My First Chemo Infusion Lasted Two Days

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Lindaloo
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Date Joined Sep 2006
Total Posts : 1713
   Posted 6/30/2010 6:04 PM (GMT -7)   
My friends and family:
 
I went to the oncology center to get my first chemotherapy treatments yesterday.  They premedicated me with benedryl and anti-emetic (anti-nausea) medications, but it wasn't enough cause I got a bad reaction.  My heart started racing, my chest tightened up, I got short of breath, my back started hurting very badly, my face got so flushed, I got severly nauseous.  It was awful.  They stopped the infusion and waited for the reaction to back down.  Then they gave me more benedryl and other meds and held the taxol, but gave me the other med that only infused over an hour.  Then they sent me home with steroids to take that night and this morning.  
 
I arrived back at the office at 8:30 am today and got started with more benedryl and anti emetics and finally started up back with the taxol.  It was a success and they were able to infuse it properly without me getting a reaction this tiime.  They had to re start the IV though and that took three more sticks, so they decided that next week they are going to put in a port a cath in my chest for easy IV access.  If anyone wants to know more about that, just let me know and I will explain further.
 
Well I slept all day in the chair yesterday and came home and developed a migraine headache that lasted from 5 pm to 5 am and after I got some more pre meds today, it came back, so they gave me a tylenol and I took my percocet and it went away during this morning's infusion.  I slept all day there at the chemo office in a recliner and my husband and I closed up the joint at about 5 pm again.  Now we have to go pick up the phenergan from the drug store in case i get nauseous in the next few days, which they tell me that could happen.
 
So, once again, all your prayers worked wonders for me and I got through the first round of chemo although it was very trying to say the least.  Next time around will be better, I just know it.  Thank you for your support and prayers and love.  I feel it all and am so grateful to each and every one of you.
 
God bless you all.
 
Linda

Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 6/30/2010 7:49 PM (GMT -7)   
Linda,
Prayers and Hugz all the way...
Stay Strong my friend...
((((((((((((((((((((((((((((((((((((((((Linda))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 6/30/2010 8:09 PM (GMT -7)   
my prayers are with you.
 
love and hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 6/30/2010 8:26 PM (GMT -7)   
Linda my prayers are with you lady. I have a port a cath and love it. Back when I was doing Remicade infusion every 4 weeks for my crohns disease, it was next to impossible to get a line going that didn't blow the minute they tried starting just the saline. I still have it years later, works like a champ, I go get it flushed once a month and its great. That will be one less thing for you to have to deal with thank goodness. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 6/30/2010 9:05 PM (GMT -7)   
Hi Lindaloo

My heart goes out to you, I am so sorry that you had such a rough time the first time around, I wonder why they did not premedicate you with Decadron ( dexamethasone) six to twelve hours before starting the Taxol, along with giving you the Benadryl, Tagamet or Zantac premedications the first time??? The steriod they gave you the second time around probably helped the most to prevent the reaction. I know that is really difficult, I do so hope that the rest of the infusions go easier for you! I think it is great that they are going to give you a central line, but are they going to give you an imbeded port cath or are they going to put a Hickman. or a Groshong type in? Either way it will be so much better for you, and it will make giving the chemo so much easier, and safer! I worry about you Linda, please try an stay strong, I keep you in my prayers, and you have your whole family here praying and supporting you!

May Gods Peace be always with you my friend!

White Beard

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 6/30/2010 9:22 PM (GMT -7)   
 
 
   Dear Linda,
 
   Our hearts go out to you. You have had to deal with more than your share of pain and illness. I am so sorry you have to endure through all of the chemo. Please know you are in our prayers!
 
*warm hugg*
  dani
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 6/30/2010 10:01 PM (GMT -7)   
Linda, thank you for sharing with us...it sounds like a rough couple of days for you, but I hope you start feeling better soon. I'm sorry you had so many problems with the first infusion. My sister had breast cancer and experienced the same thing with her first chemo...but then it got better and better each time after, so I hope that's what happens for you.

You are in my prayers and tomorrow, when I am with my bible study Life Group, we will pray as a group for you as well.

gentle hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 6/30/2010 11:06 PM (GMT -7)   
Linda,
I continue to keep you in my thoughts. I'm sorry your first day was so challenging, but I will hope that each treatment goes more and more smoothly for you.

I know you will get through this!

Hugs,

PaLady

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 6/30/2010 11:53 PM (GMT -7)   
Lindaloo,

If there is anyone that deserves a "group" hug, it is you. Your ongoing battle with chronic pain has made you battle ready for this new contender. You of all people should not be forced to go through this. From your postings, I can tell that you are strong and determined to win newest set back. Godspeed my friend on your journey. Even though we can not be there to hold your hand in person, know that you are in are in our hearts and prayers. 


Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, congestive heart failure, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator). 

 

 


Post Edited (Stella Marie) : 7/1/2010 12:56:42 AM (GMT-6)


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/1/2010 3:14 AM (GMT -7)   
Linda, I do hope things go more smoothly for you during your next infusion. I'm sorry you & your family are having to live through this ordeal but remember our thoughts are with you. Thanks for the update!
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/1/2010 3:17 AM (GMT -7)   
My Dearest Friend Linda,
You are one tough Lady and I'm so proud of you for doing this w/ your head held high w/ Mario Your soulmate constantly at your side! You both are my Heros! I know you will be strong throughout your battle w/ the dignity that only you posess!!
Please know I am praying for you and hoping that you have been through the worst of it already!!!
I wish I was there to give you a Big Hug!!! But until I see you, this cyber hug will have to do!!
Much Love,
Your Buddy,
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/1/2010 4:22 AM (GMT -7)   
Your posts are so uplifting --all of you. I feel so supported and loved, thank you so much.

I do feel the peace of Jesus Christ about me and that is my strength also. My family, both immediate and Healing Well are ever constant at my side and I feel so very lucky. Thank you for your prayers and well wishes. It means the world to me. It really, really does. I can't thank you all enough.

I will keep you appraised of my ongoing health.

God bless and lots of love,

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 7/1/2010 6:19 AM (GMT -7)   
I'm so sorry that you are in such distress right now.  I pray that your treatments will be easier and most importantly successful very soon.
 
All my best!
Retired Mom


auntkay
Veteran Member


Date Joined Apr 2004
Total Posts : 1199
   Posted 7/1/2010 7:09 AM (GMT -7)   
Linda,May God be with you on this journey to keep you strong.I'll be praying your next infusions go smoothly and know your in our hearts and prayers.

Kay

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 7/1/2010 9:37 AM (GMT -7)   
Linda, I too want to commend you on your strength and determination. He told us that He will meet all our needs acording to His riches in glory. Also, He invites you come to Him when you are weary and burdened and He will give you rest. Blessings as you continue this tough journey.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/1/2010 10:03 AM (GMT -7)   
Sending my thoughts and love for you as you continue through this journey! So sorry the first part was so difficult! I am very happy your husband is there with you and supportive of you! Also, you have so many here that care and send their prayers! Take care of you!

Hugs,
Beckey

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/1/2010 10:16 AM (GMT -7)   
Linda, I am so sorry you are having to go through this. I have heard how bad it can be. I want you to know that you will stay in my thoughts and prayers, we are all here for you! You are stronger than you probably know right now and you will get through this. Please keep us posted and if you ever just need to talk you have tons of friends here, I am sure you know that. Hang in there my friend and take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/1/2010 6:48 PM (GMT -7)   
Linda,

Thanks for updating us... I'm sorry you had such a hard time this first go-around. I'm praying that your treatments will go smoothly from here... and I'm glad you are getting a central line; I think it will be so much easier w/ everything you are going through.

You are in my continued, daily prayers, Linda.

Thinking of you... --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/2/2010 3:30 AM (GMT -7)   
OH THANKS GUYS.  BUT I AM NOT DOING THAT BAD.  A LITTLE NAUSEA AND PAIN AND SLEEPINESS NOW BUT OTHER THAN THAT I AM DOING OK.  BETTER THAN I THOUGHT I WOULD.  JUST KNOWING YOU ALL HERE AND HAVE MY BACK IS SUCH A WONDERFUL THING FOR ME.  I LOVE YOU ALL FOR THAT, SO THANK YOU VERY , VERY MUCH.
 
I PROMISE TO CONTINUE TO KEEP YOU ALL POSTED.  YOU GUYS ARE MY WONDERFUL, WONDERFUL SUPPORT SYSTEM.  CAN'T DO IT WITHOUT YOU GUYS. 
 
LOVE YOU ALL,
 
LINDALOO
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/2/2010 6:20 AM (GMT -7)   
Hey Linda , Sorry I got here so late , but I'm so glad your doing a little better , I really hope that continues and you improve even more , Keep the faith Sister !!! Mikel

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/2/2010 7:54 AM (GMT -7)   
Well Hello Miss Linda!!!
                                    Oh I'm so glad you are doing better!! I have to admit that I was just a little worried about you!! I don't know why though because in my heart, I knew that after your first treatment, the worst was over> The unknown and apprehention is always the hardest part! Now being the tough Lady that you are you can cruise through the rest and be all better before you know it!!! I'm so happy!!!!!
Hate to change the subject but I'm not letting Mario off the "HOOK" very easy now that he said he would like to fish w/ me!!! I'm thinking if you both have a free day in the next couple weeks and you are feeling up to letting him go, maybe I can steel him for a 1/2 day if the weather isn't too bad??? Tell him he will need a salt water fishing licence (about $14. at walmart or tackle shops) but not to get a snook stamp cause they closed the season all year!!! No snook dinners this year but I like redfish evan more and seatrout ain't too shabby either! Then if they are not biting, there are always sharks around this time of year and the blacktips are awsome on the grill!!!
OK, off to clean, we have company coming this afternoon and I must clean the house! Lisa is working so I don't want her doing it!!!
Love Ya!!!!
Pete


When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

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