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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 5/28/2010 10:46 PM (GMT -7)   
How are you doing?
I was wondering if you could tell me about your severe myofascial pain. I have been told before that I have that.
 
And I was wondering, do you live in Canada??
 
thanks my friend
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/1/2010 9:22 PM (GMT -7)   
bttt
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/2/2010 8:02 AM (GMT -7)   
Hi Suzanne

Myofascial pain is a chronic condition that affects the fascia (connective tissue that covers the muscles). Fibromyalgia is a chronic condition that affects the actual muscles themselves. Some doctors use the terms interchangeably but they are actually two conditions.

Medically, there have been no changes for me lately. I am managing my pain as best as possible with the drugs I'm currently taking; as long as I don't do too much physically, and take the drugs on time, I can keep the pain at a pretty steady 3 or 4. My pain is still due to my Fibro and pelvic pain of "undetermined origin", as well as my hip issue. I still have no date for an appointment with a surgeon regarding my hip and it's taking a lot of energy for me to stay calm and unstressed.

I am in Canada Suzanne...I live in Calgary. I've been here for almost 15 years now...I was born and raised in Vancouver, BC and surrounding areas, and I also lived in the US for a few years, all over.

Hope you're doing as well as possible!!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

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