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dmarcus
New Member


Date Joined Jun 2010
Total Posts : 4
   Posted 6/13/2010 10:30 AM (GMT -7)   
Hello new to this forum. A little history. Had flat feet all my life, never caused any problems, was in the Navy for 4 years on a submarine, feet where fine. In 1996 at age 46 I woke up one morning to incredible pain in my left foot. Took me three years and nine doctors to find someone who knew what was wrong, but by that time my right foot was also in pain. I had whats called Posterior Tibial Tendon Insufficiency/Deficiency (PTTI/PTTD), or acquired adult foot deformity. I finally found a surgeon at the hospital for special surgery in NYC. When he told me what he wanted to do I told him he was crazy, and he told me "you'll know when it's time". He basically wanted to break my heel, reshape it, bolt it back in, bone graft from a cadaver into the outside of my foot, move tendons around, etc. And at this time my arches had completely collapsed, and my heels had deformed outward. So by 2005 I had had enough, I found a forum online on this problem (yahoo groups) and was able to communicate with people who had the same thing as me. So I had the first surgery in August of 2005, this surgery involved non-weight bearing (NWB) for around 12 weeks, and full recovery was a full year. My first surgery was good, so in late August of 2006 I had my right foot done also. The problem right away was that the first foot wasn't up to handling my full weight. (I'm 6'5", 237 lbs). It was all downhill from there. By 2008 the doctor told me to try pain management. So I've been on pain management since then. Lately the meds aren't helping as much as they used to, and I have pain in my feet all the time. Sometimes it even wakes me up from a deep sleep (which is something that has never happened before). I can not stand or walk for any length of time, if I do, I pay for it.
I've tried acupuncture, therapy, I have a tens unit (which helps but only when it's on, no lasting help), lidocaine patches, various creams, and the pain meds (oxy, and percocets).
At my last visit to the Pain doctor, he asked how I was doing and I told him terrible. I told him that with the weather changes I'd been having days where I'd have the tens unit on, lidocaine patches, the voltaren cream, 2 #10 percocets, advil, aspirin, and I was still in pain for a couple of hours a day. He suggested a neurostimulator, I've never heard of one and when I did a google search, I found this forum, so.... Now we're up to date.

Sorry for the long post. Looking for others with experience with either my problem PTTI and chronic pain, or the neurostimulator.

Thanks
Dave

lostinspace
New Member


Date Joined Jun 2010
Total Posts : 10
   Posted 6/13/2010 11:24 AM (GMT -7)   
hi I'm new here too so i gues together we will find out way. I know pain is hard to deal with i try ever day to find ways to deal with this. Though mine has nothing to do with foot surgery you talked about. Hope the best for you. take care

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/13/2010 11:40 AM (GMT -7)   
Hi Dave and welcome to the forum! Sorry for your pain that has brought you here, but glad you found your way here! I have chronic pain in my lower back and have had it for 3 years. My problem is very different from yours except I do have nerve impingement which, at times, causes me terrible pain in my feet. Sometimes I get, what feels like a cramp in my foot, so bad it will wake me from a deep sleep and make me just want to scream. I can relate to how miserable foot pain can be! You will find a lot of wonderful people here! I do not know anything about the neurostimulator, but hopefully others here do and can talk to you about it. Keep in mind we are always hear to listen and understand, if nothing else! Anyway, just wanted to welcome you..........Take care of you!

Beckey

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/13/2010 2:19 PM (GMT -7)   
Hi Dave

Welcome to Healing Well Chronic Pain Forum, Boy what an ordeal you have been through! and that surgery WOW!! I am Really sorry about you having to go through all that! You sure did find a great place to come for advice and just good old plain understanding and support! So many of us here, have so many different things wrong, but yet, we all have that one thing in common thing that binds us all, and that is , of course, that beast "Chronic Pain" in all it's different forms, and it has, in one way or the other, changed our lives forever! But at least here you are among people that truely understand what it is like to live with this beast! We are not Doctors and we can not cure you, but we can lend you our ears and listen, and give you our support and advice, and if nothing else, just let you know that you are not alone with your pain! I think over time you will find that there is always somebody here, that will listen and share in your pain and frustrations. People here here just don't have sympathy, anybody can give that, people here can empathize with you, and that can make a big difference!

There are a few people here at this forum that have neurostimulators, and I am sure they will be along soon and at least be able to answer some of your questions and share with you some of their experiences with having it! Again I Welcome you to our family, here at the Chronic Pain Forum! So hang in there, you are not alone, when you are here, I think you will find that you are now among friends and they are some of the most caring and compassionate people ever found on the internet!. I wish you well and hope that you become an active member of our group!

White Beard
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