Neurostimuation for severe nerve damage in foot

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sue68
New Member


Date Joined Jul 2010
Total Posts : 1
   Posted 7/8/2010 1:37 PM (GMT -7)   
Hello,
My name is Sue & I have severe nerve damage in my foot due to an injury which happened over a year ago. Finally after all this time, they suggested the neurostimation to relieve some of my foot pain. Knowing nothing about the prosedure, I started researching the internet & ran across some scary things so now questioning it all together.. Also ran across this site & was hoping others that have had this procedure could give me the pro's/con's and other information that could be useful to me & help with my gitters..
 
Some of my concerns: Is there scarring? do you see the inplant in your skin? if laying on back, will it be painful or bothersome? is there pain during &/or after surgery? how long the surgery actually takes? am I awake during the surgery? do I stay over night in the hospital? is there things I will not be able to do with the implant(jogging, ect)? i also heard the leads can slip?? Im a nervous wreck after reading some of this stuff sad
 
Thanks in advance,
Sue

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/8/2010 3:50 PM (GMT -7)   
Hi Sue,

Welcome to HW. Honestly, I think that most of those are questions best left to your surgeon. I'm actually just finishing up a trial of a trigeminal nerve stimulator (in my face) & am having the permanent implant done tomorrow. Each surgeon does things differently, but for my trial, I was asleep when the temporary leads were placed (they used sedation, not general anesthesia, but I don't remember a thing). It was an outpatient procedure & the amount of time under anesthesia was minimal (probably the prep took longer than the actual electrode placement). The surgery for the actual internalization of the device (what i'm having done tomorrow), will be longer.

Obviously we are talking about different body parts, but for me placement of the temporary electrodes was minimally painful. I just felt like I had a bad headache for a couple of days post-op. Occasionally, I took an OTC pain reliever, but mostly, I was fine without taking anything.

As for visibility of the leads, the leads in my face are visible upon close inspection (aka you could find them if you were looking for them, but if not, you probably wouldn't notice them). Mostly, you can only see the tips of the leads, not the entire thing.

You will have restrictions during the trial period (mine was 7 days long, but I've heard that they can be anywhere from 3 - 10 days in length). For example, I am not allowed to shower or wash my hair (of course this is all during the hottest week of the summer so far). I'm also not allowed to exercise or lift anything heavy. I expect that I'll have a lifting restriction for a few weeks after surgery (as my battery will be implanted in my chest, although I'd expect that yours will probably be in your abdomen or butt), but in the long run, there isn't much restriction (except you can't have an MRI).

I really don't know anything about the leads slipping, although I guess that that can happen. They do get anchored in place, so I'd think that lead slippage is rare.

I hope you find my experiences helpful. Obviously there will be some differences, as your stimulator will be for a different area. Feel free to contact me with any other questions. I'll do what I can to help, but I'm certainly not an expert about stimulators. There are people on this forum who have had them for way longer than I have & probably know much more about them.

hugs,
Skeye

Post Edited (skeye) : 7/8/2010 4:53:22 PM (GMT-6)


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/8/2010 5:13 PM (GMT -7)   
Sue,
You'll get lots of advise and can read back on these neuro stems as there are a few postings on them,
and I would suggests doing a google search on them and then I wanted to wish you well in what you chose to
do, anytime surgery is involved makes it scary...
(((((((((((((((((((((((((((((Sue)))))))))))))))))))))))))))))))))))))))))))))
lots of healing hugz with hopes that you get a low pain day soon
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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