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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/1/2010 10:25 AM (GMT -7)   
I just wanted to check in with the folks who've had so much to do with improving my outlook .When I first came here I was in a very bad way , this was about 3 months ago and I was seriously suicidal and in a LOT of pain . The suggestions I got here and more than that the unwavering support and caring has with the help of my family enabled me to change for the better in dramatic fashion .I eat totally healthy now and see a pain therapist once a week .I was prescribed 6 oxicpntin a day 80mg each , plus 8 percocet a day for pain .In the 6 or so weeks since I've been leading a healthy lifestyle I've taken between 6-8 oxicontin and perhaps 6 percocet , thats in 6 weeks . My hip still hurts in certain positions and on rainy days it can be tough but its just a challenge to be met , like anything else in life . I'm getting my drivers liscense again , new furniture in the house and I'm taking meditation classes as well as completing a course for asst. vet . thru Penn Foster online I had given up on ! Its been a great awakening . Thanks , Dani , Tabatha , Tina , Straydog , Loretta  , Eagle , Whitebeard , retiredmom , Heather , Coach, Coady .Suzane ,  Navy , Stacey , Patti and any friend I missed , much love to you all .I never realized how close a freiendship one could have thru online resources , but I feel as if I've known you all as neighbors . God Bless you all . Mikel

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/1/2010 11:41 AM (GMT -7)   
Mikel,
 
I am so happy that you have made such a dramatic improvement in the last several months.  I was honestly wondering if you were Ok since you don't post as much as you used to, so I'm very very pleased that your reduced posting is due to an improvement in overall health! 
 
You are an inspiration to me personally and I hope to say one day that I have improved as dramatically as you have. 
 
Congratulations on all of you accomplishments! 
Retired Mom


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/1/2010 12:24 PM (GMT -7)   
Mikel,

I"m glad you have seen such great improvement in your health. I continue to pray that you will be able to have your hip replacement done soon - just one more step on your road to complete healing. Stay strong, take care of yourself and know that we're all still rooting you on.

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/1/2010 6:27 PM (GMT -7)   
Mikel, my friend,

You are one of the most caring and compassionate people that I've "met" :) You've encouraged me on MANY a day when I was down and needed it... Thank you for being such a wonderful friend.

I'm very, very proud of the progress you've made. I think you've made major accomplishments in a relatively short amount of time. I pray that things continue to improve and that more and more doors open for you. I'm so happy to hear of the things you are doing! It gives me hope and encouragement, too :)

Thanks again for being my friend... Love, Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/1/2010 8:24 PM (GMT -7)   
Hi Mikel,

I'm glad to hear that things are going so well for you. It sounds like you have a great outlook. Keep it up!

hugs,
Skeye

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/1/2010 8:31 PM (GMT -7)   
So happy that things are picking up for you Mikel. I am the one that needs to thank you because when I am not around your are always there sending me a big hello on my bads, always looking out for me. So I am thrilled with the progress you have made.

If you are in chronic pain then this is THE place to be. We are a great family!!!!!!!
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


pugluv
Regular Member


Date Joined May 2010
Total Posts : 20
   Posted 6/1/2010 9:04 PM (GMT -7)   
Hi I am glad you are doing well, that only thing that I am worried about is that you are on a lot of opiods which in the long run might not be very helpful.  I have been off morphine for about a month, which sucked but, I would have not been in that position if I had not started like you.  I was taking high doses of percocet, and the on Oxycontin.  I then went through Ms contin and ended up on Fentynol.  Which took a long time to get off.  I was then taking Oxycontin for a while and the to Ms contin which then I tried Kadian.  Which was great until new legislations in canada which forced me off the Kadian.  Now that it has been a month later my doctor said I can go back on to Percocet.  So, basically what I am saying is that it could be a long road of withdrawl over and over once you start.  But that is my opinion.  I also agree that it is easier to work with the medication but now I am unable to work, so the system is not perfect.  Anyways hope you have more pain free days then painfull ones.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/1/2010 9:19 PM (GMT -7)   
Hi Mikel!

Don't forget the most important person in your new and improved life...look in the mirror! Yes, this wonderful family was with you whenever you needed help and we still will be but you are the one who made the choice to change and you are the one who did it. There are people who come and ask for help and it's freely given yet they don't help themselves to get better. You chose to be better and you did it...with the family's support. ;-)

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/1/2010 9:21 PM (GMT -7)   
Hi Mikel   I'm so proud of the progress that you've made.  You're a wonderful friend.    I do agree we do have a wonderful family here.  Congratulations.
 
love and hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/2/2010 5:09 AM (GMT -7)   

Hi Mikel,

What a nice post!!  It takes alot of determination to make the changes you have made in your life!  Never give up!!

You are a wonderful person!

XXOO
Patti


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/2/2010 6:35 AM (GMT -7)   
Hey Mikel, I am so happy to hear how well you are doing! You are truly an inspiration. When I first joined this site I went through and read alot of old posts, yours was one of the stories I follwed and you have come a long way baby! lol You are also one of the most supportive people on here. I think that it is awesome that no matter how bad you feel or how crummy your day might be going you still come here and support us, it means alot! I value your opinion and hope you keep doing what you do. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/2/2010 9:50 AM (GMT -7)   
Hi, Mikel,
I just wanted to say that I also think the changes you have made are impressive and a great sign of how much we can still do for ourselves, despite having CP or other chronic illnesses. Sometimes I think we all forget that (myself included) we are a part of the process, and the more active we are in improving whatever we can in our own lifestyle, the more progress we're likely to make toward a meaningful life. It's not easy, that's for sure, and the progress is usually at a snail's pace (at least for me most of the time!), but it can pay off. Your story is an example of that.

I have a cousin who's a long-term cancer survivor. He had serious esophageal cancer, and of course had major surgery and chemo & radiation at the Cleveland Clinic. The survival rates for his type of cancer were very low, but he's one of their success stories. He still swears by juicing. I do believe our diets influence how we feel, and reading your story is giving me more incentive to work toward eating healthier like I used to before all this CP hit me.

Thanks for the motivational story!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 6/2/2010 10:53 AM (GMT -7)   
Mikel,
 
Its is always wonderful to read a post such as yours. Your post is great encouragement for others who think they are at the end of the line with CP and cannot go any further. It is easy to get stuck in a rut and have great difficulty pulling out of it. You just keep up the good work, it obviously agrees with you very well. I know someone posted about the opiods, but please give that post no thought (however well it was intended), many of us take strong medications in order to have a life and that is so much more important than than what pain medication you are taking to have a life. My PM dr is pro having a life and being active while taking pain medication. She says whatever it takes for a patient to be up and going and having quality life. It is another tool we use to battle CP. So what if you need an adjustment or if your medications need to be changed up, thats part of life whether its pain meds or BP meds.
 
I do remember how down you were when you came to the forum and I am very happy and excited to see you having quality life. Woohoo!!!! Please keep posting so others will see it is possible with CP.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/2/2010 12:16 PM (GMT -7)   
damouthy1 said...
Hey Mikel, I am so happy to hear how well you are doing! You are truly an inspiration. When I first joined this site I went through and read alot of old posts, yours was one of the stories I follwed and you have come a long way baby! lol You are also one of the most supportive people on here. I think that it is awesome that no matter how bad you feel or how crummy your day might be going you still come here and support us, it means alot! I value your opinion and hope you keep doing what you do. Take care.

Hi damouthy, can you tell me about your daily headaches and what you have found that hepls you. I have constant severe bilateral temporal headache and have not found anything that helps with my pain. It's been ten years. perhaps you could start a new thread or send me a message. Thanks


   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/2/2010 3:06 PM (GMT -7)   
Mikel, YOU DA MAN!!!! look at how many of your Fam's here love you!! You are a special person w/ everything you've been through and have now accomplished! Be proud of yourself Mikel, we are!!!
Your Buddy always!
Pete
PS> You remind me alot of someone else here>>
>>Me!!
I'll tell you about it sometime.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/2/2010 6:16 PM (GMT -7)   
I love each and everyone of you my family , we who understand each other in such a difficult yet special way  , we who have joined hands and hearts to transcend our suffering through caring , support and understanding and become forever bonded as brothers and sisters in a most special and meaningful way . May we all be there for each other always , deepest affection to everyone , Your Brother Mikel 

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/3/2010 6:27 AM (GMT -7)   
 
 
     Dear Mike,
 
      You know from the moment I met you I have felt so complete. Like you were always ment to be a part of my life. I am so blessed to know you and have you here in my heart always! You are a kind, giving, generous & wise soul. You are wonderful dear friend!
 
*HUGG*
    dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/3/2010 6:40 AM (GMT -7)   
AAAHHH !!! Now I feel complete !!! My wonderful friend Dani has posted on my thread , you can't imagine how that warms my heart !!! You are the most wonderful spirit , you've taught me , cared for me and broadened my life so much !!! I hope you are having a great trip Dear One , thank you so very much for taking the time to make me smile my ''Dani Smile'' ! Thats the smile I have on my face when everyone asks me if I won the lotto , and I amswer yes ! I've just heard from my most wonderful friend !!! Luv You Big Time ,Mikel
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