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hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 6/28/2010 10:54 AM (GMT -7)   
My surgeon wants to send me for a mylogram. I had a spinal fusion at s1 l5 in februrary and have been having a lot of leg pain. Dr. thinks it might just be nerve pain that is not healed yet or pain from the disc above. has any one had this procedure done? I hope it is not as painful as the discogram that i had before surgery. Ugh this is really a pain. I thought all my pain would stay away after surgery!!!!! I will be so upset if they determine that is from L5 l4. i sure do not want to go through another surgery!!!!!!!!!!!
Diagnosed crohns Disease 07, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals, Meds lyrica, vicodine, amrix.
Spinal Fusion 3/2010


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 6/28/2010 11:37 AM (GMT -7)   
hydrangea

Yes I have had a mylogram I have had two of them, one for my cervical spine and one for my lower thoracic spine, the last one the thoracic spine they put me out for that one! I have also had a diskogram. I will be honest they are not fun! and if they don't put you out they can be down right miserable, and scary too! I will tell you the first one I had was of my cervical spine and I had it done at the Hospital on Elemendorf AFB in Anchorage Akaska in Mar of 1985 they had me curl up on my side, and then put a needle into my lower back in the space where your spinal cord is, they first removed a little vial of spinal fluid to check it in the lab, and they hed me lay on a table on my stomach with the cath in my spine, and they then strapped me down to the table and started injecting the dye into the space surrounding my spinal cord, as they did that they started inverting the table, so that my head was being turned down toward the floor and my feet up they continued to do that so the dye would run down the inside of my spine, and they could take X-rays of it, I was close to being up side down when the got the dye to the area in my neck that they wanted.and then they took all kinds of X-rays then they reversed the table and let the dye go back down and they with drew it from my spine. They usually do not use that type of dye anymore, what they use now your body just absorbs and they do not have to remove it. I was wide awake for that entire process and it was a bear. ( but remember they had to do it that way because of where the injury was iin my neck) I don't believe they would have had to do it that way if they just needed to see my lumbar spine. The second one I had in 2000 at a civilian hospital they put me to sleep and I don't remember anything except when I went home I had severe leg pain and I had to go back the next day and they gave me Decadron shot (sterioid) as they said the leg pain was from inflamation caused by the mylogram. They said that was unusual, I must comment, that I was very surprised that they put me out for the mylogram as I had never heard of doing that before, actually II believe it is a form of concious sedation, but I sure do not remember any of it. May I ask why are they not just doing an MRI of your lower back? Do you have a pace maker or some other type of implanted metal device that prevents you from getting MRI's?

I do wish you well!

White Beard

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 6/28/2010 12:00 PM (GMT -7)   
Hi Hydrangea,
 
I will agree with what Whitebeard wrote happened back in 1985. Back ion those days the myelogram was barbaric and they used an oil base dye that made most people sick as a dog. Now, all of that has changed. They now use a water soluable dye and it is nothing compared to the old days. A very big improvement. Understand the myelogram is like a road map for a dr in identifying the nerves, and MRI cannot and will not show what the mylo does. If you are having this sort of pain sounds like this is the test you need. They do not put you out but will give something for relaxation, be sure to ask for it. If you decide to go with it, have someone to drive, do not plan on doing anything the rest of the day. The best thing is to lay flat for several hours and keeping your head flat, not on a pillow to avoid a myelogram headache. Drink lots and lots of fluid and you should do fine.
 
Its really all in the technique of the person doing the myelogram. But, again todays mylo's are nothing like what Whitebeard went through in the 80's.  If you can handle a discogram then a mylo should be a piece of cake for you. Good luck.


 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 6/29/2010 10:57 AM (GMT -7)   
Thanks guys.......Hope everyone is doing well.
Diagnosed crohns Disease 07, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals, Meds lyrica, vicodine, amrix.
Spinal Fusion 3/2010

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