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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/3/2010 11:36 PM (GMT -7)   
Geez , now I can't sleep stessing about having surgery , ya know the infection thing .The surgeon who saw mw at the other hospital said it should be ok , not to get high again , which I'll never do and I should be fine .But hey man , antesteisology coulg go wrong I mean suregery is risky business , but God I wanna walk normal so badly. I'm afraid , I mean I'm really afraid , this is a bummer man , why can't it just be a pill they give ya .darn , well I've got around 6 weeks to come to terms with this , I'm not liking the way its starting out . Thanks for listening , Mikel

Gopurdue28
New Member


Date Joined Jul 2010
Total Posts : 13
   Posted 7/4/2010 12:36 AM (GMT -7)   
Are you afraid because of hip replacement surgery? If that is the case then don't worry about it. Well, I mean try not to worry about it nomatter what, but my wife is a nurse on the orthopedic floor of the hospital. Hip replacements are like every fourth patient of hers. They do them all the time. I am sure they told you all of this anyway, but doctors tell us a lot of things, lol. I know it's easy for me to say not to worry, but some of our local guys where I live have never had an infection with a joint replacement, and they have done hundreds of them. My wife is afraid of "not waking up" after they put you under too. I researched it for her and this almost never happens. You will be okay, don't worry.

Jay

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/4/2010 12:59 AM (GMT -7)   
Thanks Jay , but I'm HIV+ as well so the risk of infection is higher AND i got hep C so ba-boom . , but I appreciate the input , and your mostly right on about it , I'm freaking out and need to get the right perspective , either do it and accept the risk or don't do it and stop driving myself nuts .I get it now , but I'll probablt freak again before all is said and done . thanks Mikel

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/4/2010 6:51 AM (GMT -7)   
Mike, it ain't nothin but a thang! You have got to realize that life will go on w/ surgery or w/out it! It may work, it may not! You could die but chances are REAL good that you won't!!! So surgery is just like taking a pill! You are strong, intelligent and a great guy> so you have GOOD KARMA going for you! Stop worrying! It's not healthy! I've had so many surgeries I don't think twice about it and I'm high risk cause of my weight & smoking way too long! Either I will die or I woun't but the chances are so slim I don't care!
Please try to get over this worrying thing! It doesn't do any good!
Manhugs & stuff!
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/4/2010 8:23 AM (GMT -7)   
Hey Mikel,

So sorry you are now having to deal with all this anxiety and crap along with the pain. I had two of my daughters get surgery in the last 3 months and I was a total wreck! They didn't have as major of surgery as you, but surgery still the same. I was freaking out over the same things you are, so I kind of know what you are going through. Just try and remember we are ALL here pulling for you! I bet you have one the biggest, loving families right here. With you in all of our thoughts and prayers, I think the chances are pretty dang slim that something will happen. Hang in there my friend, and you know we are all here for ya on your bad days! Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/4/2010 9:05 AM (GMT -7)   
 
 
   Gosh Mikel!
 
    Goodness *warm hugg* You know, after going through 8 months of surgeons and doctors telling you that you couldnt have it done due to risk of infection or death.... I would be worried if you WERNT stressed. How could you not be? Were talking about all winter and spring of educated men and women telling you horrible stories of complications and risks!
 
    ..I think thou, this time is different. This time the surgeon is very confident that you will get through this. Youve worked very hard. Your entire system is running the best it possibly can. The diet you have been on for months, increased activity, even prepared yourself mentally by seeing a psychologist. You ve worked really hard friend. You have made sure everthing about you as a person, is in great shape for this. So, try really hard to relax and remember that you worked really hard to make sure you have the best possible foundation for a successful surgery outcome!  You can do this! I know you can!!
 
*warm huggs!!*
     dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/4/2010 9:10 AM (GMT -7)   
Mikel,

I am sorry you are stressed out like this! I haven't known you that long, but I just know that everything is going to be okay!! You are very strong and sounds like you have worked hard to get to this point! This is good news.... remember! Try to relax and know in your heart that you have done things right and that you will be okay!! We all love you and are pulling for you!!

Take care of you!
Hugs,
Beckey

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/4/2010 10:39 AM (GMT -7)   
Mikel,
at this point I think anyone human would be fighting this same battle inside, you just got to
believe it'll help (I know you got HIV) ..even I would be scared at this point...you will
get thru this and everything will be fine, keep positive....stressing out might make
your immunine system weaker, so make sure to get plenty of vitamin c and maybe some zinc..
Try to remain calm and I know that can be hard maybe go see a movie or get a book, try
to distract your mind okay...
(((((((((((((((((((((((((((((((((((((Mikel))))))))))))))))))))))))))))))))))))))))))))))))))
healing hugz...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/4/2010 11:19 AM (GMT -7)   
Brother Pete as always man your right on , I gotta just go do it and be as upbeat as I can , I'm not worried about dying really I'm more worried about infection , then they'll have to take out the implant and I'll have nothing in there and really be laid up , but I knew this from the jump , thanks for your input man , it makes sense . Shannon , thanks for your support I guess thats the main reason I posted this just for the pure peace of mind I get hearing from my friends . By the way how did your daughters surgeries turn out ? I hope they are well .Sweet Dani , I didn't even think about the excellent point you made , I have been focused on and hearing about the infection thing from the surgeons at that one hospital , almost exclusively , it had to have a great effect as you pointed out , and I'll definetly bring it up in my therapy , thanks Dani Girl .Beckey thank you too for your support and your right on too , I must remember this is good news , news I've been waiting for , for almost 2 years .I must keep that in mind .You got it it Chartreux I do need to sit with this concept awhile and get comfortable with it , some distraction would help but you and my other HW family supporting me like you do is the best medecine , like always I feel better , its so great to have friends to care for and be cared for in return thank you all so much !!! A whole Lotta Love ! Mikel

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 7/4/2010 1:43 PM (GMT -7)   
Mikel, its perfectly normal to be stressed out with a pending a pending surgery. We would think you were crazy if you said you weren't, lol. I don't know anyone that was never scared or stressed with a pending surgery. I think what is wrong is there should not be such a long wait like 6 weeks, because that is just too much time to sit and worry and wait. by the time the surgery date rolls around the person is totally wore out from worry. There should be as two week limit on the waiting game. Thats gives a person enough time to get everything done that needs to be done. Did they give you any info on things to get that would help you out once you got home? A very good friend of mine had hip replacement and was scared and waited far too long to have it done, said he could kick himself for waiting so long. I know one thing he did buy was a called I believe a "grabber or reacher" Its a hand held device used to pick things up off the floor, say like a dropped sock, keeps a person from bending over. I have one and use it all the time even outside, lol. If you have not been given any info on useful items I can ask my friend and send you a list of things that helped him out. By the way my grabber is the plastic one cheaper, less than $10. I think the metal ones are a little more costly, can be found at drug stores maybe even Walmart. You will do fine, think positive it will all be good and no more painful hip.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/4/2010 2:27 PM (GMT -7)   
Mikel...

Hi... how ya doing today?? Everyone here gave you great support and advice... but I know you are still going to having moments of anxiety up until you have the surgery. I get the thing about fear of infection, definitely. You've done so many great things to make yourself as strong as possible, such as juicing/eating healthy, vitamins and so forth. I think you are on the right track - that, combined w/ your positive attitude, Mikel - I really, really think you'll be just fine. Like I said, I think the fear will be there until you get through it, though.... so keep reaching out for support and encouragement. :)

Thinking of you today.... --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/4/2010 2:33 PM (GMT -7)   
Hey Straydog , The reason for the 6 week wait is that I had just changed my cocktail meds 2 weeks ago in an effort to raise my t-cell count to have it be over 400 so it would meet the criteria of surgeon and hospital A , when I went to hospital B and got their ok as long as my doctor signs off on it . When I changed the meds we all agreed to wait at least 6 weeks so the meds could take full effect before giving blood and checking my t-cell count. So I still have to wait to fullfill that condition in order for my doctor and myself to sign off saying I'm a good risk . As long as its a number in the range its been for the past 8 years 300-390 than its a go . But it just so happened I had changed my meds at the time I had the appt with hospital B . Ihope I explained that understandably . Mikel

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13471
   Posted 7/4/2010 2:52 PM (GMT -7)   
Mikel I totally forgot about that and I remember reading about it. Oh well, the usual brain fog or brain fat whichever one you prefer, lol. Hope everything keeps going well for you.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 7/4/2010 3:09 PM (GMT -7)   
Dear Mikel, I know we don't know each other well but I think you need to take a breath about this upcoming surgery. I mean you need to literally breathe in and breathe out. Stressing about this isn't good for your body which I guess you know already and could make your recovery just that much harder. Good attitude going into surgery can make a big difference. Remember that this is a good thing. Yes there is risk involved but consider the risk to the quality of your life if you freak out and don't take this opportunity to improve your situation because of fear. It is definitely a risk vs reward situation as most surgeries are and I would bet though from reading your past posts you are willing to take the risk to reach that reward. Just breathe, it will be OK. You will make it OK and we are here to help you. I went through a period when I was very afraid about the pain I was dealing with and an upcoming surgery to the point I was having trouble sleeping also. I learned to do a breathing exercise while I was trying to sleep. I would literally focus on my breathing while saying the words to myself "no fear". I would inhale on the "no" and exhale on the "fear. It really helped me to relax my body and my mind, anxiety and fear also so I could sleep and generally feel more positive. No fear, OK?

Best wishes always to you,
Lisa
If I can laugh at it, I can live with it.


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/4/2010 3:26 PM (GMT -7)   
Thanks Tina Girl , you know how I love hearing from you dear friend , you always make my day and I'm thinking of you Bobby and the boys AND the girls too !!! I hope your getting your rest and expierencing Low pain sweetheart . Hey Lisa Thanks for that advice on breathing , I do meditation but I never tried the technique you suggest . The next time I feel some anxiety I will definetly give it a shot , thanks for taking the time , I hope we can be friends and I like the quote ''If I can laugh at it , I can live with it '' , yes I like that a lot . Mikel

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 7/4/2010 6:52 PM (GMT -7)   
Oh Mikel I should have mentioned when doing that deep breathing technique you can use any words that fit your situation and needs. "No fear" was significant to me. At yoga class the instructor suggested "let go," "all's well," and counting to 10. she said you could use anything to help you focus on your breathing but to me the words were more important than the breathing, kind of like positive self-talk or something. And yes it would be nice to call you friend. Sleep well, Lisa
If I can laugh at it, I can live with it.


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/5/2010 7:32 AM (GMT -7)   
Hi Mikel,

Well, everyone has offered great advice as usual, so I'm just going to add that I keep you in my prayers and I will ask for your anxiety to be released, so you feel calm and at peace for the next few weeks. When you have fear or doubt pop up, just close your eyes ,and picture yourself walking normally, or doing something physical you're not currently able to do.

If you keep doing this, you will train your brain, and every time you feel anxious after that, you will immediately be able to replace the fear with a more positive image.

Good luck Mikel. You're a great support to so many here, I hope we're able to repay the favour!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 7/6/2010 4:04 AM (GMT -7)   
Mikel, I've noticed a big difference in you since you first started posting. I think when you first started here you were in a very dark place and not sure where to turn. Your whole attitude has changed for the better since then and you are definately taking better care of yourself. This is just my observation but with all the mental and physical improvement I imagine you can handle this upcoming (finally) surgery too. Just keep thinking positive. I was scared to death before my lumbar fusion, kept thinking I could come out of this paralyzed but I didn't. Everyone has bad images in their minds before any surgery but most come through just fine. There is always that slight chance of something wrong happening but you can't dwell on that. Just think how much better your going to feel with that new hip. Too be able to walk without pain, now that's a big big plus!!!

Maybe you can join me getting off of some of the pain meds!
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/7/2010 8:56 AM (GMT -7)   
Thanks Pam , great hearing from you sweetheart ! Thanks to you also Jag both of you guys always have great advice and your support makes me feel rejuvinated , love you guys a lot . Mikel
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