Increased pain / mean nurse

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Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 7/30/2010 3:09 PM (GMT -7)   
I've been packing (being evicted) & my pain has been horrible. So this was time #3 in a little over a month at my PM's for shots. And what happens but of course the nurse has to say that she thinks I'm faking or attention seeking b/c no one should need to see the PM that many times in that short of a time frame. She said she's going to talk to my PM about telling me that I can't be seen any more for another month.

What exactly am I supposed to do when I'm in pain, then? I'm not allowed to go up on my meds (& don't want to anyways). I try to be good, but I don't have a choice about the moving. I'm just about at my wits end with all the stress (physical & emotional) of everything & now I have to worry about this too. Heck, I hate going in for shots. They hurt; they cost a lot of money; and, my PM works in the middle of nowhere.

I'm just frustrated right now. The last thing I need to have to go looking for a new PM right now. :( Hopefully I can make it another 4 weeks, but things are just super busy right now & there's not much I can do about it. I do have friends coming over to help next week to help pack, so that should help. I just needed to go through things first so I knew what I had when they came to help pack, give stuff away, throw stuff away, etc. I'm moving to a much smaller place, so I can't just have them pack up everything. Oh, this pain is just really getting to me. At least I don't have to go through any more stuff. All that is done now & my friends will take care of the rest for me. :)

But still's not easy. Had to go looking for apartments today. about ready to cry from the pain of all that walking. I know where I'm gonna live now, but I'm all hunched over from the pain. :(

Hope you all's days are going better than mine.
frances

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/30/2010 3:33 PM (GMT -7)   
Hi Frances...

I hate to hear all this that you are going through :( Just the moving issue is enough, not to mention trying to move while dealing w/ pain issues. I'm glad your friends are helping you w/ the moving of things.

What the heck was the comments from the nurse? How do you think your PM will respond? What did you say in response to the nurse? Like you said, this isn't the time - with everything going on - to be needing to find a new PM (though, if this is the attitude in his office, I would probably tell you to do that eventually).

I'm frustrated FOR you! I can only tell you what *I* would do.... but, as you probably know from other posts of mine - I've had to learn to be "polite - but aggressive" - because I've been through many similar situations over the years; I don't usually deal w/ this stuff anymore - which I attribute to A) finally finding a wonderful doctor and B) I also think the fact that I DO speak up - in an intelligent manner - also has more than helped me deal w/ this type of thing.

Anyway, if it were me - I'd probably call and ask to speak to the PM directly, or drop off a letter/send an e-mail. The point I would make is - you have your "regular" medication; you are following the "rules" by not increasing your meds and so forth; you are having major pain flares due to things you are going through in your life (moving, stress and so forth) - and ask him what he wants you to do when the pain gets unbearable, because suffering through is not an option. Also, again - just me :) - I would also say that you did not appreciate the comments that the nurse made; that you would expect someone who works in a PM office to realize that pain flare-ups DO occur and, also, you don't appreciate the judgment that was made or someone insinuating that you are making this up or looking for attention; that life is hard enough dealing w/ chronic pain and the other issues that you have going on.... etc.

Again, that's just all me.. and what I would do, Frances. Regardless, I feel your frustration and wish there was something more I could do for you! I know how it is to have life continue on - and have pain issues be so bad.

Ugggh, my blood pressure is up - I need to go take my meds :) Thinking of you, and hoping you feel better --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 7/30/2010 3:36 PM (GMT -7)   
Did you talk to the doctor yourself. Because, the nurse doesn't really get to make that call. I know she has some power but only what the doctor gives her. I would insist on talking to the doctor and telling him/her about he comment and how it made you feel as well as mention to him that you are being forced to move and that has increased your pain level.


And, I am so sorry all of that is happening to you.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 7/30/2010 3:39 PM (GMT -7)   
I'm so sorry that you are going through so much right now.  Pain and stress certainly do not go well together and a mean nurse is just a pain too!
 
I hope the nurse has less power than she thinks she does.  Apparently the PM thinks you needed the shots or you would not have been given them.
 
I hope tomorrow is a better day for you~!!
Retired Mom

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 7/30/2010 4:30 PM (GMT -7)   
Oh my goodness Frances.....that is completely out of line for the nurse to make ANY comments like that!!! Just exactly who does she think she is?? She was ordered by the doc to give the shot and that is her only job!!! I am so angry because I live in a small town and we deal with a lot of the same bull! It seems like the nurses at our hospital are always just angry because they have to do something....anything...uhhh it is your job!! My sister and I both have a lot of issues going on....that involve a lot of pain! She is on oxycontin and I am on MS-contin. Sometimes you just need something to break the pain cycle so you can move on! Most of the time we go in we just get toradol but sometimes it is demoral. Regardless of which one it is....with the types of meds we are taking...neither of those shots can be considered drug seeking....especially not toradol...but they treat us like we are junkies off the street, begging for a fix! I am so tired of people who have NO CLUE about CP acting like that! I always say that I would not wish this on anyone.....but I would like some people to have to deal with it for about 2 weeks and then see what they think!! I also had a receptionist at the docs office take it upon herself to say my daughter was not getting a script refilled 3 days early....and said it came from the doctor....well my daughter had a seizure 3 hours later on my front porch because of the withdrawals from the meds!! Anyway....let me step down off my soapbox.... this is a sore subject with me....as you can tell!

I am very sorry you are dealing with that witch. while having to deal with the other stuff going on in your life right now! That is kind of the nature of CP.....it kicks you when AND because you are down!! Try to keep your head up and hang in there! Get some rest anytime you can and take care of you!!

Oh I am so mad I could just spit!

Hang in There!
Hugs,
Beckey
***Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru****Possible RA***

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 7/30/2010 4:37 PM (GMT -7)   
It really makes me sick when I hear of nurses treating patients this way. She should learn to be HUMAN.

Flower

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 7/30/2010 5:05 PM (GMT -7)   
Frances,

I'm sorry to hear what you are going though. Wow, that nurse is just ridiculous. The way she acted, you'd think that you were getting the injections because you liked getting stuck with needles or something. Come on! Clearly you keep coming back because you are still in pain!!! What an idiot! I'm sorry that you had to put up with that. I can't see why your doctor would have an issue with you coming in so frequently for injections. If they are helping, then by all means don't stop! Besides, he is making money each time you walk through that door & it's not as if you were there 3X per month demanding an increase in pain meds. Geez. You ought to complain about that lady to your doctor next time you see him.

hugs,
Skeye

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 7/30/2010 5:59 PM (GMT -7)   

 

   Dear Francess,

     Good evening *hugg* It is always good to hear from you. I am sorry to hear about the pain increases. Are you having the "trigger" injections or Epidurals? Are they working well for you? I sure hope they are especially after the extra hassle from the nurse.

     I don't talk to nurses about my care. At all. Only a select few, who are more like friends, at the spine center. I have known them 2yrs now. Aside from those three I don't discuss my health. Not even the receptionist. If I get a nosey new nurse, I just side step his or hers attempts to talk about my problems. It isnt any of their business. It isnt like they turn around and speak what you just said to the doctor either. They just being nosey. The last nurse to become aggressive with me was fired before my next appointment. I reported the behaviour right away. As far as I am concerned... just get the vitals recorded and move along!

     I really think you should report the behaviour. No reason to be spoken to or treated in that manner. Most certianly not from someone who you pay to do a service for you. Normally the nurses have a coordinator or supervisor. Call up and ask to speak with him/her and let them know what has happened.

      I can see the conversation now.. "Oh Doctor, you dont need to make money. Lets just get a new patient." ... what a joke. I can't really see a doctor letting a nurse decide the size of his pay check.   rolleyes   Empty threats are such a let down. When you see her next give her a little ruffle and say, "Whats wrong? Doctor didnt let you choose which patients to treat? Here, come take my Blood Pressure. I wont even make you wait a month.."   devil  

     I do hope you are able to get everything done. You are long over due for a break. It sounds like you have been working around the clock the last few weeks. I hope you can find a few moments to rest. You are in our hearts here.

*hugg*
   dani


 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
 
Chronic Pain Moderator

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 7/30/2010 8:03 PM (GMT -7)   
Thanks, all.

The shots I got this time were steriod/lidocaine facet injections (worst of all, I'm allergic to lidocaine -- usually he uses bipivucaine, but I didn't find out about the switch until after I broke out in hives). The time before I got epidurals.

She didn't actually say the part about how many times I'd been there or what she suspected to me, she was talking loudly to the receptionist right at the front window (about 3 feet from me & the entire rest of the reception area), while sneaking peaks to apparently see how I reacted. So not only did I hear, but my mom, the rest of the reception area & the office manager & nurses for the other doctor who shares that same reception area (there are 2 practices with one waiting area). It was just ridiculous. She didn't actually say my name, but she tilts her head toward me ("this girl") and rattles off the dates of my visits. There weren't any other female patients in the waiting room at the time, so there wasn't any mistaking who she was talking about.

This after the last time I was there & after I asked her nicely to please let me talk to my PM because the script for the new medicine was not for the same amount I previously got, and she tells me that I should just "be grateful that I have so many blessings in my life & be happy about that I'm so well off". I don't know what the #$%^ that's supposed to mean, but darn it! if I'm at my PM's office it's because I'm having a really awful day. I'm not unhappy every day, but if I cannot even walk 15 feet without having to have a family member help me & if I can't afford my medication anymore & if I'm in so much pain I can't sleep and I'm PAYING MONEY to go to a pain specialist to do something about that, I don't want to be told to count my blessings!

Oh, this lady really gets under my skin. I feel badly because the last idiot I complained about got fired. I hate to see someone lose their job, but really, I doubt I'm the only one she's being mean to & I can't understand why you would work in a pain clinic if you can't stand people complaining about being in pain.

And you know that there can't be anything wrong with her or her family because no one who's been through anything remotely difficult in life would say such stupid things. Arrrgggghhhh! I think I will say something to my doctor at the next visit. Where does this nurse get off?

She didn't even have to do anything. She just was supposed to look up when my last visit date was & decided on her own that she was going to announce to the whole office that she thought I was coming too often. I know I shouldn't let things like that get to me, but I just hear stupid little comments so many other places & I just wish that at least at the pain clinic people would be understanding.

I'd like to just kick that crazy woman down the stairs a hundred times & beat her with every household object imaginable & then take out pieces of her skull & vertebrae & crush her little nerves with fake scar tissue (I'd do the real thing if I could), and then cut her open like surgery in several places & implant an unreliable SCS in her neck & back so that she never knows when it will help & when it won't. Then I'm going to make her pack up her whole home & move somewhere else. Oh, and I'm gonna make sure that stupid people make mean little comments almost everywhere she goes. I should make her lose her job to simulate what it's like when you have to take too many sick days, but I guess she'd stop making dumb little comments after all that so I'd be nice & let her keep her "blessing" of a job. devil

Good grief. What an idiot. When do we get to leave all these morons behind & go to our happy island with the electric fencing to keep all the dumb people (including dumb people in the medical profession) O-U-T!?

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 7/30/2010 8:36 PM (GMT -7)   
frances

You really need to have a heart to heart talk with your pain doctor! That nurse should be fired and her license suspended, she has no right at all to judge you in anyway! as a nurse she is suppose to be the patients representive, to the doctor, her job is to help the patient! I could teach her a thing or two! You should not have to put up with that type of treatment from any nurse! I can not begin to tell you how much your post has bothered me, because I know first hand that there are nurses like that, and it is not right! I also know first hand how they are suppose to treat patients, I am sorry that you have had to experience that, but please do not let her get away with that, have that heart to heart talk with your doctor and let him know what she does and how she has treated you, because that is a disgrace to the profession, and it should not be tolerated!

I do wish you well frances and Good Luck with your move!!!

White Beard

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 7/30/2010 8:55 PM (GMT -7)   
WB-
You don't think I should kick her down the stairs? wink
No, you're right, though. I think I do need so say something to my PM. It's just so frustrating. There are plenty of nursing jobs around here. If she doesn't like pain patients, why doesn't she just switch to another field? The whole thing is just frustrating. She KNOWS I'm moving. She was there in the room doing surgical prep when my PM asked me why I thought I was having such a bad time lately. She knows I'm being evicted & can't just take my sweet time packing stuff up.

I don't mean to say that all nurses are bad. In fact, the other nurse who was there that day has never said anything remotely awful. She's not nicey-nice, but even though she's VERY blunt, she's never said a mean or critical thing to me or, as far as I know, to anyone else -- not even to the people who fail their U/A & she has to call security on them b/c all they do is yell. If someone wants an interim appointment, she just leaves a note for the doctor & lets him decide what to do. She was the one who got my last appointment with my PM -- the one where the other nurse (the idiot) decided I was some kind of unmanageable patient.

I just don't get all the drama. Too bad my PM can't hire someone like you to be his nurse.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 7/30/2010 9:11 PM (GMT -7)   
Thanks, Pebbles.
Gosh, I'm allergic to so much I may have forgotten to write it down. He just transferred from his old office & I had a half-page of allergies & drugs I can't tolerate all spelled out. He's never, ever used lidocaine before, so I just didn't think about it. Plus, we knew I was allergic to topical lidocaine, but he thought maybe I'd be okay with injectable lidocaine (apparently most people are). Well, lucky me, I'm not.

You're probably right about the HIPPA law stuff, though it'd be hard to prove. And she didn't actually say my name. I'm not really so worried about the other patients knowing she thought I was coming too often. Mostly I just thought it was a lousy way to deal with it. Even if her comment would have been "Frances is wearing the ugliest red shirt I've ever seen", I still wouldn't have been happy with her announcing it to the staff & patients.

If she has an issue with me, too bad. I had an appointment. Keep your comments to yourself, lady! And if you just can't keep them to yourself, buy a pet & tell your pet when you get home. Or go see a therapist. But don't be loudly relaying messages intended for me to other people while I'm 3 feet away. Man, I'm just so upset. But I need to try to sleep now. pain is through the roof but god knows there's no way i'm calling to try to get yet another appointment. i'll wait out my month. :(

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 8/1/2010 9:24 AM (GMT -7)   
Frances I do hope you will speak to the PM dr about this nurse. Otherwise, she will continue to be this snide power hungry old bag that does not have a clue about CP. Reality is, if nothing is done, if you chose to ignore this, it will continue, not only with you but other patients and this is wrong, you know this. As a patient we are entitled to to be treated with dignity and courtesy. It does not matter that she did did not look you right in the eye when this took place, she needs a new job and being a nurse is not it. I have a mouth and I don't mind calling a nurse or dr either one to the mat, my health is far too important to me than to have to deal with idiots in offices.

I am so sorry that you are doing so poorly. It just seems like not long ago things were going great for you and you were doing wonderful. You felt good, you were exercising, work was going good, life was good, what happened Frances? I worry about you girl.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 8/1/2010 10:00 AM (GMT -7)   
Frances,
Now that you explained even further...(that she said these thing so others could hear..on purpose)....What this nurse did, was not only rude and malicious...it was illegal!! She should not only lose her job....she should lose her license! That is completely ridiculous! We, as CP patients, have soooo much to deal with, we should not have to deal with this from those who are supposed to be helping us! I would like to say that I am completely shocked by her behavior, but unfortunately I can not! So many people in the health care field act the same way. I guess I do not understand why they decided to get into that field.

Anyway....I hope you are feeling a little better and the move is going okay! I believe that you should definitely speak to the doctor about this ASAP!

Take care of you......all of you!
Beckey
Purple Text***Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement***Fibromyalgia***TMJ***GERD***Severe Depression***VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uteru****Possible RA***

Blue TextMedications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/1/2010 12:48 PM (GMT -7)   
Frances,
Sorry I'm coming late to this thread, but I hardly know where to start. I think back of all you've been going through as someone who's struggled on her own to keep her home and to work, and I know that being evicted alone has to be adding so much emotional and physical pain. I'm so sorry you're having to go through this, but I am glad you have so much help.

Certainly the last thing you needed right now was what happened at your PM's office. Yes, I'd agree with others that talking directly with your PM or, even better (because it's documentation), writing a letter and marking it Personal and Confidential to him explaining all that happened, and how much it added to your stress and pain to have to deal with this on top of the moving, plus the violation of your privacy (names don't need to be used to violate confidentiality - it's anything that's identifying and certainly nodding to you, your being the only female in the waiting room, etc. are "identifying") would be the best - BUT I also understand you're probably completely overwhelmed right now and not going back for a month is the easier route to take - for now. That's really your choice, and I understand it, believe me. Overwhelmed has become my middle name. You can always do the letter later, after you've moved, but then you do miss out on some help with pain in the meantime.

You know I wonder if she was a nurse or just a medical assistant. She could have still been helping with prep for your injection, although it depends on exactly what she was doing. But whether she's a licensed R.N. or not, there are ethical and legal rules the doctor is responsible for him and his staff following and you know this. One thing I wouldn't do is worry about her losing her job, as you mentioned. If she does, SHE lost it by her behavior, not because of you. Remember that. And there's usually the option for an employee to be given a chance to correct their behavior, depending on how severe the violation was, so that's not your fault it's hers.

Whatever you choose, you'll have my support. I wish I could be there to offer you a shoulder and a hug, even though I couldn't lift boxes!

Remember to close your eyes periodically and think of that island with the electric fence! yeah smilewinkgrin Who knows - maybe that's where you're moving! cool

And when that nurse hits that electric fence, look out! smhair devil

PaLady-----> joining you on island cool

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/1/2010 6:30 PM (GMT -7)   
Thanks everyone for your kind words & support. Things are so tough right now & I really am grateful to know that some people out there really do understand. :)

Susie,
I was doing way better, but got greedy & decided I wanted to be even better so I signed up for PT for my neck. Well, that was a mess. Dangerous amounts of medication, missing tons of work, etc. I was not able to even get out of bed for most of the day for a few weeks. It was a mess. I'm still waiting on my renewal of my handicapped placard, so I am commuting like 90 minutes each way to work on the bus -- usually standing because even though there are announcements that play periodically & the bus driver sometimes even directly asks someone to please stand up, they refuse. And then I had to deal with the stress of being given 2 weeks notice that my COBRA pricing was going up $350/month. To top it all off, apparently my brilliant mortgage company went to court without notifying me & I got foreclosed on. My lawyer is dealing with that, but it all just sucks because I would have asked for some concessions (I've made peace with the foreclosure, but there are little things that would have made it less stressful & would let me put the whole thing behind me faster).

So now I've been trying to pack, look for an apartment, wrap up a ton of paperwork, etc. all while trying to decide on what to do about a permanent position (fortunately, I guess, HR people are out of the office on mandatory furlough, so they haven't been able to talk to me about what to do with the conferences if I decide to take the job). Plus, I picked up a part-time side job b/c the job I'm working right now is only 3 days a week & I need money to pay for all these doctors visits -- which is a catch 22, because working extra is not great, but if I don't work those extra hours I can't afford injections.

And I haven't been able to afford my Synthroid lately which is not great for a lot of reasons -- sleep problems, sad feelings & increased joint pain.

I am doing the best I can, but it just feels like it's never going to be good enough & stupid little comments from stupid little people just make me feel even worse. Normally I do speak up when someone says something like that, but I'm just feeling really beat down right now. I know as soon as my lawyer straightens things out (if he can) & I get into a new home, things will be better. It's just getting to that point.

frances

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 8/1/2010 6:37 PM (GMT -7)   
Thinking of you today, Frances... I'm so sorry for all the stuff you are having to deal with. Will keep you in my thoughts and prayers... and remember we are here for you. Hang in there the best you can.

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 8/1/2010 9:23 PM (GMT -7)   
Hey Frances , Man thats a lot to deal with , sorry your feeling so much pain but glad you found a new home .Geez being evicted at a time when your not feeling well is rough , you've shown great strength doing what you need to do . Some people are insensitive (like your nurse) but don't let it bother you , she sounds like an unhappy person .Hoping you feel better soon , take good care of you . Mikel

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 8/1/2010 9:28 PM (GMT -7)   
Wow, Frances, no wonder you feel like crap lady. But, remember this, you have already been there at the feeling good dept and you know how well you were doing and you had it going your way. It was a long hard struggle but you did it Frances, and you will do it again. You learned a lot along the way the first time, this time will be much easier for you. But in the future, no more getting greedy, ok, lol. Once the dust settles with the move and all, hopefully the stress level will go down and so will the pain.

You know going back to you handling this two week conference. All I will say is sometimes the grass is not greener on the other side. You found that out with the PT on your neck. With your health being where it is now, perhaps now is not the time to consider this conference deal. Get yourself back on track. I know you give 500% on anything you tackle, but right now I don't see that for you, not only that you may be setting yourself up for a very big fall that could have been avoided. Oh, darn, if things didn't have to be so dang complicated for us. Take care of yourself, I am so proud of what you have done, very proud for you.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/2/2010 5:16 AM (GMT -7)   
Susie,
I haven't been able to give more than 70% to anything in a very long time. lol

Besides the recommendations here, I've been working with a Disability Advocate who has given me some additional ideas. I'm flying out early & staying with family for a few days at the first of 2 conferences for the year. We're just going to lay low until the conference, so that takes care of the flying problem. And PA gave me a good idea about recruiting volunteers to do just about everything else for me. I've found 3 people so far who are willing to help me out (& I haven't even offered them anything yet!).
But I'm still worried about being so far from my PM. I think I probably need to talk to him about how that might work. One of the things I'm still concerned about is going from a very cold winter climate to the temperate climate of the conference location. I know switching from cooler to warmer weather often sets me back for a week or two. As much as I HATE cold weather, it does make my back feel better, so I'm not sure how this all will play out.
I do want this job. Realistically, it's unlikely I will find another job with such a flexible boss. And emotionally I feel much, much better having a job. By law, she has to allow me to make accommodations for myself with this conference stuff. My Advocate has volunteered to either talk to her individually or to put on a workshop for my workgroup. I would have 5 months to make that happen (& I work in the education field, so they do like learning -- a lot). They also love, love, love to read so if I can find some good resources for them to read that could also work.

Oh I hate set-backs. They make you question absolutely everything. Here I was thinking that things were finally okay & now it's hard to believe in much of anything. My new apartment has an indoor pool & jacuzzi (nice, right? it's only 400sf but it has nice common areas) so I'm hoping that will maybe help. Plus, it's only a few blocks from work, so no more 90 minute bus rides. :) Who knows, though? It seems like any relief is so precarious & could be lost in a moment. *sigh*

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 8/2/2010 12:33 PM (GMT -7)   
Frances, lol, things will never be ok again for a CPer. Jeesh gal, thought you knew that one. You probably did the old, man I am doing so great lets try just a little bit more, lesson hard learned by most of us, me most of all. Just stick with your boundaries once you have have your footing back and you will. I have the most confidence in you in reaching this goal again, if anyone can do it, its you. I watched you flip & flop like a fish out of water for a long time, then slowly things started taking shape for you and you did terrific.

I have both a pool and a jacuzzi and let me tell you the pool can feel wonderful on my back just by standing in the water. Forget the exercises in water, you know those are hard on a body. I walk around in my pool, I sit in a float and do leg kicks, nothing really hard. I have done the actual water therapy and remember most of it, no way will I go there the shape I am in now. My jacuzzi is great for spasms now that I have been cleared to get back in it. My prior PM dr said absolutely no to my jacuzzi because of my pain pump. My new one said oh yes you can get in it. I only have my water temp at 98 degrees, anything higher sends my BP up. The jacuzzi was bought several years ago when my PM dr had me in water therapy. He said I could do in a good jacuzzi what he was having me do so we bought one. I did not have to pay sales tax on it because he signed a form and attached a letter of medical necessity. I loved it because I could come home from work and get right in it, before it was 9:00 at night after getting home from PT. Just get clearance from your dr on these two items.

I am glad you have someone working with you on this conference thing. Just be careful is about all you can do.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

SnowyLynne
Veteran Member


Date Joined Apr 2004
Total Posts : 1539
   Posted 8/2/2010 1:30 PM (GMT -7)   
I'd be foaming at the mouth over that old gal*nurse).The Dr NEEDS to know ASAP!!!!
SnowyLynne

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 8/2/2010 7:21 PM (GMT -7)   
Snowy,
The thing is, I'm only in my early 30's & the nurse is a year younger than me. So it's not even that she's old & bitter, or tired from dealing with patients for decades of her life. She's been in the medical profession for less than a decade & has only been an LPN for less than 6 years. Gosh am I scared for her patients when she is actually old!

Thanks for the kind words.

Susie,
Thanks for the advice. I will check with my PM, esp. before getting in the hot tub. He's actually suggested trying water therapy (it helped my low back, to a point), but it's too far away & the commuting cancels out the benefit. I was sad thinking that once I start my new job I could actually go to a really great aqua therapy center (it's actually at a research hospital & is supposed to be good) except that I won't have nearly as good of insurance & my out-of-pocket will reset (currently I pay nothing for doctors, hospitals & rehab). But now that I find out I will have a pool in my building -- FOR FREE -- I am pretty excited. I wish it were a therapy pool, but this is almost as good. PM said just can't do nearly so much in the regular pool & that I need to go SUPER slow & pay attention to my pain. Hopefully things will start to turn around again.

Hope all of you are hanging in there & not in too much horrible pain.

hugz,
frances

peleegal
New Member


Date Joined Jul 2010
Total Posts : 8
   Posted 8/7/2010 10:36 PM (GMT -7)   
Frances,
I am soooo sorry all of this is happening to you right now. I would absolutely say something to the doctor. We Chronic pain sufferers need to stick together and be sure the doctors know what is going on in there office. Your doctor may not even be aware of what that nurse is doing, she may cause him to lose patients and more patients to suffer like you have been. You may actually be helping more people by talking to your doctor.

My pain management doctor just left the office I've been seeing him at for the past 8 years. I'm seeing another doctor in the practice, who also put in my SCS in April. I've been having a ton of pain after the surgery. I've called the office so many times in the past 3 months, there's a new nurse there. Remember I've been going to this office for over 8 years. This nurse refused to make an appointment for me to see my doctor. I called another nurse I've gotten to know really well over the past 8 years, she told me to come right in. When I got there the nurse who refused to make my appointment was the one who checked me in. She asked me,"I told you that the doctor wouldn't see you for at least another month, the doctor thinks your too needy, you don't really need to come in so soon, and that he thinks your just looking for more drugs." I about lost my mind. I wanted to take my cane and shove it up her ---. I remained calm for about 30 seconds and with that, I walked out of the room knocked on every exam room until I found my Dr. and told him exactly what she told me that he said. He was furious. She was following me, yelling at me that what I was doing was completely unacceptable, I didn't stop, but turned around looked at her and told her,"what you just told me is completely unacceptable." My doctor told me to go into my exam room and wait for me, he would be right back in. He took this nurse into his office. He was yelling so loudly that I heard just about every word he told this woman. What he actually said about me made me feel really good. He said,"I was one patient he was completely not worried about being drug seeking. This office has been treating this patient for 8 years, she has passed every U/A test we've given her, she fights us if we want to increase her pain meds. She was the wrong patient to mess with." Then he fired her. I felt really bad that she lost her job, but she should never have been working in a PM office if she didn't understand chronic pain. The doctor came in and apologized to me, he then gave me his personal cell phone number so I would always be able to talk to him if the office staff didn't help me.

So don't feel bad. I'm glad you've found a new place to call home. Just think of the pool and the jacuzzi as positives to everything bad that has happened. I would love to have a jacuzzi. I know that will help.

Stay positive!!!!! I'll keep you in my prayers.

Carole

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 8/8/2010 6:06 AM (GMT -7)   
Frances,

I am so sorry that the inhuman nurse was nasty to you. She has no right to judge, let alone tell a patient who pays to come to appointments how many times they are allowed to come to a Pain Management office. As to the counting your blessings bit, maybe a she should count her blessings that she still has a job. I agree that she is opening that office up to litigation. The only person who can tell you that you are coming too often is your physician. When I worked in a Cardiologist's office, we were told to keep our opinions to ourselves. We could be fired for that type of comment on the spot.

Have a heart to heart with your PM. Explain how it made you feel. Don't worry about the nasty nurse losing her job, she shouldn't be working a a nurse if she can't have some compassion. Obviously, she has never had anything happen to her or her family.

Congrats on the new apartment, but not the packing and moving part. I hope it all goes well for you and your pain lessens as you settle in.
Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, and adhesions.
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