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om7peace
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/17/2010 2:59 AM (GMT -7)   
Hi, am thankful I found this group. I have not had anyone to talk to who understands what I am going thru.
I have fibo/chronic fatigue/ nerve damage in back . I have been in such horrible pain from a flare up this past month that I am about to go out of my mind.
I go see my doctor again soon. Right now he gives me 3 lortabs a day...5 mg. Sooo does not cover the pain. Some days when Im not in a flare up then yes it would but right now its taking 3 of the 5 mg's to just get me out of bed.
I am thinking of asking him if he would increase it to 10 mg. That would be more helpful and maybe they would last me all month. At the same time I am scared becasue wonder if he says " well no I cant do that and perhaps we need to stop taking the lortabs completly" I dont know what I would do.
 
I do feel like im going crazy from this pain. Its all over , all of the time.
 
The Er here is horrible also ( I was reading some of the other post ) I was treated like a drug addict. They were so rude to me. What gives them the right? why do they have that job if they are just going to be mean to people. It makes me so upset I cannot stand it.
 
My family does not understand. Infact they are getting sick of me being sick. My live in bf gets mad everyday because I dont feel like watching a movie or whatever...the stress makes me worse. Much worse I think. If I could get my own place I would but financially I cant. I think living alone would be the best thing for me. Im tired of having to push myself to do things for others just so they wont get mad at me which only upsets me more.
 
I usually start to get depressed after a flare up last for a while.
 
Do you think I should ask my Primary Care doctor to up my lortabs to 10 mg or do you think that could push him to giving me none?
 
Thanks for lisening. Kinda felt good to talk about whats going on with me without being put down :)
 
I dont have the signiture to my post yet....I am not sure where I go to add it. Once I do I will list more details, sysmptoms and history.

Becky83
Regular Member


Date Joined Nov 2009
Total Posts : 20
   Posted 5/17/2010 3:43 AM (GMT -7)   
Hi om7peace. 
 
Welcome to the family.  We're all here when you need.
Becky
 
Suffer from: Depression, Chronic Abdomenal pain, PTSD, Asthma and Fibromyalgia.


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/17/2010 4:49 AM (GMT -7)   
Hi om7peace, I just wanted to welcome you and let you know you are not alone. I am fairly new to this site myself and love it here. The members are very caring and have alot of information as they are dealing with the same issues. I hope you stick around you can get alot of info and support here!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 5/17/2010 5:31 AM (GMT -7)   

Hi Om7peace,

Welcome!  Most of us have been where you are with our family and friends not understanding what we are going through.  I thought my husband didn't care because when I cancelled outings or didn't feel like watching movies, he simply did NOT say anything.  After many months of feeling very alone I finally called a family conference.....what I found out was his silence was one of frustration, frustration that he couldn't fix me!  It is very hard for people who love us to know what to do, once they know its not their job to fix us, just support us, it does change things. 

Its hard for people who don't live in CP to understand, talk to your BF honestly.....we are here for you!

XXOO
Patti


om7peace
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/17/2010 8:10 AM (GMT -7)   
Thanks everyone for the welcome and kind words :)
I am very glad to have found you guys. Hugs om7peace

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/17/2010 9:21 AM (GMT -7)   
 
 
   Good Morning Peace!
 
      Welcome to Healing Well Community! My name is Dani. It is very nice to meet you. I hope you find it a comfortable, caring environment to spend your time.
 
     I am so sorry your flares are out of control. I know you mentioned Lortab. But I wonder are you on other medications? More importantly have you been to a Pain Management Specialist yet? If not, I highly recommend you see one. Often times, chronic pain ( no matter the source) takes multiple approcahes. Ani-depressant, nerve med, pain meds, break through meds, anti cons, blocks - epi - trigger cortisteroids, et al. A pain management specialist can take of all of that. Often times primary care physicians arnt able to take care of chronic conditions. So, that is just a thought. I don't know how your relationship with your primary care doctor is, or if he/she would be open to refferal to a pain management specialist.
 
      Again, welcome! I look forward to getting to know you better as time goes by
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/17/2010 10:40 AM (GMT -7)   
Hi....my name is Michelle, and I just recently started posting here, and its a great place. It's really nice to be able to talk to people that REALLY understand, my husband is great, and he really tries, but I can tell that he gets just as frusturated as I do. Anyway, welcome and hope to hear more from you!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


Old Hippy
Regular Member


Date Joined Apr 2010
Total Posts : 104
   Posted 5/17/2010 1:51 PM (GMT -7)   
Hi om, I can totally relate to what you are going through w/docs and feeling profiled-- as a druggie with no credible complaints. All I can say is, you have to be your own best advocate, and not allow anyone to dismiss <or mock> your pain issues... I find it incredible that there are so many people here @ HW--that share similiar symptoms & complaints--there is definately a common thread that needs researching by the scientific community. Anyway, off topic--I hope you find relief soon, & speak up! What is the worst thing that can happen?--you may have to find another doc, but, I'm sure it will be worth it. peace out... L

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/17/2010 2:30 PM (GMT -7)   
Are you seeing a Pain management doctor to help with your pain or just your pcp??
Maybe it's time to seek out a pain managemnet Doctor, you could do a physician search for one in your area, to start, then
maybe ak your pcp if he could refer you out to pain management... and just go from there...
The new approach is injections for fibro, I'm not sure of those....
Hope this info helps
((((((((((((((((((((((((((((((((((((((((om7peace))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 5/17/2010 4:38 PM (GMT -7)   
Welcome to the chronic pain forum.  I'm glad you found us.  I'm sorry you're in so much pain.   You might want to ask your pcp to refer you to a pain management doctor.  I wish you luck with finding relief from the pain.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 5/17/2010 6:03 PM (GMT -7)   
Hello and welcome....This is the best place to be if you suffer from CP or if a family member or friend suffers... Some friends and families just don't understand our pain...mine included.  They think we are making it seem worse then it is...or we're making it up to get pills.  My mom was the same way until she hurt her back and had to have PT..she doesn't take pain pills....but she knows how I feel....a little bit.  Sometimes it seems better to isolate ourselves when we have a flare...just "Leave me alone" attitude comes out and that's the worst thing to do.  We need support.  And we need good and caring Dr.'s.  I would suggest getting a referal to a pain Management Dr.  They can help you better then your PCP can...and they don't worry about writing a script for pain pills like PCP's do.  Most Primary Care Dr.'s don't want to have the DEA watching them so they don't write narcotics.  Find a good PM Doc....that's what I suggest.
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1700 mg. at night..Glipizide 10mg. 2X in the morning and bedtime
Lantus 50 units at bedtime with Solostar Pen
Byetta 5 mcg. 2X daily                                                                   

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 5/17/2010 10:01 PM (GMT -7)   
Hi OM,
 
Welcome to Healing Well's chronic pain forum. I am very glad that you found us. As you can see there are quite a few of us and know that you are not alone in your suffering, although I know many times it does feel that way. Everyone here has a story to tell as to how or what caused their CP to rear its ugly head and turn their world upside down. For many of us we ar working on building a second phase of our life because of CP. I always says no one can truly understand or appreciate CP unless they too suffer with it. Kind of like takes one to know one type of thing.
 
It seems to magnify things even worse when we feel that we have no one to talk to about how bad we may hurt or how bad we may feel. Some are fortunate to have support at home some don't. I no longer talk about CP or any of my issues with my family. They don't understand it, heck most of the time I don't either, so can I really blame them for not understanding, no, I can't and I don't. I did seek out help from a very good psychologist that helped me a great deal. She was knowledgable not only in CP but auto-immune diseases as well, so I kind of got a two for one in that area. Our ins changed and did not offer that sort of help any longer, now I am on Medicare and sure can't afford to run up one more dr bill.
 
I don't know if you are having any trouble with depression or not but CP and depression go hand in hand for some reason. If you feel depression is sneaking in then by all means let your PCP know about this and get something for it. Life is much better around here now that I take something for depression. Many times antidepressants can help lower the pain level somewhat too. Does your PCP have you on anything for the nerve pain from the Fibro, something like Lyrica, Neurotin or CymbBalta? These medications can work very good for some with nerve pain and Fibro. Alot of people on here that suffer with Fibo usually are on one of these meds, a lot of them are on Lyrica.  Most of your regular pain medications have little effect on nerve pain, its takes something for actual nerve pain to help with that. You may want to check these meds out and talk to your PCP about being tried on one of them.
 
Its really hard to say one way or the other as to what you should do about your PCP and asking for an increase. You know your dr better than any of us and know more on how he will react when being asked about an increase. Rather than ask directly for an increase, why not just tell him that the meds you are on now are not effectively getting your pain level down and its getting worse and is there something else he can try or suggest for you in order to get some relief. By asking this way you are asking him to try something different but it looks like its his idea and not yours. Not many PCP's will rx pain meds to a patient for long term use. They don't want to get involved with it as a rule. Most will tell you this and if yours gets to this point then ask to be referred to a pain mgt for care. I would also say I would like to have one that deals with a lot of Fibro patients too.Yes, we all know about the care you get going to an ER, its criminal.
 
Let us know how the appt goes with your dr. Try to hang in there, thats about all you can do and take care of yourself. Any time you feel the need to talk, vent or whatever remember you have found this place and we can offer a lot of moral support.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/18/2010 1:02 AM (GMT -7)   
Hi, Om7peace,
I want to add my welcome to the chronic pain forum of Healing Well, although I'm sorry you have reason to be here. Straydog has given you some good advice about the medication issue; I think that's a good approach to take with your doctor. Keeping a pain journal for a few days or longer may also be helpful, as your doctor can see how your pain affects your daily life. There's a link to a pain journal in the CP101 thread at the top of the page of posts. There's a lot of other good information in that thread, too.

Glad you found us!

PaLady
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