finally have new dates for my surgeries

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skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/18/2010 4:00 PM (GMT -7)   
Hi everyone,

So after almost a month, I finally have new dates for my stimulator trial at the new hospital. The trial will begin on July 2nd & if successful, the permanent implant will be done on July 9th, if not, the trial implant will be removed on that date.

I am so relieved to finally have a set time. Not knowing has been really stressing me out & my depression has been worsening. Just pray that the 3rd time is the charm & there will be no more insurance or other issues which prevent this from happening yet again.

Skeye

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/18/2010 4:18 PM (GMT -7)   
OK Skeye, third time lucky! I have my fingers crossed for you that this is it! I can't believe how much they have messed you around. It's frustrating to read about it never mind live through it. I really hope that it's the answer you've been hoping for.
 
Just 2 more weeks. Best best wishes, golitho

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/18/2010 5:20 PM (GMT -7)   
Skeye,
I'm so glad you're set up for your trial. Let's hope this is a great fourth of July present for you, and that you'll have lots to celebrate when the fireworks are going off!

If they mess with you this time I think all of us ought to start writing letters to the editor to all your local papers and to that insurance company!

Many hugs and wishes that the third time IS the charm!

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 6/18/2010 5:37 PM (GMT -7)   
Yep - going to pray that the 3rd time IS a charm.... and that you will have NO issues, and are able to get this thing that you so need. Hang in there... July 2nd is not that far away - yay! :)

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/18/2010 8:07 PM (GMT -7)   
Great news Skeye!!! I'm so glad that they finally got off their butts and set a date for you! Your right, I think the 3rd time will be the charm w/ mo more shinnanigans!!!
Big Huggs!!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/18/2010 8:55 PM (GMT -7)   
Skeye

I have my fingers and toes crossed for you! and I am saying prayers for you that everything goes smoothly and it is successful for you! I have always said 3 is my lucky number, I am sending that luck to you!

White Beard

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13477
   Posted 6/19/2010 1:38 AM (GMT -7)   
Awesome news Skeye I am so happy for you. Lets pray this works for you. Keep us posted.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 6/19/2010 2:31 AM (GMT -7)   
I'm so happy for you.

:)

Hugs,

Flower smilewinkgrin smilewinkgrin

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/19/2010 6:33 AM (GMT -7)   
Skeye,
sure hope everything goes thru this time without a hitch...
finger's crossed
((((((((((((((((((((((((((((((((((Skeye))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 6/19/2010 7:59 AM (GMT -7)   
Congrats Skeye ! I hope everything works out in your favor , ans my prayers are with you in abundance . Mikel

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/19/2010 10:03 AM (GMT -7)   
 
 
   Dear Skeye,
 
     How wonderful is that!?!?!?! It is about darn time! Oh, you have had so many let downs throughout this whole ordeal it is wonderful that it will all be over soon. You've had to deal with so much, on top of everythign else in your life.... I really hope the trial goes well! It isnt much longer now. Hang in there and stay strong! You are in our prayers here!
 
*hugg*
  dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/19/2010 4:06 PM (GMT -7)   
Wow, that is wonderful news Skeye. I am thrilled for you. Won't be long now eh!!
Take care girlfriend!!

Hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 6/19/2010 7:21 PM (GMT -7)   

Skeye,

The 3rd time will be the CHARM!!  Hang in there Skeye, sending you warm sunny hugs from AZ!!

(((((((((((((((((((((((((((SKEYE)))))))))))))))))))))))))))))))))))

XXOO
Patti


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/19/2010 8:43 PM (GMT -7)   
Golitho, Palady, Tina, Pete, White Beard, Susie, Flower, Char, Mikel, Dani, Suzane, and Patti -- thank you all for your well wishes & prayers. I am so blessed to be able to share this journey with you. July 2nd will be here soon & hopefully that will be the beginning of a new phase of my life -- one with less pain.

hugs to you all,
Skeye

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/20/2010 3:46 PM (GMT -7)   
Oh Skeye   That is wonderful news.  I will be praying that the trial run will be successful and will give you the much needed relief that you need so badly.  My fingers are crossed for you.
 
love and hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 6/20/2010 5:02 PM (GMT -7)   
Good luck skeye. I hope your surgery works.I will keep you in my prayers. (((((hugs))))))
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis , spinal blockage ,gerd,gastric ulcer (2008), pernicous anemia , folic acid anemia and gallbladder removal 3/23/10.
 
meds: Ambien, prilosec otc,  ibuprofren,Ultracet, Flexeril, folic acid , b12 injections, zyrtec and benadryl.
 
Just added : folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 6/22/2010 11:03 AM (GMT -7)   
skeye_
third times the charm!!!! i'm rooting for you and hope it goes smoothly and WORKS!!. When I had mine installed I was in by 7 out by10 so it'll be a breeze. Just b careful not to tug on the wire that hangs out of your forehead!!! I am sooooooooooooooooooooo happy for you
catahoula
sick and tired of being sick and tired


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/23/2010 7:06 PM (GMT -7)   
Hopefully things are moving right along...
Have been thinking of you...
(((((((((((((((((((((((((((Skeye)))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 6/24/2010 9:46 AM (GMT -7)   
Skeye_
tell me again where they are attaching the electrodes. Mine are placed on my R supraorbital nerve so the only incsion was a 2 inch "cut" on my R temple where the wires came out. They looped them around the back of my ear and the wires then hung down to a power pack and controller. The only problems were getting used to carrying the controller and being aware of the wire so that I didn't accidentally get it caught on something. Even though the lead was stitched in my head there is always the possibility of pulling the wire out if it gets caught. Sleeping with the unit was a bit tricky at first and of course, no showering for a few days. I'm assuming that your set-up might be pretty much the same, no? There wasn't very much pain, only where they inserted the electrode. Anyway, things may have changed since 2005. Let us know how its going and again..healing hugs to you dear lady. I am praying so hard that it does the trick for you.
catahoula
sick and tired of being sick and tired


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/24/2010 3:45 PM (GMT -7)   
They are placing leads on the superior & inferior ophthalmic branches of the trigeminal nerve. I don't quite know all the details about how this is going to work, but I'd assume that it will be the same as or similar to what you describe. I'm taking the week between the trial & the permanent implant off from work. Somehow, I don't think that being around unpredictable animals with wires coming out of my face would be a good idea.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/24/2010 4:09 PM (GMT -7)   
Skeye,
Taking off work sounds like a good plan for you. Can't imagine snakes playing around with wires and such!

That will at least give you time to let us know how it's going!

Still sending hugs and cheers!

PaLady
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