Prilosec BAD, oh yeah, I'm back

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BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 5/25/2010 9:00 PM (GMT -7)   
First, for all those who remember "me" I have been gone for awhile because I was having my second surgery in a six month time frame and became very, well, I wouldn't say classicly depressed, but very down on my lot in life and too negative to subject myself on anybody. I am sick of being sick, sick of thinking about myself, talking about myself and worrying. Oh, and sick of going to the doctors office and the pharmacy. Anyway, I was watching the evening news tonight with Diane Sawyer and there was a pithy report on how Prilosec--and two other meds of the same--cause hip, wrist and spine fractures with long-term use. I've been on Prilosec for five years for terrible GI problems. I posted this news on the GERD forum, but I figure a lot of you may also take this med and have multiple DX like I do. So, anyone know anything about this so I can officially start worrying about this now? smilewinkgrin

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 5/25/2010 10:34 PM (GMT -7)   
Hey Lucy!

Great to hear from you again. We worry about our 'Family Members' when they stray but you found your way back. We do understand your disgust with having life revolve around health. Isn't there more to life than doctors and pills? There sure as heck is! And we're going to find it girlfriend!

As far as the Prilosec... I haven't looked up a thing but after what I've read of Diane Sawyer and know about the news media, I wouldn't waste my time worrying about this. Ask your doc who prescribes it what he thinks. You hire him to take care of you...not some mogul TV company who has money in sight. Sorry, my bad attitude about the media in this country just crept out...lol

But I will go see what it's all about...brb.....


OK, as usual it's not as bad as originally thought. It's a numbers game, not any direct link from double blind studies or any other such research. Here's a summary and the link to the FDA site.

Data Summary

To date, randomized clinical trials of proton pump inhibitors have not found an increased risk of fractures of the hip, wrist, or spine. These studies are generally six months in duration and there is limited information on effects of higher than recommended doses.

The decision to revise the Warnings and Precautions section of the prescription labeling as well as the OTC Drug Facts label for proton pump inhibitors is based on FDA's review of the findings from seven published epidemiological studies.1-7 These studies used claims data from computerized administrative databases to evaluate the risk of fractures of the hip, wrist, and spine in patients treated with proton pump inhibitors compared to individuals who were not using proton pump inhibitors "

www.fda.gov/Drugs/DrugSafety/PostmarketDrugSafetyInformationforPatientsandProviders/ucm213206.htm

So relax, have another cup of coffee and some wonderful dark chocolate to go with it.
Warmest hugs,
Chutz smilewinkgrin
Gravitation is not responsible for people falling in love.
Albert Einstein

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(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/26/2010 12:15 AM (GMT -7)   
Hi, Big Lucy,
Welcome back! I saw the news report, too, and as I am on a high dose of nexium my ears also perked up. There probably is something to it, but for the moment I just decided I can't deal with thinking about it. Sounds like you may be in a similar place!

I've got precancerous tissue with my Barrett's esophagus that I'm hopefully having ablated next week. I hope if follow-up endoscopies show the dysplasia doesn't come back I may be able to reduce down to 1 nexium/day instead of 2. But for now it seems a choice between possible esophageal cancer and fractures. Is that sort of the rock and a hard place thing?

Anyway, I'm glad you decided to rejoin us. Sounds like you may not feel like talking about your surgeries right now, but whenever you feel like sharing you know we're here.

Hugs,

PaLady

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 5/26/2010 1:41 PM (GMT -7)   
I can always count on you two--Chutz and PALady--to respond and say something wonderful, my only regret is that we cannot see each other in person; I do tend to find this type of communication impersonal--I'm also lonely.  You know, I woke up today and looked at my Prilosec pill and said, ***, I'm not going to spend the day with acid reflux so I took the pill--fractures be darned!  I really don't want to get into how bad it's been just right now, but I think I will lurk on the forums for a while and maybe dispense some very experienced "wisdom."

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/26/2010 1:44 PM (GMT -7)   
Lucy,
Just how is the real "big lucy" doing? Maybe that's a little lighter of a topic! Are you still working - if you don't want to talk about it, that's ok, too!

Hugs,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 5/26/2010 3:49 PM (GMT -7)   
Hi Big Lucy, I'd also been wondering where you were. Sorry to hear about the depression, it really haunts all of us with CP.

I guess its normal to be overwhelmed but oh so hard to deal with. Feel a little that way myself but just trying to put the next foot forward and not look at the big picture. Talk about ostrich syndrome.

Lovely to have your lovely thoughts and comments back with us again, I always enjoyed reading your posts, golitho

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13461
   Posted 5/26/2010 4:13 PM (GMT -7)   
Hi Big Lucy, glad to see you back. Why is it many times when we have surgery depression seems to get worse, it does with me. It is bad enough having surgery then adding more of something else to the mix is just not right.
 
My daughter saw the same news and called me in a panic because she knows I take Acephex twice a day. Fractures or not I am not putting up with GERD and Acid Reflux, those two boogers are miserable enough.
 
I hope you get to feeling better soon. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/26/2010 5:41 PM (GMT -7)   
I have taken prilosec every day for over a year now. I will ask my rhuemy about this at my next appointment since she is the prescriber but my bet is she will tell me to keep doing what I have been-which is take prilosec in the morning and calcium and D in the evening.
I think she is more concerned about the immediate problem of keeping my blood counts up.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 5/26/2010 8:39 PM (GMT -7)   
 
 
   Dear Lucy,
 
    I dont take any of the medicine listed in the "warning". But I did want to stop by and say hello! I hope you are doing a little better by now.
 
*hugg*
  dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 5/26/2010 10:24 PM (GMT -7)   
Awwww, thanks everyone, I'm touched--and that's hard to due in my current state of mind. I did get a laugh when I re-read my last post and I used a well known naughtly acronym and the site changed it to *** automatically; I guess we can talk about pain and misery, even death and dying, but, by golly, better not cuss, it's just funny to me that's all nono I am way beyond semantics and social propriety--I guess when you've gone to the bathroom in your pants in public b/c of a bowel disease cussing is on occation appropriate (and no, I don't wear diapers b/c it only happens about once a year and it's totally unpredictable, shout out to all my IBDers!).
PALady--Don't ask me how I've done it, but I am still working FT. I "manage" by using all vacation time as sick days, which means I haven't had a vacation--VACATION!, what's that right--in, oh, six? years? I've also, fully come out as a disabled person and utilize doctor's notes as much as possible. The main reason I'm hanging on is--and you all w/o it know--I want my health benefits. Please don't think I'm doing anything remarkable, it's a tough life. Every day I work I just come home after and go straight to bed. One day of the weekend I spend sleeping mostly and the other day is chores--now that's livin folks. Don't get me started on what I think the meaning of life is anymore.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/27/2010 1:38 AM (GMT -7)   
Lucy,
I can't believe you're still working FT! But I do understand why you struggle to hang on like many here do. Heck, if I hadn't been laid off I probably would have struggled to hang onto at least my part time job. Life does change dramatically when you're alone and you're not working. And not just financially. Psychologically, socially (although CP already affected a lot of that).

You're right...you're living a tough life. I hope you can find some meaning in your work, and coming home to your animals (more than one, right?, or is it just Big Lucy?). I suspect your body will make the decision for you when you just can't push any more. I'm glad at least you aren't trying to hide things at work; at least that takes a little pressure off.

Hugs,

PaLady

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 5/27/2010 12:41 PM (GMT -7)   
Yeah, I have three dogs, they keep me going and sane; I love dogs and on those days I can't get up for myself, I have to get up for them--very theraputic, as you may know.  I also like having something around me that's breathing at all times, not so isolating.  I often wonder how people with CP/CI live w/o a pet, but I also recognize a pet can be a lot of work for CPers and expensive.  about work, well, I think my body has already told me I shouldn't be working FT, but what can I do but hang on. 

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 5/27/2010 12:50 PM (GMT -7)   
Lucy,
I sure agree with your thoughts on the positive benefits of a pet, and I so miss having one. As soon as I can get financially stable - and know that I will be living either in my house or somewhere that allows pets - I want another feline companion. I love dogs, too, but physically I think they're more demanding and I couldn't give them the exercise they'd need.

Having something around that's breathing.....yes, I do understand. I think that's one of the many reasons I like that the weather is nicer and I can open the windows and hear the birds and watch the bunnies and whatever else wanders into my yard. And plenty of neighbors have dogs around, but it's not the same as having a kitty to curl up with.

Yes, work....it's beyond a difficult decision for those of us who are alone and don't have children to let go of a career. I do understand.

Hugs,

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13461
   Posted 5/27/2010 12:53 PM (GMT -7)   
Big Lucy I totally agree with you on the pets. Mine are so much comfort to me and yes they make me do many things for them which I am sure in the long run is good for me. I do know about the bathroom issues you spoke of. I would be thrilled to death to only have one accident a year. After having my resection surgery due to crohns it left me in a permanent mess. To this day I remember the first time a Depends was put on while in the hospital and that is something I don't think we ever get use to, I haven't after all of these years. Take care friend.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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