myelogram headache

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hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 7/14/2010 10:04 PM (GMT -6)   
HOLY COW  
 
I had my myelogram last week, and I am just now recovering!!! I had the procedure done on Tuesday. The procedure itself was painful, but heck whats a little more pain? lol  I stayed in recovery for four hours and was sent home with a band-aid and told to lay down the rest of the day, and return to my normal activities the next day.  I had a slight headache when I got home but did as I was told and was completely horizontal the rest of the day. Went to work the next day and the headache got slowly worse, but three I was back in bed with a full headache. The next morning I felt fine and went to work, well.............buy the time I drove to work (10 min drive) i could not even stand up . I laid on my office floor and called the Dr. She suggested I go home (duh) and lay horizontal for 48 hours and to call if it did not change. OMG I have never in my life had so much pain. I called someone to pick me up, on the way the Dr. called me and said she had arranged a blood patch for the next day. I threw up several times on the way home, and at home. Could not open my eyes or even move my head. I can't even explain the pain. Wen for the blood patch the next day at 11 am. Wow did that help. 80 percent of the pain went away immediately. Today is Wednesday and I am feeling normal again.
 
Saw Dr. for results today. He wants to do more surgery. OMG!!!!!! I thought I would never have to go Through that again.  Another herniated disc, and bilateral narrowing. (stenosis)
Have to find another opinion soon. Compared it to my other CT before first fusion and they have change dramatically.
 
To top it off my foot doctor called with MRI results of my foot and I have two stress fractures.  Great just great. So I have a walking cast on my foot. 
 
This is all getting very very old. I seem to gt every complication form every surgery or procedure that I have.  Really I can only laugh about it all or I would go crazy!!! 
 
Any way, back to myelogram.  If your Dr. suggest it only have it if you really really need it for a diagnosis.
 
Thanks for the vent.
Hope everyone is well, I have not been here for a while, but when it hits it sure is nice to be able to come here where people understand!!
 
 
Diagnosed crohns Disease 07, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals, Meds lyrica, vicodine, amrix.
Spinal Fusion 3/2010


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/15/2010 12:19 AM (GMT -6)   
 
 
   Dear Hydrangea,
 
     It is so good to hear from you *hugg* I have often wondered how you were doing. Though gosh, I would have never guessed you would have been going through so much!!! Between the foot, the head and the spine you must be down right exhausted! I just dont know how you are able to have so much going on in the background all the while keep up with life, job... goodness, your a strong woman. Very strong. I do hope you are able to get into the surgeon quickly and more so, get some much needed relief! I am so sorry you have so much on your plate right now. Please, know you are in our prayers and stay strong!
*hugg*
  dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/15/2010 12:37 PM (GMT -6)   
Hello Hydrangea,

I have been thinking about you a lot lately, so as happy as I am to see you post, I'm sorry you've been having so many problems. I hope the headaches are completely gone now and I'm glad you got the foot pain figured out (but really...a cast? Does this ever end for you?!).

Keeping you in my prayers...hope the doctors can come up with solutions for you so you can really get down to the business of getting better. Hang in there...you've got lots of support from all of us!

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2856
   Posted 7/15/2010 4:26 PM (GMT -6)   
Hydrangea,

I'm glad that you are feeling better after the blood patch. I had a spinal tap last summer & I was deathly afraid of getting a spinal headache, as I've heard that they are miserable.

I'm sorry to hear about your foot & that you now need more surgery. Can you get a second opinion before scheduling the surgery just to make sure that it is absolutely necessary, as you had so many post-op problems with your last surgery?

Hang in there. Everything will work out sooner or later.

hugs,
Skeye

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1711
   Posted 7/15/2010 5:54 PM (GMT -6)   
Oh Honey,

I understand about the myelogram headache. I had one right before scheduled surgery on my back and I couldnt stop throwing up in the hospital. Signed myself out of the hospital and it took me a solid week to get over it. I stayed on my back in a dark room with the door closed. Wa s the worst headache I ever had in my life. Said I would never have one again. Took percocet every four hours round the clock and any smells made it worse, like simple coffee brewing. Well I went to a new dr and had to have the myleogram again, but this time was premedicated and did not get ill after that one. So keep that in mind if you ever need another one.

I am praying for you. Nobody should have to endure that awful reaction to a test. I think they are barbaric. I hope you resolve your back issues. I, too, had spinal stenosis and a bulging disc. I had the surgery and now thirty years later I function pretty well. Once in a while it all flares up on me with sciatica again, but it is rare, thank God.

Only good things I wish for you.

Bless you, Hydrangea


Lindaloo

PS forgive my ignorance, but what is a blood patch?? Anyone??
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 7/16/2010 7:15 PM (GMT -6)   
Thanks everyone....Such a great community!!!Rather than another surgery we are going to try a transforminal injection. Still have to do research on it. The surgeon said that the disc above my fusion has severe stenosis and a mild nerve impingement. When I asked why it did not show up BEFORE my first surgery, He said that the MRI did not show any stenosis, and no nerve impingement. Although my PM doctor did recommend a fusion of both levels. I will be going back to that same PM doctor for the injections so I will discuss it will him. I also want to review all my scans before surgery up till now.
Lindaloo.... a blood patch is a procedure that they take your own blood and inject it into the spinal canal. The blood clots the area that is leaking, as well as adds substance to the spinal fluid so that the head ache stops. The headache is from leaking spinal fluid, and when you stand up gravity takes place and it empties out of the area that protects the brain.

I can really only laugh about everything or I really would not make it. I sure was embarrassed when I walked into work with the cast, after I left work due to the headache. My fellow employees want to put me in a bubble.


How is everyone doing???
Hydrangea
Diagnosed crohns Disease 07, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals, Meds lyrica, vicodine, amrix.
Spinal Fusion 3/2010


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11419
   Posted 7/17/2010 1:29 AM (GMT -6)   
Hi Hydrangea, I am so sorry to hear you had the terrible post-myelo headache, they are rough. Your dr should have had the blood patch ordered for you the minute you notified them of the headache rather than having to wait it out-that was wrong on their part. So your dr says the level above your surgery was fine prior to surgery, I hope you will get copies of your reports and films and let your PM dr take a look to see what he says. All too often surgeons will leave a level untouched even with some finding on testing, usually they will say not bad enough to do surgery on, then in a year or less the person has a 2nd surgery recommended, usually, like you, a fusion. I hope you will let us know what your PM dr says after reviewing your films. I don't see a PM dr saying a two level fusion fusion is necessary on a perfect good level either. Severe stenosis does not usually form that quickly either and should have been picked up on your MRI.

I do hope the injection gives you relief and works very well for you.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3307
   Posted 7/18/2010 1:09 AM (GMT -6)   
Hi Hydrangea

I do feel for you the spinal headache is the absolute worst! I had the pleasure of having one way back in my early military days, ( it was an experience I will never forget!!!) but mine was from a spinal tap ( Lumbar puncture) I was having severe head aches, so the Doctor wanted to test my spinal fluid, so they did the spinal tap, and after they did it, they had me lay down flat and I was suppose to be that way for 8 hours well I had to go to the bathroom, and the nurse told me to just get up and go, which I did, I was young and I didn't know, and nobody told me, well your not suppose to bare down and when your doing your duty right after a spinal tap, but I did not know that, I found that out the hard way!!!! and I started seeing stars and got really really sick, I thought my eyes and forehead was going to fold up into each other! Oh it hurt so bad! I yelled out and I tried to stand up and ended up splattered on the floor! The military nurse got chewed out really bad by the Doctor and I ended up staying in the infirmary for 3 more days! They did not use a blood patch back then, in 1971 as I was stationed at Ching Chong Kang Air Base in Taiwan.
I can definitely empathize with you Hydrangea! I do hope you are feeling better now!

White Beard

flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 7/18/2010 11:27 PM (GMT -6)   
Hi Hydrangea!
Well, I had back surgery 1997...long story, but alot of hereditary back problems in my family. My Mom had a fusion in 1984 back when they were birdcaging hip bone fragments. She had to be off her back for 6 months...ufta! Anyway, My father worked on MRI machines for a living and other medical testing equipment. He said to me once (before he pasted away) ....DON"T ever get a Myleogram!!! He said it's an old testing machine that many hospitals are still paying for and often will suggest the test to help insurance companys pay for the darn the thing!!! Older Dr.'s will ask for this test sometimes, but really you...CAN deny it! I always do! They can really tell more from a MRI anyways.
I had a spinal tap once after my back surgery and finally asked them to stop because the pain was so bad!! I just ask to be put out if I need one...I think it's only humane!!!!
Heather
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11419
   Posted 7/19/2010 10:47 AM (GMT -6)   
Myelograms shows the nerves and nerves roots where an MRI does not.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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