Neurologist just called with my Neurosurgeon appt!

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finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/24/2010 10:01 AM (GMT -7)   
My Neurologist just called and told me she was able to get me into the Neurosurgeon on the 22nd of June.  I have to have a new MRI of my cervical spine before my appt, then he will decide what order we will be doing the surgeries in.  They are going to have to do at least 2 because of the severity of my neck, but my lumbar is what is causing my legs to go out from under me.  So, from the sound of it,
I will begin my surgeries the 1st or 2nd week of July!  Talk about slapping someone in the face!!!!!  I was just starting to accept the outcome from the Neurologist, thinking I had some time to get mentalluy ready, but they put me on the emergency call list, so if they have a cancellation, I will be going sooner than later..Talk about a whirlwind!!!  lol
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


Chartreux
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Date Joined Aug 2006
Total Posts : 9622
   Posted 5/24/2010 10:16 AM (GMT -7)   
I'll keep you in my thoughts and prayers...
Keep us posted if you can...
(((((((((((((((((((((((((((((((((((((((((((((finallyreallycrazy))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/24/2010 11:11 AM (GMT -7)   
Finally, I am sorry to hear about how fast things are moving along. But, please, please get a 2nd opinion on surgery, anyone here that has had surgery will tell you its always best to get another opinion. You owe it to yourself and your family. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 5/24/2010 7:29 PM (GMT -7)   
I sure hope the time passes quickly and you have your surgeries with a completely successful outcome! I know it's a lot to prepare for mentally, physically and emotionally, so make sure you take time to process your feelings. You're going to experience a lot of emotions between now and then and afterwards as well.

Keeping you in my thoughts and sending good wishes!!

hugs,
Pam
Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/24/2010 9:58 PM (GMT -7)   
Thanks for all the input. The Neurosurgeon I have an appt with is just a consult. He wants to see the MRI's and read them himself, to make sure that they were read correctly and that surgery is really necessary. From the information I have gotten from people around here, the Neurosurgeon I have been referred to is supposed to be one of the best and he is going to do another complete neurological evaluation. After I meet with him, then I will be able to make a better educated decision. I guess I just have to be patient (not one of my better qualities) and see what he thinks. In the mean time, I am going to see the Neurologist to get more trigger point injections, they seem to help more than anything else right not. I think my problem with starting over with another neurologist, is that it will take so long, that I will end up waiting too long. If the neurosurgeon has the same opinion that the neurologist does, then I will seriously consider the surgery, if they have different opinions, then I am goiing to try to get into the spine center in Oklahoma City. The only thing is I really like the hospital that all this started at. So, for the time being, I am just going to sit in limbo....and do my best to be patient.....it's gonna be a long few weeks!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


razzle51
Veteran Member


Date Joined Jan 2005
Total Posts : 763
   Posted 5/25/2010 9:04 AM (GMT -7)   
do you have Chiari malformatikon
Syringomyelia T4-T10
Chiari Malformation
Decompression Surgery 1999
 

 

 

 
 
 



finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/25/2010 9:58 AM (GMT -7)   
I don't know what that is.....I will google it, but none of my docs have mentioned it
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 5/25/2010 7:04 PM (GMT -7)   
Finally I ran across your old post that you were put in the hospital for a week and had an EEG and MRI's. You also said a neurosurgeon was called in and he explained what surgery was needed. Is this the same guy you are talking about seeing in June? Usually you don't have to wait that long since he saw you in the hospital.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/26/2010 3:21 PM (GMT -7)   
No it's a different one. The one that came by to see me at the hospital does not have surgery priveledges to that hospital and I insist on being in that hospital. I was treated so well that I just feel more comfortable there. Come to find out, the new neurosurgeon I have is well known to be excellent in his field. He is supposed to be one of the better ones around here. And as politically incorrect as this may be.....I can understand what he says. He doesn't have a thick accent like the others do. I am however on his emergency cancellation list, so if anyone cancelles, they will call me so I can get in faster. Even as it is now, I feel like I am in a whirlwind. To me everything seems to be going so fast. I guess in the medical world tho is isn't that fast. I am still really aprehensive about even having any of this done...Not really ready to have to do it....
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/26/2010 3:32 PM (GMT -7)   
Hi frcrazy, wow what a lot to contend with. You have to feel trust in your surgeon, its your back hes working on, so you need that trust. Lets hope the neurosurgeon will agree and all goes well.

Waiting is never easy, always worrying, the more research you do on the web the more worriesome you become! Try to pace yourself and read up about it all so you're well infomed and know what they're talking about. Helps me too.

Goodluck with the wait as well as the consults, hope it all works out, golitho

finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/26/2010 6:25 PM (GMT -7)   
I am really trying to be patient, but that is just not an easy thing. I found out that i will have to be off ALL anti-inflamatories for 2 weeks prior to my surgery. That would be my muscle relaxer and some of my pain meds. The bad part is that after 2 weeks without thoses meds, I will be in bed in tears....hopefully they can replace them with something....I really don't think I will survive 2 weeks without them. I may be in the hospital WAY before the surgery....just to get help controlling the pain. I am hoping that my neurologist will give me more trigger point injections on the 7th, and then HOPEFULLY the neurosurgeon will be able to answer all my questions on the 22nd. I have a lot of support at home, and obviously on here, so I feel like it will all work out for the best. Trying so hard to be positive, and stay positive, but I do have my weak moments. Then I fight the depression even more. Don't ya know its either depression or panic attacks....one extreme or the other!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/26/2010 8:30 PM (GMT -7)   
 
 
  FR Crazy,
 
    Just wanted to stopp by and wish you luck! I hope you can get in sooner, it would sure help if you could get the ball rolling quickly so you can enjoy the rest of the summer!
 
   *hugg*
      dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 5/26/2010 8:54 PM (GMT -7)   
I hope so too!... It would give me less time to dwell on the "what if's"!! Thats for sure! Then I would know for sure if I am looking at one or two surgeries this summer...Kind of a bummer for family plans, but maybe I will feel better for the end of summer...I don't know how long the recovery time is on either of the surgeries they are talking about, but if I feel better it will end up being worth it. I am working on a list of questions for the Neurosurgeon....I am thinking he isn't going to like it very much will all the questions I am coming up with. One of my biggest questions is are they actually going to give me something for pain control? The last 2 surgeries I have had, the surgeons have told me that I am already taking more pain medication than they would prescribe, so they send me home with nothing!! I understand that I take alot of medication, but there is such a thing as building up a tolerance. That kinda worries me, what if they don't think I need anything different than what I have. What I have works for the pain I have on a daily basis, but additional pain, I don't think it will cut it.....I hope he understands that....most of them don't!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 

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