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Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/21/2010 2:21 PM (GMT -7)   
HELLO MY DEAR FAMILY AND FRIENDS.
 
I HOPE YOU DON'T MIND IF I TYPE ALL IN CAPITALS.  I AM HAVING A BIT OF A TROUBLE TYPING LATELY.  I AM MISSPELLING WORDS AND GETTING THE CAPITALS ALL WRONG.  THIS IS JUST EASIER FOR ME, SO PLEASE PARDON ME.
 
WELL I HAD MY PORT PUT IN ON MONDAY AND I WENT INTO THE HOSPTIAL AT 11 AND DIDNT GET INTO THE OPERATION UNTIL AFTER 4.  I WAS TOLD HE HAD SOME PROBLEMS WITH THE CASES BEFORE ME, SO WHEN I SAW HIM BEFORE MY SURGERY I SAID, DONT WORRY DOC, THIS WILL BE THE EASIER CASE YET.  HE TOLD ME AFTER THE SURGERY THAT HE APPRECIATED ME SAYING THAT AND THAT IS WAS IN FACT, THE EASIEST CASE OF THE DAY.  SO ALL WENT SMOOTHLY.  I WAS VERY HAPPY.
 
TUESDAY I WENT TO CHEMO AND THEY ACCESSED THE PORT WITH NO PROBLEMS AND I WENT THROUGH CHEMO SMOOTHLY --NO REACTION THANK GOD, BUT I HAD A WICKED HEADACHE, BUT I DO BELIEVE THAT IS FROM THE STERIODS THAT I HAVE TO TAKE THE DAY BEFORE AND THE DAY OF CHEMO.  I STILL GET THE SHARP STOMACH PAINS TOO BUT NO NAUSEA SO FAR TO SPEAK OF SO THAT IS GOOD TOO.  BUT I SLEEP AN AWFUL LOT.  SEEMS LIKE THE CHEMO REALLY KNOCKS THE HECK OUT OF ME.  MY LOWER LEGS REALLY HURT, BUT THE PERCOCET HELPS SOMEWHAT.
 
I GOT A PHONE CALL FROM MY GRANDDAUGHTER, SIX YEARS OLD.  SHE SCREAMED, GRANDMA, GRANDMA, I LOST MY FIRST TOOTH!!  THEN A FIVE MINUTE CONVERSATION about HOW IT CAME OUT AND HOW VERY EXCITED SHE WAS.  SO I HAD TO WAKE UP LONG ENOUGH TO MAKE HER A TOOTH FAIRY PILLOW ON MY SEWING MACHINE.  I PUT AN EMBROIDERED FAIRY AND HER NAME ON IT AND A LITTLE SNAPPED POCKET ON IT FOR THE TOOTH.  THEN I PUT SOME RIBBONS ON IT.  IT IS BEIGE AND BERRY COLOR.  IT TOOK ALL THE STRENGTH I HAD, BUT YOUR FIRST TOOTH ONLY COMES OUT ONCE!!! HAD TO DO IT!!!
 
SO FOR NOW I AM DOING WELL.  JUST WANTED TO UPDATE YOU ALL AND LET YOU KNOW HOW I AM.  I AM SO BLESSED TO HAVE YOU IN MY LIFE WITH ALL YOUR PRAYERS.  THANK YOU SO VERY MUCH FOR THEM.  I COULDNT BE HAPPIER FOR ALL OF YOU TO BE WITH ME ON THIS JOURNEY.  THANKS FOR BEING SO INTERESTED TOO.  THAT MEANS A LOT TO ME AS WELL.
 
GOD BLESS ALL OF YOU AND KEEP IN TOUCH.  I MEAN IT, I LOVE TO HEAR FROM ALL OF YOU.
 
LINDALOO

Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/21/2010 2:37 PM (GMT -7)   
Hi Linda

I am glad that getting your port went well for you! I am certain that it makes receiving the Chemo a whole heck of allot easier! Chemo tends to knock the socks off of a person, so get all the rest you can! I am happy for you that you were able to make that special pillow for your granddaughter, you know it might have been tiring for you you, but in many ways, it was probably good therapy for you too! Just don't over do it, and be careful being around people, have they talked to you about giving you anything to increase your WBC counts??

May Gods Peace be always with YOU Linda


White Beard
P.S. Steroids can be very hard on your stomach, so make sure your Doc is aware of your stomach pains! I worry too!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/21/2010 2:59 PM (GMT -7)   
Hey Linda , Thats great news ! I'm so glad for you that everything is going smoothly , thats just great to hear . Isn't it nice to have grandkids to call you up and brighten your day ! Continued sucess to you , I hope it all goes as well as it has been , good job ! , Mikel

momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 7/21/2010 3:43 PM (GMT -7)   
Thank you for keeping us updated Linda.  It's very good to hear that things are going well.  I'm sure that the chemo is hard on you.  You rest and take care of yourself.  (((((((((((((hugs))))))))))
 
love
Loretta
Dx: osteoarthritis, bursitis in left hip,  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 7/21/2010 6:24 PM (GMT -7)   
Hi Linda, Best of luck with the chemo, take it easy, pace yourself. try to eat healthily and do lots of relaxation. My heart is with you. How many sessions do you need? Or is it one step at a time?
 
Lovely to hear of your Grandaughter and her first tooth, don't you just love them? The excitement with such simple steps, I love that joy of of life they have. I'm sure she'll lift your days.
 
Best best wishes, golitho

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 7/21/2010 7:03 PM (GMT -7)   
All caps or upside down; type whatever way is easiest for you - we'll figure it out.

As for the doctor, you should have told him you were glad he got his trials done before he got to you.

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 7/21/2010 7:22 PM (GMT -7)   
(((((((((((((((Linda))))))))))))))))))))
 
XXOO
Patti

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 7/21/2010 7:41 PM (GMT -7)   
Linda, So glad to hear from you, we don't need any apologies for typos okay...
luv ya hun, stay strong, you got a wonderful spirit...the first and only toothfairy pillow I
made for my daughter was done with plastic canvas, (I can't sew and the Air Force
broke my sewing machine in our last move) and she was thrilled to get money in
it from the toothfairy for her first tooth....I still have her first tooth around here
in a dresser drawer...it was a good memory, hang on to those good memories...
(((((((((((((((((((((((((((((((((((Lindaloo))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/21/2010 8:31 PM (GMT -7)   
Lindaloo,
So glad you're updating us! I think a lot of people are tired, so just rest all you need. I think I mentioned before my cousin finished her chemo a couple of weeks ago and looks so good (even without much hair, but none of us mind and she even seems to have gotten used to it!) I can't believe it. I think her grandchildren have kept her going psychologically, too, although at times she hasn't been able to keep them (she would babysit a lot for their parents) as often as before, but that's ok. She's waiting for word on when she will start radiation, and then except for the ongoing follow-up she'll be done. Yours will pass, too. I'm just glad there are treatments out there for people like you and her!

(((((((((((Lindaloo))))))))))))

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/21/2010 9:08 PM (GMT -7)   
 
 
   Dear Linda,
 
     It is so good of you to give us an update. I am so glad to hear the port went smoothly and is making the treatments easier. One less thing to worry about. Now you have another week behind you thank goodness! Oh what wonderful news from your granddaughter too. I know you are probably very tired right, but goodness you are working very hard and it shows. I wont chat away endlessly but please know you are in our prayers.
 
*hugg*
  dani
 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/22/2010 5:54 AM (GMT -7)   
Thank you for all your responses. You don't know what it all means to me.

Last night I took a shower and most of the rest of my hair came out. I think I clogged the shower up. Oh no!! Thought I tried to get it all out. Oh well. Well, now I am into the scarves my dear daughters bought me, so I am prepared. Ordered a sleep cap last night too, so my head doesn't get cold at night too. Wish me luck folks!!

My headaches are better and I am sleeping very well so that is good.

I love you all and thank you so much for your responses. God bless all of you and I will continue to update you as soon as things change as they do


Love you all.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 7/22/2010 8:56 AM (GMT -7)   
Hi Linda

It is amazing how much body heat escapes through the top of your head, there is a saying if your hands and feet are cold to put on a hat! In the wintertime, I often sleep with a hoody on and have my head covered, or I wear a stocking cap to bed at night! ( they work great! and are cheap too!) It is truely amazing what a difference a head of hair makes in keeping you warm, ( at one time I went with the less than an 1/8 th of an inch hair style "I just could not shave my head with a razor" but it was close) I had it that way for a few months but I just could not stand it because I was so cold at night! So Linda try different hats or caps or whatever it takes to keep yourself warm! This is only temporary! The chemo affects all the fast regenerating cells the most, hair and cells lining your mouth, as you know good oral hygiene is also a must right now, but only use a very, very, very, soft bristle tooth brush! that is really important! I might sound like an old mother hen or something, sorry about that!!!, I just want you to stay safe, and well and have this all go smoothly for you!!!

Your in my thoughts and prayers!

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/22/2010 10:41 AM (GMT -7)   
Linda,
Wow it's great you've got White Beard here to give you these pointers. He should know with the work he's done. My cousin has the sleeping cap, too. I think she said it was also something soft against your head at night, as well as for temperature regulation. One thing though is she had her synthetic wig on one day while she was cooking dinner and forgot she wasn't supposed to stick her head near the oven with it on - well, she singed top of it! Good thing it wasn't anything more, and she laughed about it. So she doesn't have it on in the kitchen anymore!

I think you'll end up having a sense of humor about it all, too, and I don't say that lightly. I can't speak from personal experience, and I do realize it's a loss - and a real change of body image when we look in the mirror, but you have such a great attitude and perspective you remind me of how my cousin is handling it and she is now my hero!

I also believe a lot of it is the support she has, so I can understand why this is so important to you. My cousin has always had a strong and wide circle of friends, something I've not maintained in my life and now am paying for it. She always has someone visiting her. She'll never be without help. So don't ever be afraid to ask anyone in your life because I'll bet they'll consider it a privilege to help out!

(((((((((Lindaloo))))))

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/22/2010 5:37 PM (GMT -7)   
Hi Linda,

Thanks for the update. I'm so glad to hear that everything went well with the port & that you are tolerating the chemo. Hopefully the port will save you a lot of time and pain. You are constantly in my thoughts and prayers.

many hugs,
Skeye

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/23/2010 5:09 PM (GMT -7)   
Well, I shaved my head tonight. My DH helped me by using the clippers and the attachment. It looks better. I don't look so much like my grandmother now and I don't look so sickly. I feel better. I thought it would be more depressing but it's not, so I'm happy about that.

Just thought I would share that all with you.

God bless and have a good night.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


mama6
Regular Member


Date Joined Jul 2010
Total Posts : 416
   Posted 7/23/2010 8:26 PM (GMT -7)   
idea  Sometimes, I think when you take the sittuation into your own hands, and at least feel like you have some type of say or control back over your life, it's a relief in a way,isn't it? Stay strong, your in my thoughts and prayers, Heather
Mama6


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 7/23/2010 11:47 PM (GMT -7)   
Linda,
Kudos to you for having the courage to do that! I think mama6 has an excellent point - you took some control over the situation. And it sounds like you're a bit relieved. You're facing some things that you probably had some anxiety about (I sure would) and not letting the fear take over.

Good for you! And thank you for sharing with us!

(((((((((((Lindaloo))))))))))))))

PaLady

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 7/24/2010 6:41 AM (GMT -7)   
Hi Lindaloo,

I haven't been around much lately, but saw this note and had to reply. I am sooooo happy the port installation surgery went so well - that must be a big relief for you. The fact you have family and friends so close makes the whole situation easier to manage.

I truly laughed out loud when I was reading about your granddaughter...first tooth to be lost is a rite of passage. I'm sure your granddaughter loved her Tooth Fairy Pillow!

Keeping you in my prayers Linda...hope you are having some good days/moments

hugs,
Pam
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/24/2010 7:42 AM (GMT -7)   
Hi Linda,

I am so glad to hear that everything went smooth for you. It's about time you get a break! Please continue to keep us posted (caps and all..lol) we are all thinking of you. Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines


antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/24/2010 8:50 AM (GMT -7)   
Dear Linda,

So glad to hear that things are going okay for you!! It is hard enough to go through, without lots of problems! I also applaud you for shaving your head! It is a situation where you must have felt some control by taking things in to your own hands!! Good for you!!

Take care of you and get the rest you need!
Hugs,
Beckey

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/24/2010 4:08 PM (GMT -7)   
Linda,

It sounds like this was a really big step for you. I'm so glad that you were able to make light of such a tough situation! I don't know if I could do that. You're so very strong!

hugs,
Skeye

Hound-Dog
Regular Member


Date Joined Oct 2005
Total Posts : 183
   Posted 7/25/2010 12:21 AM (GMT -7)   
Hi Linda.....I sure hope the headaches let up soon for you but it's good to hear that everything else is going as good as can be expected.You're in my prayers.May God Bless You..........Rod

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 8/1/2010 6:09 AM (GMT -7)   
I am doing well more than a week after the recent chemo treatment. I had "noodle legs" for about a week which is supposed to happen with the chemo drug, taxol. It feels like your legs are wobbly when you stand on them. LOL just what I needed!

My head is a little sensitive surprisingly enough. I wear a sleep cap almost all the time. It is so light and comfortable that I prefer it. I can't go bald (without some sort of cover) because my house is too cool with the airconditioner at the moment. But I am comfortable with the sleep hat. Being a seamstress, I will take it as a pattern and make another one for myself soon when I am up to it.

Hubby watches me like a hawk and makes sure I have everything I need. He is really a sweetie, I must say.

I think of you all every day and pray for all my friends on healing well. You all have been so kind and supportive to me. I appreciate all your love and prayers. It has meant the world to me. And I read and re read everything you write to me. I love to hear from you all. It helps me to go what I am going through.

God bless and have a very low pain day.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 8/1/2010 8:42 AM (GMT -7)   
Linda wanted to let you know I've been thinking of you and was
glad to see yo posting today...sounds like you got a very veery good
hubby, kudos on that...
Have been saying Prayers for you...
(((((((((((((((((((((((Linda)))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/1/2010 11:58 AM (GMT -7)   
Linda,
It's always great to see you post an update. You have so much courage and spirit! I couldn't help thinking as I read your post that maybe you could get into making different sleep caps for other cancer patients one day when you're feeling better. Since me and a sewing machine do not speak the same language (I'm no good even sewing on a button!) I admire creative people like you who can turn their ideas into reality.

In the meantime, just let that husband of yours watch over you for all of us!

((((((((((Lindaloo))))))))))))

PaLady
p.s. My cousin is in the second week of her daily radiation treatments (Monday-Friday) and she's still doing great, although she told me that after the second week they said she'd likely get more tired. It was their anniversary this past week, so her and her husband went to radiation (she makes it sound like going out to lunch!) stopped at our local casino to have lunch and play some games and get their free tickets for dinner (the casino gives free meals for birthdays and anniversaries), went back home to rest a bit, and then they went back out to the casino for dinner and more fun. Like I said, she's become my hero.
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