Pain Is Crazy...SO Tired Of This

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drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 6/5/2010 8:39 PM (GMT -7)   
Pain in both legs is horrible. I've had bad nerve pain for quite a while now, but nothing comes close (For me) to nerve pain in the testicles. It comes out of nowhere and comes in waves after waves after waves of agonizing pain. When this strikes, there is NO dealing with it and I just shut down and lay in bed, usually fall asleep if I'm lucky. My wife is unbelievable and wonderful in every way. She understands and supports me with no limits and that is the only thing that keeps me going. I love her more than I could ever say. She is also disabled and lives in pain most days...Somehow we are able to be there for each other and get each other through our pain crisises. I'm on 80 MG of Oxycontin 3 times a day and Percocet 10 MG 4 times a day, but it only gives limited pain relief. My latest Lumbar MRI shows it has gotten worse, with all of my disks from L1-L2 through L5-S1 herniated and/or bulging, with disk protrusions. I'm about to go through another several doctors (Neurosurgeons & Orthopedic Surgeons) with this newest MRI and hope that someone will offer me any solution to my pain. Anyway, I'm getting more depressed and exhausted from the constant pain. Sorry to rant, but it's been a while since I've posted and I had to unload some.
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7
Spinal Stenosis
Degenerative Arthritis Left Knee
Pes Planus Both Feet
Multiple Neuropathies
Brachial Plexus/Thoracic Outlet Syndrome
Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles


finallyreallycrazy
Regular Member


Date Joined Mar 2010
Total Posts : 105
   Posted 6/7/2010 2:58 PM (GMT -7)   
Hi out there....looks like we are in the same boat.......I finally get to see the neurosurgeon Wednesday, prob to schedule neck surgery.  I have nerve damage from the top of my spine to my tailbone.  The worst is when my legs wont work.  I hope you are able to get relief....nerve damage/pain is nothing to make light of.  I understand.  The difference (if there is)  All of my back except 3 are in different stenosis.  They have me on the urgent list to repair my neck, then we see about the other 2.  Believe me, I understand the nerve pain....I am feeling it with you!
New MRI's show I have 3 GOOD vertabrae.  The rest are bulging, compressed, protruding or in one of the three spinal stenosis' in my back.  One stenosis in my neck and two in my lower back.  Fibromyalgia, cfs, degenerative bone disease, osteoporosis, osteoarthritis, HORRIBLE memory problems, panic attacks, depression, and muscle cramps that don't stop.
 
Meds:  Oxycontin 60mg 2x day, Effexor xr 300mg 1xday, Robaxian 3xday, Valium 10mg 4xday, Lortab 10mg 4xday, Phenergan PRN, Folic Acid, B12 and B6
 
 
 
 
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 6/7/2010 10:12 PM (GMT -7)   
drjimmy

Rant and unload all you want, that is why we are all here to help and support each other! We all understand your pain, I know I can empathize with you! I have bad disk all over too, I have had a couple of diskectomy's and fusions in my neck and I see the surgeon this Wednesday morning to see about getting another one at C3, If I can get my neck straightened out then I will work on my lower back! I have some lumbar disk that are shot too!

Hang in there, your not alone in this!

White Beard

false_sercurity
Regular Member


Date Joined Mar 2010
Total Posts : 30
   Posted 6/8/2010 4:17 AM (GMT -7)   
drjimmy,

I also have similiar back problems..with some nerve prob lems as well...and the pain can be overwhelming...I go for MRI today...and start steroids today...they are going to see if my pain lessons..if so..they are doing steriod injections into spine...i have ruptures disks at L4-L5...L5-S1..with spondylolisthesis and bilateral sacroiliitis..so i can understand your nerve and disk pain...Im so sorry you are going thru this...everyone here will listen and support you...So hang in the re drjimmy try to think positive which i know is hard at this point...I do hope you find relief soon...will send prayers to you..God Bless drjimmy and take care of you..keep us posted


False_security

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/8/2010 10:14 AM (GMT -7)   
Hey Doc,

I hope things are improving today. I can't say I have any direct knowledge of what you are going through (being a female that is), but I certainly understand pain and can understand how it wears you down.

I hope you find relief soon!

Best to you!
Retired Mom


Hound-Dog
Regular Member


Date Joined Oct 2005
Total Posts : 183
   Posted 6/8/2010 11:52 PM (GMT -7)   
I hear you drjimmy.......I have pudendal nerve entrapment.What that means is that somedays the pain gremlins take turns stabbing me in my testicles,groin and peri-anal area with ice-picks.Other days they work on my main leg nerves so crutches barely get me to the table or bathroom.I'm way up there on the morphine and oxycodone doses as well but I did find that when my Dr. started prescribing me a tranqualizer (Xanex) three times a day that my pain control drugs worked better for me.I can't say if the same would work for you and I'm NOT a Dr. but I did find that treating the stress helped with the pain for me.Take care buddy, remember you're not alone in your pain and ranting here is an encouraged form of stress reduction too..........Rod

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 6/9/2010 4:19 AM (GMT -7)   

Jimmy, sorry to hear about all of your pain issues.  I too have stenosis from a bulging disc and arthritis in my spine and yes it bites big time.  I noticed that you are on some heavy doses of narcotic pain meds but don't see anything mentioned about meds for nerve pain.  Have you tried something like Neurontin (gabapentin is the generic)?  I use this 600mg 2xday and it does help with the spasms in my cervical area.  It doesn't help with any other areas so those areas must not be nerve related problems.  Maybe this could be something you could talk to your doc about.  Some people use Cymbalta (an anti-depressant) also for pain.  Hope with your doctors help you can find something to help until you can get things straightened out.

Good Luck and let us know how it goes with the surgeon. 


---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica


drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 7/17/2010 10:10 PM (GMT -7)   
Hello all & thanks for all your thoughtful responses and support! I'm a horrible forum member. I rarely go on to the site, so when I DO go on and post something, I forget to check back for responses. I must come across as rude and unappreciative. Please know that is not the case. I'm in so much pain, that I find myself going online less and less these days (that explains why my email in box is over 4000 currently...lol) Jaguar, I've tried Neurontin and my wife insists that I've also tried Cymbalta, although I don't remember it. I had a bad reaction to neurontin, as well as to cymbalta, according to my wife. There's another nerve medication I've seen mentioned here...I'm going to ask my doctor to prescribe it for me. Hound-Dog, OUCH, that sounds horrible and also very familiar. People who haven't had the pleasure of experiencing this specific agony, can't quite understand the severity of it. I used to toss around terms like a pain in the ass, or pain in the balls, NEVER knowing how bad that type of pain is. RetiredMom, I'll never know the pain of child birth, so we're even...lol. False Security, what was the results of your latest MRI? Have the injections helped your pain at all? White Beard, thanks for your support and I hope your pain subsides somehow. Really Crazy, I know exactly what you mean when you say your legs won't work. Many times I'll stand up, and after the pain resolves a bit, I'll start to walk, only to find out that my legs are either weak, or shaking, or just not getting the message from my brain/spine. I'll tell my wife, "My legs just don't want to work" Very frustrating and scary. Desperado, THAT'S the 3rd nerve drug I've heard...Lyrica. I've been on that one as well, but it didn't help. Maybe I'll have to give one of them another shot. Again, thanks everyone for your thoughts and support. I hope all of your pain improves. Hang in there and take care.
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7
Spinal Stenosis
Degenerative Arthritis Left Knee
Pes Planus Both Feet
Multiple Neuropathies
Brachial Plexus/Thoracic Outlet Syndrome
Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/19/2010 9:18 AM (GMT -7)   
Dr Jimmy I am sorry you are having such a rotten time of things. Has your dr ever talked to you about an Intrathecal Pain Pump? I have one made by Medtronics and it has given me some life back. You may want to check their website out. I just learned of a new pump that does not have to have a battery change out which means no more surgeries for the pump and I am going to look into one of those.

Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/19/2010 5:52 PM (GMT -7)   
Hi, straydog, I am new to this chat so bear with me. Is it possible you may have a form of viral Meningitis or possibly a kidney or urinary tract stone which I have read can cause severe testicular pain in the form of attacks with the attacks coming on without warning? I understand that this is the worst pain a man can possibly experience. I would not give up on finding the source of these attacks and get a second or third opinion or head to major hospital such as the Johns Hopkins Institute for example and talk to some investigative doctors.

It may be far fetched (re: the meningitis) but I only ask because I happen to have a rare form of meningitis that reoccurs and was misdiagnosed during my 1st hospital stay. I have had 3 attacks since 2003. My last was in 2006 and hopefully I will not have another. The only treatment for this is a stay in the hospital to manage the terrible pain.

Just wondering what type of things the doctors are looking at. I have been misdiagnosed several times over the years and treated for things I did not have. There are many natural remedies that can help with inflammation and severe pain without the use of pharmaceuticals. I use a supplement that has 1060 mg of Turmeric among other natural anti-inflammatory herbs and spices ( NIH is doing research on this ancient spice) for a partial slipped disk in my neck. I am not able to take the anti-inflammatory pharmaceuticals. My doctor tells me that 3 of her rheumatoid arthritis patients are taking this and not using drugs for pain or inflammation. Hope you find out soon what is wrong. There is an answer out there.
take care.
Tomten

Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/19/2010 6:00 PM (GMT -7)   
Look into mycomedicinals. Mushrooms. Fungi is used to create chemotherapy drugs and to treat brain truma and many other illnesses and injuries. Lions Main for example has been prescribed for MS patients to slow down the progression of the disease. It is also used in brain trauma victims. There are many kinds of mushrooms, Reishi, Mitake and others and they are all used for many different conditions. They are also major immune boosters as well. There is clinical research on mushrooms and their medicinal powers.

mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/20/2010 5:15 PM (GMT -7)   
blush  You know just when I whine and think my pain and issues are horrid..I read one like yours or your responders, and i think my goodness suck it up Heather..so many of you have it so much worse, and I feel so bad that you do. Stay strong, like you have to have been. Thank God you have the support of a wonderfull woman..and I am sure she feels the same about you. Good luck with the new batch of DR.'s, I will be praying for you.
Mama6


Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/20/2010 7:19 PM (GMT -7)   
To all, I am chemically sensitive to many medications. Most people and many doctors do not believe that natural herbs, spices and supplements can do anything. But they are as powerful as most drugs. Nature is the source for most pharmaceuticals and that includes the human body. The key to many cures, vacines and more come from the study of the human body.

Do some research and discover some amazing treatments and cures. I have seen and heard some pretty amazing things first hand from people. As I said to straydog, I can only imagine what the pain must be like. But I will tell you the pain of meningitis is far worse than child birth. Having my daughter was never as painful as the 3 attacks I have had. My only saving grace is that they diminished in duration with each attack. My first was 10 days with a 4 month recovery my last was 7 days with a 3 month recovery. I could not walk too well and continued to have head pain, sweating and total weakness for months. Meningitis feels as if someone has set your brain and spinal column on fire...every nerve in your body is on fire and the only thing that helps the excruciating pain is a continuous IV of morphine which knocks you out. The virus must run it's course. My heart goes out to you!

Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/20/2010 7:33 PM (GMT -7)   
*Did you know that high doses of vitamin B1 (in the form of Benfotiamine) is used to treat sciatica, a nerve condition. The b vitamine are used for the neurological system.
*I know several people who have lime disease with serious complications and are going through a cure using all supplementation and it is working. Most people suffer for the rest of their lives with this disease.
*Did you know that Pure organic black cherry juice concentrate (1/2 cup per day) stops gout completely.
*The mushroom lions mane has the ability to regenerate nerve connections in the brain.
*Ubiquinol the "reduced" form of Coenzyme Q 10 is used to keep congestive heart patients hearts squeezing to pump off the fluid from their lungs. This has been proven in clinical research. The world patent for the reduction process the body goes through to change Co Q 10 into Ubiquinol so it can be used by the heart (which uses the most CoQ10) and other muscles is held by the Kaneka Corp of Japan. Ubiquinol has only been available since 2008. It has saved many lives.

Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/20/2010 7:42 PM (GMT -7)   
White beard,
here is a revolutionary spine surgery that is taking place in clinical research, This is for herniated disks. It is still in the experimental stage but there has been success. A 60 something woman with several herniated disks has had this surgery. They use stem cells to regrow new disks. The vertebra with the damaged disk is opened and held open with a clip, while the herniated disk is removed and a stem cell is put in place. The clip like prong remains in place to allow room for the stem cell to generate a new disk. Once the disk has grown the prong is removed leaving a fully functioning disk in place. Check it out. Stem cell research is amazing.

Marni
New Member


Date Joined Jul 2010
Total Posts : 6
   Posted 7/20/2010 8:02 PM (GMT -7)   
I have a partial slipped disk (C 4) so I can only imagine the amount of pain you all must have with that many disks out. I have been unable to take anti-inflammatory medications. I found a natural formula called Inflatrol and it works for me. It is 1060 mg of Termuric (curcumin), Ginger, Quercitin, Bromalein, Papain and green tea polyphenols and chatechins. The total strength of this product is 3000 mg of anti-inflammatory power. It helps with the inflammation big time and the pain for me. I take the amino acid L-Lysine to prevent further meningitis attacks. It has worked so far. There are many people using this for everything including many rheumatoid arthritis patients. I am working at a small health food store in VA. We get doctors, chiropractors, oncology nurses, professors, amtrak engineers, teachers etc. We see and hear and learn amazing things. We get cancer patients, diabetics, MS patients, autistic children, people with chronic pain and more every day. I had a man come in to give me a hug last week because the supplement I told him about has lowered his PSA numbers to 0 for the first time in 5 years. I tell you there is much to discover in diet and supplements and a great deal of research is going on allover the world.

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/21/2010 5:20 AM (GMT -7)   
Hi drjimmy,

I see you have lots of replies here from folks who understand what you're going thru. I personally don't have back problems, but I sure understand living with chronic pain....there just seems to be a point when you say "ENOUGH". Sometimes, you just hit that breaking point...and thank goodness you know about these forums, so you can vent away safely, and feel understood and cared for.

I hope that you and your doctors are able to decide on solutions that will really help you. I hope that answers come quickly and relief is even quicker. I hope you're able to get some rest to physically restore you, and that you'll come away from this feeling so much better when it's all said and done.

Hang in there drjimmy....we're here for you when you need us. Good luck and I hope things start to improve quickly for you.

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Inpain4life
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/13/2012 11:02 AM (GMT -7)   
Hi folks,
I was an RN until a work injury wrecked my back neck and shoulder. I have been living w/ chronic pain for 10 years now. I've tried all narcotics for the pain. Neurontin, cymbalta and other nerve pain meds with minimal success. my pain was 9/10 at most times. I have seen over twenty different doctors. Only one had actually helped me!!!!!

My current amazing chronic pain doc has prescribed methadone for my pain. I was totally and utterly sceptical. Why was I going to take a med that was used for drug addicts??? UNTIL I did research on how methadone works. It is a drug that actually helps severe nerve pain!! Please do some research if you don't believe this. I have been amazed by the many articles that have a new standard of care for chronic nerve pain... Methadone.

I am now Able to live a somewhat comfortable life, yes I still have pain but only when I overdo things do I get to a 6/10. I live now at about a 2-3/10. Now it is unpredictable on that I can't work due to work causing increase in pain. Still can't lift things over 5 lbs. still get chronic migraines.

But I was 9/10 all the time!! Now I'm living sanely. Not wanting to commit suicide all the time!!! It made a huge difference in my life!! I was even able to come off my 60 mg of diazepam daily... Really really bad for your health, but I had to or I would have killed myself from the pain!!!

Anyhow that was MY answer methadone!!!
I pray this can help at least one person !!!!

Hugs and prayers for a day w/ minimal pain!!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/13/2012 9:48 PM (GMT -7)   
Hello InPain and welcome to the chronic pain forum. Yes, methadone can be a very good pain reliever for some and it is very inexpensive too. For some people it can work very well on their pain, but not everyone gets that same response as we metabolize medications differently. However, it should only be used for long term pain control, not short term use.

From what I read a while back on people that are on doses that are up there they are having to have periodic EKG's done, something about the I believe it was called the Q waves. We have had members here on it and some were not able to get off of Methadone to change to something else. So, its like anything else, it has its good points and bad points. Lets hope you can be maintained on a low dose for as long as possible.

Please take care and keep us posted on how you are doing.....Susie
Moderator-Chronic Pain Forum

CRPSpatient
Forum Moderator


Date Joined Mar 2011
Total Posts : 1276
   Posted 2/14/2012 4:08 AM (GMT -7)   
Hi InPain, and welcome.

I'm glad you were able to find relief with methadone. For me too, it was a wonder drug with regards to pain relief - nothing else has ever come close. Unfortunately I just couldn't tolerate it - I am very opioid sensitive and the methadone caused such severe nausea and vomiting that I nearly had to be hospitalised after just a few days on it.

You might also like to start a new topic to introduce yourself properly :) This one is about 18 months old

Laura
Moderator - Chronic Pain Forum

Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.

Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump
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