I'm so happy to hear you have an appointment at UCSF - perhaps with a multi-disciplinary team, they'll finally be able to find answers for you.
I have been suffering from chronic pelvic pain for a number of years now....and to be honest, my doctors still can't say with 100% certainty what the problem is. They "think" it's permanent muscle damage in the pelvic area, due to a host of issues. They can feel knots of muscle and trigger points in the pelvic area, and I can also feel those knots directly on my abdominal wall, but the doctors also know my hip problems could be contributing to the problem as well. So, they've told me several things my pelvic pain "could be", but they refuse to commit to any one particular disorder.
So, what I'm really saying is sometimes, what presents as pelvic pain might actually be something else, and you need to keep an open mind about what could be causing the pain. I only know that without the medications I'm on, my pelvic pain has me walking in circles and crying in pain, just praying for relief. I've done everything you can think of to relieve it - massage, exercise, pelvic floor physio, drugs, etc - with no cure. I do get pain relief with the combination of drugs I'm on, but I'd like to be cured of this completely if possible).
Hang in there Stephanie and don't be afraid to ask your doctors questions. Try to be as clear as possible in describing your pain and the things that make it worse. I will keep you in my prayers, that answers will be found and you can be pain free. If you ever want to chat directly about this, just click the envelope by my name to email me.
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily