Does anyone have adhesion pain?

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krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 6/3/2010 12:24 PM (GMT -7)   
I was just wondering, could adhesions be causing most of my pelvic/abd pain?  It is a contant cramp:(  I have had several abdominal surgeries including a total colectomy, ovary and tube removed, reversal for colectomy- got peritenitis with that so had another emergency surgery, and also had a mass from my remaining ovary removed.  All of these were large incisions- nothing was laproscopic- if that makes any difference.  They have all gone thru my orinigal colectomy scar.  Any thoughts?
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/3/2010 12:48 PM (GMT -7)   
Goodness gracious KRW135....you have had alot going on. I would have no idea where to start on something like this. Adhesions can cause pain, but you have had so many other things going on that I would get right in with my Dr if things were acting up. This area is too dangerous to ignore and I would hate to see you end up with more surgery.

I hope you find your answer and that it works out well for you!
Retired Mom


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 6/3/2010 12:56 PM (GMT -7)   
Thank you- I really don't want to have to start going to a pain mangament dr, but I am afraid I might have much choice. The last thing I want is another surgery. I have been to my GI and my PCP with the pain problems and I swea they make me feel like its all in my head. It is so frustrating all I do can is cry.
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/3/2010 1:40 PM (GMT -7)   
Hi krw, and welcome to the forums. Boy, can I relate to you...you can see the surgeries I've had listed in my signature...and three of them (left ovary, gallbladder, right ovary) happened within a 6 month period. Each time the doctor went in, he found a lot of adhesions on whatever was left. He told me he had to pull my bladder and bowel apart in one surgery, there were so many adhesions.

The doctors don't feel adhesions are the real source of my pelvic pain though. They seem to think I've got permanent muscle damage in the pelvic floor due to all my surgeries, and there are numerous trigger points (knots of muscle in spasm) throughout the pelvic region and on the abdominal wall. I've had two botox injections into the psoas muscle on the right side (the worst side for me) which did help to relax the muscle but hasn't done anything for the trigger points.

I would suggest you ask your doctor about the possibility of trigger points - you might benefit from injections of local anesthetic in them if they are there, to help reduce the pain. If in fact you do require another surgery, you can ask your doctor if there is something that can be placed over your pelvic region that can slow down regrowth of adhesions. Deep massage and ultrasound can also be tried to break down the scar tissue.

Good luck and I hope you get answers and pain relief soon!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 6/3/2010 4:33 PM (GMT -7)   
I've had 4 ab surgeries with adhesion removal during the first and last. Unfortunately, surgery creates adhesions so you are usually stuck with them. During my last surgery, the doc put some fluid in my abdominal cavity that was supposed to minimize the formation of adhesions but I don't think it helped.

It certainly won't hurt to talk to your doc but they can't tell if you have adhesions without opening you up and surgery creates adhesions so they don't want to.

Good luck.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/3/2010 6:29 PM (GMT -7)   
Same as me Dagger, I had both ovaries removed and heaps of adhesions off my bowel, abdominal muscles, bladder etc and they filled me with fluid to stop new adhesions as well. I still get abdominal pain, KRW but it's not as intense as it was. Endometriosis is such a horrible disease which is what is causing my adhesions, I'm assuming yours are from the surgeries themselves. Why don't you ask on the other forums to do with crohns etc they would have more experience with he sort of surgery you've had.

To me it makes sense you still would have pain because of the radical surgery they've done to you but I'm not a doctor. Please keep searching , sorry I can't help, apart from offer my sincerest best wishes, golitho

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 6/3/2010 6:47 PM (GMT -7)   
Hi KRW,
 
Welcome to Healing Wells chronic pain forum. I am glad you found us but so sorry that you have to be here. To answer your question, yes it is very possible the pain is caused from scar tissue/adhesions they are pretty much the same thing. Some people tend to build up more scar tissue than others. Have you approached your dr with questions along this line, if not you really need to. He would be the best one to be able to give you better information that us folks here at HW. We are not drs but we can understand any pain you are dealing with thats our specialty. I can understand not wanting to go the pain mgt direction because it can be a very long hard road, if you can avoid it by all means do so. You know there is surgery done on people to correct some problems associated with scar tissue. They cannot remove all scar tissue because it usually comes back over time, but its your drs call and yours. Is it a permanent fix, no one knows, but it may give you some relief if this is something your dr thinks may help. I would be heading to my PCP and then let him decide which way to go on this. He could refer you to a general surgeon perhaps just for a consult. With as many abdom. surgeries you have had it would not surprise me.
 
Again welcome aboard and keep us posted on how you are doing.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 6/4/2010 1:44 PM (GMT -7)   
Hi there! I am the self appointed queen of adhesion pain! I feel down the stairs 3 days after a major abdominal surgery and have not been the same since. I have had 1 laproscopy to try to clean them up but my doc said they were so bad she could not even get to a lot of areas unless I want her to go back in with a nice large cut and remove the things they are wrapped around (ovary, appendix and now we are checking to see of they have moved onto the bowel)

They can be a real pain and one doc I would suggest seeing is your OB/GYN. They tend to have a lot of experience dealing with them and figuring out what to do to help.

I am in pain management for those as well as a really unhappy neck (check my signature for details) and it does help. I also use heat, ice and stuff called Biofreeze to help manage it.

I hope you can find what is causing you so much pain and if you ever want to talk just email me!

Sarrah

Hysterectomy at 25 : 4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two bulging disks located C2/3 and C4/5

Meds - Embeda 20mg 2x : Nucynta 50mg every 6hrs as needed day :Amrix 15mg 1x day: Pristiq 50mg 1x day

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


StorminNorman
New Member


Date Joined Jun 2015
Total Posts : 4
   Posted 9/2/2015 3:33 PM (GMT -7)   
I would like to know if there are any imaging tests that would detect adhesions. I have had groin hernia surgery, abdominal hernia surgery and they have taken the mesh out for these. I had nissen fundoplication, hiatal hernia and gall bladder removal surgery June 18th 2015, they found adhesions in pelvis and gall bladder area. My stomach is tender to the touch and stretching has been approved by the Doctor, they have done a barium swallow, endoscopy and x ray of area to eliminate any issues. What kind of imaging would you recommend to eliminate adhesions as the cause of the pain which is present? I need something which could give me some kind of peace about this.

(Seashell)
Regular Member


Date Joined Dec 2012
Total Posts : 308
   Posted 9/2/2015 7:57 PM (GMT -7)   
Adhesions are formed in the normal healing process - the body producing an over-abundance of connective tissue and collagen fibers in response to healing a wound/surgical site.

Some people produce more adhesions/scar tissue than others. It is an individual variation.

Adhesions/scar tissue is generally not discernible on radiographic x-ray. Nor on CT scan or MRI scan.

The best approach to the management of adhesions is tissue mobilization. Long, slow, sustained stretching of the affected area(s) will tend to elongate and untether adhesive bands from attaching to neighboring organs/tissue. Avoid quick or ballistic stretching/movements, as these can cause small micro tears in tissue/muscle that can result in additional adhesion/scar tissue formation.

The practice of gentle yoga, for example, can be helpful in the management of abdominal/pelvic adhesions. Elongation and rotation of the pelvic and shoulder girdle, for example, can stretch and release adhesive bands.

Deep tissue massage (by a massage therapist or physical therapist) is another treatment option. The Greason technique refers to a specific physical therapy technique that focuses on "untangling" adhesion fibers with good clinical outcomes.

Taking a supplement of vitamin E and B complex can be helpful as well as a supplement of turmeric (for its anti-inflammatory qualities).

Auntie t
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/8/2016 3:38 AM (GMT -7)   
anyone out there that has adhesions there is a doctor in Skokie Illinois named Constantine Franztzides Who is a awesome doctor specializing in minimal invasive surgery , he operated on me for adhesions and at that time I had a frozen stomach covered with adhesions ,no one would operate on me ,I had been to the best surgeons in this country , dr. Franztzides did the surgery and I was home 3 days later .

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 3/8/2016 8:43 AM (GMT -7)   
Hello Auntie t & welcome to Healing Well. Auntie you have posted on a very old thread that has not had any activity in quite some time. Members tend to not read these older threads when they come up.

We invite all new members to make their own intro post so all members will see it & be able to say hello. By posting here not many will see your post. I will lock this thread so others do not post on it. We like to keep the older threads off of the main page. Thanks.
Susie
Moderator Chronic Pain & Psoriasis Forums
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