How is everyone today?

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/19/2010 11:07 AM (GMT -7)   
Are you busy for the weekend? Visiting someone out of town? Jobs to do at home? or just staying at home?
 
How is your pain today? I hope you are coping well?
 
I am staying home. It is pouring rain here? I was up at 1000 but fell back to sleep at 1130 for two more hours.
I am very depressed. My doc yesterday changed my antidepressant to Pristiq. Anyone on that? i hope it works better for me.
Hubby is at work, so the house is quiet. I am stayingin my PJ's. I think I will get hubby to rent some movies for tonight. We can watch them in bed and cuddle. Headache is all fired up as usual.
 
I am praying hard for Cathy Witt as she is very very ill. i am extremely worried for her. Please say some prayers for her.
 
Hugs to my peeps.
 
Love
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen tons of doctors, been on dozens of meds and tried all forms of treatment with no success.
   May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!Have tried all the opiods and pain killers and nothing helps.
  Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to start resetting the receptors.
 Meds: oxycodone (weaning), cymbalta, vitamin D, B12, remedies from the homeopath, ativan and flexeril prn.
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP which i was accepted
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/19/2010 4:09 PM (GMT -7)   
Hi Suzane, I am sorry you are so depressed today. Big hugs! Some days it is just best to stay in your PJ's! I have been sleeping soooo much lately it is crazy! The pressure here is down so it is messing with my back pretty bad! I thought Pristiq was something that was given, in addition to another anti-depressant....it least that was what I got from the commercials, that it was an add on to help the other ones work. I could be wrong, it might have been something else! Anyway hun....hang in there and try to have a nice relaxing evening with your hubby!

Take care of you,
Beckey

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 6/19/2010 8:58 PM (GMT -7)   
Hi Suzane!

I hope your new medicine helps and really fast! Although we do know that it can take up to a month. Hang on girlfriend...we're right there with you. <extending hand> Here, grab hold and don't let go..OK?

I went out surfing to see what this Pristiq is all about. Interesting stuff out there. Canada approved it in 2009 so it's very new up there. The states approved it just a bit earlier. It's basically Effexor. Some places claim it's a synthetic form of that drug, but isn't Effexor already synthetic? One site said by using the name Pristiq the manufacturer was able to extend their patent rights on what is basically Effexor. Also read that the trials didn't show much more help than a placebo. But you can't always believe everything out there. I do know that most people have to change antidepressants every 2 years or so as they lose their effectiveness.

This new med may work wonders for you...I'm not saying it won't. Just want you to read up on it and make your own decisions if you hadn't already.....I just care about you!

Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 6/19/2010 10:15 PM (GMT -7)   
H Suzane & all,

Pristiq is the active first metabolite of Effexor (in other words, Pristiq is the chemical that Effexor is broken down into by the liver). Although the two medications are very similar, there are differences. For example, I currently take Pristiq, but I cannot take Effexor, because the metabolic pathway that breaks down Effexor is dysfunctional in my body. Also, Pristiq generally has much less side effects than Effexor does & it isn't as crucial that you don't miss a dose. I can say from experience that missing a day, or even two, of Pristiq is no big deal, but apparently missing your dose of Effexor by even a few hours is a big no-no because it can throw you into pretty severe withdrawls.

So far my experience with Pristiq has been rather neutral. I've been on it since February/March & I really haven't noticed much change (good or bad), but you also have to understand that I've been on almost every single anti-depressant on the market and nothing has helped me. I've been struggling with treatment-resistant depression for a long time (now we are thinking that I might be bipolar type II, although with a lack of hypomanic episodes) & have recently felt myself slipping backwards.

I'm currently at 50 mg. Despite studies showing that 100 mg is no better than 50 mg, I recently discussed increasing to 100 mg with my psychiatrist. We decided to first try adding seroquel as an adjunct to the Pristiq. I am hopeful that the seroquel and the Pristiq together will make some kind of a difference in my depression. I've been really bad recently & between the pain and the depression, I have been having an extremely hard time functioning.

I hope the Pristiq works for you, Suzane! Just don't get discouraged if you don't notice results right away. You have to give it some time for the medication to build up in your system. My psychiatrist always says that it will take 3 - 6 wks at a maintenance dose before you know whether or not a particular anti-depressant is helping.

hugs,
Skeye

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/20/2010 4:54 AM (GMT -7)   
Hi Suz, Sorry to hear about the relentless headache and your blue day (depression!)! I wish I could send you some warm Florida sunshine to help w/ thos rainyday blues!! My pain doc switched me to Prestiq about 2 months ago from Effecsor also. I'm taking 50mg  and haven't knoticed any difference except for the price tag! I was shocked at first but the doc gave me one of those discount cards you have to register w/ the manufacturer with. I have to show the card every time I get a refill. I managed to get the price down to $30.00 or $1.00 a day which is still higher than all my other meds. I had been on Effecsor for so long I forgot when I evan started! I know it was at least close to 10 years ago though. Like Skeye, I've been through just about all of them since Prozac first came out way back when! One good thing is I only have to take one pill a day! Suz, I'm not sure how the Soc. med plan works in Canada but if you can use one of these cars, my doc gave me two and I'm sure I can only use it once, so I'd be glad to send it to you through the mail! You too Skeye!! It cut my script price in 1/2!!
Skeye, thanks for explaining what it is and how it works!!! You are so smart and always up on the new stuff! You are truely a great source of info for all of us as some of our other former nurses and well educated members like Lindaloo, White Beard, PA and all the others I haven't named> Please don't get upset if I left your name off, it's early and my head is in a fog!!! 
Well, I must go feed the horses since my wife is out of town! I was outside a little while ago and they were calling me!
So Suzane, I hope you still sleeping and able to get some good rest today! Maybe watch a good flick on the tube or curl up w/ a good book and a nice warm blankie!!!
Much Love to my Canadian Sister!!! Big warm cyber hugz are zooming up to you faster than light speed!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/20/2010 5:17 AM (GMT -7)   
Hi Suzane, sorry to hear that you are not getting any relief yet. Like I said before, I keep hoping I get on here one day and find that you are doing better. You are a super strong lady, I know it doesn't always feel that way. The strength that you have to just face each day with the pain you have is remarkable! I am not by any means down playing anyone's pain but I know for me that headaches kick my butt! It's not like you can lay down or adjust the way you are sitting and get relief, if even for a few minutes. It's also really hard to think about anything else other than the pain, I know, I have been there. The fact that you still come on here and support everyone is amazing to me. I am the biggest baby when my head pain is out of control, I can't be of any help to anyone. So please remember you are a wonderful, caring and STRONG woman and we are all pulling for you! I do believe you will get some relief soon, it's definitly your turn! Take care my friend, and as always you are in my thoughts and prayers.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 6/20/2010 5:35 AM (GMT -7)   
Suz, after reading Shannon's post I thought> Hmmmmm? Thats exactly how I feel and wish I had wrote it word for word!!! Shannon>Thanks for relaying my words to Suzane! I wish I could write like you!!!
Love You Both!!!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 6/20/2010 5:53 AM (GMT -7)   
Awww Pete thank you. The funny thing is that whenever I read your posts, I think to myself that I wish I could write like you! Even on your bad days, somehow you can word things that can still bring a smile to my face. And this face needs all the smiles it can get! Take care and we love you too!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 6/20/2010 11:38 AM (GMT -7)   
Oh my, you have all touched my heart deeply. Thank you for caring.

I wish each of you, lesser pain as well.

From the bottom of my heart,
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           

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