~ Weekly Check-in

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Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/5/2010 12:35 AM (GMT -6)   
   Well it is another beautiful monday morning. Though I would love nothing more than to turn on my heating pad, and snuggle up to a good book... it is monday. There are tasks to complete, jobs to do and appointments that need to be kept.
    Often times we are so busy supporting others that we often forget to update about ourselves. So, before we get too wrapped up in starting out the week... please, stop by and let us know how you are doing. Even if you are in alot of pain or not in much pain, give us an update. We want to know how you are doing.
What are your major planns for the week? How are you feeling & what has your pain scale been like over the weekend?
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 7/5/2010 7:13 AM (GMT -6)   
Well I have no appts to keep today, but starting Wednesday I go back to my surgeon for my 6 week follow up in Tampa from my hysterectomy. Then, Thursday, I go to the chemo center and get labs drawn and see the ARNP to discuss how I did with the first round of chemo, which was interesting. I have been struggling a little for four days, but starting to feel better soon. I didn't throw up so I am ahead of the game--hate throwing up. So no problem there, thank God.

Then I start my appointments to get my port inserted for my IV site. I have pretty poor veins it seems. Wish me luck.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 7/5/2010 8:31 AM (GMT -6)   
Good luck Linda! I've been thinking about you! Glad there was no vomiting! Keep us posted on how your doing!
lov Ya>
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 7/5/2010 9:24 AM (GMT -6)   
I have a busy week this week.

Monday - crafting during the day, AquaFit tonight

Tuesday - nothing planned

Wednesday - singing with the chorus (I used to sing in Sweet Adelines in two different choruses but gave it up because of my health. I'm now joining up with a new chorus that's just getting started and so the focus is on music, not choreography. I've been away from it for 6 years and I'm so happy to be back doing it again!)

Thursday - nothing planned during the day, dinner and Small Group Bible Study tonight with my Life Group (3 other couples - we make and eat dinner together and then work on our bible study)

Friday - fly to Winnipeg, MB in the afternoon, meet up for dinner with friends

Saturday - The wedding and reception for dear friends!!

Sunday - fly home early, SLEEP and then attend a come and go celebration for friends, married for 40 years.

And, where I find a few minutes throughout the week, I think of everyone here, as well as other friends of mine, and I pray.

Have a good week everyone, with as little pain as possible!!

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 7/5/2010 10:04 AM (GMT -6)   
Hello everyone, I have been complaining so much on here lately, that I am going to try not to complain too much about my week ahead. Since I am just in a holding pattern and feeling as cruddy as ever.....my week will probably be spent sleeping and popping in here to keep in touch with my wonderful family here! Mostly, I am just posting to wish all of you a wonderful week ahead....wishing you LPD's and lots of smiles and love!

Take care of you.....all of you!


Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/5/2010 10:36 AM (GMT -6)   
Hey all,

Well, I had a pretty bad weekend but it's over and no sense in hashing it all up again. I have an appointment tomorrow with my doctor and hopefully my labs will be back to explain my high SED rate. I will also be bringing my son to the dentist to get his teeth fixed. We were supposed to leave Wed. for Colorado to visit my Dad, but don't know yet if that will still happen. I am really bummed over it too. I will keep you all posted. Take care everyone!
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 7/5/2010 10:40 AM (GMT -6)   
Pretty busy week for me anyway , Thursday I see my Therapist , Wednesday I see my primary M.D. Tomorrow I gotta a dinner date , a gal who lives in the building is coming over to cook for me , I love rice-n-beans shes a latin lady and I'm lookin' foward to that . I'll hang out with my brother one of those days maybe Friday nite , I hope i don't overdo it , I'll try to keep it to a minimum but now that I lay it out it sounds like a lot  , but the dinner will be at my place so it won't be a lot of walkin' anyway . I'm buying some dumbells to excecise my arms and get them stronger. It should go somethin' like that anyway . Mikel

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 7/5/2010 1:56 PM (GMT -6)   
Sounds like a busy week for everyone, sure hope y'all are feeling a little better soon!
I'll be going to my eye doctor tomorrow and I'm not thinking it's going to be good, my eye plugs are gone and they only lasted
for less than a month this time (usually they last for 5 months for me and are supposed to last for a year!)
and I might have to get a forulation of restasis made up from a compounding pharmacy...so not good...
plus on Weds, I'll have to see the PA for my neurologists of which I want to just cancel, it usually
a waste of money to do this...
On the bright side we'll be getting my three lil boys (my boy toys) a cat tree..my kitties will love it and
meow at me with "It's about time mommy"
and sad to say but my daughter goes back to University...It was nice to have her help...(tears)
Hugz to all
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 7/5/2010 2:20 PM (GMT -6)   
I'm basically taking it easy this week. I'm not working because of the wires coming out of my face for my stimulator trial (wires + unpredictable animals = bad combination, plus I'm not allowed to lift anything, which kills half my job). I really need to work on my vet school applications & study for the GRE. I keep putting that stuff off because it is not fun & is stressful to think about, but I am going to make myself start it tomorrow. Then on Friday, I have stimulator surgery #2. Depending on what I decide this week, they'll either be taking the temporary stimulator out, or permanently implanting it.

It is supposed to be around 100 F all week long here. I'll mostly be hiding inside where it is cooler, as I am not allowed to shower/get wet during my stimulator trial.


Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/5/2010 10:03 PM (GMT -6)   
As I said before, I love reading all of your updates... :)

No comment here, because nothing has changed from my last week report :) So, no use in going on about it. The good news is that - after some very hard times - the babies seem to be doing well now. I'm at 24 weeks+ and the girls each weigh about 1 1/2 pounds.

Other than that, just hanging out w/ my kids and trying to survive being in bed and not go insane.

Take care all; thanks for sharing your updates.

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 7/5/2010 11:31 PM (GMT -6)   
Gosh, I think my mother was right...I AM stuffy and boring. Have my monthly doc appointment on Tuesday morning but that's it for the week. My best weeks are when I have nothing planned and no where I must go.

Although our 'extra' daughter, her hubby and kids will begin moving in to our rental next door. I am excited about it because we all do get along so well. And hubby is especially attached to those little boys. I will likely end up sitting with little ones or keeping them entertained while the moving is going on. They have 2 weeks before they need to be out of the house they're in so it will be a gentle and planned move, at least. And lots of young guys from their church were volunteered to more anything larger than a toaster!..lol

OK, confession time... I'm healing up fairly well from a fall last week. When I'm hurting I hide and I sure did. I took a very bad fall inside the house and bruises are still showing up in strange places. Long story but I caught my leg in a 'baby type' metal gate as I went through and it continued to close tight on my left ankle/leg/knee which put me off balance. I landed on my right shoulder, chest, chin.confused At least nothing is broken but the pain on top of fibro has been mighty incredible. Right arm (bicep and tricep) are still very sore but are getting better each day. I can actually type now. smilewinkgrin

This week I'm going to concentrate on keeping out of trouble..lol

If you're going through hell, keep going.

Winston Churchill

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 7/6/2010 10:40 AM (GMT -6)   
Good to hear from everyone. I sure do like reading what folks have been up to and whta you all have planned!

for me I have been feeling decent. I have been able to do some things lately. It has been nice. I made some new jewelry and it is the best stuff I made so far! awesome if I do say so myself. hahaa.

its going to be 100 degrees here plus humidity today. I ran to the craft store and pet store and thought I was in an oven. no good.

My pain has been a little high at night. meds seem to keep it reasonable, except one night.

I am going to move ahead my carpal tunnel injections. The pain is horrific.
hope everyone has a good week
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/6/2010 7:47 PM (GMT -6)   
     I am very tired as of late. Inside and out. The fatigue is like a heavy wet blanket. My pain scale is sitting right at 9-10 for almost three weeks now. I do, however, feel that I am slowly becomming accustomed to it. So, that is a good thing. It is my 2nd "new 10 adjustment" in the last 2 months.
     My hip is obviously rotated to the rear. Many people have commented on it. There is just no denying it. I am assuming it has something to do with the pain increase and the loss of another inch off my height . I am 5ft 4in now - 5ft 5in as of march - total of almost 4inchest lost in little over a year.
     Walking no longer looks like a partial limp & shuffle... looks more like a longer rotation in my right hip into each step. My hip just rotates to the front and takes a little longer to go into each step. I wish I didnt look quite so akward walking... I could have just kicked myself for ever complaining about the odd little hobble I had before. In anycase, blessings come in odd ways, and this new "walk" came with much needed relief on my knees. They only hurt at about a 4 now.
      However, I do have deep ache in both hipps all the time now, instead of just when I sit. Also, I cannot fit into my jeans atall. I had thought that perhaps I was gaining weight at first, but, now it is clear it is my disproportioned hips causing the problems in the fashion department. My right hip is rotated a good 2 inches towards my back where it should be in my side. Still pivoted up into the rib cage as before, just more towards the back. Argh... this stuff is getting rediclious.
     ....needless to say I very weary of what my next appointment with the spine specialists will be like. I know they will be surprised by what has happened to my hip and my height... call me crazy, but I am just not in a rush to have more X rays and more angle measurments. Seems that is all they ever do anyway. Xrays & cobb angle measurments, more meds. Not anything I am intreased in jump starting. Have to see them next month anyway....
      Gosh, I wish so much this would all slow down.  cry  
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 7/6/2010 8:30 PM (GMT -6)   
Sweet Dani!

Do these doctors ever have a plan to stop this deterioration? It's painful even to read what is happening to you let alone the horrific pain you must endure. I'm so sorry that you are suffering like this. Here's a gentle "Mom" HUG for you today! {{{HUGGGGGG}}}

Love you!
'Mom' Chutz
If you're going through hell, keep going.

Winston Churchill

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 7/7/2010 12:23 AM (GMT -6)   
Hello my dear friends. I think it's a great idea to have a thread like this every week. It's super to see what everyone is up to for the week and how every is feeling.
Myself, I have made a change on my outlook on life and it has helped me cope with the pain. No change in the pain but I am getting by in a better way. I decided it was time to accept my chronic pain and be more positive. Be thankful for what i have in my life. Take it one day at a time and do the best I can each day. Yes I am going to have some bad days, who wouldn't with 10/10 headaches 24/7. And I will be in ice packs whenever i need to. So in the last two weeks I have felt better and been able to do more things.
We came back from camping on Sunday eve. and I really enjoyed myself. It went well. i was able to use my ice packs whenever and rested on my bed whenever. I did some biking each day and had a paddle in my kayak which felt so great!!!
This week, Monday was a free day and good thing cause my body was so tired. Tues. today I had my massage in the am and saw an eye dr. in the afternoon. I need to get a small red area removed as he is suspicious of the possibility of cancer. That will be in Aug.
Wed and Thurs. nothing special. Hubby is off those two days. And Friday an appt with craniosacral tx. and that's it. good thing because I can't stand this heat wave. I am better resting in my bed and staying cool. Thank goodness we have air.
My son's girlfriend and her daughter, almost 2, are here for the week. I invited them to come and her apartment is a scorcher!!
I bought a pool and we were all in it today.
Well hope everyone can get thru there week with not too too much pain. Do something nice for yourself tomorrow and come back and tell me about it, OK. I would like to get a haircut done and my eyebrows. Maybe a nice day to do a manicure and pedicure at home with Jessica. And then do wax hand and feet treatments. Sounds lovely to me!!
Love and hugs
 Chronic, severe and continuous bilateral temporal headaches since 2000.

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