how was your day?

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butterflyrose
Regular Member


Date Joined Apr 2010
Total Posts : 34
   Posted 7/8/2010 6:50 PM (GMT -7)   
Hello every one, I hope you had a good day as much possable.I went to see my surgeon to day I my herina repair is ok. Just scar tissue and fluid build up. smilewinkgrin Then went to see my urologist and he is setting up my surgey with him for my inconntence problem.
 
Then we had lunch at the park. It was hot but a good day. I ws in pain but not as bad as I was doing for the last week.
 
So how was your day?
 
Butterflyrose 
C-5& C-6 disk herniated on to spinal cord, nerve damage both feet, L-4, L-5, S-1, C-4, C-5, Fibromyalgia, Ostero arthritis in both hands,bursitis in both hips,bone spurs in back and wrist, carpal tunnel both wrist,neurofibromatosis, tumors, bi-polar and more
 
norco 7.5, baclofen, for pain, can't take anti-imflamatory, and a ton more for other medical issues.
 
way to many surgery to list!!!


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/8/2010 7:39 PM (GMT -7)   
Hi Rose
Your lunch in the park sounds wonderful!!
 
I had a bad day, my headache is awful. I stayed in bed. You see I don't have any meds that help me so it's difficult to get thru my days most times. But I am trying to adopt a new outlook on life, that my life will have chronic pain in it and i need to stay positive and so the best i can each day, one day at a time. But today was a bad day. Also a phone call set me off in tears. It was regarding my work and it doesn't look like I will be able to return. This breaks my heart like you have no idea. My job as a pediatric nurse is my dream job. Whatever will be will be. I can't change it so I have to accept it. Doesn't mean I can't have those down days.
Tomorrow is a new day!!!
 
Thanks for asking Rose!!
 
Hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 7/8/2010 7:45 PM (GMT -7)   
rose thanks for asking.

I hada hard day as well. I think I was having withdrawls because i havent taken my usual doses of pain meds because I had not been in pain. So thta uis kind of weird!

my son had been acting up really bad so I kepy him home from school and so I had no time to myslef at all.


here is to a better tomorrow.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/8/2010 7:55 PM (GMT -7)   
Butterfly -

I'm glad you had a nice lunch and a relatively good day :)

I had a pretty good day, overall. I am on bedrest w/ my twins so each day is sort of melting into one another :) The highlights of my day -

*Sleeping in extra late
* Briefly escaped my house to go meet w/ my Pastor, just to talk about everything.... He was going to come here, but it was too hectic w/ the kids - plus I needed to get out and breathe some fresh air. It was only a 30 minute visit (about as long as I can last these days) but it was good and very encouraging...
*Got home and got a beautiful card in the mail today from Miss Suzane (tmjpain).... Thank you Suzane! You always brighten my day :) I loved it!
*My older boys (15 and 14) got home, after being gone for a week at church camp - so their hugs were wonderful; I missed them so much.
*Stopped in to chat here, for just about 5 minutes (the kids were climbing the walls around me); but was able to say hi to a few friends.
*Now - gearing up for a night of mindless TV. I DVR all my favorite programs from the last 24 hours and watch them at night (w/out commercials), when I can't sleep (mostly due to pain and alien babies in me).... If there was a degree in pop culture, TV trivia and so forth - I have definitely earned it by now. I know, I know - I'm a dork!!

Hope you are all doing well tonight - Take good care, everyone...
--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/8/2010 8:02 PM (GMT -7)   
Suzane - I'm so sorry, friend, that you had a bad day :( Your post almost brought me to tears, because I feel your pain. I'm going to write you a longer e-mail later.... for now, though, I'm praying for you and hope you can sleep peacefully tonight. Your card made me cry today, too! But happy tears. I really appreciate your thoughts and encouragement. I admire you, Suzane, that despite suffering day-after-day, you still find time and the effort to reach out to others. It shows your heart and your character. There are several things I think about doing and have the heart to do - but just don't get around to doing it. Point is - the cards I've received from you mean so very much to me. Thank you for thinking of me...

Merrygirl - Yep, here's to a better tomorrow :) I'm sorry you had a rough, hectic day. Did you take your meds and feel better? How old is your son? Ahhhh, the ups and downs of parenting. I'm in the midst of it - so I get it completely. The boys are relatively good kids - but there are still issues that make me literally want to pull my hair out. Anyway, hang in there - and like you said - tomorrow's another day! (I tell myself this on a DAILY basis, LOL) :)

Love, Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/8/2010 10:23 PM (GMT -7)   
How was MY day? Thanks for asking! My greeting to my husband when he came through the door tonight was "Welcome to Stalag 13!" Daughter was over with the 'almost 4 year old' and the 'almost 1 year old'. The older one decided to go bonkers today and did nothing but yell, throw tantrums and toys, and make life miserable. I love that little guy so much and it breaks my heart when he gets out of control like this at times. His mom is so patient while being firm but he's just a very high energy kid. Luckily the baby brother is the opposite. Because of having to wrestle the older brother and also try and keep the LARGE puppy calmed down and from going over the indoor fence, my pain level isn't responding to heavy meds. Am on day 2 of a headache and the temperature here in Western Washington was over 103* today. It was just 3 days ago our highs were about 68*.

OK, that's enough whining and complaining for me. Who's next?...lol
Chutz
If you're going through hell, keep going.

Winston Churchill

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 7/9/2010 2:10 AM (GMT -7)   
I hear ya the heat!!!!I live a few minutes from hood canal and the temps have been brutal. Today I just cried over my flowers. I had babied them along and the bugonias(sp?)where so beautiful,I had red and white and yellow and peach not to mention pots of impatians and petunias, all wilted beyond saving. And its my birthday dang it and I cant sleep cause its too hot. And Im going to have 50 year old bags under my eyes in the morning waaaaaa lol. We decided to put the AC downstairs since we spend the most time there but its hot then a you know what upstairs. And of course my hubby has decided he wants to sleep on the sofa where its cool down there cause I am up all hours of the night. So thats how my night is going so far. But thanks for asking I havent got to meet you so welcome to HW. I hope you stay awhile. Everyone is so nice here and we really are just one great big family. So sorry to hear your having a bad night Suzane. Your such a doll and I wish I could take your pain away. And Chutz, its tough when a kid has a bad day for everyone. I hope he has a better day next time. Tina, I bet you could win alot if you ever got on a trivia show!! You never know??? lol. Merrygirl so sorry you are having a bad day but ya know you could be right. I have had a low pain day before and took alot less meds and ended feeling bad.
Karen
 
Mom of one gramma to 4 lover to One
 
 
Fibromyalgia,IBS,Stroke x3,endometriosis,Diabetes type 2,neuropathic pain,high blood pressure,severe nausea,atrophy,chronic pain,over 30 surgeries,torn hip joint,hypoglycymic
 
 
 
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/9/2010 8:25 AM (GMT -7)   
 
 
  Dear Butterfly,
 
     I am glad you are healing on schedual from you surgery. That has to feel good to finally have it done and healed. I wish  you could have taken me with you on your picnic. That is my favorite. Picking flowers and picnics with my bumblebees!
 
~~> So how was your day?
 
     Are you sure you wanna know? It was a hard day. I have been having a hard time for a while now. It is a tremendous struggle to get through my days.
 
I hope you have a great day today, more so hope you can find a few moments to rest.
 
*hugg*
  dani
 
 
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/9/2010 8:38 AM (GMT -7)   
Hi Everyone,

I've just come off a week of feeling pretty good overall. Saw my doctor yesterday, tweaked my meds a bit (upping the dose of Cesamet), but overall, things seem to be working for me in keeping my pain around a 3-4. I've lost a few more pounds, so I'm now at 38 pounds lost since October last year. I have 15 to go to hit my target of 130lbs (I'm 5'2"). My doctor noted my blood sugars have been a little bit high for the last few months, but said we'll just keep an eye on it and not do anything at the moment. She also said my cholesteral is a bit high, but again, we'll just watch it.

So, overall, it was a good visit. We've also confirmed the Orthopedic surgeon now has all the paperwork necessary to set up an appointment so we'll see what happens. This surgeon apparently triages his own cases, picking the ones he wants to work on in the order he wants. I have no idea how long I might have to wait to see him, but at least he has my info now for sure!!

My hubby and I are flying to Winnipeg, Manitoba this afternoon (from Calgary) for the wedding of two dear friends tomorrow. I'm looking forward to the fun, but not the travel so much. At least I have lots of room in the seats...we booked the emergency exit for my hubby so he can have some leg room (he's 6'5"). It's supposed to be quite hot this weekend where we'll be...I may have to put antiperspirant on my entire body like lotion, so I don't melt!

Anyways, I hope everyone here has a great weekend, with as little pain as possible. I say a prayer over this whole forum every night and every morning...so I really hope everyone is doing as well as possible.

hugs to all,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


butterflyrose
Regular Member


Date Joined Apr 2010
Total Posts : 34
   Posted 7/9/2010 8:40 AM (GMT -7)   
(((((((((( everyone))))))))) I am sorry you had a bad day. I want to thank you for sharing with me. I feel like I belong here. thank you ll so much for the support. I am so glad I found this place. I found his one nite when my pain level was over a 10 and couldn't sleep, crying and needing to find a place that understood what I was feeling, not just pain wise but emontaly too. Thank you.

butterflyrose
C-5& C-6 disk herniated on to spinal cord, nerve damage both feet, L-4, L-5, S-1, C-4, C-5, Fibromyalgia, Ostero arthritis in both hands,bursitis in both hips,bone spurs in back and wrist, carpal tunnel both wrist,neurofibromatosis, tumors, bi-polar and more
 
norco 7.5, baclofen, for pain, can't take anti-imflamatory, and a ton more for other medical issues.
 
way to many surgery to list!!!


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/9/2010 9:39 AM (GMT -7)   
Hi Butterflyrose, I am glad to hear that you are doing a little better and I am very happy to hear that you had a nice day yesterday! I love hearing good news!

Hi Suzanne, I am so sorry you had another real bad one! I pray that soon they will find something that helps with ANY of your suffering. Your are a very special lady and my thoughts are with you!

Hi Merrygirl, I don't think we have really met, so nice to meet you and sorry you had a bad day also! Children are always a gift, but you feel like sometimes they are one of those gifts that should have come with detailed instructions! Hang in there!

Hi Tina, hope you are having a LPD! Take care of you!

Hi Chutz, glad you had a visit....but sorry it was kind of stressful and caused pain! The heat lately is out of control here too....and the humidity...yuck! Hope you get to feeling better soon!

Hi Karen, I don't think we have met either, so nice to talk to you! Sorry about your flowers!! That stinks! Take care!

Hi Dani, sweet Ms. Dani, I am so sorry to hear that things have been rough on you lately or I guess rougher on you is more correct! I think of you often and my prayers and well wishes are coming your way! Take care of you, Hun!

Hi Pam, glad to hear that you are having some ok days and congrats on the weight! I am just shocked at the weight I have gained! I don't even eat in a way that I should be gaining weight! I should be loosing....and that really stinks when you go without the yummy stuff and still get fat!!! Darn it! I hope you enjoy the wedding and sending low pain wishes your way!

Butterflyrose....thanks for posting this, and sorry I just kind of jumped in and did some quick hellos! Unfortunately....I am miserable and have not been on to talk much here lately! Still waiting to see the rheumy, still on steroids, increased my pain meds and still feel awful! In bed more then I am out of bed! Anyway.....take care!

You are all in my thoughts.....just not feeling much like talking right now!

Take care of you.....all of you!
Beckey
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