Dear Butter Cup.
Good evening. My name is Dani. It is very nice to meet you. I am glad you came to find the Chronic Pain forum in the Healing Well Community. I hope you find this a good place for information and support.
I am sorry you have been through so much, yet still have yet to find the true source of you pain. Many people here have had to see many doctors and specialists to no avail. I wish diagnostics were more advanced.... But the sad truth is that modern medicine has yet to be able to explain many diseases and illnesses.
The only advise I can give you is to make sure that everyone you see, documents and tests every lead, to the best of their ability. Just because the source cannot be found right now... doesnt mean that someone wont be able to "put the peices" together to solve the problem later. Does that make sense? In other words document everything. Keep copies of all tests. Another thing you may want to consider is to have full diagnostics at a teaching hospital.
It was very nice to meet you. Stay strong