Ready to throw in the towel.....humiliating!

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finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 6/3/2010 10:38 PM (GMT -7)   
Went to the Neurosurgeon today and got a few injections.  She said the main nerve that is damaged is so much worse in my neck is why they have to start there.  Anyway, after that the day went downhill................Fought with the health insurance co because they showed we had no coverage.....they posted my payment on the wrong account!   Pharmacy would not even give me enough of my husbands heart med till i could get is straight, went to unemployment after 2 days of sitting on the phone trying to see why i hadn't received this weeks pay, got 4 answers, only one made any sense.  Flew back down there gae them the new paper they forgot to tell me about, but not in enough time to get my money until sat or next monday..................THEN to top off my day, was getting ready to go to my son's baseball game, and both, not just one, but both of my legs decided they were done for the day, and I have been in bed or in my recliner ever since...Pain meds not helping at all, can't sleep because of the pain.
Called on call Neuro at the Hospital, just happened to be my doc.  she said to rest and relax and more than likely in the morning they will be fine, if not call her.....Easy to say when your legs didn't just faceplant you into the sidewalk and all you neighbors were out there picking me up AGAIN!  It has to get better...what happpened to quality of life? eyes shakehead
 
Thought I would pop in here and see if any of you had a better day than I did!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/4/2010 1:21 AM (GMT -7)   
awwww, I'm sorry there have been so many struggles for you lately. It does sound like your neurologist is a good person and is looking out for you, so that's a good thing. It is so frustrating though, when so many things are going haywire in life. And at least your neighbors pick you up...they could just leave you there (okay, probably not, but you just never know!)

I hope everything lines up for you today, so that you're able to enjoy a really good day. I hope you feel energized and ready to face this all again. Hang in there....we're all rooting for you!

hugs,
Pam

ps: as for if anyone had a better day - I did receive a lovely compliment from my favourite 3 year old today (daughter of friends) - she told me my pink dress made me look really pretty! :-) Yeah...it was a good day.
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/4/2010 4:35 AM (GMT -7)   
Hey Finally , Wow ! Sounds like you had a really tough day ! I'm sorry you had to deal with all that frustrating nonsense , especially one after the other like that , it must of been terrible .Please try to let it go , for your own sake .Posting and venting here is good , get it out of you in any way you can , otherwise it'll drive you crazy . Sorry about your son's game too , I hope your doctor is right and you wake up this morning feeling better .Stay positive , I know these things are frustrating but don't attach more value to them then necessary , easy to say I know , but it'll help to let the stess go . I hope today is a much better day for you , keep you chin up friend !!! Mikel

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/4/2010 5:03 AM (GMT -7)   
Sorry you had such a bad day. Here's to better day's ahead (hopefully) Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 6/4/2010 9:49 AM (GMT -7)   
Ok, so I woke up able to walk, my back really hurts, migraines gone, still dont have unemployment, but I am going to make it a better day. Sorry for all the negativity last night, I was at the end of my rope. The surgery...I just want to get it over with, hopefully my legs will "wake up and smell the coffee!" I did sleep good (and late).

Here's to a good, low pain weekend!!!!

Thanks you guys!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


BobinmidMO
Regular Member


Date Joined Mar 2010
Total Posts : 39
   Posted 6/4/2010 11:00 AM (GMT -7)   
We all have these kinds of days - but wow am I sorry yours hit so darn hard all at once.
 
First, in an attempt to not loose your mind, try and keep the multiple problems that are all hitting at once as compartmentalized as humanly possible.  While all the problems do add up, the more you keep them separate the better you'll cope.
 
Nerve damage is rough, especially depending on how severe of damage we're talking about.  Sort of like a wire that's shorted out behind the dry wall in your home, there's days where the connection works just fine, and others where the current runs flat and nothing gets through.  While I understand the frustration your experienced in not being able to attend the game, I'm proud that you were on your way.  That's proof enough that you're not going to stop living even though life is throwing you more than one curve ball.  Keeping this attitude will always give you the highest scores so whatever you do, don't stop!
 
Unemployment battles are being shared by so many and I'm sorry this is one more thing added to your list.  With governmental budgets being strained even harder than before, it's like the whole system to slowing to a crawl thus creating even more problems.  Now I just hope that the news is right and that unemployment numbers really are on the decline and that businesses starting hiring once again so we'll have more money that will get the economy even stronger once again.  Take care, Bob.
After an accident in  1997 crushed the nerves in my pelvis, halfway down the calf and at the fibular head (knee), my left leg slowly started to turn color from the foot up, along with swelling and temp change.  Within 2 weeks I was diagnosed with RSD.  By 1999 I landed in a wheelchair and started a life taking narcotics all the time. In 2004 I got an Intrathecal morphine pump &5 years ago the RSD spread to my right leg and has done around 80% of the damage it did to my left leg in half the time. 1 1/2 years ago I went septic, and the infection did go body-wide.  After 2 days in the hospital I then had a clot in my lungs.  Both should have killed me, but this time I got lucky.  Meanwhile I've been battling blood clots for the last 4 years.  A year ago my left leg was ampuated above the knee after ging septic.  Guess that about say's it all.  Bob.


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 6/4/2010 3:52 PM (GMT -7)   
yeah  Still having a good day...went and picked up my 2 year old grandbaby that has a bad sinus infection and ear infections (his mom is single and we usually keep both on the weekend so she can work, but the other one is at his dads)  Thank goodness I have a son that has accepted all of this better than I have!!  He went with me today and was so much help.  I swear 12 year olds have days that they are so mature and some days I think he is 4 again!!! 
 
Hoping this weekend stays good....My husband told me I needed to clear my mind and stop worrying about it all the time and I know he is right, but sometimes that is hard to do...espically when I can't walk, BUT I am going to do my best to put all this medical crap at the back of my mind!  It is going to be a good weekend....if it kills me!!! yeah yeah yeah
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/4/2010 8:11 PM (GMT -7)   
I'm glad you're still having a good day FRC and I'll pray that continues through the whole weekend. I understand how hard it is to manage stuff when there are so many problems and health issues going on at the same time. Venting is a good thing and you don't need to apologize for doing it. It helps clear the mind and gets you ready to get back into the battle.

Take care of yourself this weekend.

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

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