chronic pain from crohn's disease...

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mtgman
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Date Joined Mar 2005
Total Posts : 1289
   Posted 6/12/2010 9:58 PM (GMT -7)   
hi there.  i always post in the crohn's forum but maybe you can help shed some insight...
i have had crohn's for 22 years but for the past 2 have been having a sever flare...constant pain of 4 or so on a scale of 1-10
but when i go to the bathroom (and other times as well) the pain gets so bad i throw up.
i've gone to the er twice- they gave me morphine -- very strange drug and then percocets to take home.
my GI refuses to prescrive pain meds so i am going to a pain clinic on Tues.
The percocets I have been taking definitely help- as long as i have taken one then the pain does not get to the level where i throw up- don't get me wrong it still hurts very badly but it's manageable.
what can i expect from the pain clinic doc?  do they usually just prescrive meds or are there other methods they use to treat chronic pain?
it's been a rough stretch and i don't like taking more meds then i have to but quality of life is certainly an issue and being doubled over at work puking in the bathroom daily can only go on for so long...
any insight would be appreciated.  thanks so much!!!!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


White Beard
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Date Joined Feb 2009
Total Posts : 3609
   Posted 6/12/2010 10:48 PM (GMT -7)   
Hi mtgman

Well I think going to a Pain Clinic is just the thing for you to do! They will evaluate you, and most pain doctors have a whole bag full of tricks they can use to treat your pain! How exactly they will treat yours, well who knows, it all depends on what the Doctor thinks is needed, and usually they will start off rather conservatively and then over a period of time change or increase dosages or meds, or treatment, till they get your pain under control. Usually you will find relief after just the first visit, but that is not always the case, but going to a pain clinic means that your pain will be monitored, and hopefully it will be relieved! I know I have to go monthly, for prescription refill, every month I have to give a urine sample, as they monitor your pain med usage, at first I was insulted by having to do this, as I do not use or abuse drugs. But then I found out that some people say they are having pain and they get prescribed pain meds, but when they come in their unine screening shows they are not using the meds, so what are they doing with them, I know on individual came in ranting and raving because the Doctor would not give him any more pain meds, well after he had made such a scene in front of every one in the waiting room, the Doctor told him that he did not need the pain meds, because the last two months, his urine was completely clear of any of them, so if he wasn't using them, then he did not need them! When the Doctor asked him whatr he was doing with them, the guy quickly left the clinic! Now not all clinics are so strict as the one that I go to, but my pain doctor also does Epidural Spinal Injections, and nerve blocks and a host of different things, besides prescribing pain meds. It all depends on what is needed by the patient, my Pain Doc also orders test, of all kind to find out what is causing a patients pain, so he can better treat it! Every time I go in my Doctor asks me how I am doing , and if I have any problems, heck just this past Thursday, when I went to my scheduled appointment, I told him about some problems I was having with pain in my right hip and leg and lower back, and he checked me out and order a bunch of X-Rays and blood work and an MRI of my lumbar spine and then a follow-up appointment the 24th to go over all the results with me! A good pain Doctor really cares about you and takes care of you and your pain! I think I have one of the best! Anyway I really think this is going to be a step in the right direction for you mtgman to finally get your pain under control! I do wish you the best!

Good Luck to you, and I hope that you will come around here more often we have a really GREAT group of people here on this forum!

White Beard

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/13/2010 6:39 PM (GMT -7)   
Hi  Welcome to the forum.  I'm glad you found us although I'm sorry that you're here because of chronic pain.  Good luck at your appointment at the pain clinic. 
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/13/2010 10:24 PM (GMT -7)   
thanks guys! the crohn's forum has offered tons of support and i thank you for your responses as well! hopefully i don't have to hang on the pain forum too long- no offense!! i can see why the pain clinics can be strict as you hear about addicts etc and some of the powerful drugs out there. i just hope we can get this figured out fast- i've had 6-7 kidney stones (i guess people with crohn's are a bit predisposed to get them) and the pain was horrible...BUT i passed a few with no meds so i know my pain tolerance is pretty high...this crohn's related pain brings me to tears...and i'm not a real emotional guy! haha.

i hope you are are successfully dealing with your issues as well!!!!

take care!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/14/2010 7:45 PM (GMT -7)   
Hi mtgman,

I don't have Crohn's disease, but I do know people who do & have seen how painful it is for them. I'm sorry to hear that you have to go through that as well. Despite your pain I'm glad that you wondered over to the CP board. If you stick around I'm sure you'll come to know what a wonderful, kind, caring group of people this is.

Let us know how your appointment goes tomorrow. I hope your new doctor has some ideas for you!

hugs,
Skeye

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/14/2010 11:05 PM (GMT -7)   
thanks Skeye!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/15/2010 10:11 PM (GMT -7)   
so- good appt at the pain clinic today-- man that place was busy- felt like i was at the dept. of motor vehicles! pain is a great biz i guess!
anyway doc was very empathetic- treats a bunch of crohn's patients and understands...
prescribed percocets and i'm going to get a celiac plexus block- says a lot of his crohn's patients see a lot of relief...
had to take a drug test and sign my life away from the prescription but i understand...
hope the shot works!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/16/2010 12:56 AM (GMT -7)   
Hi Mt and welcome to the chronic pain forum. My gi is like yours he will not rx pain meds either and I really do not blame him.  After being in pain mgt for so many years you really can get an education at the lengths some people will go just to get their hands on pain meds. Its that kind that has ruined it for the legitmate folks that need help.
 
It sounds like your appt went very well with your PM dr today . As long as you are doing what you are suppose to be doing, you will not have any problems with your dr. Pain Contracts, pill counts and random UA's are all part of the PM program these days. Also, I am sure you were told to use only one pharmacy too. That is wonderful that this dr has several crohns patients that he treats, not all drs know much about this lovely condition.
 
When I first joined HW I was over at the CD forum. I had just had an emergency resection and was dx'd with crohns. I had no clue about it except I had never been so sick and in so much pain in all my life. I have dealt with many different kinds of pain in my life but none can compare to what crohns can set off. Therefore, I can relate to what you are saying when you talk about the pain. You are right the folks at the CD forum are a terrific group and many of the older members are still hanging their hat over there. Those people helped me so much. My drs all suggested that I get online with a reputable forum because they did not have the time needed to really give me  info I needed. Also, please be aware that many times pain medication causes constipation. I wanted to give you the heads up in that dept.
 
I do hope the Remicade does the trick for you. I did the infusions every 4 weeks for 3 and a half years and that was the only thing that gave me any kind of relief. After a while though it lost its effectivenss with me, I built up antibodies to it and developed Lupus from it, but it was sure good while it lasted. Also, don't know if you know this or not, but your infusions should be tailored to your needs, not everyone can go 8 weeks in between infusions, mine was bumped up to every 4 weeks.
 
Take care and keep us posted on how you are doing.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/16/2010 10:55 PM (GMT -7)   
thanks straydog! yeah the clinic was an eye opener...but i get it...they can't just be handing out pills like candy. you're right about it being a good thing that the doc treats some other CD patients- actually has it in his family as well he said! the pain is the most intense i've ever experienced...and one of the other other fun symptoms i deal with is kidney stones- i guess people with CD are more prone to get them for some reason...so i've had 7 or 8- lost track...but this new pain in my gut is harder to deal with than the stone pain- and that's bad. i'm glad i ventured over here and hope i can contribute and support all of you as well! take care!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/17/2010 4:14 AM (GMT -7)   
Yes people with CD have a higher chance of getting kidney stones. Been there & done that and never want to go there again. Now, that is a pain that will get your attention if nothing else does.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/25/2010 10:56 PM (GMT -7)   
ok so i'm getting this shot- a celiac plexus block on Monday...anyone ever have one? do they hurt? the doc said my ins does not cover sedation so i'm only going to have some xanax he prescribed- plus i asked if it would be ok to take my normal percocet which they said yes...pretty nervous but i guess the pain will be less than i am dealing with daily...
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/29/2010 12:37 AM (GMT -7)   
ok procedure was not bad at all...even without the 2nd dose of xanax since the lady at the doc office who called last Thurs and said i could take the pill at the office was wrong since there was no time for it to kick in...was a bit painful but was over in about 3 minutes...next one in two weeks.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/29/2010 5:03 AM (GMT -7)   
Hey Mgtman, Glad to hear that the procedure was not too awful! I have had some things done on my neck (botox injections and a facet nerve rhizotomy) without sedation and I thought it was horrible! I felt like such a big baby. I do hope you get some relief from it. Please let us know. Oh and welcome to the chronic pain group, sorry you had to find us though :( Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 6/30/2010 8:56 PM (GMT -7)   
i'll keep you posted. i was so nervous but it really wasn't such a big deal- just deep breaths and it was over before i knew it...back was pretty sore later that day and evening. doc said it will be a few days before i notice much but today was a pretty good day. next shot is in a couple of weeks. thanks for the support!
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 7/2/2010 11:09 AM (GMT -7)   
I sure hope you get some relief. Please keep us posted on your progress. Also, keep in mind when taking most meds it usually a good 45 minutes before they kick in. Sorry that you were not aware of that.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/2/2010 5:45 PM (GMT -7)   
 
 
  Dear MT,
 
   I hope by now you are feeling a little bit better. I do not know if your "shots" are like my cortisteroid treatments, but if they are, my steroids take about 5 to 8 days to "kick in" and bring the inflammation levels down. Anyway, I just wanted to stop by and wish you a speedy recovery from your injections.
 
*warm hugg*
     dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 7/2/2010 9:50 PM (GMT -7)   
thanks!! felling pretty good...i think the combo of the shot and the pills is working! still have some pretty bad pains at times but have not gotten so bad as to make me puke which was pretty much a daily occurance prior.
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.

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