Trial Canceled (Again)

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Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 5/27/2010 12:44 PM (GMT -6)   
As most of you know, after a 4 mo long fight with my insurance company, I was finally approved & scheduled to undergo a week-long trial of a peripheral nerve stimulator beginning tomorrow.

Well, it's been canceled AGAIN (on the day before, AGAIN). Apparently the hospital where it was supposed to be done is no longer taking my insurance. I do have out-of-network benefits, but that would mean that the hospital could charge us whatever (fictitious) rates they wanted & we'd end up paying thousands of dollars out of pocket, which we can't afford. The doctor's office was under the impression that because my procedure was originally scheduled for December (when the hospital still accepted my insurance) that the hospital would accept my insurance for my case only. But today, when they called the hospital to verify this, the hospital refused to accept my insurance. Of course my insurance agent, who helped me get this procedure approved in the first place, is out of the state & unable to help me. The hospital is saying that the only way that they will accept my insurance is if I appeal to my insurance company yet again (which probably means several more months of fighting the insurance company).

Needless to say I'm really upset, disappointed, frustrated, angry...the works... Fortunately I do have the option of rescheduling at a different hospital, which does take my insurance, however, my surgeon does not routinely operate there & therefore we are unsure when he would be able to get OR time. Which means that I'll potentially have to wait another month or two & will have to have all my pre-op testing & everything done all over (for the 3rd time now).

I know it's not the end of the world because the trial is probably going to end up happening sooner or later, but right now I'm just upset. I was so looking forward to this. This is just a huge let-down.


Veteran Member

Date Joined Feb 2009
Total Posts : 999
   Posted 5/27/2010 12:59 PM (GMT -6)   
Skeye, sorry to hear about the ins. nightmare. Things will be different when the government is in control of ins. (joking) By the way, congradualtions college graduate! Hopefully your dr can get things arranged at another hospital sooner than later. This roller coaster that you have been on wiill eventually come to a point where you will know if the scs will work. Hang in there, you are not alone. 

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 5/27/2010 1:03 PM (GMT -6)   
Oh Skeye, you just can't catch a break. I'm so sorry about this. Surely something will give soon and you'll be able to do the trial. I have to admit, though, that I'm glad you found out before the procedure because you could have really been in a mess with this one if they had not told you. My insurance recently went back and denied a pre-certed procedure from last year and left me with a fortune to pay. You certainly don't need that on top of everything else.

I'll keep my fingers crossed for you!
Retired Mom

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 5/27/2010 1:03 PM (GMT -6)   
Skeye, I am so sorry to hear this. I can imagine how disappointed you must be...I had a surgery cancelled while I was IN the OR...the doctors were unable to find a vein to start an IV (they even tried to do a central line in my groin), but I was so dehydrated that they couldn't find one after an hour, so they cancelled it and I had it done several months later.

I hope that your Insurance Agent is able to help out once again and push something through at the other hospital. And I really hope that this doesn't take months and months of waiting on your part.

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 5/27/2010 2:30 PM (GMT -6)   

If it isn't one thing it is another, I am so sorry that all this is happening to you! Hang in there, hopefully things will all work out in the end, I keep you in my prayers!

White Beard

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 5/27/2010 2:46 PM (GMT -6)   
I am speechless but heartbroken for you! And angry!

The only thought I have is some kind of direct, in-person appeal to the hospital - and I mean someone like the CEO. Is this by any chance a hospital with a religious affiliation? If so, appealing with a disguised goal of causing some guilt might help. And if that doesn't work a letter to the editor of your paper could be interesting - I think your entire story would be compelling and, considering the hospital had agreed to do it in December, put some pressure on them to make an exception in your case.

But in the meantime, I don't blame you for feeling as you do. Disappointment doesn't even cover it. But I'm also glad that you have a long-term outlook that is positive.



Regular Member

Date Joined Dec 2009
Total Posts : 184
   Posted 5/27/2010 4:15 PM (GMT -6)   
there are no words. Just hang in there.
Sending you healing love.
Hang in there
We are all here for you

sick and tired of being sick and tired

Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 5/27/2010 4:22 PM (GMT -6)   
Oh my goodness Skeye. I couldn't believe it when I read the title of your post. I thought, oh no, don't tell it was cancelled again!!! Such bad luck, that's the way i feel as well. Only bad things seem to be coming my way. I hope you will be able to get it all worked out and not have to wait too long to have a go at this operation. I will pray for you my friend.

Hang in there
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 5/27/2010 8:34 PM (GMT -6)   
Oh Skeye...

I'm sorry... I can only imagine how frustrated and disappointed you are. Like you said, you know it's still going to happen - which is the good thing... but to have something cancelled at the last minute is so disappointing.

I'll pray for you that everything falls into place from here. Hang in there, Skeye...

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 5/27/2010 9:26 PM (GMT -6)   
Skeye, I can't believe it. Again! How unlucky is that? I'd be furious, you sound so resined! I'm amazed at your acceptance.
I really hope you can get this worked out really soon, how incredibly frustrating for you to have to deal with all this again. Health care is so uncaring!
My thoughts are with you, golitho

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 5/27/2010 10:55 PM (GMT -6)   
   Oh gosh, not again!!! I am so terribly sorry they did this to your Skeye *big hugg* I was so hoping you would be going in to surgery, get your trial done, do a full implant and have enough time to enjoy the summer. I wish this was happening to someone, anyone else, other than you! Gosh, I sure hope the surgeon jumps into action to get things taken care of quickly. Hang in there and stay stong! Something has got to give!
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 5/27/2010 10:59 PM (GMT -6)   



Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 5/28/2010 10:06 AM (GMT -6)   
That really stinks Skeye! I'm so sorry that those jerks can't seem to get their **** together! Hopefully it will be an old memory when you finally ger er done!!!

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 5/28/2010 11:22 AM (GMT -6)   
Hey Skeye , thats a bummer , it never ceases to amaze me how these ins companies love messing with folks .Please hang in there , your time will come . Mikel

Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 5/28/2010 6:10 PM (GMT -6)   
Hi all,

Thank you so much for all your support and advice. It's really heartwarming to see so many people who care. I didn't hear from the surgeon's office today, so I'm guessing that the other hospital hasn't gotten back to them yet about available OR time. With Monday being a holiday, if I don't hear anything by Tuesday afternoon I'll give them a call & see if I can't get things moving. This is just so frustrating! I hate insurance!


Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 5/28/2010 6:42 PM (GMT -6)   
Well Skeye, I sure hope things work out soon...stop picking up those little bugz in the system...(lol)
just jokin..Things will work out and then you'll be pain free and so Happy...that's my hope for you...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Regular Member

Date Joined Feb 2009
Total Posts : 487
   Posted 5/28/2010 9:57 PM (GMT -6)   
Hi Skeye:

I don't even know what to say, I am so sorry! I have every confidence that in the end, this will all be worth it and be just a horrible distant memory of what you had to go through to get relief from your chronic pain.

You've come too far, jumped too many hurdles, climbed over too many obstacles to give up now!

Hang in there, and we will hang with you!


Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 5/29/2010 11:31 PM (GMT -6)   
Oh Skeye.  ((((((((((((hugs)))))))))) I'm so sorry to hear that this has happened yet again.  It makes me so mad at what you've had to go thru and now they cancel again.  It should be against the law for the hospital to just up and say they don't take your insurance now.  This makes me so angry.  My heart goes out to you.
love and hugs
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

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