Pain when in new environment

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JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 6/30/2010 7:14 AM (GMT -7)   
Alright ya'll...it's Kansas or Bust! We'll be leaving in the morning. I'm am such a silly girl to be anxious about having a severe pain day while in Kansas, which is not my normal location (Houston). It's a little scary to be somewhere else and around family I never met and fear a bad pain day. I want to be upbeat, active, energetic, etc. I hope the busyness and activities (the reunion is on a farm!) will distract me from any pain. Maybe a change in location will make my pain better? Any drop in barometric pressure can change my pain levels. So we shall see. As long as there aren't any tornadoes!

Does anyone have a story about being away or traveling and having a severe pain episode?

oh and P.S. remind me to pack all of my meds! idea

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 6/30/2010 7:18 AM (GMT -7)   
I just want to wish you a happy trip and to stress to you how important it is to monitor your pain level and not let it get out of control. I went out of town with my husband and daughter last weekend and spent much of the trip crying. I just didn't take the meds I needed when I needed them and didn't take the time to rest. It was too much for me so I want to really suggest that you have someone else drive, don't pick up anything that you shouldn't or carry an overloaded purse, and take your meds on time with food. Doing these things should help to make your trip more fun!

Best to you!
Retired Mom


JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 6/30/2010 7:26 AM (GMT -7)   
retiredmom,

Thanks for the advice! I'm sorry your trip didn't go well. Sometimes a lot of activity takes my mind off the pain (by activity, I mean making coffee or reading a book! ha!) but then sometimes too much activity makes my body go in to hyper-mode and makes the pain worsen. Good idea on the "rest." I normally take naps daily and will try to somehow take one if necessary. My husband will be driving and my daughter will be snug in her booster seat. Have a great week and I'll touch base with you when we return.

Hugs

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/30/2010 7:58 AM (GMT -7)   
Have a great trip Elenor - as mentioined above, take time to rest when you can...it will make the trip that much more enjoyable.

My hubby and I did a road trip last December, from Calgary to Las Vegas (approx. 22 hours of driving over two days). I too was worried about what would happen if I had a bad pain day - especially because the drive took 2 full days without a lot of stopping. I was stressing about how uncomfortable it would be while cooped up in the car, or what if we got to Vegas and I was fine, but then woke up the next day in agony? Would I just have to stay in the hotel room and do nothing? The more I stressed, the more I thought of other situations, and the cycle just went round and round.

I finally realized that I was making things worse by stressing about stuff that probably wasn't going to happen anyways, but even if it did, I know how to manage it. I came up with solutions to each "what if", and then let it go. Ultimately, I was just fine. I was able to stretch a lot in the car (I'm quite short, so have lots of leg room) and there were lots of opportunities to sit while exploring Vegas and just "people watch". I made sure I took my meds on time, and tried to follow as much of my patterns at home as possible - and I had no major flareups.

I think the secret really is to try and stay as true to your home schedule as possible, to maintain the routines your body is used to. If you normally wake up early, try to do the same. If you normally have a big breakfast at home, try to do the same.

Hopefully all goes well for you on the trip. I'll say a wee prayer for you and your family...so have a good time!!!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/30/2010 9:04 AM (GMT -7)   
 
 
   Dear Elenor,
 
     I hope you have a safe trip!! Remember to stretch out your legs and back when ever you can. Try really hard to be patient with yourself if and when you do have a flare. If others are around you while you are experiencing a flare, just be frank and hoest with them. It took me a few days to realize that the people around me in florida (my last trip from new mexico) just wanted to know what was happening and how they could help.
 
     I pray you have a safe trip out there. Be careful!
 
*warm hugg*
     dani
 
 
 
 And please, please dont forget those meds!!!!
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/30/2010 11:31 AM (GMT -7)   
Dear Elenor,

I hope you have a wonderful trip. I am happy to hear that you are going on one, I have missed a lot because I am afraid to go because of my pain! Like Dani said, just be patient and honest! Don't try and fight it and we will all be wishing you the best! Please update us when you can! I am seriously considering taking a trip at the end of July, to visit my dad in Colorado! I really want and need to (haven't seen him in 3 years) but I am scared....it is a 6 1/2 - 7 hour drive! Yikes! Also, I don't know how I will be doing as far as the RA and meds by then! Anyway, I will be thinking about you and hoping you have LPD's and a lot of fun!

Take care of you!
Beckey

JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 6/30/2010 11:35 AM (GMT -7)   
MsBunky -- great advice on the "if you think it will happen, it WILL happen" senario. I'm more relaxed about it now. Just fear of the unknown and being out of routine kind of thing. I'm sure the pain will be mild-moderate (which it always is) so I'm prepared for that. I dread having to lay bedridden in a hotel room all day.

Wow - Calgary to Vegas! I think just all the flashy neon lights in Vegas would give me explosive pain but I'd still enjoy it nonetheless.

Dani -- Thanks for the advice gal. You're from NM? My husband's family lives in Carlsbad, Artesia, and has a cabin in CloudCroft. Beautiful state.

Thanks for the warm wishes, hugs, and prayers you two!

JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 6/30/2010 11:44 AM (GMT -7)   
antbuggey --- that's awesome! I have a friend who lives in Colorado City, right by that weird indoor military mountain thingie?? lol anyways- she sends beautiful snow pictures. Doesn't snow much here in Texas!

A 6 hr. drive with RA would be rough I would think. ?? Would it be more comfortable to fly? Going in the summer is probably better than the winter with RA too. Either way, it sounds like a nice trip. Keep me posted when/if you go.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 6/30/2010 1:48 PM (GMT -7)   
Elenor, Colorado is awesome...that is where I am from. We moved to Nebraska 6 years ago, to be with my husbands family. I miss the mountains soooooooooo much! I would like to fly, but the nearest airport is 60 miles away from us and it is just very small scary planes and quite expensive! If we go, we will be going with another couple in a mini-van so I should be able to make myself comfortable....hopefully! It is all kind of based on how I feel! I am new to the whole RA thing....haven't even seen a rheumy yet....just got the diagnosis from my blood test at my regular doctor. So we will have to see! Anyway, I did not mean to take over your post and make it about me wanting to go on a trip so bad! LOL! You go and enjoy yourself! Have a wonderful time and I will be sending low pain wishes your way!!!!

Take care of you!
Hugs,
Beckey

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/30/2010 5:10 PM (GMT -7)   
 
Dear Elenor,
 
   Yes! I'm a New Mexican! I love it here. I know of Carlsbad, most notably because of the Carlsbad Caverns & Cannon AFB. I want to take the girls there soon. My oldest little bumblebee has a keen intrest in geology. I really think she would enjoy seeing the caverns. ....But as you know visitors are only allowed during the hotest month of the year due to the extreme cold tempatures down there.
 
     I live in a small town between Bernalillo and Santa Fe, so it is very beautiful here. For a trip to Carlsbad Caverns I think we should just plann to stay over a few nights. That way we can bundle up in our winter clothing and spend a day exploring.
 
     I really hope you have a good trip and please be careful. Be sure to pace yourself :-)
 
*hugg*
   dani

Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 6/30/2010 5:34 PM (GMT -7)   
I think pacing yourself is the hardest thing to do when you're away. I tend to do a day on and then a day of rest so I can cope. Becaue I always over do my days on.... hopefully you'll be better disciplined than I am.
But I always feel its worth it, just to get away, see different things and different people, so good for your head space.
so don't stress. Be positive, go for the enjoyment and make sure that rest is part of your schedule.
Best wishes, golitho
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