New and in pain!!

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Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/10/2010 9:41 AM (GMT -7)   
Hi All,
 
I am 51 years old and usually psot on the fibro board.
 
I was diagnosed with fibromyalgia in Feb of 09 although the pain and fatigue came on in July of 08 after having a hysterectomy. 
 
The Rheumotologist who diagnosed me said that I should be fine with the meds I am on - (Lexapro for severe panic disorder) and didn't recommend that I change or take anything else.  He did give me a scrip for 10 hydrocodone per month.  At first, I never took them but then I started to be in much more pain and used the 10 per month.  After a few months, he decided that he didn't want me to take them anymore so he jsut stopped precribing them. 
 
I went to my primary and she was very understanding.  She knows that I am not abusing them and she gave me a scrip for 2 per day and Zanaflex at bedtime.  My scrips were lasting almost 2 months because I never take them while I'm at work.  Well, then she went on early maternity leave and I was completely cut off.  The doctors at the practice wouldn't prescribe anything for me and asked if I would see a new rhemotologist.  Fine, I went to see her and she basically told me that fibor is all psychological!  Is this woman really a doctor or did she just wak off the street into the office that day?  She then told me I should take Savella.  When I called my psychiatrist, he said that I could not take it as it could interact badly with my other meds.  Forty bucks of a copay down the drain there.
 
Then I called the primary's office again, just asking for any help.  They set me up with a new rheumotologist - the appt was over a month away!  I asked them if they could give me anything for pain and they said no.
 
Then I became desperate - I actually went to the ER because I didn't know where to turn, the doctors I had access to wouldn't help me!  Well, big mistake.  The docotr there basically made a predetermination of me before she saw me and came in yelling at me, telling me that I was on too much medication, that I had access to other doctors, why was I wasting ER time, etc.  She made me feel like a piece of crap!  I tried to explain to her what was going on and she acted like I was some sort of junkie.  It was so demeaning.  Finally, she called the practice and foudn out that all of my doctor's patients who had been prescribed narcotics had been cut-ff and that the doctors at that practice "did not want anyone there that suffered from chronic pain"  - seriously?  You don't want to help sick people?  Then why are you a doctor?
 
Since then, I have found a new primary.  She didn't prescribe hydrocodone either but she knows I have the appt with my new rheum.  She did mention that she's not even sure that the fibro diagnosis was right.  She thinks I might have polymyalgia rheumatica.  At least she listened to me and did prescribe my Zanaflex.
 
Anyway - my appt with my new rheumotologist is now Wednesday and I can't wait.  I hope I'm not disappointed and that he is able to help me.
 
Oh, and by the way, I wrote a letter to the ER about the way that doctor behaved towards me and got a call from the head of ER Friday.  HE was awesome and he told me that he was going to talk to her about it and that he doesn't expect that she will ever treat someone that way again.
 
Sorry to go on and on and thanks for listening to me!
 
Suzanne

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/10/2010 10:49 AM (GMT -7)   
Suzanne,
I hope your appointment on Wednesday with the new rheumy goes good. Not all doctors are bad, but it sure seems like you found your share of bad ones...
I'm glad your wrote to the ER. as ER doctors should never treat anyone like that, at least they found out why you where there in the first place, geezee...
but, unfortunately, a lot of us get treated badly by ER doctors, I did and will not ever go back to one and recently a friend of mine got treated badly at
a ER and sent Home and ended Dying before getting into a doctor, it was sad and I hope his family at least files a compliant against that ER..
Anyways, good luck to you and keep us posted as to how it goes on wednesday....
((((((((((((((((((((((((((((((((((((Suzanne)))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/10/2010 12:26 PM (GMT -7)   
Hi Suzanne.  Welcome to the forum.  I'm sorry that you've been treated so bad by the doctors.  I hope your appointment on Wednesday goes well.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/10/2010 1:07 PM (GMT -7)   
Welcome Suzanne , I hope you feel better soon and that you get some satisfaction with the way you were treated , you'll find great people and great friends here , Mikel

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


willowsgrandma
Regular Member


Date Joined Jan 2010
Total Posts : 78
   Posted 5/10/2010 1:30 PM (GMT -7)   
blush Hi Suzanne and welcome to this great forum! I was diagnosed with RSD last April. I took Lyrica for months-little relief and big cost. I stopped going to the pain mgt. dr. Once he had me drug tested (urine) and I had to pay for it! Now I'm taking Gabapentin and Savella-with great results. I know some people that take Lyrica and they're happy with it. I hope you're feeling better. It seems lik,e almost all of us (at one time or another) have had to deal with CRUMMY doctors! I hope that you find one as caring as mine (he's an internist). Take care, Donna yeah

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/10/2010 3:31 PM (GMT -7)   
Hi, Suzanne,
I'd like to add my welcome to the chronic pain forum of Healing Well. Since you already know how this "works" from being on the fibro forum, I'll just say I'm glad you jumped over here, too!

Good for you for writing to the head of the ER! You know, I think if more of us did that maybe - just maybe - we'd start to make small dents. But I know for me I'm sometimes so darned tired that I just don't have the energy to write all the letters, etc., it would take because there are so many problems with the docs I've run into - not all of them, but most of them. Fortunately, I've had a great neurosurgeon who's hung in with me for a long, long time, but this month I'll be transferring to someone for long term pm and am hoping it goes well as I've got to drive 3 hours to get there.

Anyway, glad you joined us, and let us know how your appointment goes with the new rheumy.

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 5/10/2010 5:41 PM (GMT -7)   
Hi Suzanne and welcome to the CP forum. Glad you came over to check us out. I am so sorry to hear of all the misery you have been dealt by the primary care drs, but you know what happened with you is becoming more and more prevalent. PCP's do not want to give patients any kind of pain medications period, it does not matter what its for either. My pain mgt dr told me a year ago, that the DEA is busting more PCPC for rxing pain meds than they are PM drs. She said the reason is they keep sloppy records due to laziness and staff not knowing any better. She says she see's this first hand because she insists the patients records be sent to her to review beforwe she even gives a new patient an appt. She said the records from the PCP's is unbelievable and they deserve to get their hands slapped. She said instead of them sticking their heads in the sand they should listen to what the the DEA can tell them on how to do proper records keeping, she says she has used many of their recommendations in her practice and she is not intimidated either by the visits. I am in Tx and this is pretty much how things are around here. I know a few people here on the forum are lucky enough that their PCP handles their pain meds but that is far and few in between. Most of us here would tell you if you took a poll, that no, we do not go to the ER's for the reason of how you were treated. Those folks need to go back to charm school obviously they flunked that too.
 
I do hope your appt goes well with the new rheumy. It is so hard to get good medical care these days. You will find that you have to advocate more and more to get the help you need and deserve. I fear it is only going to get worse too. If this appt craps out, go to plan B and keep trying till you find a dr that will listen to you and take interest and want to help. So many these days are missing those key elements, but don't give up, keep at it till you find the right one, this is not uncommon anymore.
 
I am glad that you sent a letter to the administrator of the hospital. I do think a lot of people just don't want to take the time to sit down and write a letter but it should be done. If for no other reason to let them know what crappy treatment was rendered. Take care and let us know how the appt goes. 
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/10/2010 7:26 PM (GMT -7)   
Hi Suzanne, I suffer rom sero negative arthritis although my rheumy now calls it RA and its been basically a downhill run for me ever since. When you say you had a hysterectomy did you lose your ovaries too? The reason I ask is hormones seem to play a big part in our flares? I had both ovaries removed last September and have been out of control ever since.

I hate to hear of your experience with your doctors, its a bad enough disease for pain when its out of control as it is without the pain of dud doctors to add to it all. Has any other therapy helped with pain management? It sounds as if you need a really good rheumy to get you sorted out properly. These autoimmune diseases are very hard to manage without the proper care.

Good luck on Wednesday, fingers crossed this guy is good and will listen to you, my experience is my rheumy won't prescribe pain management but referred me to a PM team to help. Hopefully you'll get some answers, best of luck, golitho

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/11/2010 5:29 AM (GMT -7)   
Oh, thank you all for such a warm welcome!

I am so looking forward to my appt tomorrow but I fear that I am hanging too much hope on this appt. I just don't want to be disappointed again. I have a good feeling about this doctor as he is a little bit older so maybe he knows a little more than that 14 year old rheumy I went to before!

Straydog - I have heard so much about the FDA and pain meds lately. One of my friends is having issues because she does have a substance abuse history but she has one leg shorter than the other and her back is all messed up so she needs to take something. She finally found a doctor who was willing to prescribe but he stopped because the FDA is watching him. He told her that soon, people won't be able to get pain meds anymore. Hope it's not coming to that. I never even took any aspirin till I was 28 years old and when I had a breast reduction 10 years ago, the doctor gave me vicodin, I took a half and didn't like it so I just took ibubrofin and I was fine.

It's so different now for me, somedays, I NEED that hydrocodone. My sister, who has a much more debilitating form of fibro, takes lortab every day - 20 mg 3-4 times a day and she's till in pain, she also takes Cymbalta.

Golitho, I had a partial hysterectomy in the Summer of 2007 and then my ovaries and adhesions removed in July of 2008. I then developed, what they thought was an infection, high fever, incisions inflamed and oozing (sorry, gross!) so they put me in the hospital on heavy iv antibiotics. It was then that I developed the pains from my pelvic area into the front of my thighs. It turned out that I did not have an infection at all but the pain has just gotten worse and worse since then. Moving up into my arms, shoulders, clavical and the fatigue is beyond anything I have ever known. I believe that the surgery caused a trauma to my body which set this, whatever it is, into motion.

Anyway - thanks again to everyone and I'll keep you updated on my appt! Keep you fingers crossed (if it doesn't hurt too much!)

Suzanne

deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 5/11/2010 11:59 AM (GMT -7)   
My rumy would not give me meds he said i had to find a pain doctor that i had to much going on so i did and he is wonderfull hope things work out for you take care Deb

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/11/2010 12:05 PM (GMT -7)   
Thanks Deb - I'm so new to this - is your pain doctor at a pain clinic? I checked out my local pain clinic and it doesn't look like they deal with fibro and such. Of course I just looked at it online - I should call after my appt tomorrow.

It's the copays that kill me. My husband hasn't been able to work as he broke is neck in a car accident on March 4th so we aren't doing the best financially. It seems that everything is going wrong as well - we had to get a new car starter (luckily a friend put it in so we only had to pay for the starter) - then we ran out of oil - got the furnace started - got oil - $300.00 later - burner dies on us so no hot water or heat and it was 34 degrees this morning! So today, the guy came to fix the burner - $98.00 later...and so it goes! I'm trying to have a oisitive attitude but it's pretty hard! The good thing is that my husband is doing very well, no paralysis which is a miracle considering his injury!

kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 5/11/2010 12:12 PM (GMT -7)   
I wish you well tommorrow. You are lucky to get pain meds from your pcp as long as you did mine wont prescribe me anything for pain he refered me to a pm 2 years ago. I hope all goes well tommorrow and they help you with your pain. Welcome to the forum.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis , spinal blockage ,gerd,gastric ulcer (2008), pernicous anemia , folic acid anemia and gallbladder removal 3/23/10.
 
meds: Ambien, prilosec otc,  ibuprofren,Ultracet, folic acid , b12 injections, zyrtec and benadryl.
 
Just added : folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 5/11/2010 12:23 PM (GMT -7)   
His main office is at Luthern Hospital in Indiana.Yor problems sound like ours car had to be fix 600 for that shower had no water coming out guy only charged 72 for that ,property taxes due,but we made threw glad hubby is better hang in there and have a good day Deb

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/12/2010 1:28 PM (GMT -7)   
 Well, went to see the new rheumotologist today.  He was very nice.  A little bit older than these 14 year olds I've been seeing.   He said that he doesn't think that I have polymyalgia rheumatica but that I do have fibro and he did some bloodwork.  I thought at first that he was going to give me the hydrodocone because he didn't seem to have a problem with that but he referred me to an accupuncturist - which I can't really afford but he said the guy will work with you on a sliding scale.  The first visit is $35.00 - which is actually $5.00 less than my regular co-pay.  The I think the visits are $15.00 each.  Still more than I can afford and pay my mortgage at the same time....he prescribed Tramadol but when I got back to work, I remembered that I had taken that before and it made me ridiculously dizzy.  So I called back and his nurse said, "He doesn't know what else you can take, he suggests you go to the acupuncturist."  Seriously?  Anyway - I think he just wants me to try that to see if it helps and I'll be calling him next week.  He doesn't want me to take any of the Cymbalta, Savella or Lyrica drugs (which I am so happy about) because they will ineract with my Lexapro.  H told me they are basically neurontin and I had a very bad time on that back in 2001 - it made me suicidal.  so that's good.  Anyway - that's the story for now - thanks for listening to me!                                                             

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 704
   Posted 5/12/2010 5:39 PM (GMT -7)   
Hello,

Welcome Suz,

Ohhh every time I read something like this about the doctors, I got so mad and sad for the person writing this. My gosh, I just don't understand how someone can say that if you have Fibro you don't need narcotics. First of all, it doesn't cure it of course, but if you have a broken arm or something that they can see, then its ok to prescribe meds. It's so hard for us to come to the doctors and ask for pain medication, that in itself sometimes, can be just as hard as asking for help when you have no money. Do they think we want to have Fibro or any type of chronic pain? My guess is yeah, there are some people out there out to score some drugs, but I think that the majority of people that are in pain and need medication are for real. Things are just getting crazy, I started taking tylenol with codine about 10 years ago for my neck pain and headaches, my primary had no problem giving me scripts for medication. Then when I went to see my rhuemy for the first time, 3 years ago, she made me sign a contract saying I would not get narcotics from any other doctor, I remember going home and really funny about it, like that my doctor thought I was a druggie or something, then fast forward to this year, my rhuemy and I were having some communication issues, I went to a pain management doctor who said that he would not prescribe narcotic pain medication and that he "felt" that narcotics actually make you have more pain. He said I should do bio feedback therapy. I went back to my primary doctor telling her how much pain I was in and could she please manage my fibro and pain, she said no because they can't keep up with the new things going on with Fibro. She gave me those little pain patches lidoderm or whatever they are called. So I finally went back to my rhuemy on a bad day she took one look at me and said she would manage my pain from this point out and started my on oxy. I was scared to take it at first because all I knew about it was it is given to cancer patients. I was scared that if I ever had something like cancer, if I am on oxy now what the hell could they give me for pain then?? But I got over it and I am now managed pretty well with my pain, still need a little adjustment that hopefully will happen after my next visit. Sorry to sound off, I'm just mad and upset that they are giving you such a hard time. Makes me just want to scream. I sure hope that you continue to search for a doctor that will help you. Please don't give up, continue to search.

Good Luck and keep us posted.
purple]
 
 
Hopegirl... 
 
Taking it one day at a time.... 


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/13/2010 5:43 AM (GMT -7)   
Hopegirl - never be sorry - you just helped me tremendously with your story. You described exactly how I feel! I would like one of those doctors to feel a teeny bit of the pain we feel every day and go without pain meds. In a perfect world, the doctor who treats you would suffer from the same condition and understand it.

I actually signed one of those papers too - with my Primary - the one was treating me. She understood me because her MIL has fibro so she got it.

I'm just hoping that the acupuncture works and that I'm able to afford it. I feel so bad for my husband, with a broken neck, he feels like the money thing is his fault because he isn't bringing in any right now. It's awful!

Good luck with the oxy - I'm keeping my fingers crossed for you! Thanks for all of your support everyone!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 5/13/2010 8:17 PM (GMT -7)   
Hi Suzanne,
 
Well, I read how the appt went with the new rheumy. I will say this, I have had accupuncture before and it was  awesome and it worked for me. However, that is not to say it will work for you or someone else, you know we are all so different. Before I forget, did you tell this new dr your situation at home with a husband out of work because of a bad medical problem? Jeesh, sliding scale or not, money is money no matter how you look at it. That part does disturb me somewhat. Anyway, how I ended up doing accupuncture was  I had been in a car accident and injured my neck, pretty much a severe whiplash type injury. I was seeing an orthopedic for three months and went to PT 3 times a week for almost the same amount of time. I was given pain meds and muscle relaxers and sure the PT felt great while it was being done but an hour later I was back to square one, in severe pain. My sister came to the office one morning and I was crying I was in such pain and she said ok, this is enough, you need to try my dr who had been doing accupuncture on her for a bad neck for many years. She had been in 2 bad car accidents and needed neck surgery and by doing accupuncture she was able to hold off on surgery for many years. Now her dr did the traditional Chinese method with the very tiny thin needles and let me tell you first hand it was painless. The dr told me I should be able to tell a change by the 3rd session and if not then it was not going to work for me. By the 3rd session I could tell a difference because of how the pain was moving around. I ended doing 9 sessions and he had me totally pain free and on no medication what so ever.  He in fact took me off the pain meds and muscle relaxers right off the bat. I was so happy because he charged me back then in the early 80's $50 a visit and ins did not pay for this back then. He got me taken care of in much less time & money than the ortho did thats for sure. Now, I have had accupuncture many times since then for neck problems and it did not help, my dr said my neck was just too far gone and too bad of shape.
 
I do hope this works for you and you get some relief. I would sure let the new dr know if this does not help you. Its like someone else said, the drug seekers and drug abusers and such are the ones that has made it so difficult for people like you and me that have legitimate health conditions that warrant pain meds be able to obtain them. The Contracts, random UA's and pill counts that so many of the PM drs use it is just another CYA these drs come up with to make sure the patient is actually taking their medications and not selling them or whatever. But the bottom line is we are the ones that are made to feel like the criminal.
 
Please let us know how things go.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/14/2010 5:46 AM (GMT -7)   
straydog - thanks for your story. Your poor neck! My sister has been in several accidents and injured her neck and that doesn't help with the fibro pain either. I am hoping this works for me.

I did tell the new doctor about my financial situation - I swear - nobody cares. I would love to be rich so I could help people keep their houses and pay for their meds and food! My insurance doesn't cover either.

The new Doc told me to call him in a couple of weeks and let him know if this is helping or not. This is just a bad month for me to be trying this, financially, as I've said. Hopefully, if it doesn't work, he'll get me back on hydrocodone. I still have about 8 that I've been hoarding from my last scrip. How sad that I can't take it when I'm just in terrible pain and I have to save it for when I'm in excruciating pain. It's so funny because I never even took anything pain-wise prior to this. Once in a while ibuprofin when I'd get chostocondritis or for cramps. The new Doc even told me that he could tell by talking to me and looking at me that I was not someone who would abuse drugs. So just give me the hyrocodone already!

You couldn't be more right about being made to feel like a criminal - I don't think I'll ever get over how that ER doctor treated me. Prior to that - I'd always been believed in the ER. If I really wanted drugs, my husband has 100 oxycodones for his neck and he doesn't even take them. I would take those but it's not my scrip and what if he needs them? Jeesh!

Thanks to you all for your support - it really helps! Suzanne

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 5/14/2010 7:59 AM (GMT -7)   
Suzanne it floors me how these drs act ignorant when you say "dr I am broke, I don't have the money to buy this or that", they act like you just stepped off of mars or something, Well, I suppose if we lived in thweir world we would not be concerned about money either. It just irked me this guy inisisting that you pull money out of your hat. I will give my PCP credit, one thing they do is load the patients up with samples. I take 3 different blood pressure medications and one is really expensive, I said look I can't afford it, he said yes you can because I will be giving you samples, 3 months worth at a time!! He also changed up one of breathing meds because he could keep me in the samples for it, so I am appreciative of this guy.

It is sad that you have to hoard the meds for the excruciating pain, jeesh, something wrong with this picture. I am sorry that you had to endure ER but now you know what happens 99% of the time if you go in complaining of pain. I don't know what happened with good medical care except its in the toilet and they act like they are doing you a real favor these days. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/14/2010 8:19 AM (GMT -7)   
Seriously - my sister always quotes Whoopi Goldberg talking about healthcare and Senators, etc. "I want what they've got!" Do you think they would be denied pain meds? I highly doubt it! Do they deny diabetics insulin? It's so aggravating. Just because you can't do a blood test or xray that shows our condition, doesn't mean it's not real.

I was fortunate to have had a doctr for 27 years, who was amazing. He would go to the ends of the earth for you to find out what was wrong. Many times, I sat in his office while he called 3 or 4 doctors himself and set up appts for me so that we could get to the bottom of what was wrong. Sadly, he passed away in the Summer of 2007 and I've been on the search for a good doctor ever since. Unfortunately, they don't make them like him anymore.

I'm glad that I don't have the attitude that my parents and grandparents had. The doctor was GOD and what he said, you did, without question. I used to be that way, luckily I had a great doctor, but I've learned to question and be my own advocate. Yes, the doctor is more educated than I am about many things but he doesn't live in my body and I am the expert on that. The only problem with questioning, etc., when it comes to narcotics, you are labeled a drug seeker. Why doesn't the government worry about arresting creepy pushers standing outside of schoolyards instead of over-regulating legitimate needs for pain killers. I've had 4 doctors tell me that narcotics are "bad" for fibro - well, you live in my body for a day and see how "bad" they are.

Sorry, ranting! Take care!

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/14/2010 9:30 AM (GMT -7)   
straydog - I love it! You are awesome! You are truly your own advocate and I love what you said to that doctor.

The first thing that the horrible ER Doctor said to me was, "You are on too many medications!" Well, really, thanks for telling me, I was unaware that I was spending my last dollar every month on prescriptions and that I take all those pills every day! Wish I had had the nerve to say that to her.

Take care of yourself!

Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/16/2010 4:58 AM (GMT -7)   
Hi All,

I had my first accupuncture appt on Friday afternoon. It was good, I hope it helps me. The guy I saw was very understanding and seems to get what I'm going through (as much as anyone who doesn't have it can "get" it).

He thinks he can help me - I'm hoping he can but he knows my money constraints and will try to work with me but it's not like it's free or covered by my insurance.

I didn't feel any pain relief from the first session but I did feel very relaxed for a while. But when I woke up yesterday morning, oh boy, I was in some of the worst pain I've had in a long time! It lasted all day and into today. Don't want to use my precious hydrocodone!

Has anyone else had accupuncture and is this typical?

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 5/16/2010 5:08 AM (GMT -7)   
Hi Suz...I used to get acupuncture. YES YES YES. I got very relaxed for a few hours after the session, and then I was much worse off for a few days afterwards. My acu doc was a D.O., too. So, it's not like he didn't understand medicine. He was at the top of the field. I hated it. I went for a couple of years. Never again. Why put myself through that? It was awful. Why didn't I stop after a few sessions? Well, because my doctor wanted me to go. I don't see that doctor anymore. I have a nice one now.

On the other hand, I know that acupuncture can really help some people. Maybe if you give it a few tries it will help???

Hugs
Flower

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/16/2010 5:44 PM (GMT -7)   
 
 
  Dear Suz,
 
     I am so sorry I am late in welcomeing you! I just wanted to stop by and say Hi!
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Suzboop
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/17/2010 6:00 AM (GMT -7)   
Thanks Dani! Love you all - you are such a big help and support!
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