Teaveling w/ my constant companion> C.P.!!!!

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Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/24/2010 3:48 AM (GMT -7)   
Good morning everyone!
First off > Congrads and Thanks to Dani for becoming our new Moderator, how cool is that?? Also, welcome to all our new members, I see lots of new names on the board, sorry about your pain but glad you found us!!!

It seems like I've been away for so long and there's so much I want to tell Y'all! First let me say that I had a great time by forcing myself to push through the pain and do the things (like flyfishing in a wonderland of streams and Mom's lake in a canoe) when all I wanted to do is lay on the couch and watch TV cause I hurt so bad. All my new memories and videos to remember them with are so worth the suffering I have now. My wife took my older Son Joe to the airport who was headed back to Wash. State and his Aircraft Carrier, the John Stenis and we left at the same time early in the morning w/ my Son Pete Jr. following us up to Virginia where he is stationed at Norfolk Naval Base on the Mighty Bataan, a large asalt ship. It had been a super week with them home visiting on leave but it was over and time for them to go back to protecting all of us from those who seem determind to harm us! We made it to the exit on 95 for Norfolk Va. and stopped for the night and had dinner and then breakfast w/ Pete before he headed east and we continiued north. We arived at Mom's lake house in the afternoon to find the roof had leaked over the winter and came through the kitchen ceilling! There was a big hole and long crack which left plaster and wallboard was all over the place! So we had a mess to clean up before we could even unpack the car. This was after driving 1,100 miles in a day and a half w/y 83 y/o Mom and her cat Charley who was meowing and doing stinky things the whole way!! Oh how my back and neck were hurting!

I have to go do some chores now but will continue writing about my adventures later if it's alright??? I know it's off topic and don't want to clog up the forum w/ my long stories.

To be continued>

Love Y'all!!

Pete

PS >> Sorry for not writing yesterday! I had to mow the lawn and take care of my garden. It was HOT and after being up north in the cool! When I was done, I was so beat up, I went to sleep instead of going online!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/24/2010 6:37 AM (GMT -7)   
Well, I'm glad your back and that you rested up yesterday...seems like it was what you needed....time for things to settle down for you for a little while...
your boys will be back visiting you soon enough...like you said time for fishing...and more adventures for you...
How's the eye doing? sure hope it's gotten better...
I'll look forward to your posting more and maybe showing us some pics.....
(((((((((((((((((((((((((((((((((((((Pete))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/24/2010 7:17 AM (GMT -7)   
Welcome back Pete. Glad to hear you had a good time. Please come back and tell us more, I love reading your posts about your adventures!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/24/2010 7:45 AM (GMT -7)   
 
 
   Dear Pete,
 
     Good morning *hugg* It is so good to hear from you!  I hope you get some much deserved rest! I am sure you must be exhausted by now! So, take it easy and catch us up when you can!
 
*hugg*
  dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 5/24/2010 11:30 AM (GMT -7)   
I think its great that you can push through the pain and all to go and blow the way you do. Its beats sitting in a chair or laying in a bed all day. Kuddos to ya Pete.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 5/24/2010 12:32 PM (GMT -7)   
I love reading all of your adventures, Pete :) Keep sharing! :) Glad you got your mom situated; your boys got off to their destinations; and you guys got home safely!

Take care of yourself!
--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/24/2010 3:55 PM (GMT -7)   
Hi Pete,

I'm glad you made it back safely! It sounds like you had a busy trip! I bet it feels good to be home! There's nothing like returning home after you've been away for a while! Take a day or two to recover from your trip. It sounds like you need it!

hugs,
Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/24/2010 4:50 PM (GMT -7)   
Hi Everyone and thanks soooo much for the welcome home's!! Yes Skeye, it's good to be home and I scanned the board yesterday and it seems CONGRADS are in order for your graduation w/ honors!!! We here are so proud of you!!! I didn't see a post yet on your procedure yet but will look as soon as I'm done here! You too Dani for being our new Moderator!! What Great news to come home to!!!
Well, I slept off and on all day today!! I can't remember the last time I slept so much! I know I'm overdue for my testosterone shot, maybe that has something to do w/ it along w/ mowing the lawn yesterday?> what a dumby! I should have waited a couple days, now I'm in even worse shape then when I got off the plane.
Anyhow, back to my Mom's lake house. The day after we got there, I took her out food shopping and went to the local H.Depot to get some tar & repair stuff for her roof. Back to the house, I got all the furniture out on the porch, the furnace working and the water turned on> NO Leaks!! Yea! Mom said she was to tired to cook and I said, me too so we went out and got a "Jersey pie" Oh man, thats one thing about N.J., they sure know how to make pizza!!! Nothing like it anywhere! OK, maybe N.Y. & Pa. a close 2nd & 3rd but untill you have had a good Jersey pie, you may think I'm full of poop but it's the BEST!!
The next morning I was up early limping around growning like a cow while Mom was up cooking Taylor Ham & eggs, another Jersey treat that she always makes for me when I'm up there> My poor colesterol levels!! Then since there was no rain in the forecast for days, Mom said> You go fishing if you can walk!!! Don't worry about the roof yet, no rain comin! She didn't have to tell me twice!! So off to the local sporting goods store to buy a one week fishing licence ($20.) w/ trout stamp> another $20. OK, I'm gonna get my $$$ worth this year so down the mountain to the Big Flatbrook, the nicest stream in all of Jersey! It was Sat. a.m. so there were some people fishing the regular spots so I drove up the Mt. into the State park to a spot where the stream is small and not too many people fish. It was way too easy, there was no one around and the stream was filled w/ trout! I caught my limit of 6 trout in less than an hour then played the catch & release game for another hour or so moving the trout down stream and letting them go away from the bridge where they were easy pickings! I'll bet I caught over 20!!
We had trout for dinner and they were yummy w/ potatos, salad & green beans> A meal fit for a King> me! King of CP world! Then to the couch and a heating pad to watch an old 1940's AMC movie w/ Mom. I fell asleep on the couch dreaming about Rita Hayworth, big mistake as my neck was a mess when I woke at 2:00a.m. A hot shower in the morning helped then it was up on the roof for some patching!
Sorry Friends & Fam's but I'm gonna have to finnish later, I just can't sit here anymore> Oh my aching everything!!!!
I hope everyone is feeling better than me, I'll try to read and reply to some more posts later or tomorrow.
Love Y'all> Big Fat Guy Huggs to all!
Pete

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 5/25/2010 3:37 AM (GMT -7)   
One thing is for sure, you DO live life Pete. I think it's great how you plug along through your pain and get so much accomplished. I admire you very very much. And besides all that, you are a lovable guy too.

I too, enjoy your adventures, so keep writing about them'

God bless.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/25/2010 4:43 AM (GMT -7)   
Good morning all!
I got up this a.m. thinking about what I've been writing here in a place which has helped me so much over the years. I love everyone here dearly and I really hope I haven't pissed anyone off by writing about everything I've been up to.
I mean, I've been trying to catch up on everyones posts and it dawned on me, so many here can not possibly do the kind of things I do because you are in such worse shape than I!!! Do I come off like being a fraud by writing about my adventures? Do Y'all think I really don't have C.P. and just like to bragg about all the things I do? I'm sitting here w/ my neck tingling & stabbing and my back aching & pounding and my hip burning & axching and my knees shaking from pain and my torn acillese tendon stabing w/ every movement wondering do I have CP or is this just the kind of everyday pain that most people get as they are growing older? Is this why the government will not give me S.S. Disability?? I feel realy bad about it and myself this morning!!!!
I have a apt. w/ my new pain doc this morning at 9:30. I cancelled the apt. which was last week because I was away. I know she is going to ask me how I made it another week on my meds w/o a refill. She has been cutting my oxicodone every time I see her and I'm now taking 1/2 what I did in S.Fla. I don't know if this is a good thing or not, I mean, I know I hurt worse w/o it but I'm getting by. But why do I go to her if she is only going to cut my meds and make me hurt more?? I'm so confused about this!
Oh boy! I had every intention of writing about how I fixed Mom's roof and went out on the lake and caught some big (up to 5lb.) bass & pickerel but instead dumped my post trip depression crap all over everyone!!! I'm sorry!!
I'll check in later but have to get moving. I have to write down what I need to say to my doc when I see her so my foggy burnt out brain doesn't forget anything.
Hugs to all> I truely hope I haven't offended anyone, if I did> I'm sorry!!!
Your knuclehead buddy,
Pete

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 5/25/2010 5:06 AM (GMT -7)   
Awww Pete, I don't think you offend anyone. I know I am not offended. I also don't doubt for one minute the pain you have! I think it is wonderful that you still live you life even though you pay dearly for it afterwards. I too try and live my life (not quite as adventurous as you) and do things I enjoy and yes pay the price later. But what other choice do we have? Lay around and feel sorry for ourselves while life passes us by? Uh un, not me. The way I see it the pain is always going to be there, and even though we might make it a little or sometimes alot worse at least we enjoyed ourselves. I can't imagine not doing anything fun and still being in pain. Talk about regrets! I would regret not living and hanging out with my kids. None of us know how long we will be able to get around and do fun things, so I say GO FOR IT! And please keep sharing with us. I for one really enjoy reading about your adventures!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 5/25/2010 7:48 AM (GMT -7)   
Pete,

Don't stop! I for one love reading about your adventures. Sometimes I wish I had such an exciting life -- things are pretty dull here. Maybe they will get more exciting now that I am out of school for a year. It's especially nice to read your posts because you can always hear your passion in your words.

I hope your appointment with you PM went well this morning & it isn't too hot down there in FL! It's supposed to be in the upper 80's to around 90 here for the rest of the week! Good thing we finally got the window AC unit installed in my bedroom.

hugs,
Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/25/2010 10:14 AM (GMT -7)   
Thanks for your kind words Shannon! I'm so happy you understand! You said it all, I just can't lay around and let my life pass by, it's going way too fast as it is!
When I was young, I always said I'd try anything once and it got me in alot of trouble and broken bones but now that I'm older and alot slower, I still have a streak of lust for life left in me. I'm surely much more careful but still end up hurting myself once in a while. Skeye, I'm sure you have lots of living left to do and now that your out of school, things will get much more exciting! Thanks for your support as always!!!
Speeking of being careful> I fell down a very steep stream bank and slid about 30' down to the stream and crashed into a tree while I was home. While I was sliding I thought to myself, Oh boy, your in trouble this time but it didn't end too bad. I had my chest waiders on and very large waiding boots> HUGE siZe 15's! So when I hit the tree w/ them there was alot of cushion, it was no big deal. The waiders protected me from being scraped up> I was lucky! After that I was much more careful around the steep banks!
One day while home I took my Mom's neibor to the stream flyfishing. He told me he had always wanted to learn how to do it and lots of guys promissed to take and teach him but no one ever did. He was a real nice guy, 64 and retired. I said to him, if you watch out for my Mom while I'm gone this summer, I'll take you and teach you where and how to catch trout on flys. I told him that I worked for fish & game back in the 70's and used to stock the stream w/ trout back then and that I'd been fishing this particular stream for 50 years! He did catch some nice trout and learned to flyfish the stream that day and we had a blast! I was bad and caught my limit of trout and then filled his limit too. He said he wanted to bring some home to eat but he didn't expect to bring 12 home! I gave him mine since my Mom's freezer was filling w/ fish fast already. He promissed to keep an eye out for Mom and call me if anything looks suspicious. He said eating the trout was awsome, like a gormet!!!
My Dr. apt. went pretty good this a.m. My doc asked me to prioritize which problem area needed to be checked out first since I have so many> it confuses her! I told her that my neck was first cause it's been just killing me since my prop plane ride through a thunderstorm the other day. If we didn't have our seat belts on, we would have crashed into the ceiling!!! It was one of rthe roughest plane rides I was ever on, people were screaming! Being smashed around in every direction really got my cervical spine upset!!! Anyway, she really wants me to get an MRI which I have been wanting to do since I started seeing her but because of eye surgery and uroscoping procedures I just couldn't aford it yet! She understood. Next is my left hip which is totally shot and needs to be replaced. She said she thinks that although I have ruptured, torn and buldging discs in my lumbar spine that my hip was agrivating the problems there and should be taken care of first! I agreed! So thats the plan for now, we'll see!!! She was happy about me cutting down on my narcotics like she wanted and said that maybe we would try more neurontin and upped me from 300mg a day to 900mgs. Hope I don't gain too much weaight??? She said we would try for a month then see what happens!
Thanks again for your supportive posts!!!
I love Yuze Gize> Opps, forgive the Joiseyizms, I just got back!!!
Love Y'all!
Pete

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 5/25/2010 12:39 PM (GMT -7)   
Pete your posts make me smile, so please keep up with them...I do a few things that I probably shouldn't but my pain
management psychologist and my physical therapist says it's okay...I'm on a womens wednesday morning bowling league,
and I did have to take some days off this year, once or twice because of my back pain and of course most of January due to pneumonia.
My average is 132 and it keeps me active, plus let me tell ya I have to do my recumbent bike at home to help keep
in shape and I will lift water jugs twice a week to keep my / right arm strong and I wear a back brace on occassion.
Just two week ago I had my first 211 game ever, my first 200 game since 2006, so I was happy, plus I use a very low weight ball
only 11 pounder, I think if I didn't have this bowling I'd be in very bad shape and I do have off days last week only had a 102 game
that was low for me, but I still get bad days, so you can be active and have pain...but keep us up on your posts and wanted to let you
know they do bring a smile to me and sometimes a chuckle and hope you don't mind that...
fishing is good for you like bowling is for me.......................now "How's the eye doing???"
(((((((((((((((((((((((((((((((((((((((((((((((((Pete)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/25/2010 5:15 PM (GMT -7)   
Hi Pete, its funny how these pain management people always try to get us off pain relief! I'm completely confused sometimes after seeing them on what exactly I should be doing . Mine have pushed me from opiates to tramadol and when you read the web about tramadol, it is more addictive than opiates!!! Like huh?

As for living life I love to live life to the full too and try to push through pain as well, if I'm really busy I seem to tolerate a higher level but then I hate nights. That 3am period, hard to get your mind off things then.

Great to hear you're catching so many trout, must be a really beautiful area too. Did you get your eye sorted out before your boys came home? I sort of missed a bit with my big RA crash.

My friend had a hip replacement 4 years ago and he hasn't looked back since. He has been running on it. They are rewriting the books with him, he got his gold medallion for surf life saving on a replaced hip! He has only lower back problems though so not as extensive as you, so maybe not running in your case! He said be sure to get the ceramic heads as they have been proven to be better and longer lasting, give less trouble. So hope that helps.

Best wishes, love to hear your adventures too, golitho

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/25/2010 5:28 PM (GMT -7)   
 
 
   Dear Pete,
 
     Oh I was just thinking about you today! I am very glad you stopped by again. Though I know it was a painful trip to the river, I hope it gave you a good mind & body re charge! Just what you needed! And technically, you could consider it "medicinal". I mean, afterall, emotional wellness does directly effect the way we feel! So, no worries! If I could pull it off, I would try to go give fishing another shot myself (im very new and havnt cought any fish yet!).
 
     I am glad you made it to your doc today. I hope the new MRI helps get the right information she needs. I know you have alot going on and even more in line to be taken care of! But, the MRI will be a good step. Though I must admitt it would be nice if your SS was approved!!! You sure could use the help, no doubt about it!
 
     I am going to send phone number and hotel address / number. Along with cell phone number as soon as the cell arrives via mail. So, probably tomorrow. I have to go to the spine specialist tomorrow... jeeze that s gonna be a stressful visit.. Need to take the girls to trim their hair, but hopefully I will have my ducks in a row by tomorrow night and ill send you the travel information and phone numbers (along with everyone else!).
 
      I was just thinking about you today! I made a beautiful dyed jade set for your wife in light pink and lavender! But dont spill the beans! Its a suprise! I just had to tell someone, I hope she likes it! It helped alot to make it because my pain.. umm I have "new" pain (Like a deep flu in my side and low back along with "normal pain")..anycase I was stuck sitting and it was nice to keep my mind busy while my pain was so unconvienent!!! 
   
      Okay, I will stopp chatting away! I will try to remember send off email tomorrow!
 
*hugg*
  dani 
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 5/26/2010 3:56 AM (GMT -7)   
Wow! What nice posts to read 1st thing in the morning!!! Thank you so much everyone!!
Chart, congrads on the 211!!! Holy smokes! Thats super! I'm soooo glad to hear you have a physical outlet also.
Water jugs? What a great idea, but that must really hurt! I don't think I could do that, no I know I couldn't! Last time I went bowling about 5 or 6 years ago, my thumb wouldn't fit in any of the balls due to one of those aurthritic bunps (not sure what they call them) on the inside of my thumb at it's widest part. It was upsetting but the boys and my wife had fun and I kept score. Keep us up on your bowling scores, thats so exciting!!!
Golitho, sorry about your RA crash, I hear you about those 3am times but I guess most of us here know all about night pain especially when we overdo it! I had the second tumer removed from my eye about a week before my boys got home. It was much smaller so recovery was quick and not nearly as bad as the first> Thanks for asking! Your friend sounds amazing! People like him really give me hope! Thanks for the tip about the ceramic heads for my hip, I'll remember that! Also, that sounds crazy about your doc and the tramadol! I tried that stuff many years ago and it gave me awful headaches, I mean bad! So I threw them away and used tylonol instead untill the doc finally prescribed a narcotic. That reminds me, my doc also cut my methadone back yesterday for the first time. I had already cut back one pill a day becuase I had a feeling she was going that direction after cutting my oxycodone script in half. It seems like she is afraid of prescribing narcotics! She is very young and smart but if she keeps cutting my meds, I'm afraid I won't be able to walk or do anything! It's scary! Anyway, thanks for the kind post Golitho, you are such a good friend!
Dani, I'm so sorry to hear about your new pain!!! Geeze as if you don't have enough going!! You are too nice to make something so special for my wife!!! I know she will just love it! I just can't wait to meet you and your little tribe! I'll be looking for your e-mail and will send you my cell # and adress when I get it! Good luck w/ the Dr. today!!! I'll say a prayer for you! I always do anyway!!
Much Luv and Big Huggies for all of my peeps!!!
Your old Buddy,
Pete
PS> maybe I'll write a little more about my trip later!

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 5/27/2010 9:46 AM (GMT -7)   
Pete, keep them fish stories coming. I remember back about 20 years ago, I pastored a church in Indiana and every morining I would head to the local coffee shop and have coffee with all the farmers and older guys who had no where else to go. They would talk about fishing every morning. We decided that more fish were caught in that little coffee shop than in the rest of Indiana. It was a great way to connect with these guys and I also was constantly invited to join them to fly fish for crappie, bass, bulegill and walk the streams for small mouth bass. The good old days.
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