New here, with carpal tunnel issues-

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marykelly
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/19/2010 7:18 AM (GMT -7)   
Hello everybody. I'm Mary and I've come here with a question that maybe hopefully someone can answer for me. I have fibromyalgia for 8 years that started just after my son was born. Then my daughter was born 2 years ago and while pregnant I developed carpal tunnel in both hands. It's definately carpal tunnel and not FM and the doctor said it would go away after birth. But it didn't. It actually is getting worse and worse. I had a Emg test done and the surgeon said I need surgery in both hands. That scares me and I can ill afford that. But I must do something. I've been reading alot about nonsurgery treatments and there seems to be all sorts of things available, but I'd like to know what works and what doesnt because they all say they work. I'm skeptical, but I'm really not keen on cutting my wrists open. So has anybody used any nonsurgery treatments that work? I splint both hands at night and I've taken B vitamins and used CT cream, the Carpol solution, and ice followed by heating pads. But Id say none of that helps much. I appreciate any advice on this. Thanks

clapper35
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 5/19/2010 8:01 AM (GMT -7)   
Hey Mary! You are so right to search other options. Doctors are NUTS whenit comes to surgery for carpals. I read a report a few months ago that said over 90% of carpal patients who got surgery didn't even need it!!

Anyway, I don't know if this will work as well for you as it did for me but I used a Carpal Therapist. Its a machine and it really works and it got rid of my pain and numbness pretty quickly and none of it ever came back. I also tried the Carpal solution first but that was a waste of money. I know that B vitamins DO help but you need to take them for like a year so keep at it.
Btw, you can find used carpal therpists on the web. I had one and sold it on ebay so try that. Good luck!!!!!!!!!!!!!

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 4648
   Posted 5/19/2010 8:38 AM (GMT -7)   
I've had good luck with raising my vitamin D level and using the computer mouse with my left hand for my carpal tunnel - enough to not need surgery on that for now.

Raising my D level to normal (it was only 18) seems to help with pain. I take 2000 units in the morning and another dose in the evening if I don't get enough sun. We don't store much D and there isn't enough in any food. The toxoc level is 10.000 for a long time, so 2000 seems safe for anyone in the north. I got my husband to take it too. He had a lot of ugly brown spots on his legs from hitting stuff in the greenhouse and his wounds took way too long to heal. His spots have almost gone away in only a month and his wounds heal very fast now.

It seems normal after a year to use the mouse left-handed.
Alcie
 
 


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/19/2010 10:31 AM (GMT -7)   
I had the surgery done on my right hand, and hate to say it, but I can feel my hand now, but still have no strength in it and can feel neuropathic pain in my hand. They told me that I need to have my left had done as well, but I really don't think I am going to do it. My mother had hers done years ago and said it took a full year before she could say that she was glad she had it done. If you have any luck with alternative therapies I would definately stay with it as apposed to surgery. If you come across something that works, post it, I would like to try it!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/19/2010 10:31 AM (GMT -7)   
I had the surgery done on my right hand, and hate to say it, but I can feel my hand now, but still have no strength in it and can feel neuropathic pain in my hand. They told me that I need to have my left had done as well, but I really don't think I am going to do it. My mother had hers done years ago and said it took a full year before she could say that she was glad she had it done. If you have any luck with alternative therapies I would definately stay with it as apposed to surgery. If you come across something that works, post it, I would like to try it!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/19/2010 1:53 PM (GMT -7)   
Mary,
I've had both hands done and never regretted it. I let the pain get so bad nothing was working so I had my right hand done in 1994 and the pain was gone the night of the surgery. When my left hand got bad, I had that done in 2004. I only wish my back surgery had worked as well as my hand surgeries did! I know there are surgical procedures that don't cut the center line of the hand, but do a smaller incision by the thumb. I did have a great hand surgeon and I'd use him again in a heartbeat. But if you can find something else that works, good for you. I just wouldn't suffer endlessly if nothing works - which is what I was doing to myself. It did take a few months to get my hand strength back, but then again my hand strength was lousy before the surgery.

BTW, welcome to the chronic pain forum of Healing Well! :-)

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/19/2010 3:16 PM (GMT -7)   
Hi Mary...

Welcome to the board :) I'm sorry you are having problems w/ your CTS. I, too, have fibro and CTS. I was told the exact same thing... my carpal tunnel was so bad in my last pregnancy, and was told it would probably resolve once I delivered... but it didn't. For various reasons, too, I chose not to have the surgery. I had an EMG and have moderate to severe damage on one hand; severe on the other.

I've learned ways to manage the pain over the years. There are times when it's worse, and times when it's better (although the numbness/tingling is always there). You seem to be doing most of the stuff I do - splints, creams, heat/ice and so forth. The only other things that have worked for me are as follows: when the pain has been really bad, my PM doc would add a nerve medication on board and that would help some. But what really helped when the pain was at it's worst was getting cortisone injections... Most of the time, the injections would really help break the pain cycle and give me good relief.

Someone else mentioned regarding Vitamin D... I found out my levels were VERY low (a 5) some months ago. I've been on 50,000/units 2 to 3x a week. Anyway, if you do a google search of "Vitamin D deficiency and carpal tunnel syndrome" - you'll see the interesting link between the two. It might be worth it to ask your doctor to get your levels checked.

Regardless, I sure hope you get some relief, and find something that works for you! Let us know...
Good luck :) --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/19/2010 3:40 PM (GMT -7)   
Hi everyone,

This is a very interesting thread. As some of you may remember, I've posted recently about my hands and CTS. I've been diagnosed with extreme vitamin D deficiency and have been taking 50,000 units once per week and then 1,000 units twice per day (morning and night) in addition. My hands seem to be some (a very little bit) better, but I never put the two together. My levels were in the low normal range last week when they were tested.

I'd love to see some additional information on this one if anybody has any.

Welcome aboard MaryKelly!!
Retired Mom


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/19/2010 3:53 PM (GMT -7)   
Retiredmom...

I know we've talked about this before... but it's really interesting the things related to the Vit D deficiency.... it can flare up many things, and cause many health issues. I'm still on supplements, too... I haven't had my levels rechecked yet - and can't tell if they helped or not, because I have so many other things going on right now...

BUT... I'm glad your hands are somewhat better. :) --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/19/2010 8:00 PM (GMT -7)   
They have carpel wrist braces that you wear at night and then smaller more functional ones for day use.
If you don't want to try surgery try the braces for a while and see if they help.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/20/2010 9:07 AM (GMT -7)   
Momto6Boys,

I don't mean to hyjack the thread, but you are so right about the vitamin D. I can honestly say that I do "feel" better with the higher levels. It's like the difference between sitting in the chair saying "boy those squash need to be picked or they will go bad....and just letting them rot" and saying "ok, I know I will suffer, but it's time to go outside and pick squash" . You just feel more like you can get up and go do whatever needs doing. You still hurt terribly for doing it, but you find that you can get up and that it is worth the effort.

I hope you find that your levels have improved too!

I also understand about so many other things going on that it is hard to tell.

Best wishes!
Retired Mom


Arrunk
Regular Member


Date Joined May 2010
Total Posts : 52
   Posted 5/20/2010 12:04 PM (GMT -7)   
I just got diagnosed with carpal tunnel in both hands last week. I am wearing the braces on both wrists all day at work and while sleeping at night. They are cumbersome, but they do offer support and my hands are hurting a bit less. My doctor said he wanted to try that before discussing surgery.

Good luck!
Richard
 
Dx with Fibromyalgia, depression, sciatica-Feb 2010, carpal tunnel-May 2010; IBS-2007; RLS-2006; Tachycardia-1999. Possible RA.


waltersma
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 5/22/2010 6:47 AM (GMT -7)   
I had very good success with high doese of vit D and B complex and also wearing a carpal therapist. I have to say that Im very happy and pain free now. (neck pain and back pain are another matter though) For me it was a winning combo so i dont know if it works for everybody but it seems like a 1,2,3 puch for cts.

marykelly
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/28/2010 7:02 AM (GMT -7)   
Thank you all so much for the help!!
I did lots of reading lately on surgery alternatives and there really are many of them - lots more than I expected. I am maintaining my B Vits and do wear splints at night. I ordered a carpal therapist thingy because the comapny says its guaranteed to work and I saw two recommendations (this and another board) for it, and I also found massage and exercise videos on the web specially suited to carpal tunnel patients. I'm attacking this nasty thing full speed now!!!! Your support is great.. Thanks.
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