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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 9:46 AM (GMT -7)   
Why is it that nothing helps my pain????????????????????
I have been so sad for two days now. I had been doing better in accepting my chronic pain in my life and I feel like I have fallen off the wagon. I don't know that I will ever be able to understand that in this day and age nothing out there helps me. I am sad and crying. To me it doesn't make sense that I have had this same exact pain, same place for ten years. Why Lord?? Please give me strength to carry on. If you are the praying kind, would you mind saying a prayer for me, please. It's a difficult thing to accept chronic pain in your life, right my friends!!!!! Some of us struggle every day!!!
I have my head double packed in ice. I had to cancel my craniosacral treatment this morning. Not a great sleep last night as I just had too much pain with nausea. I really need some release from this pain, just a little is all i hope for.
 
Take care my sweet friends. I think of you often.
 
Love


   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           

Post Edited (tmjpain) : 7/9/2010 4:22:28 PM (GMT-6)


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/9/2010 10:03 AM (GMT -7)   
Oh Suzane, I just want to cry for you! Of course you have my prayers! I think about you all the time.....and knowing how awful I feel, and that I am getting some relief.... and you are not getting any.....it hurts my heart! Sending you prayers and hugs!

Take care of you and hang in there, hun!

Love,
Beckey

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 10:32 AM (GMT -7)   
Thank you Beckey. Your support means the world to me. I pray that tomorrow can be a better day and that i can be more accepting and be able to bear my cross in a more honourable way.
But please don\t feel bad that you are getting relief and i am not. I am thrilled that you can have some better days.

hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/9/2010 12:05 PM (GMT -7)   
Oh Suzane , thats so unfair , I feel so bad for you . How frusrating that is my god ! I just hope somehow , someway there will be relief for you my friend , your in my thoughts . Mikel

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 1:32 PM (GMT -7)   
Thanks Mikel. I can only pray that tomorrow will be better.

hugs all
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


butterflyrose
Regular Member


Date Joined Apr 2010
Total Posts : 34
   Posted 7/9/2010 1:56 PM (GMT -7)   
My prayerd are with you and youe will be my thoughts. Ihope you get better (((((((((suzane))))))))))))))
C-5& C-6 disk herniated on to spinal cord, nerve damage both feet, L-4, L-5, S-1, C-4, C-5, Fibromyalgia, Ostero arthritis in both hands,bursitis in both hips,bone spurs in back and wrist, carpal tunnel both wrist,neurofibromatosis, tumors, bi-polar and more
 
norco 7.5, baclofen, for pain, can't take anti-imflamatory, and a ton more for other medical issues.
 
way to many surgery to list!!!


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 7/9/2010 2:30 PM (GMT -7)   
Suz, I was just scanning through the posts and saw yours. SO sorry that your hurting so bad! I stopped for a minute and prayed for you before writing back! Wish there was something I could do or say to make you feel better! I feel so helpless!
We just have to keep believing that some day they (whoever they are!) will find a cure for us!! If not than at least something that works better than the stuff they are giving us now!
Big Gigungus Hugs!!!
Your Buddy,
Pete
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/9/2010 3:17 PM (GMT -7)   
Suzane,

So sorry you are having a bad day. I've spent many moments, too, over the years - wondering "why?". I still don't know the answer! I admire that you are trying to readjust your thinking and just moving towards acceptance of living with CP. That being said, there are still going to be bad days, I'm afraid... days were it just seems so unfair, the frustration gets to you or whatever. At least that's how it is for me. I'll go for many days, sometimes, and then - BOOM. I'll have a bad day or two where I'm angry that I have so many health issues and pain. Well, actually - I just get more sad and depressed. It's just so depressing to have constant, unrelenting pain and be so limited in what we do in life.

Suzane, I know you haven't had great success w/ most narcotic meds, right? But a couple of questions - do you get ANY relief from IV pain medications? I've had meningitis twice (I'm a mess, and have had everything known to man, I swear)... and that is always what I hold as my "10" on the pain scale (with migraine pain, being right underneath there). Anyway, it takes a lot of drugs to dull my pain - but usually IV Dilaudid, with a little something for nausea and some IV fluids, will bring my pain levels down. It's not long-lasting, or a permanent solution by any means (especially when you have 24/7 pain).... but at least you'd get some relief. Have you ever tried this, when you are at your worst?

I know you've tried just about everything...so I know I'm probably grasping at straws. I just keep thinking there's gotta be something out there that can help you - even if it's a temporary help.

You are in my daily prayers, Suzane. Always. I'll pray that you'll get some sleep tonight, that you'll have a decrease in pain and nausea and that tomorrow is a much better day for you. But keep reaching out and let us know how you are doing.

Love, Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

Pain Issues: MANY; multiple back issues (cervical/thoracic); migraines; severe carpal tunnel syndrome; widespread joint/muscle pain; nerve pain in hands/arms/feet. Treatments - multiple meds; injections; nerve blocks; have had intrathecal pain pump trial (successful, w/ Dilaudid); eventually will have it permanently implanted.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 3:20 PM (GMT -7)   
Thank you so much for your replies Butterfly and Petey. It is important to me. I can't wait to go to sleep cause it means the day is done and i pray that tomorrow will be better. Hubby will be home in two hours, yeah for that!!! i wish some of you lived closer to me. I wish that so bad. You have all become so important to me. I think of you all very often and speak of you all to my good friends.
If any of you would like to meet in the chat room just holler, OK!!
 
Hugs
 
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 4:18 PM (GMT -7)   
Oh my sweet Tina, you hit it on the button. I had been handling my pain better and poof, it's all gone. I've been in tears on/off all day and just can't get past it. My head is killing me and the only thing that helps is freeze it with ice.
Go to the hosp. for IV meds???? it's a joke, i've tried going when i was a disaster and they send you home, tell me you have already been on everything, blah, blah blah. But yeah i have tried it all and nothing works. That's why i am weaning off of my oxycodone, which I am almost done. My body needs to get back to normal, this is what the doc tells me, get off that med. So there is nothing for me.
That's why I have decided to accept a new life with chronic pain (well try anyways) and like you said Tina and my dr. told me too, there are going to be bad days. But s%&t man, this is sooooooooooooooooooooooooooooooooo hard. Yeah no one said this would be easy.
Doesn't help that I can't drive, I am stuck here in my house. I want to play in my craft room so bad but I can't do it. I need to organize it and I can't. I want to make cards, scrapbook, I have so much nice stuff to scrapbook with but no motivation, no energy, too much pain, I am always holding my head, I want to do my beads, I want to make bracelets for everyone I know here but i can't do it. I try to think of Dani, she suffers so badly and she does her beads. Why can't I?????

Oh well enough whining.

Tina i love you tons, thanks for your never ending support, prayers and love. Can you mail me a pic of yourself so i can look at it. Take care of your sweet baby girls.

Hugs my friends
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/9/2010 4:32 PM (GMT -7)   
Hey Suzane,

I am so sorry to hear that you are still not getting any kind of relief. It makes me very sad because I know how horrible head pain is. I think about you often and wonder if maybe today is the day you will feel a little better. I want you to know that you are in my thoughts and prayers everyday! You are such a strong and amazing woman, no matter how bad you feel you still come here and support all of us. I feel in my heart that they will find something that will start working for you, I just hope it's sooner rather than later. Please keep us posted and I will send extra prayers for you in the days to come. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/9/2010 4:47 PM (GMT -7)   
Thanks Shannon, you make me cry. Your support means so much to me. I just can't do it today.
Please let it be tomorrow that I am stronger and can be happier.

Shannon is it you that lives in Calgary. I am sorry I can't remember, I have lost so much memory.

Hope you have a great weekend Shannon.

hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/9/2010 5:11 PM (GMT -7)   
 
 
   Dear Suzane,
 
     Good evening *warm hugg* It is always good to hear from you. I had often wondered how you were doing. Goodness, I am so sorry to hear that the pain is wearing you down. At times I feel life is an endless cycle and it does feel hopeless at times. But, even in your darkest moments you are here. Reaching out to others and trying to pull yourself out of the gloom. There is something to be said for that. It just shows how very strong you are. *hugg* If you can, try to rest a little bit. Please, know you are in our prayers here.
 
*warm hugg*
     dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/9/2010 7:15 PM (GMT -7)   
Suzane,
Please know that we all care, and will says a prayer for you tonight in hopes that you do get a low pain day soon...
Maybe try going to bed early tonight...
((((((((((((((((((((((((((((((((((((((((Suzane))))))))))))))))))))))))))))))))))))))))))))
Hopefully soon you'll get that low pain day...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/9/2010 9:19 PM (GMT -7)   
Suzane,

Hi... been thinking of you! I've slept all day off/on, so I think tonight is going to be a long night. Just a note to let you know I hope tomorrow is a better day for you. I really do.

I miss doing my crafts, too. I have a zillion scrapbook supplies, too, and used to work on things every day. Haven't done that in a 18 months or better because of my hands. Your cards that you make are beautiful, Suzane.

Anyway, I hope you can sleep tonight... and I hope you have a better day tomorrow. I'll check in w/ you tomorrow.

Love, Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

Pain Issues: MANY; multiple back issues (cervical/thoracic); migraines; severe carpal tunnel syndrome; widespread joint/muscle pain; nerve pain in hands/arms/feet. Treatments - multiple meds; injections; nerve blocks; have had intrathecal pain pump trial (successful, w/ Dilaudid); eventually will have it permanently implanted.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/10/2010 6:12 PM (GMT -7)   
Hi Suzanne
 
I hope you're feeling at least a bit better today.  It makes me cry thinking how bad your head is hurting.  There has to be some kind of combination that they could give you that would give you a bit of relief at least sad   It's so sad that you hurt so bad.  I thank God that I don't have headaches as  my form of pain.  My prayers are with you sweet friend.  Maybe you could get a friend or someone to help you get your craftroom organized so that you can do something to try and get your mind off of the pain at least a little.
 
love and hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/11/2010 3:55 PM (GMT -7)   
Suzanne,

I understand what you are going through. about twenty years ago I was laid up in bed in so much pain from my back and right leg and no one could tell me the source of my pain exactly. None of the tests, scans, mris showed the exact pin point cause and I SUFFERED for four years like that. Nothing worked. I finally went into surgery to see if it would help and when I was opened up they found the cause and repaired what was wrong. It took me a year in rehab to get out of pain after that.

Now I suffer from fibromyalgia and take percocet every four hours, but for the most part it helps. I am telling you this story because I believe they will find something to work on you to ease your pain. Have faith and keep on praying and ask people to pray for you too. Don't be shy about that. And I have prayed for you and will continue to keep you in my prayers as well. You are a strong lady with many many people who love you and care so deeply about you. Hang in there and we will be here for you. Keep venting and often. That's what we are here for. Don't lose hope honey. You are not abandoned at all. The Lord is with you and so are we.

God bless you.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 7/11/2010 8:03 PM (GMT -7)   
Dear Linda thank you for your beautiful and touching response. Believe me I do tons of praying, every day and there are many praying for me. My name is said at mass every weekend, priests, friends,,, family , even those that don't know me and a bishop who is my cousing is praying for me so i can feel that all working in me. God is always at my side.

Thank you for your support and helping me thru some difficult days. No one said this would be easy eh!!
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since 2000.
 
           

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