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lostinspace
New Member


Date Joined Jun 2010
Total Posts : 10
   Posted 6/12/2010 6:54 PM (GMT -7)   
Hi everyone. I'm new to the healing well forums. I posted on the hepatitis forum earlier today as i had questions about that.
 
But my main health problems center around interstial cycstitis pain, fibromyalgia, and depression.
 
I've lived in so much pain for 18 years. only got treatment and understanding in the last 9. I've got the most wonderful and understanding doctor now. He actually listens. I could actually call him a friend. 
 
I'm on fentynal patches 100 micrograms, 30 mg morphine ir every 4 hours as needed, nuerontin, zoloft, elmiron. bladder injections i do myself directly into bladder. Until about 18 months ago i was on trazadone for sleep as well as others cant remember now but I found out i was pregnant in feb 2009. son born in aug. 2009. He was on phenobabatol for withdrawals from aug 28th until nov 4th. He did well. He is perfect and i thank the good lord above as well as my doctors for that. He is my 4th others are 2 girls 16 and 12 and one other boy 10.
 
Finding this forum has been a godsend. I've been reading it for a few days and decided it couldnt hurt a thing to be a member of such a nice, understanding community.  Sometimes in this private hell i live in I feel as if im the only person who hurts, suffers, crys all nite, things like that but reading in here i see i am one of many.
 
Ahh this introduction became a novel. sorry about that.  And goodnight to all.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/12/2010 7:14 PM (GMT -7)   
So nice to meet you. You are going to love it here. The people are so understanding, good shoulders to lean on.
My name is Suzane and i have been suffering ten years with horrible headaches that no one can figure out. I can
feel your pain as today I too spent the day crying and not able to get out of bed. I am sorry you are having a rough time too.
Sounds like you have a beautiful family and your baby will be one soon. How sweet. I bet you the older kids are always helping you.
I am sure they arre a bright light in your life and bring you sunshine and smiles every day.
 
Hang around and more posts will be made soon. You are going to meet some very special people here.
 
hugs


   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           

Post Edited (tmjpain) : 6/12/2010 8:17:36 PM (GMT-6)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 6/12/2010 7:54 PM (GMT -7)   
Welcome aboard! Sounds like you have a wonderful family. I sorry to read about all of your pain. No one should have to handle so much.

Good luck.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, congestive heart failure, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator). 

 

 



White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/12/2010 8:31 PM (GMT -7)   
lost9inspace


Welcome to the Healing Well Chronic Pain forum! As others have mentioned this is a great place to come if you are having chronic pain. I thinkl we have some of the most caring and compassionate people that you will find any where on the internet! We can't fix you of course, but we can lend you our ears and listen to you, and give you support and advice. And if nothing else just let you know that we are here for you and you are not alone with your pain, we are here to help share your burden with dealing with chronic pain!



Again Wecome to our family!



White Beard

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/12/2010 9:06 PM (GMT -7)   
Hello Lost...welcome to the forums. As the others have said, you've come to a place of support and understanding. We all understand because we're all going thru it ourselves.

Are you finding your medications are working, or are you still suffering despite taking them? You mention having Fibro...have you tried Lyrica or Savella or Cymbalta for that? Those three meds seem to help a lot of people with Fibro (if one doesn't, another one might). I'm sure like the rest of us, you're a big fan of heat to help you feel better too!

Glad you found us, and I look forward to hearing more from you!

Hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/12/2010 9:09 PM (GMT -7)   
Hi and I'm so glad you joined the family!

You are an amazing woman to get to this point in your life and to have a healthy baby boy in your arms. Bless you for being such a great mom!!

Always feel free to share and if need be you can make your post long...we all do it at times. Heaven knows I get very long winded when I get started...lol It's amazing how lonely you can feel with a large family around you. But no one is there with us in the dark hours in our mind, those times when the mind wanders and wonders. It's those times I often come to this family of mine and talk, cry, whine, share and sometimes laugh...OK, often laugh. Helping each other is what this place is all about.

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/13/2010 4:47 AM (GMT -7)   
Hello Lost and welcome to our forum! I have only been here about a month and I can tell you, it is like a family here! I did the same thing as you and spent a lot of time reading before I finally joined. My sister was a member and told me about the forum. Everyone here is amazing and you will find some great friends! I am sorry for the reasons that brought you here, but glad you are here! Take care of you!

Beckey

lostinspace
New Member


Date Joined Jun 2010
Total Posts : 10
   Posted 6/13/2010 11:11 AM (GMT -7)   
gosh you guys i didnt expect so many replys.... made me feel right at home. antbuggy-i read some from you on other part of forum. glad your here with me. msbunky,.. my dr wants me to stay on nuerontin instead of lyrica dont know why. never heard of second one but cymbalta gave me terrible headaches.. and i never have headaches. well stress headaches more in my neck. but those on cymbalta were horrible and different. I do get some pain relief but i run out of my morphine 2 or 3 days early everr month. sometimes i call doc early sometimes i dont . He has never turned me down on pain meds. I ran out once in 2007 and ended up in hospital. but i get by with the fentaynnl patches when out of morphine. And guys i dont know how i would do it without my older kids. even the 10 year old helps with baby. my 16 year old does so much she swears she will never have kids. haha. hope thats how it is for a while. but i must say my 12 year old ( shes moderate to profoundly deaf- one ear better than other) born that way. shes the best with the baby. My husband helps with baby in evenings when kids in school i dont know how i make it thru those 8 hours. ive had to call mom to get baby so many times and i hate to say it but all 3 of the kids missed at least 10 days each just stayin home to help me with baby. But all three of them smart as tacks and passed with a's and b's i told them i need one of them to be a doctor so i wont have to pay dr bills as i get older lol.

Scarlett amanda( we call mandy she wants to be called scarlett now) 16
Mollyellen( molly for short- shes the one who cant hear) 12
Christopher (typical boy computer nut ) 10
Michael ( blessing in diguise i thought baby days were over so wrong) 10 months

Jennifer 15
Rose 13 both are stepdaughters that visit quite a lot

they help with baby but not with other stress.

And me im Kim i wil be 40 in a few days on the 24th feel ever bit of it., I guess i could have put all this on first part. But that was yesterday and i feel better today. do any of you guys know anyone on this forum with interstial cycstitis(IC). I would love to talk with them. But thanks everyone for all your nice welcome. I feel like were friends already. Take care.

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/13/2010 6:31 PM (GMT -7)   
Welcome to the family Lost.  I'm glad you found us.  As you can see, there are a lot of wonderful people here.  I felt so alone before I joined this forum, now I feel that I'm part of this big, wonderful, supportive and loving family.  I'm sorry that you're going thru so much.  I hope you feel better soon.  Take care of yourself.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/14/2010 5:59 AM (GMT -7)   
Welcome! Sorry it took so long to post. I've been out of pocket off and on for a while.

I look forward to "talking" with you soon!
Retired Mom

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