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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/15/2010 8:43 AM (GMT -7)   
 
 
    Dear Friends,
 
     After spending days confined to my bed..and just as many days catching up on back logged tasks, I am finally up and about. Though, admittedly much slower than usual, I will try hard to pace myself and not get so frustraited. Thou it is easier said, than done.
 
     My question is this.....
 
      Does anyone know of any charts that compare SSRI's and Tricyclic uses / side effects? I have come to find that the medication I take called Amitryptaline, is in fact a "tricyclic" medicine, not a SSRI like I had mistakenly thought. My dosage was doubled not to long ago. The side effects didnt "settle down" as they had all the other times. But, I am "used to / accustomed" to the side effects now. I also find I have gained 10 pounds rather quickly. Not that I mind, I could use a "little meat on my bones"... Still I wonder what the differences are between the two. I know many here take SSRIs for pain, and I wonder if it is as effective and/or has same extreme side effects? I would like to compare the two.
 
Thanks so much,
    dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/15/2010 12:20 PM (GMT -7)   
I don't know of any charts that categorizes the medicines like this, but I do know that
you can find out what type of medicine your taking by going to www.drugs.com
and they also list the side effects...wish I could've helped you out better Dani...
This website is very informational as I know what to expect in ways of reactions
and then I hope I don't have a reaction....it can be hard getting a good medicine to
work, sure wish that they had a one pill helps all without any reactions...
Good Luck on this Dani...
(((((((((((((((((((((((((((((((((((((((((((((((Dani)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 5/15/2010 2:12 PM (GMT -7)   
Dear Dani Girl , I'm glad to hear your up and around , don't worry about speed as long as you can get things done thats a blessing , and yes please pace yourself my friend .Amitryptaline also known as elavil ,( amatriptaline is the generic version ) is as far as I know an anti-depressent , or a sleep aid . I took it for awhile but it would knock me out and caused dry mouth as well in my case . I'm not familiar with what exactly tricyclic means but if you research either Amitriptaline or Elavil online you should be able to get some answers and I'm sure some friend here at HW can probably help too . Good Luck My Friend Luv Ya Mikel
 

HIV+ , Need hip replacement , have a cellulitus like condition on leg that is stubborn , using anti-biotics to try to get rid of but its stubborn .Started eating completley healthy juicing every day , no sugar , taking vitiamins and anti-oxidents , virigin coconut oil ,only veggies and fruits mostly , no red meat .feel better.Meds:viracept truvada,indothemicin. Pain from hip and leg use cane or rolator to walk .                                                                                                                 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 5/15/2010 8:57 PM (GMT -7)   
Dani
Give Google a try and put in Tricyclics verses SSRI's I do hope that you are feeling a little better!

White Beard

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/15/2010 10:14 PM (GMT -7)   
Hi Dani:

I am so sorry that your "condition" continues to progress without answers as to what is causing them. I know you must be so incredibly frustrated. I'm also very sorry that I have not been posting much lately - I have missed "chatting" with you. I do, however, try to keep up on reading everyone's posts so I do know what a rough time you have had as of late.

I just wanted you to know that you are in my thoughts and prayers, and I hope that you are able to enjoy your upcoming trip to Florida!

Elavil (Amitriptyline) is very well know for causing significant weight gain.

Hang in there!

Lorie

P.S. How is the jewelry making going? If you have any pictures posted anywhere, I would love to see them!

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/16/2010 5:18 PM (GMT -7)   
 
 
   Thank you very much! And yes, White Beard the comparison in email was perfect and just what I was looking for. Thank you. The differences are tremendous. I must admitt I am rather curious about trying an ssri instead...but with my dose of amitryptaline being so high I wonder if attempting to transition would be an easy to accomplish? I think thou, after talking with my husband we should save this battle for a later date. I do thou, thank you very very much. It helped answer alot of my questions and explain alot of the side effects I experience daily. 
 
   I will try Mikel, just hate going so slow. I don't think a very patient person. smhair But, I am determined to let my body tell me what it can handle. I really, really don't want to be bed bound during my 2+week trip to florida.
 
   Chart, I sure hope you are doing well, you ve been through an awfull lot latley *hugg*
 
   Lori, YES, I do as a matter of fact & made my first sale last week! hehe Was of a dyed jade necklace, earring, 2 bracelet set. I felt ten feet tall and my heart knew no bounds when it was sold. I hear the young lady who it was a gift for appreciated it alot! I have all of it on face book page, do you use the site?
 
*huggs*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/16/2010 6:20 PM (GMT -7)   
 
 
   ..p.s. still no word on if the genetic / chromosonal testing has been approved or not.
 
shakehead  

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/17/2010 1:33 AM (GMT -7)   
Dani,
It sounds like you found the info. you were looking for by using White Beard's suggestion. What I would suggest is that if/when you're ready to make the transition to an SSRI, to let a psychiatrist manage this for you. I'm not sure if that's who prescribes the amytriptaline or if it's your PM (sorry if I missed that info., if you stated it somewhere else) but shifting from a tricyclic to an SSRI should be managed by the primary specialist who works with these meds and that's a psychiatrist. Also, depending on your other health issues, an SNRI may be better for pain. Cymbalta is actually a good example of a medication that is both an SSRI and SNRI (this has to do with the neurotransmitters affected by the medication) and that's why it's often used for pain as well as an anti-depressant.

I hope you can find whatever will help you the most, but certainly understand why this may not be priority #1 for you right now!

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/17/2010 10:26 AM (GMT -7)   
 
 
  Dear PA,
 
     Yes, White Beards link was VERY informative and exaclty what I was looking for. If anyone else is intreseted here is the link
 
 
   The Amitryptaline is perscribed by my spine speciliast (sub-speciality in spinal deformities) for pain originating from my progressive spinal deformity as a part of my pain management. It is part of a daily "cocktail" of pain medicines. Not from a psychologist.
 
    I had thought about it because, well, I hear so many other people talking about their anti-depressant medicines used for pain here on the forums and they "seem" to do so very well. Some "seem" to be very clear headed despite the anti-depressant. But, I do realize that my case is.. unique. I know the "pain" I experience from my spine is diffacult to treat at best. I suppose I was just looking for something easier. Perhaps the grass only "looked" greener on the other side, and not exaclty what I thought.
 
      I think I will wait for after my "trip" or when we are at the "assessment" appointment just before I leave. ...or maybe not at all. I havnt quite made up my mind.
 
     I have many side effects from my "cocktail"  but I am used to it now for the most part. I know having days where I am at an 7 - 8 consistently is a blessing. Im not trying to sound ungreatful. I m not, I am very greatful. So, I wouldnt want to take a step backwords. ....I guess I was just chasing a lead, hopeing for something better.  
 
*hugg*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/17/2010 12:24 PM (GMT -7)   
Dani,
I sure don't blame you for wanting to try something to get more relief. Nothing wrong with that! But switching from a tricyclic to an SSRI or SNRI might give you some bumps in the road, if you know what I mean, so since it seems your trip is coming up soon, you may not want to make the switch right now. If you've never consulted a psychiatrist, it might be worth it after your trip (but I know the last thing you may want to consider is one more doctor!) just to have a consultation with a psychiatrist who maybe has a sees a lot of chronic pain patients and see if a switch in anti-depressants might help, and if so, how to do it.

I just saw a psychiatrist myself who is helping me with PM, and I am going to give cymbalta another try but I had one (and only one) adverse reaction last time I took it in that it affected my seizure threshold (I also have a seizure disorder), so I had to move to effexor. The effexor is similar to cymbalta, but not quite as good with pain, and the cymbalta made my feet feel normal for the first time and that was huge. So the psychiatrist told me how to make the switch, and this is even from two very similar anti-depressants. Tricyclics are an entirely different category of anti-depressants, which doesn't make them bad. Some of the older anti-depressants can actually be very helpful, but sadly I think the anti-depressants only hit parts of our pain. I know for me the effexor helps mostly my mood, and maybe a little with my pain. Sorry to go off on my stuff, but I wanted to let you know I realize how tricky this all gets and if it was me I wouldn't make the switch before going away where I wouldn't be close to my doctors.

I hope you have a good vacation, although I'm not sure when you're going.

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/18/2010 8:01 AM (GMT -7)   
  Dear PA,
 
    I am glad you are seeing a psychologist as part of your pain management. I hope your experience will be as wonderful as mine was. Mine was of tremendous vaule in re-building my life with step by step guidance. Even my environment. Who I was as a person and who I wanted to become.... All with tools to help me better manage pain aswell. I call her a "Pain Psychologist" but really she has sub speciality in chronic and terminal illness. She works with the spine specialists that I see and is part of the private hospital chain I recieve all my care from. I saw her for a very long time. When and if I need her, she will be there for me again. Until then, I just get assessments to make sure everything is where it should be, mentally and emotionally. It is a normal process for me and has been this way for a while now. The pre cautions are because I am rather young and spinal deformities present a multi discplinary approcah. It effects me in many aspects of my life physically, emotionally, socially and financially.
 
     When it comes to meds in general thou, I am not allowed to recieve or fill medicines that arnt perscribed by the three main specialists that I see. A good example is recently I was perscribed a cortisteroid for my deviated septium w/ chronic inflammation, in the hopes of giving me more time before I would need my nose operated on.(call me crazy but I want to make it an entire 6 months without any surgeries) Even that had to wait until proper notification. One good thing thou, is that all my meds are overseen and there isnt any confusion.
 
     I have been taking amitriptyline for 2 years now as part of my pain med "cocktail". It helps with many many aspects of pain. Most notably turning down my pain signal. Over all it is a good compliment to my other pain meds. Just burdonsome side effects like dry mouth, dizziness, et al. Not that it matters, I dont have good enough vision to drive and don't have to worry about "dry mouth" effecting the teeth I dont have. Ahh... this is the part I hate. Where I think I am on to something, I reasearch it for hours! All the while knowing it is a long shot... then BLAM! Let down central. I had a thought the other day that perhaps this is how people who buy lottery tickets feel like. Perhaps they get excited of the prospects and have fancifull dreams too.
 
     ...I bet we all feel like that sometimes, come to think of it....
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/18/2010 11:11 AM (GMT -7)   
Dani,
Oh, I think we all know that "let down" feeling all too well. I think my age has tempered my expectations of late, for better or worse.

If you're getting dry mouth that's such a common side effect that you could get it from any anti-depressant. If the current cocktail is helping you, then maybe a change in the anti-depressant isn't going to be the key ingredient. I was more reflecting on whether you were going to make a change from a tricyclic to another class of anti-depressant. Sometimes non-psychiatrists don't always understand how to help people make the switch. Kind of like how non-PM docs don't know how to help people transition from one pain med to another.

BTW I'm not seeing a pain psychologist but a psychiatrist. Difference is the latter is an M.D. If my insurance covered it I would try to find a good therapist to see, but all of the good people in the area were colleagues of mine which is a conflict of interest. But at least this psychiatrist knows about meds including pain meds as well as the anti-depressant classes, and that's what I really needed help with as none of my local docs would help with "narcotics". You've heard that tune before, too. shakehead

PaLady
p.s. I'm glad you found a pain psychologist helpful, and the last thing I'm doing is putting that down as it's similar to what I spent most of my life doing! And I've been on both ends of the therapy couch! smilewinkgrin

Post Edited (PAlady) : 5/18/2010 12:21:25 PM (GMT-6)


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/18/2010 11:53 AM (GMT -7)   
 
 
   Dear PA,
 
    Yes, I had read about many of the similarities of the two. It had seemed to me , at the time, that the number of side effects and precautions was far less with the SSRIs vs. my particular tricyclic. Not that I am looking to open a flood gate, as it were...but it is a thought on my mind none the less.
 
    When I first began seeing my psychologist, I told my spine specialist about how awesome she was. He had said, "Yes, she helped me alot in my own life." I remember how secure and even more safe with her I felt knowing my own spine specialist had sought her help for a year.
 
     How long ago were these psychiatrists / doctors your co workers?
 
    And yes, it was very nice to have my mental health covered and the co pay was, at the time, viewed as a general care so I was charged very little for the first 4 months.
 
*hugg*
   dani
 
  p.s. You know I remember walking into her office...... The first thing I asked was where were her bottle cap glasses and her couch? She laffed so hard! She had was one office for set up for biofeedback, one office set up with learning materials, coffee area and a private courtyard for "walks and talks".

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/18/2010 7:37 PM (GMT -7)   
Dani I've tried 3 different anti depressants ( I have no idea what class) but I found each one gave me massive side effects that far outweighed the gain. I just couldn't stay on them. I'm impressed you've managed one for so long. But what I can relate to is that wish for the miracle pill that cures without side effects!

I yearn for a direction to go in where I know I'll come out the other side feeling better. I feel like I'm bumping around in the dark totally lost at the moment and really unsure which way to turn.

I do hope you rest up and your current pain dulls enough for your journey. I'm on rest too, oh so tired all the time in my case. I'm trying accupuncture again but I'd love to find a lateral thinking practitioner who could wave a magic wand and come up with some plan. I'm sure you're in the same boat on that one.

I did ask when I had my last infusion what they give to people to toughen up their bones and its called zolandronic acid. They get 3 infusons , one a year and it acts like a bone cement. Have you heard of this one?

My heart is always with you, Golitho (I'm suffering from soggy brain at the moment and I know I'm not making a lot of sense-apologies)

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/19/2010 4:05 PM (GMT -7)   
 
 
   Dear Golitho,
 
    Good evening *hugg* It sure is good to hear from you. I am sorry the infusions are getting so hard. It must be so hard for you right now. Gosh, I am so sorry you are going through so much. *hugg*
 
    I wrote the name of the infusion down. I will mention it on my endocrinologist in a month ( I go in beginning of july and blood work for him as soon as I get back from my trip) As of right now the boneloss is under control. I was told I still have to continue the medications and diet changes (No caffeine  sad  ) for the rest of my life. That I will still have to be monitored via blood / urine every other month for the rest of my life as well. The bone scanns will have to be done "perodically" ..I think those are only every 6 months? Reguardless, it is finally under control. But, I know it is a slippery slope, and will keep the treatment / medication name close by, as well as mention to the endocrinologist. Thank you very much for finding out the name. I appreciate it a LOT.
 
    I sure do hope you get your energy back. Its so good to catch up with you. Your in our prayers here.
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/19/2010 4:55 PM (GMT -7)   
Thanks Dani, I just realised you're now a forum moderator.. congrats on the big step. Good to hear your bone loss finally stabalised, what a huge relief that must have been for you. Did you manage to get all your current pain under better control?

I think of you lots too. My local hospital rang me up to ask me to attend a 6 week course on how to live with RA. Its being run by their PM department (which I found particularly hopeless) but maybe this will be good.Meeting other sufferers has to be good anyway.

I wouldn't mind all the infusions if they actually did something positive but I've had no good come from them at all. Like putting water into my system, I'm so over not responding to these meds except to wipe out my tolerance to infections. Which way to turn...alternative, western, vitamins... all this money I'm pouring into my system and still I see my joints getting worse. Hard to stay on top at times.


Have you tried alternatives like accupuncture or anything? I had a try last week, lying there with all these needles thinking relax just relax. Felt like a pin cushion having minor panic attacks! I just hate it, haven't noticed any improvement either but I'll try again, gotta try something else stage!

Where are you headed? Best wishes to you dear Dani, golitho

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/19/2010 7:11 PM (GMT -7)   
 
 
   Dear Golitho,
 
    I hope you meet some nice folks in the RA support group. But, I'm really sorry the infusions arnt helping. I remember last fall you were optimistic about the treatment as it was 1. dangerous, and 2. possibly wouldnt work. I must admitt I had hoped it would provide you with atleast a little relief. It would be intresting to see what kind of tools and advise the "support group" has..more so, to compare notes with the other patients who attend. You will have to be sure to tell me how it goes.
 
     I am in more pain than I have ever experienced before, even when the bone loss was at its worse. I was told repeatedly and reminded often that the "levoscoliosis" ( "C" shape with tilt to the left) had started before the bone loss, would likly continue. The bone loss did further damage to already "rotated" vertebre and there is "arthropy, degeneration, sclerosis" to areas previously rotated / effected by the spinal deformity (rotation on the verticle axis). When we got the bone loss under control we all expected it to go back to progressing at the same rate....we were all wrong. I was deemed "Moderate" as of March. I now have a new secondary in my thoratic. My cervical is showing signs of possible problems. I get a sickening feeling even thinking of the possibly of all three areas ..I cant even say it out loud. 2 areas is too much as it is...in any case, there is "narrowing" both canal & disc space aswell, but that is "normal" for this. Basically I am a "S" shape now.
 
    My doctors are now seeking genetic / chromosonal testing to find out what is causing it. My insurance company has asked for 45 days (maximum) to reach a decision. There is very little measurment between the tip of my right hip and the bottom of my rib cage on the right side. The hip itself is rotating out and backword now (instead of out and forward like last year). One small blessing about the new secondary in my thoratic is that it caused my collar (shoulder tilt) to even out somewhat.
 
     My biggest problem right now is walking. The uneven amount of weight from my torso is tearing my knees apart. Also, I literally cannot sit for very long atall. I find myself standing all the time now. Cant walk, cant sit, cant lay. Just stand around trying to keep myself busy. Been that way for 2 months now. Its...something needs to be done.
 
     Yes, 3+years ago when the pain began (pain began about ..oh a month or so before the deformity began) I sought out many forms alternative treatments. But, noone was prepared for what my spine would do, let alone the extent of the other problems that would ultimatly spiral out of control (IE vision, hearing, boneloss, et al). at the beginning of last year even physical therapy / massage was denied, no matter how many doctors I tried to "push" into letting me go again. The last I asked I was told "No. It will not help, possibly cause damage."
 
     Yes! I am leaving my beautiful desert for Florida! I will be there for just over 2 weeks. I am excited to get to meet Pete (healing well pete) and his wife while we are out there. He sent my Bumblebees video of his horses and little Rosie is as excited as a jumping bean! Miss Tess is just sure she and Petes horses will be best friends and go play in his feilds.
 
     ...only 2 people out there in Florida know what is going on with me. Pete and one other person. So, basically people who saw me just as normal as apple pie 3 years ago, will get the suprise of their lives.  smhair    I know I should have said something.... I didnt tell anyone, because, well, in the beginning I was treated like I was "complaining" like I was "making it up".. So, I just havnt talk to any of them since. But I wasnt rude! Ever! I just hid everything that was going on with my health. My husband politly turned down requests for visitors. I still send holiday well wishes, gifts, chocolates. I just never mentioned me. Never took any family pictures with me in them for almost 2 years.....
 
     Also I havnt told my doctors yet... I will bring it up next week just before I leave. Gosh I hope noone is angry.
 
*warm huggs*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 5/20/2010 8:15 AM (GMT -7)   
I do know that Elavil is used off label for many different situations. It has been around for a very long time, it was used a lot many years ago in treating CP, also used to help with migraines, depression and was used a lot for treatment of RSD when they first started dxing folks with it. One of the biggest complaints most had was when they first started it, was the sedating affect at first. This usually went away within two weeks or so. Elavill also is a drug that builds up in your system as you take it. It can be a very good medication for some people.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/20/2010 8:29 AM (GMT -7)   
 
 
   Dear Susie,
 
     Yes, each increase normally in the past has taken about..2weeks or so to even out. In the very beginning when I began taking it, the increases took a little over a month to get to an even dose (x3 increases total). When my latest pain increase began, it was doubled in April. Not in slow 25mg incraments this time. Needless to say, the side effects are rather strong now. It helps tremendously, no doubt about it. ....but it definatly makes its presence known.  smhair
 
*hugg*
   dani
 
TWO Roads diverged in a yellow wood,
And sorry I could not travel both
Ans be one traveler, long I stood
Chronic Pain Moderator


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/20/2010 11:12 PM (GMT -7)   
Wow Dani, what sort of friends do you have? They will no doubt be shocked at the progression of your disease and its really hard when it (the diagnosis)won't fall into a neat little labelled box.

How exciting to see Pete, mad, crazy doing too much all the time Pete. Your daughters will love it and I'm sure it will be a godsend for you to be able to chat away without explanations of standing or discomfort necessary.

Your scoliosis sounds so horrendous, do you get any relief in warm water? Even not exercising just being supported in a warm pool may help? I'm not meaning serious exercise or anything, you'rd think just having the water's wonderful bouyancy would give your poor back some relief.

I bravely went back for more accupuncture today, I didn't have a panic attack this time but I really don't like it. The ones in my feet really hurt, seemingly they're for my liver so I just try and think healing liver thoughts, as my liver was inflammed with the last flare. My hands are getting sore again and when I rang my rheumy she sad more prednisone. Her answer for everything, I'm swimming in it. But most of all I think I'm just a bit depressed, hard to see my way out, then I think of you and try to put a perspective on it.

I wouldn't worry about their anger, if you didn't feel you could be honest with them at the time, if they didn't want to listen to you or wrote off your words as nothing then they deserve to feel embarrassed. I know we are all busy people when we have kids and careers its hard to find extra time but when someone is in need, which you clearly have been... I'm just apalled they didn't listen. Just say well I tried to tell you...but I was dealing with all the pain!

When are you off? How will you journey? By car, lots of rest stops? Keep us posted, you're a very special woman and deserve better friends, golitho

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/21/2010 9:09 AM (GMT -7)   
 Dear Golitho,
 
     Good morning *hugg* Its good to hear from your this morning. I am sorry your doctors keeps doing the same thing over and over with you. Gosh, you have had to take alot of prednisone this year! It has alot of side effects that have got to be frustraiting for you. I really wish there were more treatments for RA. And honestly, with so many people suffering with you you would think there would be more research done!
 
     ...OKay, needles in the foot doesnt sound good atall. I realize that it is to help you... in the feet? *shiver* I would chicken out in a heart beat if I were in your shoes. I hope after all the effort and time that you have been putting into it, that is helps.
 
     ..you right. But, I have you and my friends on healing well. A true blessing in my life, no doubt. I wish I could be upset with the people that treated me badly, but I just don;t really have it in me. Even the people here in my own home town treated me badly. Then by the time the cat was out of the bag, so to speak, they were all so embarrassed and guilty, they didnt talk to me anymore anyway. The whole treating me badly cycle repeated again, at that time I just cut myself off from them. But, the girls school, husbands company, my physicians, neighbors and many of my husbands friends have all be wonderfully supportive. Add in all the support I get here and I am truly blessed. I guess I am just afraid I will have to live through it all over again with floks in FL. So, I really hope it doesnt go badly.
 
     Gosh, I dont know. I bought a bath suit last weekend. My husbands mother has a pool and I hope to spend some time in it. So I will be sure to let you know if it feels better or not. It would be awesome fi I could get on the waiting list of aqua therapy down in albuquerque. I hear they get to be in an indoor heated pool. But the wait list is 3 months. I would gladly wait thou, if I do well in the pools.
 
    We are flying. We leave here at 3am, have on 4hr layover in georgia. The travel agent couldnt find anything straight through to Florida. I am a little nervous about traveling. Ive never traveled sick before, so this is a first for me. Also I am a little worried... okay, alot worried about walking. So I will bring it up with the spine specialist next week before I leave.
 
    I will be able to update you about my adventure because my daughter and my husband have laptops and will be able to use theirs. We are Soooo excited to meet pete! Also, when my husband and I were married in Florida, we spent our honeymoon in st augustine. So, my husband set up a side trip for us to go while we are there! Im really excited. I dont know if you have ever been there but the whole town just vibrates with history and age! The buildings and historical land marks are beautiful. We have all sorts of adventures planned , so I will update you on how it goes  :-)  
 
    It sure was nice to chatt with you this morning. I hope your body lets you rest at some point today. You must be very drained and tired right now! You are in our hearts and prayers here. Stay strong!
 
*hugg*
  dani       

Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/21/2010 3:58 PM (GMT -7)   
Hi ya Dani, flying sounds a much better option. Register yourself as disabled and get one of those golf cart thingamies to help you in the airport. My mother-in-law flew out to Australia at 86, with two hip replacements and a bad knee in need of a replacement. She is quite crooked to say the least and she was met with wheelchairs or golf buggies the whole way out, she is incapable of walking any distance.
 
Oh I hope the excitement gets you through it, not being comfortable to sit will be a huge problem for you, you must be a little worried.
 
No I've never been to Florida, I went to USA with my parents when I was 16, we saw California and then flew to visit relatives in Rhode Island. I remember it all being very beautiful. We did some sightseeing in NY too. Maybe one day I'll get to Florida, in my dreams. Money has always curbed my travel plans!
 
Plus all our parents are still alive and we feel compelled to visit every couple of years as we know they won't live much longer but it means its Ireland or New Zealand every holiday we take nearly. Both beautiful countries and our families are lovely but as an artist I still yearn to visit museums like the Guggenheim or MOMART or visit Europe, you can imagine. Or even visit your desert and look at some of the Georgia O'Keefe country....one day!
 
Lovely to talk to you too, you keep us updated with your trip. Can't wait to hear how it all goes. I hope the warm water gives you some relaxation time. 3 months wait is still worth it for hydro. Best wishes, golitho
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