Ok...Which hurts the worst?

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nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 5/22/2010 3:23 AM (GMT -7)   
 How has everyone been? I haven't checked in for a while because the steroid treatments have me on the merry-go-round that you are all too  aware of..... This week will be my third and last treatment. I don't feel that they have done a thing anything but remove some of the redness in the shoulder, give me a little pitting edema in my legs and I'm sure that the scales have moved upwards quite a few pounds which I'm past worrying about after years of steroid use. I have at least gotten smarter and have kept EVERY piece of clothing I have no matter what size so that I have something to wear. I was so bold to give away all of my " bigger" clothing when I lost all of the "steroid weight" once and what a mistake that was! I did well for about a year and then everything fell apart again and the steroids started again then the weight jumped back on just like it had before but at least this time I had kept all of the clothing and I had something to wear! We're going to a wedding today and I found an outfit in the closet that I bought about 5 years ago and today I'm going to wear it to our dear friends wedding. Anyway, I don't know how I got onto this clothes thing.......sorry! My shoulder is no better. The shot I go in my right hip for the bursitis has worn off and some days I need a cane to really be stable. The chest pain I'm having stops me in my tracks....it goes up into my jaw and really takes my breath away. I have chronic chest pain and I know that the RSD will cause pain up into the jaw and it is on my left side so I'm going to talk to Dr. Figg on Wed. about it and see if he thinks I need to see my cardiologist now or  if he thinks its the RSD. I have a stress test and echo every 2 yrs because of the chronic pain and the tests are always perfect. Right now I'd like to run into Jimmy Buffett and sail away into Margaritaville, I think.  I have noticed that the duragesic patches from CVS do not break out my skin like my other pharmacy does. THey are  from a different company and are smaller and stay on without any problems. I've been trying not to take any pain meds other than the patch unless Tylenol won't handle it because things are only getting worse with this RSD and I don't want to run out of options with my pain meds. I think that I'm going to have to have my hip futher evaluated but really, I couldn't go through with a hip replacement right now anyway so what's the point. My attitude is a lot better at home. I'm over being "mad", it didn't help anyway and it wasn't fair to my family.My mother is doing a little better so that is a little relief there. Mercy, can we ever get a break? Love to all of you. I haven't read any post's  which I will try to catch up on. Take care.
Nurse 2
 
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
 
Find blessings in every day!
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 5/22/2010 7:40 AM (GMT -7)   
nurse2
It is good to hear from you, I am glad you posted! I am sorry though that things do not seem to be getting much better for you. You sure have had a time of it, haven't you! Anyway I wish I had some words of wisdom, or could say something that would help you feel better, but since those words escape me, just know,... that I do hope that you start feeling better, and I hope you enjoy going to that wedding! .

I wish you well!

White Beard

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 5/22/2010 2:15 PM (GMT -7)   
Nurse2 once again don't let yourself suffer needlessly worrying about dpwn the road. Everyone that wear the pain patches has medication to take for BT pain that is just a gioven. The patch itself rarely is enough to handle all of the pain. Quit cutting yourself so short lady, you suffer enough as it is. There are many, many options in pain medications available. Remember you deserve some quality life, don't worry about about what may never happen. Hugs and please take good care of yourself.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/22/2010 6:05 PM (GMT -7)   
Nurse 2, glad to see you...well it's good that your mother is better, and I will be hoping this next injection will help.
Have you ever had the radiofrequency ablations done...If the steroids don't help then your doc might consider that,
anyways, take care, and lots of soft hugz coming your ways with wishes that your feeling a little better soon!
(((((((((((((((((((((((((((((((((((((((((((((((((Nurse2))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 5/27/2010 4:15 AM (GMT -7)   
Hi Wonderful Friends,
I want you all to sit down because when I got this I almost fainted. Last Sat. I got an envelopein the mail from the government that I had been fighting for for only 6 years! I finally got my disability check!!!!!!! It was my back pay check for 15 months because they would only begin my disability as of Jan. 1, 2009 which is a little of a bummer in that my Medicare won't kick in until Jan.1, 2011 now and I thought that I would be eligible in Aug. But I am so greatful to finally be able to be accepted and to have some money coming in each month. It will help with the medical bills and we can breath a little now!!!! Whew!!! My checks will come the middle of the month so I should get another one the middle of June. Look out Hobby Lobby here I come! I'll just be making jewelry galore as my neck will allow! I will pray extra hard for those of you who are so desperately waiting for the same news. Just a quick question. I know that a lot of this is the numerous meds that I take but I really feel that my mind is slipping. And I don't mean the occasional word, I mean I'm going down the sliding board at the playground kind of slipping. My daughters have had a "conference" about it and I just hate it when they tell me that they have told "Mon, I've already had this conversation with you three times now!" I was trying to write down a couple of questions to ask the doc yesterday and I wrote the same question on the same line twice. I don't know if I should see a neurologist now or just say screw it I've got enough going on right now that the new doc would just shake his head at the meds I take and leave the room or what. My muscles are so sore and I think it is a different kind of sore than the fibro but no one listens anymore. And I used to be a champion speller but now I'm lucky to spell my own name now. Oh, enough complaining. Just wanted to share the good word. I guess we just have to get lawyers and grit our teeth and be patient. Praying always helps. Thanks for always listening. I can't tell you how many people I have given this web site to. God guided me here to help save my sanity and I hope by nudging someone else here they too can find friends who care.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
 
Find blessings in every day!
 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/27/2010 4:41 AM (GMT -7)   
N~2, Thats super news that the gov finally wrote you a check!! It sounds like it's been a very long battle! Here's hoping that the little extra $$ helps relieve some stress because we all know that "Stress = pain!!!
Hugs to you old friend!!
Pete

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/27/2010 10:39 AM (GMT -7)   
Hi Nurse2,

I'm so happy you were able to finally get your disability. What a relief that must be!

I certainly cannot suggest a medical decision on your memory, but a lot of us here seem to have pretty severe difficulty. I wonder if it will improve now that your stress level will go down.

I wish you all the best!
Retired Mom


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 5/27/2010 1:43 PM (GMT -7)   
Nurse2

I am over joyed for YOU! That is terrific news! I know first hand what a relief that is when you get that check! Thank-You for posting and letting us share in your Joy! All I can tell you about your memory worries is that I have experienced that also! It is disturbing at best. You might want to talk with your Doctor about it, so far I have been told it is from the meds and stress, and a result of my Sleep Apnea???????

Anyway Congratulations to you on getting SSD!

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/27/2010 1:53 PM (GMT -7)   
Nurse2,
CONGRATULATIONS!!! yeah yeah yeah

After 6 years you'd better celebrate! Wow, what a long, long wait! But it's over, thankfully!

Thanks for sharing!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 5/27/2010 2:02 PM (GMT -7)   
Woohoo, Nurse2 I am so happy for you. Six long years, good grief. Well, like you said, even tho they cut your time alot, at least now you have a monthly check coming in that you can depend on. I know I have terrible memory problems when I use to be so sharp and had no trouble remembering things. I think in my case its the combination of medications, not feeling well some days and other things that just cause too much distraction. if you are treally concerned go see a dr about it. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 5/27/2010 6:50 PM (GMT -7)   
Thank you for your suggestions. Right now I'm riding on that steroid bobsled to hell and it hit really fast this time. I just got my injection yesterday afternoon. Well, I guess it isn't too soon. My face looks like I've tried to kiss the sun, I've got that lovely pitting ecema thing going on and all I can do is cry. A really good friend of mine called me that I hadn't talked to for months and we had a lot to catch up on. She's a nurse I used to work with and as soon as I say her name on the caller ID I started crying. I started not to answer the phone but I was afraid something might be wrong. She's been waithing to get her knee replaced for over 7 months now ( an insurance thing). Hope you all have a good night.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
 
Find blessings in every day!
 


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/27/2010 7:22 PM (GMT -7)   
Hi nurse 2, I can relate to the sludgy memory and befuddled thinking, I just had 3grams of prednisone intravenously about 4 weeks ago (RA flare) and way too many other meds, including opiates and then anti depressants and tramadol. Its like coming out of a fog trying to get them all out of my system plus I still can't sleep which doesn't help.
 
Is it costochondritis in your chest? Or a heart related problem?
 
Well done on your disability payments, it must be some relief for you to have a bit of help financially. Its the hidden costs of chronic pain that can really add to the stress at times.
 
I hate the weight gain too, I've been stuck on prednisone for the last 8 months and I just hate it. Really depressing to see myself so bloated with the steroid look. I love the positive effects and just hate the weight. I suffer from bursitis too and found hydro therapy a real help for it. I think you call it aqua therapy but physio under water really helped me to deal with the bursitis. Strengthened the surrounding muscles, I couldn't believe how much it helped. I'd been struggling with hot agonising hips for months and now they're brilliant.
 
Hope some of this may help. Its hard when you have so much going on I know, I feel a bit the same since my flare, which bit of me do I deal with sort of stage. I read that often after a massive flare with RA you can have a period of remission so I'm waiting for it!
 
I hope you get your pain under control soon. I agree with Straydog, there are so may pain killers out there, I was on the patches too but needed the bt meds when things got out of hand. Now I'm on slow release tramadol and still have BT meds to get me through my days (and nights). Best wishes to you, golitho

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 5/28/2010 8:54 PM (GMT -7)   
Hi Nurse2:
 
I am so happy that your looooong wait for SSD is finally over!  I hope that a few others here at HW get the same good news soon too!
 
I'm sorry that you didn't get more relief from the steriods.  Please take Susie's advice and reconsider some BT meds - the stress of being in so much pain can cause other problems that you just don't need!
 
Hang in there,
 
Lorie

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/28/2010 10:00 PM (GMT -7)   
Just wanted to say HI and I'm glad you're back. The experiences you post are helpful to others who might be suffering with a similar problem. And I'm sure many of us can relate to the dress size thing...lol

Hugs,
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 5/30/2010 11:57 PM (GMT -7)   
Well there's a big storm thunderstorm brewing outside and my body feels like it's beeing electricuted (sp?). Every hair on my body is standing on edge. The pain level is high tonight so I just took my meds and hope they start to work soon. I hope the rest of you are having a good night sleep so I'll say goodnight and close the door.....sleep well.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
 
Find blessings in every day!
 


nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 6/5/2010 6:32 PM (GMT -7)   
Well, how are the rest of you doing? I've had a rough two days. My arm feels like it's a chicken leg at a picnic and someone noticed that I'm the last piece.That's the best way I can describe it. It just feel like the meat is being ripped off of the bone! I'm so bone tired that everytime my behind sits down I pass out. I'm so bloddy tired that I could sleey 18 hrs. a day I believe. I go back to the doc next Wed to discuss the fact that the steroid injections did not work for the comples regional pain syndrome so now I guess we will have to discuss the nerve block. At this point I don't care. I'm just so tired. Hope all of you get a good night's rest.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
 
Find blessings in every day!
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 6/5/2010 11:06 PM (GMT -7)   
Nurse2

You just can't seem to catch break! I will keep saying my prayers for you, and hope that you get better!

Just know that we are here for you!

White Beard
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