~ Weekly Check-In

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Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/25/2010 10:26 PM (GMT -6)   
     Well it is another beautiful monday morning! Though I would love nothing more than to dive into 95 degree water and ignore my body...... it is monday. There are tasks to complete, jobs to do and appointments that need to be kept.
      Often times we are so busy supporting others that we often forget to update about ourselves. So, before we get too wrapped up in starting out the week... please, stop by and let us know how you are doing. Even if you are in alot of pain or not in much pain, give us an update. We want to know how you are doing.
What are your major planns for the week? How are you feeling & what has your pain scale been like over the weekend?

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 7/26/2010 10:31 AM (GMT -6)   
Hey All , Well Wednesday I have to see my regular doctor , if everything is cool I'll go to the ortho-surgery dept of the other hospital the next day Thursday and hopefully get a surgery date , we'll see if they clear me , I'm sure nervous about it but I'm going for it , wish me luck family ! Mikel

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 7/26/2010 11:39 AM (GMT -6)   
Today I have two meetings at work that I call into from home (I'm working from home all the time now).

Tomorrow I have to go in for an ultrasound of my spleen and liver because my doctor is concerned that I may have hepatosplenomegaly, probably caused by Babesiosis, one of the Lyme coinfections I have. :(

On Wednesday the visiting nurse will come to change the needle in my chest port (I'm on IV Rocephin for Lyme).

Thursday I have another meeting at work. Friday ..... I don't know yet! :)

My pain levels have been holding at a steady 5 or 6, not super bad but enough to interfere with many of my daily activities. We moved recently and we are still unpacking boxes and trying to organize the kitchen, etc. There are still TONS of boxes to unpack! I've really got to get going on the unpacking chores!

P.S. Good Luck Mike! Dani, I hope you're feeling better! I hope that everyone has a low pain day!
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 7/26/2010 7:57 PM (GMT -6)   
Hi all,

I'm continuing to do well with my stimulator. Tonight's a bad night for me, but the pain involved in this "bad night" is still about 30% better than that of my normal "bad night." I'm hoping that I can decrease the pain a little more by cranking up my stim, which I will do shortly (increasing the stim causes an increase in local muscle contraction/causes my eye to close, so if I am say reading, I have to turn the sim down to a med/low setting).

I saw my ophthalmologist today & got better news that I ever could have dreamed of. My eye alignment has improved by 30%, all because of the stim (less pain = improved function). Needless to say, we were both ecstatic. There wasn't all good news though. In the last 2 months, my actual visual acuity has decreased significantly in both eyes, although hopefully, that can at least be partially corrected by new glasses. Other than that, things have stayed the same. I still have all these weird rare neurological problems with my eye & my tracking is still horrible, but overall I'm happy. We still have no diagnosis, but that's no surprise. It's been almost 4 yrs already.

I am so glad that I waited to have my stim procedures done at the other hospital (if you remember, I was initially supposed to have my trial & implant done at another hospital, but at the last minute, the hospital decided not to take my insurance, so I had to reschedule for a different hospital which did take my insurance), as I got the hospital bill today. The bill for both surgeries totaled around $150,000! I was floored! That doesn't even include the anesthesia, the surgeon's fees, or the Medtronics fees!! The crazy thing is that my insurance only paid the hospital $10,000 & if I had had this done at the first hospital, My parents & I would have been stuck with the whole $150,000 bill & expected to pay it (I expected the bill to be a lot, but I expected it to be about $100,000 less than it actually was). It's just so shocking, because working in a veterinary practice that uses many of the same drugs, equipment, etc, that human hospitals use, it is amazing to see difference in pricing (we're talking $100's vs $100,000's).

As for the rest of the week, I'm basically working every day. Today was supposed to be my day off, but I got called in to work because one of the techs was sick. We've been incredibly busy lately. One night last week I didn't leave work until 10 pm & this weekend I had to work not only all day Saturday, but Sunday as well (we had a major emergency - A dog got heat stroke hiking & was located over mile off a trail in the woods & had to be rescued by the Fire Department. It took 2 hrs just to get it out of the woods). Hopefully this week is a little less crazy!

Hope all is well with everyone.


Post Edited (skeye) : 7/26/2010 7:03:09 PM (GMT-6)

Veteran Member

Date Joined Oct 2009
Total Posts : 4621
   Posted 7/26/2010 8:00 PM (GMT -6)   
Over the weekend I got into trouble with serotonin syndrome.  My tramadol had been raised (slightly) to the ER version 100 mg morning and night.  That seemed to be working out, but then I was put on Flexeril.  It was fine for sleep and pain relief, although I had a headache to start.  The headache seemed to be going away, and then I started having clonus spasms starting in my legs and then up into the abdomen, and finally it was like getting a mild seizure.  Fortunately I had diazepam and knew enough to take 1 mg.  This morning I needed another tiny diazepam dose when I had more spasms after taking my AM dose of tramadol.
So now my pain doc has taken me off both meds and I'm supposed to start just Darvocet-N.  I'm not sure I'll tolerate it.  There's a sulfite group hanging off the napsylate molecule, and I'm sensitive to sulfite - if it comes off during metabolism.  I'll try just a half when someone is home, just in case.
So will it make me sleepy?  That will be fine at night.  Then what do I do for pain all day?  Pharmacy is closed, so I'll pick it up tomorrow.  Tonight should be fun :(

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