Test results questions too...Pls read Retired Mom

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damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 7/31/2010 8:07 AM (GMT -7)   
Hi all, I wanted to ask about my thyroid test results. I went and got a copy after my doctor told me they showed I have Graves disease. Just curious if anyone knows about thyroid tests. My Thyroglobulin antibodies are within the range of less than 20, my Thyroid peroxidase antibodies are off the charts at 244 (reference range shows less than 35) and my TSI is 130 (reference range of 125). I am concerned at how high the peroxidase range is. I have looked on the internet and still can't seem to get an answer that I understand (my mind sure isn't what it used to be..lol) So if anyone knows what these tests mean, I would sure appreciate any answers.
 
Retired Mom, the reason I thought you should read this is I have the same results as you. A high SED rate it's 63, my CRP is 2.3 and my uric acid is 7.0 (right at the top of the reference range) My RA and lupus tests came out negative also. I am having alot of new and different pain (different from the fibro pain) It seems like everything hurts now, my joints, my muscles heck even my fat hurts! I also started getting all kinds of lumps and bumps everywhere and alot of swelling in my joints. My legs and ankles started swelling on and off too and I am getting more rashes all over my body. Plus my mind is worse then ever, I am even more confused and forgetful then I was, I am also very irritated most of the time. Anyway, as you can see from above I was diagnosed with Graves disease, My doctor, a rheumy and a dermatologist were all stumped by what was going on with me. My doc decided to check my thyroid cuz they didn't know what else to check.
 
I am seeing a surgeon on the 11th to see what the next course of action is. I asked my doctor if the graves was causing all my other issues and she said it could be but we won't know for sure until we get it under control then see what symptoms still hang around. Anyway, I just thought maybe you could have them check your thyroid, if nothing else then to rule out graves or hashimotos (SP?) I know how frustrated you are, I have been there. I think we all have!
 
Sorry about the short novel I just wrote...hope you are all doing well and enjoying your weekend!
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), Graves Disease, GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Omeprazole, Valium as needed, Promethazine as needed for nausea from migraines

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 7/31/2010 10:43 AM (GMT -7)   
Hi Shannon...

I have had lots of endocrine testing and so forth, and as I said before - do have hypothyroidism. Anyway, I found the following on mayo.com re: the peroxidase antibodies:

The presence of thyroid peroxidase antibodies in your blood suggests that the cause of thyroid disease is due to an autoimmune disorder such as Hashimoto's disease or Graves' disease. In autoimmune disorders, your immune system makes antibodies that mistakenly attack normal tissue. Antibodies that attack the thyroid gland cause inflammation and impaired function of the thyroid.

I'm glad you are seeing your doctor on the 11th. I know it's hard to wait, though, when you have questions and all of that. Hang in there!

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 7/31/2010 11:20 AM (GMT -7)   
Hi Shannon,

It looks like we have some of the same things going on (but I don't have the Graves). I really hope we can find the answers soon because both of us seem to have this horrible pain and no answers.

I'm going to try to find out something this week, but who knows. I'll keep you posted and please do the same with me!

I'm keeping you (and your sister) in my prayers.
Retired Mom

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 7/31/2010 2:57 PM (GMT -7)   
Hey Shannon , Sorry my friend , thats a tough break and I;m sure your feeling scared and a bit of shock , hearing news like that is never easy .Try to stay positive , theres nothing you can't deal with if you have a good frame of mind . Please keep us up to date and keep the faith . Mikel

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/1/2010 11:59 AM (GMT -7)   
Hi Shannon,

I was just re-reading your thread and thought of a couple of more things. My brain function is way down too! I even dropped almost 40 points on the last IQ test I took. Hopefully it wasn't accurated, but my daughter just got a new brain age game and I'm beginning to think the test was right. Mine, they think, is related to human growth hormone deficiency. It's rare to test for, but my endo does check and is monitoring it closely. I've also had the thyroid check so many times it's crazy, but nothing there except fot the multiple thyroid cysts. All the blood work is OK. So now I wait on what is next.

I so hope things improve for you after your thyroid surgery. I have a friend who was diagnosed with Graves and she had a total thyroid removal. She does take medication now and will for the rest of her life, but she lost a great deal of weight almost immediately and then finally got he meds right and is at a good base weight. I mention this because weight is such a problem for me no matter what I do. I keep thinkng that there has to be some reason, but I can't figure it out.

I didn't list my numbers on the tests, but it appears that our labs use different ranges. Needless to say, both of us have strange inflamation showing and no true known cause. I've known had fibro for many years and have learned to live with that. This is, as you said, very different from fibro.

I'm curious about your eyes......do you happen to have dry, scratchy eyes and blurry vision? Mine has been a problem and the Reumy was asking alot of questions about it. I even had increased pressure in my eyes last year for my vision test, but then the eye Dr said he would just check it again this year. The Reumy said that made me pre-glaucomic (sp?). I don't know what it all means yet. I'm going to get another eye exam this month (if possible) and see what is going on, but I just thought I might see if you had anything similar.

I hope things are a little less painful for you today!
 
Update for Monday:  All my hand x-rays are normal (with no arthrits present).  I still have NO answers.  Hopefully both of us will have answers soon.
Retired Mom

Post Edited (retiredmom) : 8/2/2010 9:59:43 AM (GMT-6)


damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 8/2/2010 9:10 AM (GMT -7)   
Wow...this is too wierd! i have problems with my eyes too. I have dry, itchy eyes and blurred or double vision. My last eye doctor appt he told me I had high pressure behind my eyes and that I was a high risk for glaucoma! He also told me they would check it every year and if they ever out me on steroids to let him know because they increase the pressure. My weight issue is griving me crazy too. I don't eat that much yet continue to gain. I can't believe we have all the same things going on. I thought all of mine were from the graves disease, I know that the eye problems can be.

I'm just curious what test they did on your thyroid? My first test (which was the basic thyroid test, I guess) came out normal. Then she ran the test that showed I was hyperthyroid (I wish I knew the names of the first 2 tests) then she ran the thyroid peroxidase antibody test and TSI and they both came out high, which meant an autoimmune disease and then she knew it was Graves because of how hyperthyroid I was (had I been hypothyroid it would be hashimoto's),

I sure hope they can figure out what is going on with you, it's just so strange that we have so many of the same symptoms but different things! Take care.
Gentle Hugs,
Shannon
 
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), Graves Disease, GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Omeprazole, Valium as needed, Promethazine as needed for nausea from migraines

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 8/2/2010 10:29 AM (GMT -7)   
Wow....the eye thing is too wierd.  I was grasping at straws to see what you had to say about that.  Very odd!!!  I know I've had so many thyroid tests done, but none ever show anything.  I've even had the cysts checked for cancer with fine needle aspiration.  That showed non-cancerous fluid filled cysts only.  They just keep monitoring. 
 
It really looks like something similar is going on here (in addition to the graves), but I really do hope that you find relief with the graves surgery.  I would not wish this on anyone.  I feel so lost with the continuation of "everything is fine" and then constant swelling, inflamation, pain, and so many other symptoms.  I start to think it's all in my head and then they diagnose me with something else new.   The kicker is that I have one good day (for me) and then so many bad days that I can't count.  I'm at my wits end, as I'm sure you are. 
 
I keep thinking of the Serenity Prayer (I hope I'm not offending you with that...I don't want to press religion on anyone...just to say that it helps me...even though I'm not an acive church goer). 
 
Again, I will have you and all of your family in my thoughts and prayers.  Please keep me posted.  Your conversation has been a great help to me lately!
 
 
Retired Mom
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