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golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/8/2010 5:43 PM (GMT -7)   
Just spent the last 8 days in hospital. My flare completely took over and I really stuggled all weekend. I felt like I'd been hit by a bus, could hardly left my head off the pillow and my pain was so bad I was vommitting. It was a long weekend and I struggled in to my doctor on the Tuesday. She couldn't believe the state I was in, I could barely string a sentence together.
 
She rang my specialist who admitted me straight into the rheumy ward, they pumped me full of prednisone pulses. 3 grams of prednisone!!! I had 3 pulses 2 days apart, plus massive doses of pain killers, plus hydrotherapy to get my joints moving, plus a head CT to check if the vommitting and headaches had any nasty cause. TG they are probable migraine origin from the stress of the pain. The neuro team put me on an antidepressant called dothiepin, but it strung me out so much I've stopped taking it already.
 
Plus the rheumy team then weaned me off the opiates and put me on tramadol slow release as well as break through. I feel totally strung out, got the shakes and oh so weak. I've been home since Wednesday but not capable of much at all. I've lost 7 kilos!!!
 
I just hope all these headaches arn't caused by my new RA med, Orencia. I have my next infusion this wednesday, so cross your fingers all goes well. I have a wonderful 2 week window on all this prednisone where my joints are good, I managed to walk up a flight of stairs. I'm ridiculously weak but it didn't hurt! Just the headache to contend with now, its affecting the vision in my right eye, sort of blurry around the periphery.
 
It was one of the scariest flares I've ever had, I felt soo sick, seemingly even my liver was swollen, I had blood in my urine, ,my whole body was affected. I never realised it could get that bad. Pain is such a horrendous thing, usually I can compartmentalise it but it just got too much, too many joints and organs involved. Really frghtening.
 
Anyway, I'm back and pleased to be here even with the migraines... best wishes to all, golitho turn
 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/8/2010 7:12 PM (GMT -7)   
Awe Golitho,
so very sorry you had to go thru all that. I'm glad your home, Hopefully you'll be able to recoup and rest.
with all that testing did they find anything? well if you know anything we'll be here to listen any try to help, okay...
Sure hope you don't have to go thru that again...
Lots of soft healing hugz...
((((((((((((((((((((((((((((((((((((((((((Golitho))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz and rest up...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 5/8/2010 8:32 PM (GMT -7)   
Golitho

Welcome back Golitho! WOW It sound like you have really been put through the wringer! I really am sorry that your flare-up was this bad! It sounds like the inflamation just took over your body, an not just your joints, but RA can do that! Golitho I guess they really did fill you up with prednisone! An average dose for most people is around 20mg a day! They really did give you some bolus's. I can see why that would take away all your joint pains! I am really glad you are alright though! Please don't over do it and take good care of yourself!

Glad to see you back online with your family here!

White Beard

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/8/2010 8:42 PM (GMT -7)   
Holy Guacamoly Golitho!!!
Sounds like you have had an awful time of it! I'm so sorry but I'm happy that your back w/ us again! I hope things are little better now and I'll pray they get a whole lot better!!
Your Buddy,
Pete

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/8/2010 9:54 PM (GMT -7)   
Hi Golitho:

I, too, am so sorry for all you've gone through! I will keep my fingers and toes crossed that it is not the RA med. Please take it easy so you can gain your strength back! Keep us updated when you can on how you are doing.

Lorie

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/8/2010 11:00 PM (GMT -7)   
Golitho...

Wow, you HAVE been through a lot. I'm really glad you went to your doctor... and got admitted, though. I think sometimes our bodies just have had enough... and it definitely sounds like you were at that point.

I hope you continue to feel better...and get stronger every day... It takes awhile to feel better after a hospital stay, anyhow; not to mention from all of your other stuff. Feel better, and keep us updated...

Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/9/2010 2:29 AM (GMT -7)   
Wow. I'm so happy that you're home and not in as much pain.

That really is a high amount of prednisone. I was on 150 mg. a day once, and I couldn't walk! It had so many side effects.

Happy you're home.

How are you feeling today?

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/9/2010 7:12 AM (GMT -7)   
Hey Golitho,

I'm so sorry that you have had to go through so much lately. I never knew RA could cause all of that!

I don't even know how to respond to all that you have experienced lately. Please take care and keep us updated.

I will have you in my prayers.
Retired Mom


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/9/2010 12:28 PM (GMT -7)   
Golitho,
Sorry I'm late welcoming you back, but wow, like others have said you have been through the ringer! I am so glad to see you back with us, but sorry for all you're going through.

(((((((((Golitho))))))))

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/9/2010 6:33 PM (GMT -7)   
Thanks everyone for the welcome back,
 
I feel pretty strung out from all the meds, still very shaky and in need of sleep every two hours or so. Its obviously going to take me awhile to heal properly.
 
My GP told me to drink lots of water, eat regular meals and sleep. So I'm doing my best, it was a gorgeous day yesterday so I went for a walk with my son down by the water, truely beautiful and very healing in itself.
 
We've had the most glorious weather, unseasonly warm, just lovely to experience. The new house helps too.
 
I obviously completely overdid it when we moved, huge wake up call to me to listen to this old body of mine. It was a pretty crazy time and all those migraines were telling me to stop, hard when we had so many relatives staying and the party for 120 and then the relatives from Ireland got stranded with the volcanoe erupting, just madness...
 
Going to work for 3 hours today, but I will pace myself, I can't take more time off unfortunately only 3 weeks out from mid year assessments. Hard for others to fill in my lectures and it sounds as if my students are way behind. So duty calls, lucky its all stuff I know inside out and doesn't require too much brain input, I don't know how much of my brain is functioning? Pretty sad.
 
I'm also shocked at the amount of prednisone they gave me, even for asthma attacks I've never had that amount. I wonder how long the effects will last, got to enjoy it while I can!
 
Best wishes to you all, my lovely HP family, golitho
 
 

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/9/2010 7:35 PM (GMT -7)   
Oh golitho.  I'm so sorry that you got so sick.  I'm glad you're feeling better.  Take care of yourself and rest as much as you can.  It's good to see  you back here with us.    ((((((((((hugs)))))))))
 
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/10/2010 7:42 PM (GMT -7)   
Hi Golitho,

I'm so sorry to hear about your ordeal, but I'm glad to hear that you are now back home & feeling better. I'm sure your students missed you!

If you can, take it easy when you return to school. You don't want to overdo it & end up back in the hospital! That wouldn't be any good for you or your students!

I'm sending some prayers & healing vibes your way!

big hugs,
Skeye

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/10/2010 7:46 PM (GMT -7)   
Golitho,
Hope those kids in your class took it easy on you...try not to over do things
(((((((((((((((((((((((((((((((Golitho)))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 5/10/2010 8:37 PM (GMT -7)   
Aw Golitio, I am down too, but my goodness lady you really have been put thru your paces. Yes, I agree the moving into the new home really did take it out of you. It sounds like your poor body just had enough and shut down on you. Isn't it just so weird and strange how a steroid can make pain go away. I know, I lived on steroids for 3 1/2 yrs and was on a high dose. I ended up in the hospital for a week because they finally got me. Didn't know I was not suppose to be on it that long now I am paying the price of that mistake. My neurologist was the one doing this, it was a wonder drug for me.

Oh, I do hope it is not your new RA meds causing these headaches. Please take care of yourself.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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