My Story/and I really needed to vent

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Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/5/2010 11:45 AM (GMT -6)   
So i've only been a memeber here for about a week and the little sharing i've done so far seems to make me feel a bit better.  Maybe because this is the first time I have ever been able to share with anyone who in one way or another is going thru the same thing so here's my story.  I started back in August of '08 at this time I was 23 years old in good health a bit overweight but nothing I wasn't working on.  I was a bit of a workaholic working 1 fulltime job averaging 50-60 hours a week and two parttime jobs that probably added another 20-30 hours.  One day at work either the 25 or 28 of August '08 I was at my fulltime job where I was a printer.  On some jobs the paper had to be a weird size so we had to trim it.  So the first two hours of the day I was trimming paper I had about 20,000 sheets trimmed and only had 2,000 to go.  I had the trimmer just about full and went to throw in the last little bit, grabbed at max 5 pounds of paper and hit the ground in the worst pain ever.  I was sent home and went to see my family dr who did what he could but said I needed someone more specialized with back problems.  So he sent me to Dr. Schienski an osteopathic dr.  This man is the best most down to earth and just flat out caring dr I have ever meet.  He did what he could but to no avail.  So he started to send me out to different specialist ranging from chiropractors, physical therapy,  and a few drs from a local neuro spine and neuroscience  clinic.  In total 6 other drs that all gave up saying there was nothing to do or there was nothing wrong with me.  Dr Schienski didnt give up so we kepted plugging away at it he got me medicated on Opana ER (Oxymorphine extended release).  I was at this point diagnoised with degenerative disc diease.  I have minor problems with most of my lumbar discs and one is tearing rather fast.  This is where are first big problem came in he started sending my case to all different surgeons around wisconsin and not a singal one would even talk to me because of how young I am and that its more than one disc.  Then he said there was one more dr (dr. Singh) he would like me to see but that he had to get my case aproved by his clinic.  So we waited with are fingers crossed and we got the phone call that he would see me!  It was very exciting for me since I did alot of research on him and found out alot of people classified him as one of the best Pain mangament dr in the country (whether that is true or not it made me feel better).  So Singh started plugging away at my back starting with injections then nerve blocks and discograms.  Nothing worked, once again I could tell he wasnt getting upset with me but upset with the fact thaat he couldnt help then.  Then we tried this neurostimulator the first trial was just a joke what he said should take him 45 minutes took more like 5 hours and when they turned it on there was stimulation through out my whole body except my low back so they took it out.  A few months later after more research he said there is another way to to install it thaat works better on the lower back.  We gave that a shot and it seemed to work pretty darn good.  So we did the permanet installation.  Besides having to be awake for the installation the procedure went rather good.  The following month went really good they took me off my meds and all was good I was looking at off the meds a 50-70 percent improvement.  I thought things were finally starting to look for up for me.  Untill a week ago yesterday Just while sitting on a couch my back started to hurt worse and worse.  So i turned on the stimulator that didnt work turned it up that didnt work then I took some of my fast acting pain meds that didnt work I ended up in the ER with a blood pressure of 230/120.  The next week I eneded up in the ER 4 more times getting turned away once cause I was just looking for drugs.  I really haven't been able to sleep and there is more pain than ever.  Dr Singh is out of the country and all his partner would tell me to do is turn up my stimulator which it was already maxed out at 10.5 and to use it 24/7.  which now it was become almost a game to keep it charged they told me it would have to be rechaarged once or twice a month now if I dont charge it everyday I have a chance of it going completly dead which ruins it.  The sensation from the stimulator has gone from helpfull to annoying my back pain is worse than ever and i'm back on the meds.  Im starting to think maybe my body doesnt like the implant cause the leds are starting to hurt more and even the stimulator pack hurts.  So thats it, that brings me up to present i'm 25 years old in the worst pain i've ever been in I can barely sleep my pm dr is out of the country and i am just about at the end of my rope.  I've had 30-40 different injections, discograhms, and much others that I cant thinkof right now.  Thanks for those of you that choose to read this and taking the time to listen to me.  I hope it wasn't too much complaining but it helped to get it out there with people that would understand.
peace and much love

Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/5/2010 12:02 PM (GMT -6)   
After reading this again the part about the ER visits When I was turned away I WASNT just looking for drugs that what the dr thought. He went as far as telling me I made up all my drs names and that no one would ever have to travel to see a dr when he found out my pm dr home office about 2 hours away from where I live even though he travels and does office visits in my town

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 7/5/2010 1:43 PM (GMT -6)   
Hello Wisco,
1 make an appointment for this specialist as soon as he gets back to your town...then
maybe get some up dated MRI's done. Maybe even with contrast...maybe even a ct scan.
that's as about all I can really advise on, others will come by with more knowledge
and info, so take heed and listen to them...a good pain management psychologist
can help with depression, just advise...
((((((((((((((((((((((((((((((((((((((((((((((((((((Stuck in Wisco)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
Hope you can get a low pain day soon, somes topical creams or lotions can help along with ice and or heat
therapies....just tossing out some ideas...
Have you had a rhizotomies done yet?
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 7/5/2010 2:02 PM (GMT -6)   
Dear Wisco, welcome to the forum! I am so sorry to hear about how you have been suffering! Unfortunately, it is the suffering that brings us here, but it is the wonderful, caring second family that keeps us coming back!! Before, everything else started with me, my only diagnosis, was a "non-specific" problem at L5-S1 with nerve impingement. My injury happened February 8, 2007 and I have been in terrible pain ever since. I have had PT, injections at triggerpoints and every where trip it was 78 injections, and when my insurance would not pay for facet rhizotomy's my PM doctor turned me away. I have had incredible PCP's that are willing to help me, to the extent they can....but that is basically pain meds. I did want you to know, however, everytime we go to the hospital here (my sister has CP problems also) we are treated like we are drug seeking. Basically, we are asking for a shot of toradol....which is NOTHING compared to what we take on a daily basis for pain, but it helps to break the pain cycle on occasion. I take MS-contin and my sister is on oxycontin. It seems like mostly they just get angry because we make them do their job....we live in a very small town with hardly anything happening at the hospital! So basically, I just wanted you to know that this is not personal....many of us with CP have been treated the same way! It stinks but the pain med addicts have done this to us!! Please know that this is an amazing bunch here and, even though we can't fix you, we are always here to listen and talk to! We do some other fun things on the forum to!! It has saved me lately.....I got some more bad news regarding my health....and everyone here really helped me through it!!

Again, welcome and stick around....I think you will like it!

Take care of you!

Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/5/2010 5:34 PM (GMT -6)   
Thanks for the responses and taking to time to read. This is kinda different for me Sharing I guess but it is very nice of all of you I will stick around for sure still just been tinkering around on the site to get used to it.

Chartreux I do have a appointment scheduled with my PM DR but be is in I belive they said India for another week. I have had a CT-scan done with contrast looking for infection and some x-rays. Nothing moved and it doesnt look infected which is good but kinda irritating at the same time cause then where is this pain coming from. The stuck in Wisco thing is because right before I get injured I was suppose to move to california for school I out it there to keep remind me whaat im fighting for.

Becky Thanks for sharing with me sorry to hear that your health has gotten worse. I'm also very sorry thaat you and your sister were treated as drug seekers. I know most people on this forum were treated that way atleast once but I would appoligize to each one of them to. That had to be one of my worst public embarasments ever.

Forum Moderator

Date Joined Feb 2003
Total Posts : 13362
   Posted 7/5/2010 6:18 PM (GMT -6)   
Hi Stuck and welcome aboard although I am sorry to see another person come along dealing with so much misery. Yes, sometimes just coming to some place like here and talking about how you feel does help a person somewhat. At least you know you are not alone there are many of us out there. I have a pump and I know little about the SCS except what I have read here from other members. I would sure be making an appt to be seen by the dr as soon as he is back in town. I do know with the SCS implanted you cannot have MRI's and I am not sure about the Ct Scan.

Going to an ER is about as useless as it can get. They view us as drug seekers and want no part of us. Save yourself some money in the future. Everyone is pretty much treated this way in ER. I really do not know what to tell you to do until your dr gets back except try soak warm tub soaks or showers, if you can use a heating pad with the implant you may give that a try. By chance do you have any muscles relaxers to take, if so take them too. Try to keep moving around as much as you can, laying in a bed will cause more harm because we become so deconditioned so fast. Take care and keep coming here and posting. Things will be on the slow side because its a long holiday weekend.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/5/2010 6:22 PM (GMT -6)   
   Dear Stuck,
     Good evening! It is good to hear from you again. *hugg* How are you feeling today? I hope you were able to rest at some point last night, though I imagine your evenings are probably very hard.
     I am so very glad you decided to post an introduction. It helps alot to talk about how you got to the point where you are at. We have many members here with Degenerative Disk Disease (DDD). I wish there were more ways to treat it, but there are very few.
      It sounds like you are going through a very hard time right now. Digenerative disk diease is just that. Disease. You will get worse. Having degerative disks puts you at risk for so many different complications. Though I know your doctor is out of town, you need to get into a doctor right away and begin to up date your tests. You need MRIs with contrast and quickly. You have had DDD for so long that you are able to withstand alot of pain, so if someone like you is stopped dead in your tracks.... it is liky that something very urgent is going on. Even with your normal doctor out of the country you cannot wait. I think if you just make an appointment with your primary care physician they can begin the process of getting updated blood work and images. You simply cannot wait for your doctor to come back in town.
     I am so sorry you were treated in such a horrible manner at the Emergency Room. Though I wish with all my heart that I could say it is unusual... the sad fact is that it happens ALL the time. If it can be helped I would suggest staying away from ERs. In worst case cenarios maybe an urgent care... but more often than not chronic pain patients are rediculed, belittled, and ignored.
     I hope you are able to get atleast a little rest tonight. PLease, stay strong and know you are in our prayers here.
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/5/2010 6:26 PM (GMT -6)   
I get to see my PM Dr on the 13th. My (I belive they call him my cargiver or something like that the dr I have been dealing with since day on/takes care of my meds) Has giving me some muscle relaxers and some anixiety meds to help me sleep and so when it gets bad enough that I would think about going to the ER it will keep me a bit calmer. I hate all the new meds but at this point anything that helps.

Regular Member

Date Joined Apr 2010
Total Posts : 34
   Posted 7/5/2010 8:08 PM (GMT -6)   
Hi there stuck, I amso soory to hear about what you are going thru. Like other have said get in the see the dr. I know what you are going thru with the dr.s. I have been called a drug skeeker and worse. I also know what you are going thu as far as not finding out what is wong. I have been fighting this pain for over 27 years and god know how many Dr's I have seen most of them W/C. I did not start finding out about alot of my problem untill 2005, and just recently I found out I have Fibro,from getting my DR's reports.

So you are not alone at all. this has been the best place I have found that realy care and helps.((((((((((((((Stuck)))))))))

Veteran Member

Date Joined Jul 2008
Total Posts : 2268
   Posted 7/6/2010 9:28 PM (GMT -6)   
Can someone just take you to the doctor's office & let you wait until the partner agrees to do something for you? If you had a BS SCS, I'd say you probably need to talk to your rep for reprogramming your SCS, but I don't know whether they can do that for the Medtronic units are able to be reprogrammed. Maybe that's another thing you can check into.

Another option might be to see if the partner is just opposed to giving you more narcs. Maybe he would consider Lidoderm (lidocaine patches -- probably won't help much, but something is better than nothing) or something like Ketorolac (basically crazy strong version of Advil, by prescription only -- can't take it more than a few days or you'll get an ulcer, but it could maybe give you a break; they can also give it to you as an intramuscular injection -- brand name=Torodol). Those aren't the best options, but gosh I feel for you being in so much horrible pain. :(

best wishes,

PS -- and make sure they get you in to see your regular PM the first day he returns from his travels.
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