Beyond Frustrated!-sorry it's long

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Carica
New Member


Date Joined Jul 2008
Total Posts : 7
   Posted 5/23/2010 12:29 AM (GMT -7)   
I read almost everyday but don't usually post because, for the most part, my pain is under control enough to be tolerable. The quick version...I have a shattered elbow that can't be repaired even after 7 surgeries.  I'm 44 and need a total elbow replacement but it's not an option until I'm 60 unless it's totally unbearable because elbow replacements don't last very long or work very well.
     My PCP handles my pain mgt. because none of the pain management clinics would accept me as a patient. According to them they don't have good success with treating the multitude of injuries to elbows like I have. I'm on a fairly low dose of Vicodin. I don't have my bottle right here but it's either 500 or 550 and I take it three times a day. I went in for my regular checkup. PCP said it might be a good idea to see if we could try some different things so I wouldn't have to stay on it forever. I worry about the effects on my liver. While there he found that I had a bad sinus infection and strep throat. He prescribed an antibiotic I'd never had called Levaquin. He also asked me to see my Ortho to get some updated x-rays. I started the Levaquin and started having some horrible leg cramps and tightness.  In the meantime I went to the Ortho and he added an anti inflammatory. I started that and ended up not being able to walk! I was, literally, on the couch except to use the bathroom for an entire week. Turns out I had a very severe (although now I'm learning alarmingly common) reaction.
     Back to the PCP who gave me Prednisone, stopped the Gabapentin and told me to continue with the Vicodin and new anti-inflammatory from Ortho. Took the Prednisone and by the next morning I was feeling and walking better than I had in almost 6 weeks! I was beyond excited!!  Felt great for two days and had to take ONE anti-inflammatory.  Within the hour I was back to horrible pain in my lower legs and I still have it three days later. 
     I'm frustrated because my oldest daughter graduates from high school this weekend! I have already limped and been miserable through all her awards ceremonies, senior programs, college orientation weekend etc and now it's back! I was in awful pain through her entire party tonight and tried to pretend I felt okay until I just couldn't do it anymore. Her graduation ceremony is tomorrow afternoon and now I'm worried about how I will even be able to walk into the venue and sit comfortably. I WILL do it but I want to feel like my old self.  I'm so tired of chronic pain trying to take the enjoyment out of the memories I should be sharing with my kids and husband!!!
     Thank you for letting me vent here. I know a lot of you deal with pain on this scale everyday.  I read your stories and updates and hope for relief and encouragement for all of you! This was the only place I thought I could get it out and not feel like I was complaining to "deaf ears" or to someone that has "already heard it before." I keep up without much complaint in everyday life so I think others in my day to day life just figure it can't be that bad. Perhaps, I'm just wishing for a miracle that isn't going to happen. cry

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/23/2010 6:01 AM (GMT -7)   
Hey Carica and welcome to the family! So sorry it's pain that brought you here but at least that's the one thing we all have in common. I am glad to here you have your pain somewhat under control but it sounds like you may have a ways to go. I hope that you get some more relief soon and again welcome, pls keep posting this is a wonderful place for info and support!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 5/23/2010 7:49 AM (GMT -7)   
Welcome.

I wish I had answers for you, but can only give support. It looks like there may be some interactions going on between meds. This can be so dangerous that I would highly recommed keeping some type of journal and taking it with you to the very next available apt with any one of your Dr's.

Reactions are nothing to play with and we want to see you back on the right track.

Best of luck to you and congratulations to your daughter.
Retired Mom


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/23/2010 3:47 PM (GMT 0)   
Levaquin is a very powerful antibotic and I'm flabber ghasted that he gave it to you for only strep throat, I was given this antibotic cause I had pneumonia,
and never had it for strep throat, it can have some bad reactions, maybe ask your doctor for something like amoxicillin or augmentin instead of the
levaquin, geezee, I hate it when doctor go to the strongest medicines first, geezee and they wonder why we have staph infections...geezee, so sorry
but this has me very mad that your doctor would do this, unless you've had strep throat, repeatedly...(but you didn't mention that) ...
so if I'm mistake I apologize but for just a one time strep throat levaquin is not the first round antibotic for that...
Hope your feeling better soon...
(((((((((((((((((((((((((((((((((((((((((((((((((((Carica)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/23/2010 8:55 AM (GMT -7)   
Hi Carica!

And welcome to the family. I'm sorry you're having trouble with medications. Yes, Prednesone can make you feel better in a hurry when given for certain conditions but long term isn't something you want to do unless your life depends on it. Transplant patients and such do have to live on Prednesone or something similar for life.

One question...do your ortho and PCP talk to each other? Are they fully aware what the other is prescribing? Very likely they are but it's something to think about. Can you talk to your PCP and explain your situation? He might help you to be more comfortable for the graduation, etc... It is very hard when you have strong reactions to many medications. I will pray that you have a more comfortable week and that you can enjoy your daughters' activities with her.

Many people actually see a pain psychologist. Sounds a bit weird to some but they can be extremely helpful to those of us who must adjust to living with pain. In the mean time try very diligently to relax and reduce your stress. Take nice, long and very warm baths, add some bubbles and nice music...candles if you like...and relax your entire body. Mental or physical stress will serve to make pain more intense. Not something you need!

Keep in touch...
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 5/23/2010 10:55 AM (GMT -7)   
Carica

Welcome to the forum, One thing I would encougage you to always remember, when your having a difficult time and your chronic pain and frustration is trying to get the best of you, you can always come here, you can vent your frustrations and all of us here will listen without ever thinking of you "complaining" or anything like that.!!! We all know what it is like to live with Chronic Pain, we can and will give you a compassionate, sympathic and empathic ear, as well as caring support! Your not alone, when your here you are among understanding family!

You know that Prednisone is a real double edged sword type of medication. I really does do miracles, but it also has some very nasty side affects and unfortunately is not usually used for long term treatment. Except in certain cases, and then it is usually very low dose. But if your pain is caused by inflamation, then steroid (Prednisone) can really provide instant relief!

I wish I had some magic words that could help you,.......to help all of us!!! Unfortunately......I will just have to wish you welll and say a prayer or two and hope that you feel better soon!

Good Luck to You

White Beard

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/23/2010 11:11 AM (GMT -7)   
Sorry my posting was harsh, sorry...
Sometimes hot pads or ice packs can help with the pain, Chutz mentioned warm baths and those do help, warm showers might help.
I sure hope you can enjoy your daughters graduation...Pain relief can sometimes be hit and miss, but trying different thing, maybe
even look into accupuncture (sp?) for your elbow...
(((((((((((((((((((((((((((((((((((((((Carica)))))))))))))))))))))))))))))))))))))))))))))))))))))))))
some people here even use a patch, and topical creams can help, too..(aspercream helps me sometimes)
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Carica
New Member


Date Joined Jul 2008
Total Posts : 7
   Posted 5/23/2010 5:03 PM (GMT -7)   
Thank you for all the thoughtful comments and suggestions! I did make it through the graduation and managed to enjoy it. I let it get to me sometimes but it's hard to let it cloud things completely when I'm blessed with such a great husband and children! I will have the chance to take a day to myself tomorrow so I plan to spend it on the couch with a good book and write some much deserved thank you notes to some family and friends that really helped with the foot work that pulled off her dinner party. I'm sure that will help get me back to a better place. :)
I should have explained things a little better but I was already afraid I might bore you all to tears with the long story I wrote! I was prescribed the Levaquin after a round with another anti-biotic didn't work. I'd never had it so the side effects were certainly a surprise! I only had a couple of days left when the side effects kicked in. I'm now almost six weeks past my last dose. Levaquin is a super strong drug that stays in your system for a very long time. The Prednisone is a short term treatment that is hopefully, going to help clear some of it and get my pain back under control from the side effects. My Ortho does know what I'm taking. I had to write it on my update sheet, before the visit, but I gues he was "far too busy" to read it. I don't like him much but he's the best elbow surgeon in the major city I live in. Everyone keeps referring me back to him. My plan now is to only see him once a year for progress reports that I'll take back to my PCP before taking ANYTHING he ever prescribes!
I have several different kinds of pain from my injury. Soft tissue, nerve and bone pain from the chronic dislocation. I have Lidocaine patches, that help sometimes, and I use them most often at night. I've stopped the anti-inflammatory and will call for something new if the tendonitis kicks back up.
Thank you, again, for the kind words, warm welcome and great advice! I've thought of trying acupuncture but haven't done it yet. I've heard good things about pain psychologists but don't know anyone that's ever been to one in my area. I need to do some research and see what I can find. Reducing my stress is something I need to pay more attention to. With my oldest daughter's graduation done and my younger one's last week of school coming to a close, this week, our schedule should slow down tremendously! I'll have more time to focus on the things I need to do to feel better and get back on track.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/23/2010 7:03 PM (GMT -7)   
I'm glad you got through your daughter's graduation! one small step at a time...
Good luck and well wishes for you for this up coming week...will be thinking of you...
(((((((((((((((((((((((((((((((((((((((Carica))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
Hugz...and get some rest when you can...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/24/2010 9:18 AM (GMT -7)   
Since I have chronic sinisuitis, it's not uncommen for me to have a sinus infection without strep; but my doc usually gives me a shot of rocephin and a scrupt of Leviquin..if seems to be the only thing stron enough to kick the infection. At least they have found something that helps me. It seems I am immune to the "normal" antibiotics!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/24/2010 11:19 AM (GMT -7)   
I am glad you were able to make it thru the graduation and enjoy yourself somewhat. Thats the crappy thing about CP as it robs us of so much enjoyment. even the small things can be monumental for us. Please come here ans vent, talk whatever you feel like doing. I think you are one brave person handling eerything in the stride the way you are. I am glad the pain meds you are on give you some relief without having to be on the heavy duty meds. Yes, the steroids are a double edge sword as WhiteBeard said. Take cafre.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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