Darned if I do, darned if I don't!

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Red_34
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Date Joined Apr 2004
Total Posts : 23417
   Posted 7/13/2010 5:25 AM (GMT -7)   
I finally got a handle on my pain and I am managing it with Celebrex, Tylonel Arthritis and weekly visits to the chiropractor.  I have Ulcerative Colitis, arthritis, sacroiilitis and scoliosis.  Everything was going good!  I mean really good!  Then I started flaring with my Uc so of course I had to stop taking Celebrex because it makes my large intestine bleed more than normal while in a flare.  Now I can hardly move!  The arthritis pain in my hands are back especially my left index finger (boy does it hurt!), my SI joint makes me feel like an old lady at 40 and my upper back feels like someone has me in a pretzel.
 
I feel like I just can't win anymore!  I am getting so fed up with all this...I take something that makes my whole body feel better but yet it causes me problems when I flare with Uc.  I don't take the med that interfers with my Uc and my whole body rebels gggrrrr.
 
Sorry just had to vent  mad
 @--->--SHERRY--<---@
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(6 daily)/6mp(50-100mgs)/Bentyl-Prilosec/Biotin/Forvia/Pro-Bio~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA (hands and spine)-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis
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Chartreux
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Date Joined Aug 2006
Total Posts : 9622
   Posted 7/13/2010 6:14 AM (GMT -7)   
Sherry please don't apologize for needing to vent, we all have to vent from time to time...
Can a warm moist heating pad or ice pack help with the pain, have you tried mediation or relaxation tech...
Hopefully this UC spell will clear up for you soon so you can start taking the celebrex again...
can you use icey/hot packs or aspercream...sometimes a cream can help...
sending you soft healing hugz and prayers...
((((((((((((((((((((((((((((((((((Sherry))))))))))))))))))))))))))))
hope your feeling better soon...

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/13/2010 6:57 AM (GMT -7)   
Hi Sherry,

I can sure empathize with you...it seems like you just can't win when you deal with chronic pain. You try the "cure" and then end up aggravating something else, and feeling worse than when you started. I just had an increase in one of my meds and I'm dealing with the side effects today...the major one being nausea.

I hope you're able to get over this flare quickly and back into the routine that was working for you. Feel better soon!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 7/13/2010 9:55 AM (GMT -7)   
Red,
Oh, how I understand. I took celebrex a couple of years ago and like you I found it helped so much of my overall body pain but then my BP started increasing significantly so I had to stop. BP is back in a nice normal range, but no more celebrex.

I hope your UC flare calms soon so you can resume. Sadly it's such a nice drug but has so many side effects (well, I guess they all do!).

Hugs,

PaLady

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23417
   Posted 7/13/2010 6:25 PM (GMT -7)   
Thanks for letting me vent!
 @--->--SHERRY--<---@
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(6 daily)/6mp(50-100mgs)/Bentyl-Prilosec/Biotin/Forvia/Pro-Bio~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA (hands and spine)-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 7/13/2010 9:08 PM (GMT -7)   
(((((((((Red)))))))))))). I've always been sensitive to NSAIDs, but I can't even begin to imagine how rough it must be for you with UC! It's so unfair that the medications you need to control your pain can end up causing you even more problems!

Hopefully this flare passes soon, so that you can get back to feeling better! My thoughts & prayers are with you!

hugs,
Skeye

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23417
   Posted 7/15/2010 6:19 AM (GMT -7)   
I couldn't take it anymore. My hands were starting to turn into painful claws because I stopped taking Celebrex. I could barely do anything so I started back on Celebrex. Already I can feel this drug doing it's magic. My hands are functioning again and the pain is receding in my back and hips. So far so good with my UC so maybe the few day reprieve allowed my colon to heal a bit. Keep your fingers crossed for me!

Thanks for being here for me and letting me vent!
 @--->--SHERRY--<---@
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(6 daily)/6mp(50-100mgs)/Bentyl-Prilosec/Biotin/Forvia/Pro-Bio~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA (hands and spine)-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 7/15/2010 6:26 AM (GMT -7)   
Sherry,
Sorry you're having such a bad time of things. I can definitely relate right now. :(

Have you ever tried Voltaren gel? It's worked quite well for me (its a topical NSAID). The reps have been making the rounds with plenty of samples (at least in my area & the surrounding states) so maybe you could get a sample.

I have problems with NSAID's for a different reason. The topical stuff is not ideal -- it does still cause some problems -- but it does seem to not bring on as bad of side effects as oral NSAID's. Just a thought. If you've already tried it, I'm so sorry. I really feel for you.

feel better,
frances

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/15/2010 6:53 AM (GMT -7)   
Hey Red , I know just how you feel , you solve one pboblem and up comes another , or a complication to make it difficult , its so darn frustrating . I'm dealing with it too , please just hang in and try to stay positive , I know its hard beleive me but we're all supporting you and we all care .I'm in the same boat , but hang on Red tomorrow will be a brighter day . Mikel

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23417
   Posted 7/15/2010 7:00 AM (GMT -7)   
Frances, yes I tried Voltaren gel. And unfortunately, it doesn't even begin to touch the pain and swelling in my hands/fingers :( But thank you for the suggestion.

Brighter days Mikel? It's supposed to rain tomorrow! lol Just kidding....thank you! :)
 @--->--SHERRY--<---@
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(6 daily)/6mp(50-100mgs)/Bentyl-Prilosec/Biotin/Forvia/Pro-Bio~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA (hands and spine)-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/15/2010 7:15 AM (GMT -7)   
Atta girl Sherry ! Keep your sense of humor ! A wise person said '' If I can laugh at it , then I can deal with it ''. GGod job !
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