High SED rate with fibro?

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damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/2/2010 12:13 PM (GMT -7)   
Hi all,
 
I don't know if any of you remember, but last week I started getting these hard lumps on my shin bones. Since then they have spread to the sides and back of my calves. I am also having alot of swelling (in my joints and other areas too). My pain has also increased and spread to other areas I usually don't have pain. Like my lower back for example. Actually, pretty much everything hurts right now. So, I went to the doctor's yesterday and they did a SED rate. I just got a call from them and it is high, it's 42.
 
They want me to come back today to draw more blood to check for RA, lupus and a few other things that I can't remember. I was tested for all of these things several months back and they came out normal. Of course my SED rate was normal then too. My sis (Antbuggey) was just diagnosed with RA this week, so needless to say, I'm kinda freaking out a little. Anyone know if fibro can cause a high SED rate? I tried looking it up, but I couldn't find anything so I'm guessing not. But I thought I would check with you all just in case. I hope everyone has a wonderful and safe 4th! Take care. I posted this on the fibro board too.

Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/2/2010 1:37 PM (GMT -7)   
An elevated SED rate is not part of fibromyalgia. It is found in polymyalgia rheumatica which has symptoms very similar to fibro. I hope you quickly get answers to what is causing your illness so you can get some relief. Let us know!
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/2/2010 5:51 PM (GMT -7)   
 
  Oh gosh Shannon,
 
    Of course, I am glad to hear from you. *hugg* but the SED rate had to be a shocker! I have friends with fibro and I have never heard mention of SED rate. I know right now you are probably worried, but I want you to know that this could be a good thing. What I mean is, you have had a big jump in your overall pain, and these tests might help explain why. I know you are probably stressed out but please stay strong! This could be good, it could help explain so much. Try really hard to keep your mind occupied so you are not a bundle of nerves. *warm hugg* You will get through this too, I know you will!
 
     You are in our hearts and prayers here
 
*warm hugg*
  dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 7/2/2010 6:02 PM (GMT -7)   
Also get tested for LYme disease. That among a million other things can cause High sed rate.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/2/2010 9:30 PM (GMT -7)   
Hey Shannon , I don't know about sed rate , but I just wanted to support you , I hope everything goes well for you and that this is not an indication of anything negative . Keep the faith and please let us know what happens and how you are . Mikel

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/3/2010 4:38 AM (GMT -7)   
Thank you all sooo much for your replies. It means alot to me! I am trying hard to not let it get to me too much and like Dani said it may end up being a good thing somewhat because knowing what is going on is better. I was just starting to get "comfortable" with the fibro dx and my meds were working well to keep my pain levels down and then all of a sudden, lumps, swelling and more pain. Geesh, does it ever end? I will post when I get some results back. Thanks again everyone for all of your support. Hope you all have a wonderful 4th of July.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

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