My trip to the primary and the oncologist today!

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Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 6/15/2010 4:12 PM (GMT -7)   
Today I had two drs appts.  One was to my primary early this morning.  He examined me and decided that the pain was over my appendix, but said it could still be scar tissue from the recent surgery three weeks tomorrow.  So, tomorrow I go for the cat scan with contrast.  Hopefully, It will tell the tale of what is up and why I am still in so much pain.
 
At 2:15 pm, I arrived at my oncologist office.  I met many of the staff and they were all so nice.  They drew at least 10 vials of blood and got the results instantly.  My WBCs are still elevated and my H and H are low as well as my RBC's, which just means I'm a bit anemic and that there is an infection brewing somewhere--could still be my UTI.
 
The doctor answered many questions and said that this endometrial cancer works a lot like ovarian cancer, in that when it spreads, it usually spreads to the abdomen.  He says with the chemo, I should have an 80% chance of a cure rate.  I will need to have chemotherapy once a week for six weeks.  I will lose my hair and I will get somewhat nauseous.  There is a chance I will have numbness and tingling in my extremities after about three treatments. The agents they will use are carboplatnum and taxol.  Then after the chemo, I will have a half dozen radiation treatments.
 
He found the copy of the path report confusing and said he will call the pathologist himself and discuss this, as well as he will speak to my surgeon to make sure they are all on the same page.  That inspired confidence in me for sure.
 
I have a follow up appt with both the primary and the oncologist next Tuesday.
 
I have to resolve my infection and pain before I start treatment, as the chemo attacks the immune system.  But I can't wait too long so it doesn't spread on me.   It's a fine line I am walking right now.
 
But I hope for the best and I'm keeping positive.  I promised I'd share my updated info with all my great friends on here.  Please continue to pray for me, if you will.  I will be most indebted to you.
 
Lindaloo
 
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 6/15/2010 4:25 PM (GMT -7)   
Hi Lindaloo:
 
Thank you so much for keeping us informed on how you are doing and the course of treatment prescribed for you. 
 
The prayers will keep on coming, and we will be here for you every step of the way!
 
Lorie

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/15/2010 4:43 PM (GMT -7)   
Dear Linda
You are a brave and courageous woman. May I ask your age? Thank you for taking the time to bring us up to date. You definitely have my prayers with you all the way thru this journey. I hope you have a good support system, husband, etc. and that you are not alone in this.

Sending you a huge hug
love
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen tons of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to start resetting the receptors.
 Meds: oxycodone (weaning), cymbalta, vitamin D, B12, remedies from the homeopath
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP which i was accepted
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/15/2010 5:12 PM (GMT -7)   
Thats the girl Linda , Stay positive and strong .You can do this , we are all with you every step of the way .Its great you asked a lot of questions so you don't have to wonder about anything , focus on staying in a positive frame of mind , your emotions do effect your healing powers , so staying positive will serve you well . Best of luck Sweetheart . Mikel

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/15/2010 5:18 PM (GMT -7)   
Hi Lindaloo,

I've been thinking of you and hoping for the best. It seems that you have some really good medical care and that you will be on the track for recovery soon. I really hope that you find the chemo to be less of a problem than the "old" stuff. My aunt had chemo and radiation for breast cancer and although I'm certain it is nothing like you are going through, she found that it wasn't nearly as bad as she was expecting. I will pray the same for you.

Please keep us posted!
Retired Mom


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/15/2010 6:24 PM (GMT -7)   
Good wishes to you Lindaloo....I will keep you in my prayers. It's nice to have that honest rapport with your oncologist right from the start...he sounds like a good person to have in your corner.

Stay strong...you have much love and support to sustain you through whatever trials may come....lean on us when you need to and we'll be here!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/15/2010 6:29 PM (GMT -7)   
Linda,

Thanks for the update. I'm glad that things went well with the oncologist. I have a good feeling about all this. I think that you are going to come through this just fine. Hang in there!

hugs,
Skeye

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/15/2010 7:40 PM (GMT -7)   
Hi Linda
 
I'm glad you came and updated us.  My thoughts and prayers will be with you every step of the way.  I hope you feel better really soon so you can get the chemo started.  Take care.
 
love and hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/15/2010 8:36 PM (GMT -7)   
Linda,
I will hope your chemo goes as smoothly as my cousin's is. She has lost most of her hair, but she knew that and in advance went out and got a wig she liked. Plus she got a couple of lightweight summer hats. She has more tiredness than usual and an occasional bad day, but this past week after her chemo she and her husband went to lunch and then she went shopping. To me, she's amazing! She only has one chemo left and then she starts radiation.

I'm so glad you have doctors that are open and telling you what to expect. I hope you can get rid of that infection quickly, and get started on the road to recovery. I know it may sound odd, but I have a good feeling about this with you. I really believe you're going to come through it and be in that 80%!

Many, many healing hugs coming your way.

(((((((((Lindaloo))))))))))

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 6/15/2010 9:25 PM (GMT -7)   
Lindaloo

Well I am sure that you know that I have already looked up your chemo regime, I read your post and had to dig out my books that I have packed away. Both your chemo meds have been around for a while and are proven effective, Taxol was a fairly new chemo med when I first started nursing and it was considered a real break through in chemo treatments. It was then used strictly for the treatment of ovarian and metastic breast cancer, and over the years they were finding it more useful and effective in treating many other types of cancer. Both of these chemo agents are very very effective, it sounds like you have yourself a excellent and caring oncologist, I think I have to agree with PALady I think your going to do alright with all of this, of course it will be rough for you, chemo is never a picnic, but you will do OK Lindaloo! You have all our support, and I pray for strength, and endurance, for you! Your in my prayers and I give you all my support!



White Beard

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/15/2010 10:29 PM (GMT -7)   
Thanks for keeping up up to date, Linda! You are a walking bundle of courage, woman! I'm am in awe of you. You have such grace at a time when many would fall apart. I know you will make it!

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 6/16/2010 12:22 AM (GMT -7)   
Linda glad to hear that thjings went so well with the oncologists, he sounds like a keeper for sure. You just hang in there, get past this infection so that you can can move forward with your treatment. Everyone here is behind you 500% and saying many prayers for you and your family thropugh this process. You are an amazing woman. Take care lady.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/16/2010 4:24 AM (GMT -7)   
Linda, it's so great to get up, get on the forum and see all these wonerful posts from all our fam members giving you support and sending prayers! I didn't see your post last night or would have surely wrote sooner. I'm so glad you are happy w/ your dr's, they sound like a Great team! You know, when ever I see a young girl or woman who has lost their hair, I think about what they must be going through and how brave they are to go about their lives and wear their baldness like a badge of courage! I know that you will be strong and not let vanity get in the way of the strong, wonderful Lady that you are if this should happen to you! Just remember that almost everyone who sees you will feel the same way I do!!!
It may sound silly to you but every day when I water my garden, I think about you. I see all these plants, some big and strong and others a little frail but all are fighting for life and struggling to beat all the elliments that could beat them down. I water them and feed them fertilizer and evry day they get bigger and stronger and in the end if I do a good job, I will be repaid with the fruits of my labor. I think that I'm kinda like your Dr's and you are like my plants. They will take good care of you and watch over you through out your time of need and when it's over, just like my vegatables, they will enjoy the fruits of their labor in seeing you live a long and healthy life!!!!!
I know it's awful silly but thats what I think about every single day and then I say a prayer for you> that you will be like the watermellon over in the corner, getting bigger and stronger every day! Sorry about the watermellon part, but I think you know what I mean!!
Love and Big<>Big Hugzz!!!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! 


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/16/2010 5:17 AM (GMT -7)   
Thank you is such a small thing to say, when I mean so much more than that. The love and support you have shown me is almost overwhelming to me. I am so lucky to be here among you wonderful people. God has truly blessed me with all of you.

Pete, I love your fruits and vegetables analogy and it warms my heart to know that you think of me everyday while watering those plants. You are truly a sweet, sweet man indeed. As for my baldness, I don't know if you would call it vanity or not, but I have the biggest ears in the world. And they stick out like taxi cab doors. I inherited them from my father. That's what I fear most about going bald. I am very self conscious.

Whitebeard, thank you for looking up my med regime. I knew you would, that's why I listed the drugs for you. I haven't looked anything up just yet. It all gets a little overwhelming to me, but I'm glad you did. I have a fellow nurse friend looking out for me and that is very comforting.

Straydog, thanks for being in that 500% behind me. I feel wonderful to hear you say that. It means a lot to me, girl.

Chutzie, I too, am in awe of you! Your kind words make me feel strong, so I will try to live up to them. But don't be too surprised if I come on here feeling low one day.

PaLady, I am so grateful you shared your cousin's experience. It did allay some of my fears. So I thank you for that.

Bluejet, thank you for your prayers, more than you will ever know. Without prayers, I am lost.

Tmj, I am 58 years old, to answer your question. I have a great support system. My husband is with me every step of the way and my daughters are constantly on the phone checking on me, or Linette is here with Kelly and Anna for a sweet, sweet visit.

Mikel, I am trying to stay positive, but there are times, like just coming from the oncologist office, that my mood drops. But my husband just tells me, "You're going to be alright, Linda" and I believe him.

R mom, thanks for relaying about your aunt and chemo. Stories like that are very supported and appreciated by me. I thank you very much for your supportive and kind words as well.

Pam, thanks for saying you will be here for me. I won't soon forget that. I need you and all my friends here very much. I look forward to all your responses, truly.

Skeye, thank you for your words of support. I'm glad you have a good feeling about this. I'll take that to my heart.

9 Yrs, I too hope this infection passes quickly. I go for the cat scan in a couple hours. I have to drink that nasty stuff again this morning. OOh yuk, but I gotta do it. Gotta see if anything is wrong in my belly, right?

Again, all my love. Please keep writing to me. It keeps me going and the support I really NEED throughout this. God bless all of you for being so caring. God will reward your kindnesses.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/16/2010 10:07 AM (GMT -7)   
Hey Miss Linda...

When I was on yesterday... I meant to post to you - and somehow got off w/out doing so. Sorry... my brain is a mess these days. tongue

Anyway, I just want you to know that you are in my thoughts and prayers. It warms my heart to see how special you are to people here...and how many people are pulling for you. I'm also glad you have a strong system there with you.

You are probably finishing up your CAT scan... that stuff IS nasty to drink... I hope you got it down ok....

Anyway, much love to you... and please know I'm going to continue praying for you, Linda....

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 6/16/2010 10:49 AM (GMT -7)   
Lindaloo-
i AM PRAYING FOR A 100% CURE RATE FOR YOU.
I can do no more but send healing hugs to you
catahoula
sick and tired of being sick and tired


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/16/2010 12:14 PM (GMT -7)   
Linda,
I'm glad sharing my cousin's experience helped. You know she took me last week to have my endoscopy and sat there with her little hat on smiling and she looked so good - at least to me! She still has her bangs so light summer hats/caps(not baseball ones - some a bit more feminine but still casual) work for her. She was given a woman (I think she's a nurse) called her "navigator" I think through our regional cancer center where she gets her treatments, or maybe through her doctor's office, but that's someone she can call at any time with any questions. Also, the cancer society has wigs and offered her one, but when she tried them she didn't care for them too much so she went out and bought one in advance - before she started her chemo. She didn't pay a fortune for one made with real hair but she said it was more than the cheapest ones. Still, losing her hair was the thing that bothered her most, once her surgery was over. She has short hair, and the wig she found, other than having a little more grey than she has, looks just like her hair. She only wears that when she goes out to lunch or dinner; otherwise she just wears her hat. I wanted to give her all my long hair to make a wig but we found out that cost quite a bit of money to have one made. I'm just sharing this with you because it may help you to find a wig you like in advance - and maybe a hat or two. My cousin found the scarves too warm and you're in Florida so it's got to be even worse.

Is there a Gilda's Club anywhere near you? You can try searching the internet. They are support clubs started in the name of Gilda Radner where women with cancer can gather for support and friendship and sharing ideas.

My cousin is my hero and she's 67 so she's got almost a decade on you. You'll be one of our heros here, too!

(((((((((((Lindaloo)))))))))

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/16/2010 12:52 PM (GMT -7)   
 
 
   Dear Linda,
 
      I am so sorry I am late again in responding to your post! *hugg* I am very sorry you have to fight for your life. But, if ever there was a person who can fight this, and show others they can fight it too... It is YOU. You have such an increadibly kind heart that it is unfair that you have to deal with this. But, I will try hard to not think about that. Instead focus on how beautiful and brave you are. You can do this! I know you can! With support and love you have you will come through this and show others that they can too!
 
     When my friend began her fight she had to change her diet to include foods high in protiens (she was a vegan before). Also, though it was hard, she kept her PH levels as close to normal ranges as possible. Soon after she began counseling (emotional support therapies) at same time she started chemo. It seemed to help..atleast that is what her doctors said. They seemed very pleased with her progress. Though honestly, it was the hardest most helpless time in my life. It took her to the brink and back again more times that I can count. There was little I could do but clean her home and help with bills. So little I could do...
 
     When it was all over, she had her first clean biopsy she was so happy.... But, it was suprisingly the "re testing" biopsies that were emotionally the hardest for her. She had to be tested with biopsy every three months initally after she was able to fight it. Now only once every 6months.  And to this day (6yrs later) the week long wait for the biopsy result is the hardest for her! Her fear is understandable, no doubt!!
 
     ..Before I forget! I wanted to mention that she ended up not loosing her hair. She was a progressed case of cancer, it had spread extensivly before it was cought too (she even had to have multiple areas reconstructed by a plastic surgeon). She just ended up with "thinned" or "fine" hair. Which was a blessing becuase she has always had very long hair.
 
      Sorry, I really dont mean to get side tracked thinking about the past. It was definatly one of the most profound experiences of my life. But, I did want to mention that YOU can DO THIS. You can fight this, I know you can! Please, don't let sadness take you. Please keep talking about it!! As much as you can, every moment you can. Even if it feels like you are just repeating yourself, it doesnt matter. It is improtant to relay to others how you feeling as you are fighting. Its one of the only things that the people around you can help you with, so let them! Talk, cry, scream if it helps. It is important.
 
     You are in our hearts and prayers here. Stay strong and keep shinning!
 
*hugg*
  dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 6/17/2010 3:47 PM (GMT -7)   
Just want to let you all know that the results of my cat scan were back today and all looks ok.  The appendix looks ok and the collection of fluid that I had in my abdomen from the surgery has lessened.  The pain has lessened on the right side too, but I still have urinary symptoms darn it!!
 
Well, I feel relieved to know that I won't be needing surgery again and that I am on the mend.
 
Today I read some of the books that the oncologist had given to me and I hope I don't get all those side effects listed.  Wow.  that was a little scarey.  LOL.  Don't want to borrow trouble!  Nah, I know I will be alright.  I guess I will start chemo in about three weeks or so.  But I have an appt next Tuesday so we will see what he says.  At any rate, I will let you dear people know what is going on with me, you can be assured.
 
Take care and keep in touch!  Your support means the world to me.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/17/2010 5:29 PM (GMT -7)   
Linda,
Prayers and Lots of soft caring, healing hugz coming your ways...
((((((((((((((((((((((((((((((Linda)))))))))))))))))))))))))))))))))))))))))))))))))))))
Hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

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