Well, it finally happened!

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finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/19/2010 1:00 PM (GMT -7)   
Last night, my husband and I went to our son's baseball game.  Don't know how many of you are from Oklahoma, but right now the weather is unsettled to say the least!  During the day yesterday, my back started knotting up and having muscle spasms, but I was doing ok, i mean, that is pretty much a daily thing, espically when the weather is crazy.  Right after we got to the ballpark, got our lawn chairs set up, the cold front came thru, and you guessed it, muscle spasms from my neck all the way to my tailbone.  Couldn't even watch and enjoy the ballgame because I was in so much pain.  Then, right before it was time to leave, I guess the muscle spasms finally pushed the vertabrae that is impinged on the nerves to my legs, and my left leg went COMPLETLEY numb!!!!  I couldn't get out of my chair, let alone walk to the car!!! (Our baseball complex has like 15 fields and the one my son plays on is at one end...a long way from the parking lot, not to mention the parking lot that is like 10 acres!!)  Anyway, before it was all said and done, my mom went and found one of the park maintenance guys who brought a golf cart to where i was, my husband and my son's coach literally lifted my out of my lawn chair and sat me on the back of the golf cart that hauled my no walking self all the way to my car.  When they told me that the numbness in my legs would come and go, they were not joking thats for sure!!!  Of course we had the late game, so EVERYONE leaving the ballpark stopped to check on me since I know most of them because my son has played there for 8 years.  I have never been SO embarrassed in my life, because by the time they got me out of my chair and onto the golf cart, I was hurting so bad, and so embarrassed I started crying, which did absolutley nothing to improve the situation!!!  So far today, my son's coach, 3 parents of kids on our team and 2 from other teams have called to check on me.  It is comforting to know that they care, but still really embarrassing!  At least today I can feel my leg, I just cannot put any weight on it or it will colapse.  so here I sit in my recliner, playing on the computer, because I cannot walk to do anything and dont have enough balance to try to do something one legged!!!lol  Anyway, I know this is long, but the moment I have been dreading finally happened.  My son was a trouper though, he was trying so hard to help me, but I know he was wishing he could stick his head in the sand....he's only 12, and he is having a really hard time dealing with my condition
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/19/2010 3:49 PM (GMT -7)   
Hi FRC...

I don't know if we've met or not... my name is Tina... Welcome to the board. I'm sorry you had that happen to you last night! I really am. I absolutely understand your feelings behind it... I'd probably feel the same way. That being said, please try not to feel embarrassed; you have some major stuff going on... and I know people were just coming up to you and calling out of concern. I'm a really shy person about that kind of stuff, though, so - again - I really do understand.

My sons, too, are troopers... and your son sounds the same. My older boys are 15, 14, 12 1/2 and almost 11... and they are great about dealing w/ all of my stuff, limitations and so forth. That being said, I know my boys probably have times of wanting to put their heads in the sand, too :) They are just at that age when you don't want anything different from the "norm" :)

Anyway, just wanted to empathize w/ you... and I sure hope your leg feels better...! Take good care,
--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/19/2010 4:06 PM (GMT -7)   
I know that there are going to be times when that happens in public, but of course it had to be after my sons ball game....They won and were so excited, then there I was. I try so hard to make the ballfield all about him, because he lives for his baseball. One thing I can say is that he told me after school today that I needed to quit worrying about embarrassing him. If people don't understand that I have something wrong with me then they can kiss his butt!!!:) Thats my boy.....
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 5/19/2010 4:30 PM (GMT -7)   

Hi Finally,

I can so relate to how you feel emotionally over what happened.  I'm sure you know that no one in that crowd would want you to feel embarrassed....as hard as it is try and put yourself in their shoes and you will know that they all love you and care about you.  I know thats how you would feel if it happened to one of them!  With that being said....I do not have the extensive issues you do with your spine but have nerve damage in both legs worse on the left, I can be walking along and next thing I know I'm on the ground.  I joke and say I'm a professional faller as I have fallen in front of so many people at special functions or even here at home.  No matter where or when it is so embarrassing, so I hope knowing that many of us here can relate and are sending you lots of love and understanding....but don't be to hard on yourself okay?

XXOO
Patti


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/19/2010 4:36 PM (GMT -7)   
Hi, It does get really embarrassing when our bodies let us down in public places. I have major trouble with stairs and find myself completely daunted at times when theres no lift or way around. My kids all play soccer and I know what you mean when your child gets embarrassed by your condition. I guess as it happens more often you just get a thicker skin and toughen up to the attention. Horrible I know but its basically whats happening with me.
 
Sorry that yourback is so bad though. Numb legs don't sound good. Hope you get rested up and some relief comes your way soon. Best wishes, golitho

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/19/2010 8:13 PM (GMT -7)   
I have the serenity prayer engraved in my mind
It is the only way I can make it sometimes
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/19/2010 8:50 PM (GMT -7)   
Finally... Your son sounds like a sweetheart... I love boys :)

Hope you are feeling better.

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

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