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Becky83
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 5/10/2010 10:08 AM (GMT -7)   
Hello everyone, Hope everyone is okay. I'm new at this, I've recently been diagnosed with Fibromyalgia. I've been unwell for 2 years now and was ony diagnosed at the end of March and while it was a relief to have a diagnosis. It also feels that i have to re accepted the fact that i will be in pain for the rest of my life which is hard. I'm coping, just, some days are much worse than others. But i just can't seem to get used to the constant tiredness or the feeling of no energy. Do you ever get used to it or does it just become part of life??????? I joined this site as i wanted to find people who know what i'm going through as even though my family and friends are very sympathetic and they try their best to understand the truth is unless they have this condition they won't and can't full understand what we are dealing with. Anyway i just wanted to say hi to everyone turn turn turn turn

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/10/2010 11:09 AM (GMT -7)   
Welcome Becky. I'm sorry it's pain that brought you here, but it's a good group of supportive people, so you've come to the right place.

If you haven't done so already, read the Fibro 101 post at the top of the list...it's got great information and resources for you. Personally, you will get lots of feedback here as many of us suffer from Fibro, myself included. I've had it for over thirty years, but it's only been in the last few years that it's really incapacitated me. I worked with it, raised a family with it, divorced with it, got married with it and have continued to live with it, managing as best I could. Mine has become worse over the years, possibly because of other health issues I'm experiencing (in my signature).

I am now on disability from work as the drugs I'm on for everything completely wipe me out and I'm suffering from severe exhaustion on top of everything. I'm on two narcotics for pain, plus other drugs and I have major insomnia issues which doesn't help. I was just at the point with work that I couldn't maintain my sharpness or my organizational skills or my concentration. Pain and exhaustion constantly get in the way in my life. You may be lucky and experience very little tiredness, or you may find it to be a huge problem

You say you've received a diagnosis...what has your doctor prescribed for you to help with pain and such? Lyrica, Cymbalta and Savella are all designed for Fibro, so you might want to try one of those to see if it helps. Heat will be your best friend, and make sure you continue to stretch and walk and exercise....you may feel pain after, but it's critical to continue to maintain muscle mass as best you can. Stay active, it really does help!

Hope you make great connections here...and good luck!!

hugs,
Pam
Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Becky83
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 5/10/2010 11:51 AM (GMT -7)   
hi,  I'm on Oxy norm for the pain, i'm currently trying amitryptalin as the Lyrica medications didn't agree with me at all, one made me sleep constantly and the other made me snappy moddy and horrible to be around so i gave them back to the doctor and asked to go on something else. I am also on anti- depressants, i've had a problem with depression since i was 16 (10 years) and the stress and strain of dealing with this has brought it back. I take multi vitamins every day because most of the time i don't feel hungry or i haven't got the energy to cook or make myself anything.  If it were legal i'd marry my hot water bottle (lol). I've got them in the places i know i'll be one at home. one at the boyfriends . I did have one in work but i recently lost my job due to the fact i'd beem off for over a year and there was not sign i'd be back anytime soon. To be honest i'd rather take the time now to get everything under controlled and managed the best i can before i go back to work. I'm very lucky that my GP is brilliant and very understanding i can cry throughout my appointment if i want and he'll just let me. I just feel frustrated most days that i havent got the energy any more, but i know i'm going to have to get used to it. I've just fread Fibro 101. We seem to have to educate everyone we say it to on what the condition is.
 
Thank you for your welcome

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/10/2010 12:04 PM (GMT -7)   
Hi Becky.  Welcome the the forum.  I'm sorry that you have chronic pain, but you have found some of the most supportive and caring people here.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/10/2010 3:21 PM (GMT -7)   
Hi, Becky,
I also want to welcome you to the chronic pain forum of Healing Well. This is a great support group and we share experiences, but as you probably know we're not doctors and don't give medical advice. But like you said, often our family and friends don't understand, no matter how caring they are.

You sound like you have a good, hopeful attitude that your future can improve, and I think that's great. It takes time for all the adjustments we need to make both with treatments and medications but also with our psychological and emotional health, changing what we can and accepting what we can't (easier said then done!). And for some of us (like you and me) there are losses like jobs and all that brings with it.

Just so you know, there is also a specific section of the forum for Fibromyalgia, but you can post to both the chronic pain and fibro sections. It's easy to switch; just go to the "Quick Jump" menu at the top of the page and scroll down to the section you want to go to. Many of our members post to both forums.

Again, welcome!

PaLady

Becky83
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 5/12/2010 3:28 AM (GMT -7)   
Thank you so much. I don't think I'll every get used to the emotionalness just this morning a little letter with something i thenneeded to sort out prompted a cry fit. Not good. But saying that i do think that every now and then we need to have a good cry to rid ourself of all the frustration of our situation. (at least i do). I'm started to feel like a boy scout being prepared for everything lol.

Thank you for the welcomes, the advice and help.
 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/12/2010 6:46 AM (GMT -7)   
Hey Becky welcome To the Forum , Perhaps a pain therapist could help . I see one once a week , they help guide you thru the emotional side of dealing with pain and the changes you must make in your life to deal with your health challenges . I  t helps to have someone to talk to about it and they know how to help you get thru it . Good luck to you and continue posting here and venting here , we know how it feels too and you'll get support and empathy here . Feel better and good luck ! Your Friend Mikel

Becky83
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 5/12/2010 11:04 AM (GMT -7)   
Thank you Mike I can already say that everyone here is honestly the most welcoming and friendly people i've met in a long time.
Becky
 
Suffer from: Depression, Chronic Abdomenal pain, PTSD, Asthma and Fibromyalgia.

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