your pain.

It sounds like you've had a number of problems in your past. It's good that your doctors finally made a diagnosis. Addison's can be very tricky to deal with to my knowledge (I have a friend with the disease). Are you wearing a Medic alert bracelet now? My friend highly recommends it when she's in an Addision's crisis...it's saved her life when she couldn't talk and tell the doctors what has happening.

What sort of medications/treatments are you doing for your overall pain? Are you getting relief, or are you doing other things to help yourself?

I hope you enjoy hanging out here...we're a good group, albeit somewhat goofy sometime.

Welcome!

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/7/2010 10:38 PM (GMT -7)   
Hi Suzie!

And welcome to the family! Wow, it sounds like you've been through the ropes with pain. I couldn't remember what Addison's was so looked it up. That must be very hard to live with. I' so sorry you have to suffer with this.

One thing you'll find on the CP forum is that everyone here can understand your pain. It doesn't matter where your pain comes from since at some level pain is pain! But we all speak the same language and we all truly care.

Keep posting and sharing, it's how we survive and we do survive quite well! ;-)
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/8/2010 2:09 AM (GMT -7)   
Hi, Suzie,
I also want to add my welcome to the chronic pain forum, but very sorry you have reason to be here.

I don't know much about Addison's Disease, but I do know about CP. I hope you'll feel free to educate us, too, as we all learn much from each other's experiences.

I'm glad you found us!

PaLady

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 5/8/2010 6:10 AM (GMT -7)   
Hi, Michelle. I just wanted to drop in to say welcome but am sorry to see you had the need to come here. I don't know anything about addison's disease either so maybe you could give us a short run down of the disease to help educate us. Any amount of knowledge is always good.

Take care and pop in anytime.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


michelleAddison13
New Member


Date Joined May 2010
Total Posts : 13
   Posted 5/8/2010 6:19 AM (GMT -7)   
thanks for the kind words of welcome! I definitely have to wear my medalert bracelet, although it didn't do me any good when i really needed it to... stupid ER doctor assumed i was high when i was in Addison's crisis... niiiiiiice...

I take Oxy 15mg (1/2 at a time) for The Pain (it gets capitals b/c it feels like a separate entity living inside me)... but they stopped working once the pharmacy switched from yellow to blue ones... just went to the PM doc yesterday and he said all his patients that are on it experienced the same problem, so i felt a little less crazy... and really pissed when I read all the rest of the people online going thru the same thing... but it led me here, so i'll look on the bright side for once...

unfortunately if I don't control The Pain it stresses my body so much that I crash and burn really quickly... but I've gotten better at recognizing the signs because I refuse to go to the hospital again by choice... so Gatorade and pickle juice are my friends... and i have a BP monitor to use when i'm confused, and a great dog who follows me around when i'm not acting right!

I'm off to watch my nephews play soccer in the lovely florida heat... i hope you all have a lovely saturday

xoxo,
Suzie

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/8/2010 10:48 AM (GMT -7)   
Hey Suzy , I just wanted to add my welcome to the others , I'm sorry your dealing with such pain but thats something we all share together .Please feel free to come here and vent or talk or commisedrate with fellow sufferers like me , theres always room for one more in our family .I hope you have a lpd (low pain day) and again welcome .I spelled that out because I wasn't familiar with that term till coming here . Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/8/2010 7:22 PM (GMT -7)   
Hey Suzie,
wanted to says Hello...
Car accidents sure can take a toll on the body, been thru enough of those myself..sorry
you had to go through what you did in the ER. Medic alert bands are not too expensive and I have one
and wear it..
sometimes heating pads can be a girls best friend, can you try those...sometimes an ice pack helps..
just an idea, will be looking for you around here, posting...
(((((((((((((((((((((((((((((((((((Suzie))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 5/8/2010 8:08 PM (GMT -7)   
cool Hi Suzie and welcome. I suffer from RSD. I have never heard of Addisons. This is a great forum--the members are really caring and kind. Sad you have pain and glad you found us! Donna smilewinkgrin

StephanieJoy
Regular Member


Date Joined May 2010
Total Posts : 40
   Posted 5/8/2010 8:32 PM (GMT -7)   
Suzie-

Welcome to the forum!!! You've come to the right place. Everyone here is very nice and welcoming. I'm sure glad I found it.

I too have never heard of Addison's Disease. I quickly looked it up and it sounds terrible. I was diagnosed with chronic pelvic pain a few years ago. We can all relate to being in pain even though we all have different diagnosis. Best of luck to you!!!

Stephanie

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/8/2010 8:38 PM (GMT -7)   
Well Hello there Miss Suzie!
I'm so glad that you found our little family in the big world wide web! This is a special place which anyone who has been here a while will tell you!
I'm so sorry that you are suffering w/ C-P!! I know a little about what auto & motorcycle wrecks can do to one's body and also about periods from hell because my poor wife suffered from them for years but I don't know too much about Addisons. Like the others, I would like to hear about it if you ever have the time to tell us a bit about it? I hope you deside to stick around! This is a sanctuary for people like us where we get & give support to each other, especially when it's really needed and friends and family just don't "Get It!!!"
It really does take one to know one if you get my drift??
So Welcome again Miss Suzie and here's a big H.W.C.P HUG for you to remember me by!!
Your new friend,
Pete

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/8/2010 9:37 PM (GMT -7)   
Suzie

I to would like to Welcome you to the Healing Well Chronic Pain Forum! I am glad that you finally got diagnosed! Addison's Disease is a very serious condition! I am sure that you have really had a very difficult time of it! Well I don't have Addison's Disease, but many of us suffer from all different types of conditions and diseases, but the one thing we all have in common, that is a shared problem from all our different ailments, and that is PAIN! This is the one thing that ties us and binds us all together! You might have found over the years, that others that do not suffer from chronic pain have a very difficult time relating to you and your problems! I think that is true with most people that suffer with Chronic Pain. But that is one thing that is really great about this forum, we can all relate to each others condition, regardless of the cause, because we all know what chronic pain feels like and what it is like to live with it! We can not heal each other but we can advise, and support and listen to each other, and let each other know that we care! I hope that you will find like I have that the folks on this forum are some of the most caring and compassionate people that you will ever meet on the internet!
When you are here at this CP Forum Suzie, You are not alone!!
Again I Welcome YOU to our CP Family!

White Beard

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/8/2010 10:28 PM (GMT -7)   
Hi Suzie:

I just wanted to add my welcome to HW! I look forward to getting to know you.

Lorie

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/9/2010 2:47 AM (GMT -7)   
Hi Suzie. I wanted to add my "welcome" too!

Flower

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/9/2010 7:00 AM (GMT -7)   
Hello and welcome.

Your condition is new to me too, but I will gladly offer support whenever you need it.

Please join us often!
Retired Mom


michelleAddison13
New Member


Date Joined May 2010
Total Posts : 13
   Posted 5/9/2010 8:10 AM (GMT -7)   
wow, what an amazing group of people you are here!! I really feel welcome and immediately comforted that I am surrounded by people who truly understand... Yes, even family and friends who've watched me suffer don't really truly 'get it'... I get really offended when someone pulls a back muscle and claims to 'finally understand' what i deal with. HA! you understand b/c you had an owie in your back for a couple days??? oops i'm rambling... I do that sometimes...

A brief explanation of Addison's - bad or non-functioning adrenal glands, which balance most basic bodily functions. Symptoms are severe fatigue, weight loss, low BP, bad immune system, inability to heal injury, salt craving, skin hyperpigmentation... If cortisol drops too low it's called an Addison's Crisis which leads to death without steroid injections. Only had one really bad one of those that landed me in hospital for 6 days... Never Again!! (I didn't know what AD was before diagnosis either, just heard it mentioned on House a couple times...) The only thing most people find interesting about Addison's is that JFK had it...

And once one gland gets out of whack, the others are affected as well, so I get symptoms of hypothyroid and hypopituitary as well... my body is a serious mess! but once my hormones are somewhat in balance, the worst thing to deal with is The Pain. It's so pervasive, and if I don't control it, it makes the Addison's symptoms come on because it causes stress, which uses up the cortisone I take, which brings on the Addison's symptoms, which cause more Pain... it's a fun little balancing act I've got going on here... and makes it even more important for me to keep The Pain at bay so it doesn't turn into a giant monster eating me alive...

I've also been accused of being a junkie or a pill addict too many times to count. Nothing infuriates me more. The only high I'm chasing is a moment without The Pain; that beautiful, elusive feeling of being able to exhale when The Pain isn't choking the life out of me...

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/9/2010 9:07 AM (GMT -7)   
Suzie


I can understand how difficult that it must be to find that perfect balance! Pain relief is such a fleeting thing to begin with and it must be doubly hard for you! But at least you have found a place that you can vent your frustrations, and have some people that will genuinely listen to you! Besides taking pain meds to control your pain, what do you take to over come the Addison Disease, do you have to take Prednisone or some other type of steroid? Suzie you are right about Chronic Pain being a monster and if not kept under control it will easily consume you! I hope that you will have a low pain day and find peace at least for a little while!



White Beard

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/9/2010 10:57 AM (GMT -7)   
Hi Suzie,
Thanks for the explanation of adisons. I'm interested in this because it sounds like something that may affect me. I had my thyroid removed over 10 years ago and I also have hypogonadizm so my hormones are a mess even w/ treatment. I have some of the symptoms you mentioned and I also know that the thyroid is closely related to the adrenal glands. Maybe I should be checked for this??? Oh I'm also getting age spots all of a sudden which I believe is the hyperpigmentation you mentioned? Sorry to be talking about myself here Suz, I'm just very curios about this Adisons stuff!
Big Hugz for Yuze!
Your new buddy,
Pete

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/9/2010 12:00 PM (GMT -7)   
Suzie,
Thanks for the explanation re: AD. Now I remember about JFK. And all the pain he suffered from that few of us (who were alive back then!) knew about publicly. And I "get it" about the adrenal glands and how they function in the body. You know I'm a believer that chronic pain/illness/stress that causes high cortisol levels contributes to so much disease. I think the docs are starting to find that, too - that chronic inflammation in the body (which all of us here have, but I know that you have it a whole lot worse than many of us because of the Addison's) contributes to all kinds of things including Alzheimer's.

And you'll find lots of company here regarding being treated like an addict, most especially by doctors (sadly) but also by family or friends. I have never once had a "high" from my pain meds. Not once. My "high" is getting just a slice of relief now and then. Just like you expressed. Particularly sweet is a slice of relief without being a zombie at the same time. Now that's the "sweet spot" of pain management, but it's elusive.

So glad you found us!

PaLady

michelleAddison13
New Member


Date Joined May 2010
Total Posts : 13
   Posted 5/9/2010 1:43 PM (GMT -7)   
hey Pete - definitely get your cortisol levels checked, i'm sure they check your thyroid numbers a lot, and they can always add another hormone very easily... the hyperpigmentation can either look like a deep all-over tan (without being in the sun) or like age spots... mine was giant patches all over my face and neck and stomach, as well as very brown joints - knuckles, knees, elbows, ankles; and any crease, like inner elbows, palms, neck looking really brown and/or dirty... i sometimes look like i need a bath and a good scrubbin with strong soap... like a dirty little trailer park kid... soo sexy... and salt craving is a big one, if you don't crave salt like a crazy person i wouldn't worry... same with low Blood Pressure, mine would get so low I'd almost pass out every time i stood up... which the extra salt helps with...

PALady - yup, you definitely understand me!! I always tell people that I'm not addicted to painkillers, i'm addicted to Not Being In Pain... but they'll never understand so I've stopped trying to convince people... I even had a doctor once try to tell me that my Addison's was caused by the painkillers! hilarious... and sad... but I'm kinda lucky that they found the Addison's before it killed me, and everyone who ever doubted my complaints now feels guilt, so I know how lucky I am compared to people who only have the CP diagnosis... no one understands Pain until they feel it... or unless they can actually see a cast on your leg or a giant open cut...
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